Re: 17P deletions

[Guest guest]

A 6.5% deletion is probably not significant.

Terry Hamblin MD

Dave wrote:

/message/15497

" I have 53P deletion 6.5% "

[Guest guest]

Lynn,

I have wondered the same thing. I have 53P deletion 6.5%. I

have thought until recently that I had 17P. But I understand

they are the same. I had RF finishing 6 rounds in 7/05. I

didn't have the test until two years later. My counts

quickly went to normal during treatment, but were already at

12K by 6 months later. That makes me think that I had the

deletion when treatment was started since it didn't hold for

long. However I have required no additional treatment now

for six years and have no other problems. My lymphs have

bounced from 150K to 200K and back for over two years. But

no need for treatment on the horizon which is all I care

about. I will be concerned about the P53 when I next need

treatment which will eventually happen if I live long

enough. Until then I am not concerned about when the P53

happened. Statistics I read some time ago say that P17 or 53

CLLers have two to three years to live. I have made it 8

since DX and still expect to die of old age and not CLL. If

you are currently having problems, I apologize if I appear

flippant. But in my opinion stress and worry can do us great

harm.

Dave