Re: Exaggerated response to insect bite

[Guest guest]

Hal, Yes I was just hopitalized in may for a bite and had

to have antibiotics and a debridement done! I had a huge

blister on my leg!

There's a steroid prescription cream that helps before the

blister it's called triamcinolone Acetonide cream also

benadryl gel at first bite might help Antibiotics sooner

rather than later it's sure scary!

Suzanne Cll for 9 yrs

11q on cal 101 trial after being treated plenty

[Guest guest]

Hi Hal,

Below is link to an excellent article 4/25/10 on the CLL

Topics Updates website titled " Insect Bites " by

Venkat. If you register you can then read through all the

informative comments by the registered members of CLL Topics

Updates.

http://updates.clltopics.org/2214-insect-bites

Two comments I found helpful were (1)4/25/10 by Venkat

about d-Limonene and (2) another on 5/21/10 about tea tree

oil. I have found both these agents to be helpful in the

manner described in the comments.

Good luck - Patti

[Guest guest]

Yes, when I get bite from mosquitos or other insect, same

happen to me. I use a herb that I place on my bites and it

helps get the swelling down and healing process.

[Guest guest]

- What herb do you use? Thanks.

Pat

On 7/2/11, VanHorn <mvhorn57@...> wrote:

> Yes, when I get bite from mosquitos or other insect, same

> happen to me. I use a herb that I place on my bites and it

> helps get the swelling down and healing process.

>

>

>

[Guest guest]

I used to get massive welts the size of a small dinner plate

from mosquito bites, about 2 yrs. ago, that lasted days. I

was afraid to go outdoors. I even went so far as to get

mosquito netting clothing to wear on top of my shorts and

top. Then, lo and behold, something clicked, and for the

last 2 yrs. the mosquito bites are normal-sized, no super-

reactions. And it has been only since 2011 that I starting

treating the cll. The body is very strange. This may be a

condition that resolves after a while, at least it did for me.

Ellen

[Guest guest]

It's called Cantron, you can only get it on the internet.

http://www.cantron.com/home.htm

Mod's note from : As this is alternative medicine,

this will end the on-list discussion of Cantron.

[Guest guest]

Yes Hal I am a beekeeper and now keep an Epipen. I have to

be very careful and had some reactions they called Bullous

from bee stings. Uncomfortable and ugly but I try to be

more careful. Other bug bites are exaggerated but not to

the level the bee stings give me. No I have not thought of

giving up beekeeping that would be the logical thing to do.

When I harvest 8-10 gallons of honey it is hard to give up

this hobby.

[Guest guest]

I am sorry for the bad reactions others are having to

mosquitoes. I had felt I was lone with this malady.

My first exaggerated response to mesquito bites was the

spring during my first CLL treatment after a 14 yrs watch

and wait period. I don't usually feel I am being bit. The

bites swell within 12 hours, get to the size of 1 to 2 inch

in size turn red bluish, almost purpura like, have a clear

blister in center, are painful and ITCH and take about 2

weeks to heal -- leaving a permanent brown spot. The bites

on my arms and face swell, get large and take as long to

heal but do not get the blood-shot blister reaction the

lower legs do. Since I was getting them mostly on my lower

legs (the area exposed) my family doctor, my oncologist, and

a dermatologist were of the opinion they were not mosquito

bites.

I seem to draw the critters when no one else it being

bothered by them. I have used the strongest repellents which

would not assure me more than an hour protection.

Another dermatologist ask my blood type. She told me people

with A negetive blood type draw mosquitoes and my CLL causes

me to over react to them. Has anyone else heard of this

correlation?

This year after four years of this severe problem I have

worn long pants even during our drought and 117 degree

weather and stayed inside (not a year one would want to be

outside).

YuVonna

[Guest guest]

YuVonna, I have the same problem no one else will get a bite

but I suffer whenever I get bit and rarely do I feel it !

Eventually it turns into this horrible blister ! We went on

vacation and I ended up in the hospital from a bite! My

husband may not come with me much longer! I love to travel

and I do not want to totally give it up! I've had to give

up my job that I absolutely loved! This illness is really

hard to fight! I have the 11q and a aggressive form of cll I

have done fcr numerous clinical trials and currently taking

cal 101 but now I have to have IVGG every month for my

immune system is anyone else in this situation?

I can send a photo of the blister on my leg to see if it is

the same just email me bugs seem to love me!

Suzanne

[Guest guest]

Hal, Yes, I'm sorry to say that this exaggerated reaction is

common in people with disturbed immune systems, like us with

CLL. I had the same reaction as your wife last year - and

that was right after treatment while I was supposedly in

remission. This summer, I do have a sensitivity but it

doesn't seem as bad. I cover myself with insecticide - the

hard stuff with deet - whenever I go outside. That also

helps!

If you search this group for mosquito or bug bites you'll

get an earful.

I wish your wife all the best!

Marietta, d 2003 rituxan/fludarabine;

2010 rituxan/bendamustine

[Guest guest]

For those with exaggerated responses to insect bites, has

anyone found that starting IVIG or going through treatment

lessens the problem? So far I have not had the exaggerated

response except for one bite that developed into a

cellulitis that spread from fingers to elbow before

diagnosis, but insects do love to chew on me and repellants

don't seem to do anything. I read somewhere that they don't

like the smell of dryer sheets. I'm ready to tape those on

my arms and legs when I go outside.

Pat