Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Hi Pammilonas, Im glad you found us and I hope we can help you! What a great mom to go out and look for info .. Im sure he really does appreciate that! Well , when they tested him for Hep C and he was positive this last time, did they do a PCR to see what his viral load is? Lots of people do clear this virus on their own and Im wondering if the second test they only did the test for antibodies. Once one has hep c, you will always test pos for it even if you have no viral load. Ask him if they tested to see how much virus was in his blood and if they didnt do that, they need to do that asap. If he has no viral load, then he is still clear of virus. Does this make sense? If not, let me know and Ill try to explain it better. In the meantime, he needs to take good care of himself, drink lots of filtered water (tap water has all sorts of minerals and gunk in it etc), eat lots of fresh fruits and vegies, lean proteins and NO ALCOHOL, none, nada, zip and if he does have any virus , the alcohol will make it replicate twice as fast. Milk thistle is good and Im glad he is on that,, make sure its the siliphos bound milk thistle and not just simple silymarin.. the siliphos bound is 10 times more effective or so I have read.. Make sure he runs everything BY HIS DOC tho before he takes anything as his doc knows what his labs are and his medical condition and is the best person to evaluate everything. Let us know if there is anything we can do to help... and welcome to the group! jax moderatorpammilonas <pammilonas@...> wrote: My 29 yr old and otherwise healthy son is working on his sobriety after years as an IV drug user. About two years ago he was diagnosed with Hep C but after retesting every 6 months was told that he was a member of a small group in the population for whom the virus did not take hold. He has never had any symptoms.He recently returned to the gym and began an intensive supplement program along with his workouts. He began to experience extreme generalized itching. He eliminated the supplements and started drinking a lot of water. The itching continued and my son went to a doctor. A blood test was taken and my son was informed that he has Hep C. Because my son had continued to use drugs after his initial diagnosis, we are uncertain if he reinfected himself.I have searched the web and my son does not show any other symptoms other than the itching. He does not have health insurance. He is applying to the state for a health card but this takes time and the itching is is at times very distressing for him. He is taking milk thistle. Does anyone here have any suggestions.Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Even after surgery you will always have A.The surgery makes it livable.You just wont have the many issues as you do without surgery.Does this make sense? I hate to hear of all your problems-it sucks the way things are when it comes to not having insurance and needing help but if you work you dont qualify....what the ???? Makes no sense! I know on here got some kind of help but n ot sure how or from where with her surgery I believe.Hopefully she will post and tell you.I havent seen her on for a while though.I need to give her a shout to seew hats going on with her anyway.Other people here may have suggestions as well. Be patient though on responses here till Monday,weekends are kinda slow. Best of luck, let us know what you find out or if you dont have any luck.Well all see what we can figure out to help you. Tonia -- In achalasia , " taztaz6 " <taztaz108@...> wrote: > > I have just been recently been diagnosed with achalasia, I am 36 years > old, living in CT. I have done the swallow, the mobility study and the > endonoscopy. Saw the surgeon who schedule it for the 9/10. He knew I > had no health insurance and needed it, well make a long story short, > hospital put it on hold, trying to get some assistance, like free bed > stuff( they said it would cost over $30,000)....but guess what because > I work. I am over income!!!(Single mom of 2 kids, 1 disabled). So as > of Thursday I quit my job tring to get help......I just hope I don't > lose my house I have worked so hard to get.....I was just reading up on > it and somewhere it says even with surgery you will still have the > disease....which brings me to my question ....Can I go back to work or > will it effect me for the rest of my life? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Hi there, Sorry to hear about your recent diagnosis and the problems involved. These American insurance issues are terrible to read (I am from Europe and over here in Holland everyone is obliged to have health insurance, it costs you, but it pays back a lot more...). Back to your worries about going back to work... You are right: achalasia stays for life... But your symptoms will probably lessen that much post surgery, that you will be able to live a pretty normal life. Indeed you need some time off after surgery as to heal again, but after that things will really soon turn back to normal again. You will always keep heaving some swallowing difficulties etc., but things will get a lot better post surgery. So yes, achalasia will effect you for the rest of your life, but not in a way that it will control the rest of your life! There will be good times and some bad, focus on the good and I'm sure you'll make it. I am 34 years old and have achalasia since I was in my teens. Nowadays I am married, mother of 2 and I work 2 days a week (+ some extra whenever I find some spare time). I live a pretty normal life, together with my achalasia ups and downs. Love, Isabellataztaz6 <taztaz108@...> wrote: I have just been recently been diagnosed with achalasia, I am 36 years old, living in CT. I have done the swallow, the mobility study and the endonoscopy. Saw the surgeon who schedule it for the 9/10. He knew I had no health insurance and needed it, well make a long story short, hospital put it on hold, trying to get some assistance, like free bed stuff( they said it would cost over $30,000)....but guess what because I work. I am over income!!!(Single mom of 2 kids, 1 disabled). So as of Thursday I quit my job tring to get help......I just hope I don't lose my house I have worked so hard to get.....I was just reading up on it and somewhere it says even with surgery you will still have the disease....which brings me to my question ....Can I go back to work or will it effect me for the rest of my life? Need a vacation? Get great deals to amazing places on Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2011 Report Share Posted July 24, 2011 My husband has just been diagnosed with CLL last Wednesday, July 20. His white blood count is 16,000 and he is strong and in great condition. We go to a hematologist on Aug 11. Can anyone tell me what questions we should be asking? Thank you so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2011 Report Share Posted July 24, 2011 Hello Ann, There was a very recent discussion with the subject " Newly Diagnosed " . Here are two very comprehensive responses that should give you a greater understanding of CLL: /message/15514 /message/15515 The archive is restricted to members with a ID. Follow the instructions on this page for Free Registration: http://help./l/us//edit/registration/edit-01.html Hope that helps, , volunteer moderator Quote Link to comment Share on other sites More sharing options...
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