Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Absolutely on the copper, we had a non-bariatric patient in our hospital that iw permanently wheelchair bound after taking excessive hair, skin and nail supplements with very high zinc. She developed permanent myopathy from copper deficiency.Other medical etiologies should be ruled out as well, ie mitochondrial dysfunction -- there are a few myopathies related to this, but rare and may not surface until late 3rd or 4th decades.I will think on this some more as well.Jeanne Blankenship, MS RDOn Jan 28, 2010, at 8:05 AM, Beth Taschuk <bethhanne@...> wrote: Good morning: I have a patient 5 months out of band surgery with complaint of fatigue. Patient reports it is so severe that she can no longer exercise and barely function. Her labs were all wnl except slightly low Vit D and Zinc. Per patient she has been on Zinc for years per PCP for fibromyalgia. Her calorie level and protein level is appropriate. An increase in intake did not improve her energy level. Any suggestions? Her PCP and surgeon do not have answers for her. Given that Zinc can interfere with Cu absoprtion should I check copper? She does not have other symptoms besides fatigue. Thank you for any suggestions. Beth Taschuk RD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 If she is chronically on even low level (upplementation of zinc it could affect copper status. And from my understanding zinc and copper levels are difficult to accurately measure. I’ve read about supplementing copper with the zinc. Or maybe she could lower her daily zinc dose to the RDA. Amy Long Carrera MS, RD, CNSC Clinical Dietitian Northridge Hospital Medical Center & Center for Weight Loss Surgery 818-885-8500 x 4034 amy.long@... From: [mailto: ] On Behalf Of Beth Taschuk Sent: Thursday, January 28, 2010 8:06 AM To: Subject: extreme fatigue Good morning: I have a patient 5 months out of band surgery with complaint of fatigue. Patient reports it is so severe that she can no longer exercise and barely function. Her labs were all wnl except slightly low Vit D and Zinc. Per patient she has been on Zinc for years per PCP for fibromyalgia. Her calorie level and protein level is appropriate. An increase in intake did not improve her energy level. Any suggestions? Her PCP and surgeon do not have answers for her. Given that Zinc can interfere with Cu absoprtion should I check copper? She does not have other symptoms besides fatigue. Thank you for any suggestions. Beth Taschuk RD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 You could check a serum carnitine level or just try carnitine supplementation. We use Carnitor - 330 mg three times per day (this is prescription). This can greatly help with fatigue as it is required for fat burning and many overweight people have insufficient amounts. Even if a serum level is normal, there muscle stores may be low, so really the only way to tell if it helps is a trial of this or even a higher dose for at least a month. Bartholomay, LRDManager, Nutrition TherapyMeritCare Health Systems.Bartholomay@...(701) 234-6166Strengths: Arranger, Ideation, Adaptability, Empathy, Maximizer>>> "Long, Amy - NHMC" <Amy.Long@...> 1/28/2010 10:57 AM >>> If she is chronically on even low level (upplementation of zinc it could affect copper status. And from my understanding zinc and copper levels are difficult to accurately measure. I’ve read about supplementing copper with the zinc. Or maybe she could lower her daily zinc dose to the RDA.Amy Long Carrera MS, RD, CNSCClinical DietitianNorthridge Hospital Medical Center & Center for Weight Loss Surgery818-885-8500 x 4034amy.longchw (DOT) eduFrom: [mailto: ] On Behalf Of Beth TaschukSent: Thursday, January 28, 2010 8:06 AM Subject: extreme fatigue Good morning:I have a patient 5 months out of band surgery with complaint of fatigue. Patient reports it is so severe that she can no longer exercise and barely function. Her labs were all wnl except slightly low Vit D and Zinc. Per patient she has been on Zinc for years per PCP for fibromyalgia. Her calorie level and protein level is appropriate. An increase in intake did not improve her energy level. Any suggestions? Her PCP and surgeon do not have answers for her.Given that Zinc can interfere with Cu absoprtion should I check copper? She does not have other symptoms besides fatigue.Thank you for any suggestions.Beth Taschuk RD This e-mail message is intended only for the named recipient(s) above and is covered by the Electronic Communications Privacy Act 18 U.S.C. Section 2510-2521. This e-mail is confidential and may contain information that is privileged or exempt from disclosure under applicable law. If you have received this message in error please immediately notify the sender by return e-mail and delete this e-mail message from your computer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2011 Report Share Posted July 16, 2011 I was diagnosed in 1991 and the good news is that I have passed the 20 year anniversary and my recent BMB shows .8% CLL cells. I have had two series of Rituxan + HDMP tx in 2006 and spring 2010. Dr. Kipps is running additional tests on the bone marrow. The bad news is that I suffer from increasingly incapacitating fatigue and frequent incapacitating very heavy day and night sweats. My lymph nodes and spleen are not significantly enlarged. I have IViG infusions every three weeks. WBC .3; RBC 4.94; Hg 13.6; Abs Neutrophils 4.9; Platelet count 116; Abs. Lymphocyte 1.0. My PCP is befuddled. Have consulted with clinical pharmacologist re drug interactions. Any thoughts or ideas would be appreciated. Jim Little Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2011 Report Share Posted July 16, 2011 Pat: I'm not a CLL sufferer, but I did experience elevated PTH due to being low in Vitamin D. My endocrinologist put me on mega-doses of D (100,000 IU/week) for about 6 weeks. It resolved my low D, and my PTH came down as well. Something to look into. Did you have your Vitamin D levels checked? Pat wrote: /message/15562 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2011 Report Share Posted July 17, 2011 Will be interested in the replies you receive. I am having the same symptoms..... EXTREME FATIQUE and Heavy sweating during day and night and I often think I must have an odor like when you have the flu and your fever " breaks " . My husband keeps assuring me that is not true but I want to take a shower anyway! I know it is summer, but this is not that type of sweating. Sometimes the sweating is so bad I actually get nausea. My test come back " normal " for CLL, in that there is nothing showing up that is any more unusual than before. Sweating has been going on for about 4 months and fatique for two. Good luck and I look forward to your replies. JP Quote Link to comment Share on other sites More sharing options...
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