Guest guest Posted January 29, 1998 Report Share Posted January 29, 1998 What do you mean is the line being tapped? > Postings > > > From: User102241@... > > I submitted a report to the Onelist regarding the veterinarians and the > results of the survey. It never appeared. I don't know where it > went. Also, > I haven't received anything today. Is the line being tapped again!? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 1999 Report Share Posted January 29, 1999 Just a little humor.... I hope! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 1999 Report Share Posted January 29, 1999 Larocque wrote: > > From: " Larocque " <rlarocque@...> > > What do you mean is the line being tapped? > > > Postings > > > > > > From: User102241@... > > > > I submitted a report to the Onelist regarding the veterinarians and the > > results of the survey. It never appeared. I don't know where it > > went. Also, > > I haven't received anything today. Is the line being tapped again!? > SHE MEANS BIG BROTHER IS PLAYING AGAIN, JIM GREEN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 Dear Misty, I do not take issue with the content of the material you have been posting, but I do object to your treatment of this list as a bulletin board for the posting of naked urls. Stop it. List moderator Dr. Saul Pressman VIDEO: Vaccination: The Hidden Truth (1998) Comments? Misty L. Trepke searching-alternatives ps- Please check and double check that has not put any spaces in the link's url. VIDEO: Vaccination: The Hidden Truth (1998) http://video.google.com/videoplay?docid=8610554679207090010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2011 Report Share Posted September 17, 2011 Wow, are our postings getting sophisticated or what. Once before we tried to pen a " basic " group, but there was no activity on it. Are people satisfied with level of discussion now? Sometimes I think our members know more than non-specialized oncologists. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2011 Report Share Posted September 17, 2011 Hi , I, for one, am very satisfied. I can ask any question without feeling " dumb " and appreciate the high level of discourse in the replies and general discussions. Best wishes, Q wrote: > Wow, are our postings getting sophisticated or what. > > Once before we tried to pen a " basic " group, but there was > no activity on it. > > Are people satisfied with level of discussion now? Sometimes > I think our members know more than non-specialized > oncologists. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2011 Report Share Posted September 17, 2011 This group has been a fountain of knowledge and encouragement for me. I really appreciate the sharing of info and experience. By the way, I called MD about going for a second opinion on treatment options. They quoted a price for that of $22,500. I almost dropped the phone. My insurance will not pay because it is out of my service area. Will be seeing a well-known oncologist-hematologist in Ft. Worth for a second opinion. Just thought I would share that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2011 Report Share Posted September 17, 2011 This list is terrific. And I agree, I do think that many members know more than their " local " oncologist. We are blessed to have a knowledgeable one, and one who listens to us, and is more than eager to work with the real CLL specialists (we'll be seeing our 3rd CLL specialist in a couple of weeks because there are even specialists among the specialists!). But we wouldn't have known to ask and who knows where we would be now. Thanks to everyone and especially to the docs who spend (unpaid) time here answering our questions. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2011 Report Share Posted September 17, 2011 Hi Guys - I want to thank everyone for their caring & sharing on this list. It has been a BIG help to me. The discussions here contain excellent CLL information & commentary. This group (along with CLL Topics, CLL Updates & CLL Canada) make up my CLL University where I get my " continuing CLL education. " In the 2 years since my Dx I have spent considerable time learning about CLL. This enabled me become an informed CLL patient (which helped me ask the right questions and then find the right medical team to monitor my CLL). It took almost 2 years to find a local hematalogist / oncologist that welcomed my involvement as an informed CLL patient. My new local H/O is an excellent doctor (part of the new UCLA satallite hematology/oncology office in my area). My CLL expert is Dr. at UCSD (backed up by Dr. Eradat at UCLA). I also have an excellent local PCP who looks after me like a mother hen (and is an important part of my CLL team). Again, thanks to all of you for your excellent commentary & sharing. You are a big part of my continuing CLL education. Warm regards - Patti Kruse Dx 2009 (w/w), IgVH mutated, 13q (bi-allelic deletion) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2011 Report Share Posted September 17, 2011 Hi Sylvia. Thanks for sharing your info about M D . I am seriously considering going to MDA for a second opinion which is the closer of CLL specialist for me. I was shocked at the price you quoted. Do by chance know what that included? Thanks, YuVonna Sylvia wrote: I called MD about going for a second opinion on treatment options. They quoted a price for that of $22,500. I almost dropped the phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2011 Report Share Posted September 18, 2011 I just joined the listing in Feb. 2011, after my dx in Jan. 2011. I can't even begin to express how much help I have received from this group. The knowledge of this group is current and vast. I avoided a way-too-soon FCR treatment by going to a CLL expert. I have been given hope that I will see my son's wedding in May 2012 (which I will need to travel, something I also learned about on this listing) and maybe will see grandchildren. I have had wonderful email exchanges from people that have freely shared their experiences and their philosophies in life...truly an inspiration... I have gained emotional strength through this group and, to me, that equals the knowledge I have gained. Thanks to all, Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2011 Report Share Posted September 18, 2011 I went to MD for a second opinion in May 2010 and it cost me about $20 dollars. I am on Medicare and have a supplementary policy that pays 80% of the 20% that Medicare does not pay. I was not referred by another doctor but called the number that was online for an appointment with a cll expert. I was assigned a coordinator who took all my insurance information and did all the contacting of them. When it was all approved, he called me back with the appointment. I was very satisfied with my appointment and my follow up appointments with Dr. O`Brien. She put me on Watch and Wait when a regular oncologist was ready to start treatment then with Rituxan. Dr. O`Brien has said I have a very slow developing case and may never need treatment. I decided to go for the 2nd opinion thanks to this group. I am so very thankful I did because I have learned so much about cll and realized if I had done treatment, it would probably made it worst. All I have is a slightly elevated white blood cell count with no lymph nodes or organs involved. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2011 Report Share Posted September 19, 2011 I remember those old days , amazing how much good work you have done during these past years. It makes me feel so good to see how this educational list has grown and the quality of the postings and wonderful people. Best Regards Chonette (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2011 Report Share Posted September 19, 2011 I too would like to add my thanks to everyone involved in this group! I was dx in Jan 09 and since then have been learning all I can about CLL. I am in the Natural History trial at NIH and see my local oncologist quarterly. Since I was dx I have been at my daughter's wedding, had our first grandchild and will have our second in February. Even when I don't understand all the postings in this group it encourages me to just learn more. Thanks to everyone and especially to the doctors who are willing to share their knowledge with us all!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2011 Report Share Posted September 22, 2011 , The group is terrific, I have been a member now for 6 yrs and you provide a valuable service to us all. I know you put a lot of time and effort into this group and I for one am grateful. I hope you are well. R Adks NY and AZ Quote Link to comment Share on other sites More sharing options...
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