Re: Not all symptoms are due to CLL

[Guest guest]

Yes, that is one of the things that my hem/onc did immediately upon my

diagnosis, was to order a thyroid scan. It was NOT my thyroid, however. We

might find, Ellen, that many of our hem/onc do this, even though yours may

not have done so. I know you are a proponent of W & W, and that is well and

good, but I would rather have had those six Rituxan infusions five years

ago, and feel great, as I have since 2006 than to have spent those five years

feeling as badly as I did during part of 2004, all of 2005 and until

treatment in '06. I was being tested for everything, except cancer. So,is not

everyone's answer, even though checking the thyroid IS definitely a wise

move.

Norma Oxley

In a message dated 2/24/2011 2:16:53 P.M. US Mountain Standard Time,

rhudy@... writes:

For those who are fatigued, but with counts still looking

pretty good, I'd like to suggest that they explore other

reasons for the fatigue. One that comes to mind is the

thyroid. Thyroid conditions are common and can lead to

extreme fatigue. Not everything that bothers us is due to

CLL.

Ellen

[Guest guest]

Check those " D " levels also! It's amazing how much better I feel once

I got my level up!

Sent from my iPhone

On Feb 24, 2011, at 4:08 PM, Ellen <rhudy@...> wrote:

> For those who are fatigued, but with counts still looking

> pretty good, I'd like to suggest that they explore other

> reasons for the fatigue. One that comes to mind is the

> thyroid. Thyroid conditions are common and can lead to

> extreme fatigue. Not everything that bothers us is due to

> CLL.

>

> Ellen

>

>

[Guest guest]

Both my thyroid and my D levels were checked. But I agree - look at all

other possibilities. I wondered if I had an undiagnosed minor infection

going on - such as a sinus infection. But since I wasn't running a fever,

had no problems other than a minor recurring sore throat, they didn't

suspect that. I guess that the fatigue is what made me suspect something

was wrong with me over a few years before my actual diagnosis and the doctor

at OSU did indicate that this is something that happens even with watch and

wait patients. And I have grown in my confidence to know that is it fatigue

and it was disease-related. After treatment, I could work out and even

though I was initially tired, it energized me - to the point I had to stop

working out in the early evening because I couldn't sleep soon enough. That

is what I used to have before when I felt healthy. Ruth

On Thu, Feb 24, 2011 at 3:08 PM, Ellen <rhudy@...> wrote:

>

>

> For those who are fatigued, but with counts still looking

> pretty good, I'd like to suggest that they explore other

> reasons for the fatigue. One that comes to mind is the

> thyroid. Thyroid conditions are common and can lead to

> extreme fatigue. Not everything that bothers us is due to

> CLL.

>

> Ellen

>

>

>

[Guest guest]

CLL fatigued may be caused by a release of cytokines and chemokines

triggered by the remaining 'good' B-cells.

This theory was put forward by Dr. Keating in 2004

and it has been discussed by Dr. Hamblin on this blog.

So, it is more like feeling 'sick' than actual fatigue...I have

experienced this for the past 15 years...

~chris