Re: Prognostic markers - follow up?

[Guest guest]

I had my immunphenotype and cytogenetics redone about 3 or 4

years ago, for whatever reason. But now when I look back I

wonder, why? I had no intention of beginning treatment, so

what was the point?

Same with a CT scan. I haven't had one of those in over 5

years either, because no matter the results, I don't plan on

doing anything.

All I do now is a monthly CBC, LDH and creatinine, + plus

the occasional beta2microglobulin. I'm not even sure why I

do that, other than it gives me some peace of mind, as well

as something to look forward to every month.

Best wishes,

Marc - Long Beach, CA

Dx atypical MCL(CD5-) Stage 4, Leukemic Phase 3/26/02 (age 53)

96.9% mutation of V4-59 gene, p27KIP1 = .48

Current status - Age 63, Stable Disease??, No TX yet

http://livingwithmcl.com

The future is just a concept we use to avoid living today

[Guest guest]

When i asked my doctor about doing tests after 6 years of

normal labs, especially since some of them were never done

when I was diagnosed, her answer was that there is no reason

to do them unless you are considering treatment (I suppose

that meaning that you have become symptomatic) because the

numbers change. The same day Dr. Furman posted essentially

the same answer here, so...... I'd like to know what's

going on inside me, but I guess as long as I have boring

labs I'll settle for that.

Pat