Prednisone

[Guest guest]

In a message dated 1/8/00 12:15:48 AM Eastern Standard Time, tab@...

writes:

<< But that is the basic problem -- patients with severe asthma or

> rheumatoid arthritis who take cortisone long-term risk glaucoma,

> thinning bone density, and a long-term shut-down of their immune system,

> sigh. I believe that 0.2 mg. prednisone is the max you are supposed to

> take (2 mg.?) -- >>

Hi Group,

Just my 3 cents worth per prednisone. The number one and fatal side effect

of the drug is kidney failure. With our immune systems being compromised, we

certainly need our viscous blood filtered.

BTW, I agree with Susy Dog per posting. Hoping this list will be open to all

views.

Cheryl

DX with FMS & CFIDS for four years and on ampligen for 9 months--Now

anxiously awaiting CHIARI surgery for brain herniation on Feb. 22nd with Dr.

Rosner, which has the same symptoms as CFIDS.

[Guest guest]

Prednisone causes fat to deposit between the shoulder blades & the abdomen,

this cause the " hump " ne

>From: wishkas@...

>Reply-egroups

>egroups

>Subject: Prednisone

>Date: Wed, 19 Jul 2000 22:02:43 EDT

>

>My best friend was/is on Prednisone. I can't remember if she still is or

>not.

>I know she was really bloated before and she thinks she has a " hump " . What

>is

>it for? I forget....

>

>^,,^

> >:<

>**** @lison

>

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hi Aisha,

Good to see you back with us!

Prednisone as been proven to assist boys with DMD maintain their mobility

for longer and there is suggestions that it can also help with their

breathing and lung function.

Most boys are on prednisone long term (years) and I do know about the awful

side effects!! It is an extremely agonising decision as does have

some problems with bronchial asthma so his lung function and breathing could

be compromised later by his DMD. The doctors tell me the prednisone could

help with this.

I have done much research and spoken to many parents whose boys are on or

who have been on prednisone.

I have heard of good and bad results with the weight gain being the biggest

concern as this can then counteract any benefits the boys receive as well as

putting more of a strain on the heart and lungs.

There are divided opinions among the health professionals too which makes it

even harder for a parent to know what is the right thing for their child.

Our doctor is talking of a new regime where they put on for two days

a week (incorporating a whole weeks doses). He says this seems to minimise

the side effects and the weight gain. (I am not sure of the actual dosages).

I am still unsure of my final decision.....I wish it was one I didn't have

to make :-(

Any input you would have on the subject would be greatly appreciated!

Rae :-)

[Guest guest]

Hi Rae,

"Good to see you back with us!"

Thank you sweetie, I'm sick as with this awful virus... *grumbles* .... there is always something!

"It is an extremely agonising decision as does have some problems with bronchial asthma so his lung function and breathing could be compromised later by his DMD. The doctors tell me the prednisone couldhelp with this. <snip> I have heard of good and bad results with the weight gain being the biggest concern as this can then counteract any benefits the boys receive as well as putting more of a strain on the heart and lungs."

Well in that case I dont think you have an option. Its like me, I have to be on immune supressants to control the disease, but that in itself causes other problems. But what is worse? Simple, The disease.

Many people take prednisone and are fine - and many take it and find it to be a miracle drug. Others have problems.

The weight is an issue, but its not fat weight, its drugged weight. There really isnt much you can do about it.

"Our doctor is talking of a new regime where they put on for two days a week (incorporating a whole weeks doses). He says this seems to minimise the side effects and the weight gain. (I am not sure of the actual dosages)."

To me that sounds like a mistake. Having been on and off prednisone on every concievable way including IV, its better to be on a consistant dose then starting and stopping it.

It takes over the function of something to do with the adreanal gland. So when you stop it, espeically suddenly, you have severe withdrawal. And I mean SEVERE. It is a drug that works quickly, but needs to be taped off slowly to avoid withdrawal. I cant see how having it two days then stopping would be a good thing for his health?? I would have concerns about it. Especially since I have been on it and come off it. If you want me to check with my specialist about it I can run it past him. He knows his drug stuff.

I know a man who has been on pred for years and will be for the rest of his life. Has no problems with it at all. Not even weight - he has put it on, but knows there is nothing he can do so has accepted it.

If it is going to help your son you are not really left with much of a choice other then to try it. I knew a woman who called it the miracle drug. But I'd be very careful of the idea of having a higher dose for 2 days and then none. That does not sound good. A smaller dose and consistant would be far less traumatic on the body.

"I am still unsure of my final decision.....I wish it was one I didn't haveto make :-( "

I wish you didnt also hon. It must be terrible. "Any input you would have on the subject would be greatly appreciated!"

Well from what I know, have heard etc, my opinion would be to try him on a low dose such as 10mg a day each day for a while to see if he can tolerate the drug. I could not even tolerate it on 2.5 mils, but could tolerate it via IV. So start on a low dose, and if he can tolerate it build up to the required daily dose. I would definatly say NO to 2 days high dose and then none for a week. His body is already fighting, the less trauma the better. Prednisone withdrawal is the 2nd worse drug related thing I have ever experienced.

Dont know if that helps! LOL I'm a rambling mad woman with the flu.

In short - low dose daily would be better tolerated then higher dose stopped and started. (in my opinion!) I can ask my specialist if you would like? Others here I am sure, have an opinion! Its prolly the one drug EVERYONE has been on.

*HUGS*Love Aisha.

[Guest guest]

Thanks, -- Yep - -only 12 more days after today. -- Happy Anniversary! I hope you have a wonderful trip!

ita

Prednisone

Stacie and ita: Thanks for your comments concerning prednisone. I'm not going to worry about it for awhile since my wife and I leave for the Mayan Riviera (south of Cancun) tomorrow for 5 days to celebrate our 10th anniversary, which is also tomorrow. I hope that I return to find all of you in better health, especially you, . Stacie, thanks for sharing your picture. ita, hang in there, less than 2 weeks to go. My best to all the rest. Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

, I believe that your body produces the surge in the mornings, and most

docs have you take it in the am. when you are taking larger doeses it is

usually split up in the am and pm, and Im sure they way you are taking it is

fine since you are taking the larger of the dose in the am. I havent heard

that taking it that way is more toxic.

GO DAWGS !!!!!

[Guest guest]

Anyone out there that uses Prednisone?

I am officially off Prednisone after 4 years of using it.

I have 41 10 MG pills left

I have 173 5MG pills left

I have 139 1MG pills left

What I would like to do is give / send these pills to someone who could use

them.

I was thinking to give these to someone on the list who has terrible or no

insurance and is have a hard time paying for their medication.

I don't want to emmbarise anyone, so reply to BigGenealogyGirl@...

I can't see pitching these in the paper basket when they are so expensive and

other people could use them.

E

[Guest guest]

Hi LIndaE,

I no longer take any Prednisone either. YIPPEE !!! I had a lot left over

also and I just dumped it. I had a huge bottle of 20mgs. and on downward like

you but I never thought of offering them to anyone. I know I've given extra

drugs to my doctor to give to patients that are strapped for money but I really

don't know if he does that or just dumps them after I leave.

I found that Prednisone was one of the cheapest drugs I took, Enbrel being

the most expensive. I guess if someone needs the Prednisone, they'll contact

you privately. That was smart thinking...... )

xxoo,

Mi. Carmen

[Guest guest]

Congratulations!

To everyone who has managed to get completely off the roids!

I just wanted to mention here that many years ago, when I was

on steroids for the second time..my husband had just gotten

laid off from his job, I was too ill to work, and we had no insurance

coverage. I would have dearly loved for someone to give me the steroids

I needed to have at the time. We ended up going to the bank and getting

a loan to buy steroids....a big bottle. $187.00 worth. Then I got myself

off

of the darned things (the doc at Madison were royally ticked at me, for

going

off) and as I knew no one that needed them. ..After a few years threw

them away.

Carmen..wishing you the best for Tuesday!

~~tricia~~

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

-- Re: RE: PREDNISONE

Hi LIndaE,

I no longer take any Prednisone either. YIPPEE !!! I had a lot left over

also and I just dumped it. I had a huge bottle of 20mgs. and on downward

like

you but I never thought of offering them to anyone. I know I've given extra

drugs to my doctor to give to patients that are strapped for money but I

really

don't know if he does that or just dumps them after I leave.

I found that Prednisone was one of the cheapest drugs I took, Enbrel being

the most expensive. I guess if someone needs the Prednisone, they'll

contact

you privately. That was smart thinking...... )

xxoo,

Mi. Carmen

[Guest guest]

There has been a great deal of discussion

here on this subject over the years.

It would be best to search the archives

for this. In fact, there was a lot of

discussion on this just last summer.

Prednisone, hydrocortisone, licorice,

thyroid, etc..

The short answer is, these things help

some PWC's, but not others, and some

even get dramitcally worse on them.

No one seems to know why.

Best,

Zippy

=======================================

> My doctor just suggested I try 1mg of Prednisone daily? Does

anyone

> have experience with this? Or with Hydrocortisone? Thanks, Amy

[Guest guest]

Hi!

My name is Lee. I haven't written in quite awhile...life has been keeping me

pretty busy these days. I have been keeping up here and there with the mail

though, and yours really caught my eye about the prednisone. My son was on

prednisone for a number of years. He was on it for nephrotic syndrome, not CVID

or angioedema (the latter two developed during his teen years, the nephrotic

syndrome when he was 7.) He had what the doctors called 'pulse therapy'

several times, which is mega doses of predisone through an IV. I was wondering

what

dosage of prednisone your child would be receiving should you decide to do

this. Take care. Lee

[Guest guest]

When my son was small we crushed the pills and mixed it with chocolate syrup

to form a paste which seemed to help until he was old enough to swallow the

pills.

Alisha

Mom to Victor (8)

Prednisone

Hi,

In Turkey, prednisone is commercially available in 16 mg/pill form so it

should be also available there. We give 1 mg/kg (approx. 0.5 mg/pound).

The taste is still horrible even if you mix it with honey but it is

better than taking 4-5 pills. Perhaps it may be available at hospitals

rather than pharmacies. Also there is injection form. When my son was

small (2), he was always giving it back from his mouth so I took him to

injection a few times. Now he is 5 and understands that he should take

it or he has to go for injection.

Tugrul

Dad to Kaan (5)

[Guest guest]

Hi Ellyn,

I just noticed that you're in Phila. We're in West Chester. Wondering if you've

seen docs who are familiar with & if you've been happy with them.

Christy

hot Grant (5)

cool Brad (2)

ellyn.trickey@... wrote:

started pre-kindergarten last Thursday. Almost predictably Friday

he was increasingly irritable and by evening he started a fever.

This is the first time he has had a fever since the Rheumatologist gave

him the script for prednisone. In August - it was strange - he acted as

though he was having

an episode - but he never actually had a fever. Anyway, as soon as I knew

he had a fever I gave him his dosage of prednisone. In the morning he

woke up fever free.

He still was a little irritable, but the fever was over. Today he headed

off to his first full day of kindergarten. I guess it's just wait and see

if the episodes increase in frequency as it does with some kids.

Ellyn

Mom of possibly (4),

Alyssa(7), and Kate(3)

Philadelphia, PA

[Guest guest]

Christy,

I have been taking to Dr. Goldsmith at St, 's

Hospital for Children. (215) 427-5051

We have been happy there. We still don't have an official diagnosis,

although three weeks ago

they did two of the DNA tests on . The insurance company didn't wat

to pay for the testing,

but Goldsmith's staff fought hard to get them to pay for. The day

was tested I asked how many

patients his practice had tested for the genetic disorders. I was told

about 18 - most of whom came back

with genetic markers. It did take about 6 months of seeing Dr. Goldsmith

before he requested the genetic testing,

which seemed like a lifetime, but overall we have been happy with how

things have gone.

Ellyn

Mom of possibly (4),

Alyssa(7), and Kate(3)

Philadelphia, PA

christy maurer <go4gouache@...>

Sent by:

09/12/2005 08:38 PM

Please respond to

cc:

Subject: Re: prednisone

Hi Ellyn,

I just noticed that you're in Phila. We're in West Chester. Wondering if

you've seen docs who are familiar with & if you've been happy with

them.

Christy

hot Grant (5)

cool Brad (2)

ellyn.trickey@... wrote:

started pre-kindergarten last Thursday. Almost predictably Friday

he was increasingly irritable and by evening he started a fever.

This is the first time he has had a fever since the Rheumatologist gave

him the script for prednisone. In August - it was strange - he acted as

though he was having

an episode - but he never actually had a fever. Anyway, as soon as I knew

he had a fever I gave him his dosage of prednisone. In the morning he

woke up fever free.

He still was a little irritable, but the fever was over. Today he headed

off to his first full day of kindergarten. I guess it's just wait and see

if the episodes increase in frequency as it does with some kids.

Ellyn

Mom of possibly (4),

Alyssa(7), and Kate(3)

Philadelphia, PA

[Guest guest]

Hi Tracie,

We've been " experimenting " with prenisone dosages. My daughter Ella

is 20 months old and we've only used prednisone the last two months

with her fevers. The first month (September) we have her three

doses, each 12 hours apart. In October, I tried the one dose

initially, and it worked great, but the fever came back about 24

hours later. So we decided to try the three consecutive doses again

at that point, and the fever went away completely. With her next

fever, we're going to try giving her two consecutive doses, given 12

hours apart to see if that's enough to kick the fever until the next

episode. I think (I'm not sure) that some kids who take just one

dose where it's successful at keeping the fever away are taking a

more concentrated dose. Our pediatrician says that Ella's dosage is

a lower dosage that she had initially had recommended that she take

twice a day for five days. We've elected to experiment on our own

to find out the minimum dosage that's effective for her. So far

we've learned that one dose isn't enough at the current

concentration, but three seems to work well. Hopefully two doses

will be just as effective...I imagine we'll find out in a couple of

weeks. I think that sometimes it finding out what works best for

your child.

Keep us posted on how the tonsilectomy goes for Ellie.

mom to Ella, 20 mos (?)

Annika, 4

Evan, 6

>

> Hi! My name is Tracie and I am the mother of Ellie who is almost

4. I am so happy to have found this group as I know you have all

been suffering the heartbreaking cycle of .

>

> Ellie has been diagnosed with and has outbreaks every thirty

days. Her symptoms include high fever, headache, joint pain, cancer

sores, sore throat, swollen lymph nodes, vomiting, fatigue and loss

of appetitite. Her sed rate is also very high during outbreaks (ie

100). Her episodes are on the long side and last from 7-10 days.

>

> Our pediatrician first diagnosed Ellie last month and we saw an

infectious disease specialist who confirmed the diagnosis. We have

been working closely with both of them and they have both

recommended prednizone at the onset of the outbreak.

>

> Eight days ago when I first saw signs, I administed a dose of

prednizone (2mg per kilo). As they predicted, she was afebrile and

headache free within two hours. It was amazing how her energy came

back so quickly. Two days later, symptoms returned and we repeated

the dose. Again, the symptoms returned in two days (yesterday) and

we administered a third dose. They are recommending two more doses -

one today and one tomorrow.

>

> Have any of you needed a third dose for your children? I am

reluctant to give so much, but her suffering is so acute and

prednizone is so effective at relieving it (at least temporarilly).

My physicians assure me that the dosage is safe.

>

> The doctor has also scheduled a tonsilectomy for Ellie in two

weeks. What do you think?

>

> Thanks so much for your input & I am so glad to have joined!

>

> Tracie

>

> .

>

>

>

>

> ---------------------------------

> FareChase - Search multiple travel sites in one click.

>

>

[Guest guest]

This sounds like the exact dosage we've been using with Ella and it

has been effective.

>

> 's Rheumatologist recommended giving the prednisone

immediately when

> the ferver begins plus a full day (2 doses) after the fever breaks.

> So far it has been effective and the fever did not rebound.

>

>

> Ellyn

> Mom of possibly (4),

> Alyssa(8), and Kate(3)

> Philadelphia, PA

>

>

>

>

>

>

>

> Tracie Gonyea <tjgonyea@y...>

> Sent by:

> 11/15/2005 12:09 PM

> Please respond to

>

>

>

> cc:

> Subject: Intoduction of New Member- RE:

Ellie

>

>

> Hi! My name is Tracie and I am the mother of Ellie who is almost

4. I am

> so happy to have found this group as I know you have all been

suffering

> the heartbreaking cycle of .

>

> Ellie has been diagnosed with and has outbreaks every thirty

days.

> Her symptoms include high fever, headache, joint pain, cancer

sores, sore

> throat, swollen lymph nodes, vomiting, fatigue and loss of

appetitite. Her

> sed rate is also very high during outbreaks (ie 100). Her

episodes are

> on the long side and last from 7-10 days.

>

> Our pediatrician first diagnosed Ellie last month and we saw an

infectious

> disease specialist who confirmed the diagnosis. We have been

working

> closely with both of them and they have both recommended

prednizone at the

> onset of the outbreak.

>

> Eight days ago when I first saw signs, I administed a dose of

prednizone

> (2mg per kilo). As they predicted, she was afebrile and headache

free

> within two hours. It was amazing how her energy came back so

quickly. Two

> days later, symptoms returned and we repeated the dose. Again,

the

> symptoms returned in two days (yesterday) and we administered a

third

> dose. They are recommending two more doses - one today and one

tomorrow.

>

> Have any of you needed a third dose for your children? I am

reluctant to

> give so much, but her suffering is so acute and prednizone is so

effective

> at relieving it (at least temporarilly). My physicians assure me

that the

> dosage is safe.

>

> The doctor has also scheduled a tonsilectomy for Ellie in two

weeks. What

> do you think?

>

> Thanks so much for your input & I am so glad to have joined!

>

> Tracie

>

> .

>

>

>

>

> ---------------------------------

> FareChase - Search multiple travel sites in one click.

>

>

[Guest guest]

Hi Bayla,

Prednisone is a steroid and can have awful side effects if taken long term.

It is used for its anti-inflammatory actions, in bronchitis,asthma,skin rashes and post transplant because it suppresses the immune system.

It can worsen diabetes,damage the Adrenal glands,cause salt retention and make your face fat(cushings syndrome)if taken for many months.It can also cause depression.

The key is if you take it for many months and it looks like you got a regulated dose.You should taper off of it going to every other day and then stopping so the adrenal glands can kick start again.

It is a good drug when used short term and I don't think you have anything to be concerned about.It will make you feel better.

Prednisone

How bad is this stuff on the liver? I was given just 8 of them to help with the bronchitis..thats what I have and I saw the doc today. I got that along with another round of antibiotics. My g/f that works at a teaching hospital says that taking this drug will cause even one HCV cell if its alive in me to multiply.thanks if you guys have an answerbayla..going back to bed>>>>>>>>>>>>>>>>>

[Guest guest]

I

don’t think that’s true. My neurologist put me on a dose pack

of prednisone last year and the intern he had with him started telling me what to

do if I started having liver issues. The experienced doc said that was

only if it was long term use, and that a dose pack wouldn’t cause any

problems like that. I think all of us with respiratory problems would

have heard about it if we were never to take prednisone under any

circumstances.

De

Prednisone

How bad is this stuff on the liver? I was given just 8

of them to help

with the bronchitis..thats what I have and I saw

the doc today. I got

that along with another round of antibiotics. My

g/f that works at a

teaching hospital says that taking this drug will

cause even one HCV

cell if its alive in me to multiply.

thanks if you guys have an answer

bayla..going back to

bed>>>>>>>>>>>>>>>>>

[Guest guest]

Good heavens Bayla.. an 8 dose pac is not going to kill you..Do you think your doctor is an idiot .I am sure he knows what he is doing..Does he know your medical history etc..Calm down..It was prescribed for your lungs..And two 500mg tabs of Tylenol every 6 hours won't hurt you either..Boo Motley <dmotley@...> wrote: I don’t think that’s true. My neurologist put me on a dose pack of prednisone last year and the intern he had with him started telling me what to do if I started having liver issues. The experienced doc said that was only if it was

long term use, and that a dose pack wouldn’t cause any problems like that. I think all of us with respiratory problems would have heard about it if we were never to take prednisone under any circumstances. De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of BaylaSent: Tuesday, February 21, 2006 2:26 PMHepatitis CSupportGroupForDummies Subject: Prednisone How bad is this stuff on the liver? I was given just 8 of them to help with the bronchitis..thats what I have and I saw the doc today. I got that along with another round of antibiotics. My g/f that works at a teaching hospital says that

taking this drug will cause even one HCV cell if its alive in me to multiply.thanks if you guys have an answerbayla..going back to bed>>>>>>>>>>>>>>>>> Kathy Brunow

[Guest guest]

2000 mg of acetominaphen ( tylenol ) is the most a normal liver can safely take. That would be 4 tylenol ex. My last dr. was an idiot and had be on 3000 mg. per day. Always remember that the person that comes in last place in med. school is still called dr. My numbers went thru the roof on the amount that I was taking. doctors are not god, I was a a nurse and have seen too many mistakes. dannyKathy Brunow <kathy-boo@...> wrote: Good heavens Bayla.. an 8 dose pac is not going to kill you..Do you think your doctor is an idiot .I am sure he knows what he is doing..Does he know your medical history etc..Calm down..It was prescribed for your lungs..And two 500mg tabs of Tylenol every 6 hours won't hurt you either..Boo Motley <dmotley@...> wrote: I don’t think that’s true. My neurologist put me on a dose pack of prednisone last year and the intern he had with him started telling me what to do if I started having liver issues. The experienced doc said that was only if it was long term use, and that a dose pack wouldn’t

cause any problems like that. I think all of us with respiratory problems would have heard about it if we were never to take prednisone under any circumstances. De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of BaylaSent: Tuesday, February 21, 2006 2:26 PMHepatitis CSupportGroupForDummies Subject: Prednisone How bad is this stuff on the liver? I was given just 8 of them to help with the bronchitis..thats what I have and I saw the doc today. I got that along with another round of antibiotics. My g/f that works at a teaching hospital says that taking this drug will cause even one HCV cell if its alive in me to multiply.thanks if you guys have an answerbayla..going back to bed>>>>>>>>>>>>>>>>>

Relax. virus scanning helps detect nasty viruses!

[Guest guest]

Yes if even one cell is alive in you it will start multiplying but in a more mutated fashion,so the same treatment can't be used again.If you have remained undetectable for viral load for a year then you are ok.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of BaylaSent: February 21, 2006 11:26 AMHepatitis CSupportGroupForDummies Subject: PrednisoneHow bad is this stuff on the liver? I was given just 8 of them to help with the bronchitis..thats what I have and I saw the doc today. I got that along with another round of antibiotics. My g/f that works at a teaching hospital says that taking this drug will cause even one HCV cell if its alive in me to multiply.thanks if you guys have an answerbayla..going back to bed>>>>>>>>>>>>>>>>>

[Guest guest]

I even made a mistake one time. (but it was a mistake) !! Delgail <gaila@...> wrote: That is where you are up one on the doctors.You know what to expect and know when they are going overboard or making wrong choices for your health. Gail -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of captdannySent: February 22, 2006

7:24 AMHepatitis CSupportGroupForDummies Subject: RE: Prednisone 2000 mg of acetominaphen ( tylenol ) is the most a normal liver can safely take. That would be 4 tylenol ex. My last dr. was an idiot and had be on 3000 mg. per day. Always remember that the person that comes in last place in med. school is still called dr. My numbers went thru the roof on the amount that I was taking. doctors are not god, I was a a nurse and have seen too many mistakes. dannyKathy Brunow <kathy-boo@...> wrote:

Good heavens Bayla.. an 8 dose pac is not going to kill you..Do you think your doctor is an idiot .I am sure he knows what he is doing..Does he know your medical history etc..Calm down..It was prescribed for your lungs..And two 500mg tabs of Tylenol every 6 hours won't hurt you either..Boo Motley <dmotley@...> wrote: I don’t think that’s true. My neurologist put me on a dose pack of prednisone last year and the intern he had with him started telling me what

to do if I started having liver issues. The experienced doc said that was only if it was long term use, and that a dose pack wouldn’t cause any problems like that. I think all of us with respiratory problems would have heard about it if we were never to take prednisone under any circumstances. De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of BaylaSent: Tuesday, February 21, 2006 2:26 PMHepatitis CSupportGroupForDummies Subject: Prednisone How bad is this stuff on the liver? I was given just 8 of them to help with the bronchitis..thats what I have and I saw the doc today. I got that along with another round of antibiotics. My g/f that works at a

teaching hospital says that taking this drug will cause even one HCV cell if its alive in me to multiply.thanks if you guys have an answerbayla..going back to bed>>>>>>>>>>>>>>>>> Relax. virus scanning helps detect nasty viruses!

Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars.

[Guest guest]

That is where you are up one on the doctors.You know what to expect and know when they are going overboard or making wrong choices for your health.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of captdannySent: February 22, 2006 7:24 AMHepatitis CSupportGroupForDummies Subject: RE: Prednisone

2000 mg of acetominaphen ( tylenol ) is the most a normal liver can safely take. That would be 4 tylenol ex. My last dr. was an idiot and had be on 3000 mg. per day.

Always remember that the person that comes in last place in med. school is still called dr.

My numbers went thru the roof on the amount that I was taking.

doctors are not god, I was a a nurse and have seen too many mistakes.

dannyKathy Brunow <kathy-boo@...> wrote:

Good heavens Bayla.. an 8 dose pac is not going to kill you..Do you think your doctor is an idiot .I am sure he knows what he is doing..Does he know your medical history etc..Calm down..It was prescribed for your lungs..And two 500mg tabs of Tylenol every 6 hours won't hurt you either..Boo Motley <dmotley@...> wrote:

I don’t think that’s true. My neurologist put me on a dose pack of prednisone last year and the intern he had with him started telling me what to do if I started having liver issues. The experienced doc said that was only if it was long term use, and that a dose pack wouldn’t cause any problems like that. I think all of us with respiratory problems would have heard about it if we were never to take prednisone under any circumstances.

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of BaylaSent: Tuesday, February 21, 2006 2:26 PMHepatitis CSupportGroupForDummies Subject: Prednisone

How bad is this stuff on the liver? I was given just 8 of them to help with the bronchitis..thats what I have and I saw the doc today. I got that along with another round of antibiotics. My g/f that works at a teaching hospital says that taking this drug will cause even one HCV cell if its alive in me to multiply.thanks if you guys have an answerbayla..going back to bed>>>>>>>>>>>>>>>>>

Relax. virus scanning helps detect nasty viruses!

[Guest guest]

>

> Do all the kids who take prednisone and or tagament feel normal?

Do

> you give it to them before the onset of the fever? Does the fever

and

> the all over feeling bad go away? This isn't happening for

so,

> I'm thinking this is not the right direction for him. We went for

an

> MRI of his head today, the only body part that hasn't been

scanned.

> The prednisone(i think) caused 4 fevers this month 2 more than the

> every 21 days. I'll check back later, Gretchen & 13(?)

>

Gretchen,

My son was able to tell when the fevers were coming but were not

evident on the thermometer. We gave him the predisone BEFORE the

fever. It took us many years of trial and error to make this work

but

eventually it did work. I know many here don't approve of this

method

but responded very well to only a small amount of the

predisone.

My son will be 15 in August and has now been fever free since last

June. Doesn't seem like anything will " cure " the . The

predisone only brings the fever down and under control...or maybe

you

can say it surpress the fever. The fever and the feeling of the

will hopefully go away after time....i think we have finally found

our

time.

Predisone by the way should not be causing the fever. If you are

getting fevers quickly one after the other with only a day or 2

break

you should consult your doctor....you may need a stronger dose.

Dean

Father of 14 1/2

Winter Park, FL

[Guest guest]

Gretchen,

We would go through times when the fevers would came very close

together...like 3 days a part then times where it would be 3 months.

I can't recall how much prednisone received but i know it was a

very low amount. But on predisone the fevers would get closer and

closer till they eventually spread back out. If you give him the

predisone when he feels the onset and before the fever hopefully you

can keep him playing ball. plays basketball and is on a

traveling AAU compitition team. So i know what its like and how it is

to deal with him when he has or had to miss a game. Its. not fun.

Dean

Father of 14 1/2

Winter Park, FL