Guest guest Posted September 28, 2008 Report Share Posted September 28, 2008 Vivian- Thank you for the info, we are giving the cimetidine daily but havent notiiced much of a difference. The fevers still come but maybe dont spike as high. He has been on it since July. I will call the doctor this week to see he wants us to continue. It is so nice to hear from people who have heard of this!! Thanks so much! Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Great great news Kerry. May you never need it again!! Yeah !! Love Liz **************One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol?redir=h\ ttp://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Keri, I am VERY happy and excited for you!! Diane....42 Hi My Stills Family- I have great news, I have been hesitating to e-mail or even telling anyone because I am afraid is won't last. But here it goes... I AM PREDNISONE FREE. It has been two weeks and I am feeling good. I usually have chest pain when I drop past 10mg. But WOW it was so easy to get past 10..9..8..7..6..5. Then I waited and slowed down only dropping a mg every month or so. And here I am. It has taken me 7 1/2 years to get off Prednisone. And I know that someone is reading this and thinking I hope I can be Prednisone free one day. You can and you will. Don't give up. I know that this isn't forever. I will have a flare one day (hopefully not soon) and my Rheumy will put me on 40mg. But for right now I am soooo happy. I still get my Remicade IV's every 8 weeks and I know that this is the reason I was able to decrease and stay down. I just wanted everyone to know. Everyone here has been so comforting and helpful, I won't been able to have Stills and be sane without you all. Love and Support, Keri in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Keri, I am VERY happy and excited for you!! Diane....42 Hi My Stills Family- I have great news, I have been hesitating to e-mail or even telling anyone because I am afraid is won't last. But here it goes... I AM PREDNISONE FREE. It has been two weeks and I am feeling good. I usually have chest pain when I drop past 10mg. But WOW it was so easy to get past 10..9..8..7..6..5. Then I waited and slowed down only dropping a mg every month or so. And here I am. It has taken me 7 1/2 years to get off Prednisone. And I know that someone is reading this and thinking I hope I can be Prednisone free one day. You can and you will. Don't give up. I know that this isn't forever. I will have a flare one day (hopefully not soon) and my Rheumy will put me on 40mg. But for right now I am soooo happy. I still get my Remicade IV's every 8 weeks and I know that this is the reason I was able to decrease and stay down. I just wanted everyone to know. Everyone here has been so comforting and helpful, I won't been able to have Stills and be sane without you all. Love and Support, Keri in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Doing the Happy NO Pred dance with Keri!!!!! houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Keri, I am so excited for you. I do hope things continue. My daughter is suppose to start Remicade around the first of the year and has been weaning off Pred. for some time. She is now on 5mg from 20. Have a great Thanksgiving. Lea Subject: Re: Prednisone To: Stillsdisease Date: Tuesday, November 25, 2008, 2:35 AM Keri, I am VERY happy and excited for you!! Diane....42 Hi My Stills Family- I have great news, I have been hesitating to e-mail or even telling anyone because I am afraid is won't last. But here it goes... I AM PREDNISONE FREE. It has been two weeks and I am feeling good. I usually have chest pain when I drop past 10mg. But WOW it was so easy to get past 10..9..8..7. .6..5. Then I waited and slowed down only dropping a mg every month or so. And here I am. It has taken me 7 1/2 years to get off Prednisone. And I know that someone is reading this and thinking I hope I can be Prednisone free one day. You can and you will. Don't give up. I know that this isn't forever. I will have a flare one day (hopefully not soon) and my Rheumy will put me on 40mg. But for right now I am soooo happy. I still get my Remicade IV's every 8 weeks and I know that this is the reason I was able to decrease and stay down. I just wanted everyone to know. Everyone here has been so comforting and helpful, I won't been able to have Stills and be sane without you all. Love and Support, Keri in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Hi Keri, So great you are off the prednisone. I am actually on a pack, 5 days I guess... then we shall see... hope it doesn't cause me weight gain, can't afford it in that area.... Can you tell me what symptoms the Remicade helps? My worst symptoms are the fever and fatigue, followed by pain of joints thanks, Jo In a message dated 11/24/2008 11:06:56 P.M. Eastern Standard Time, kcbread3@... writes: still get my Remicade IV's every 8 weeks and I know that this is the reason I was able to decrease and stay down. I just wanted everyone to know. Everyone here **************One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol?redir=h\ ttp://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Hi Keri, So great you are off the prednisone. I am actually on a pack, 5 days I guess... then we shall see... hope it doesn't cause me weight gain, can't afford it in that area.... Can you tell me what symptoms the Remicade helps? My worst symptoms are the fever and fatigue, followed by pain of joints thanks, Jo In a message dated 11/24/2008 11:06:56 P.M. Eastern Standard Time, kcbread3@... writes: still get my Remicade IV's every 8 weeks and I know that this is the reason I was able to decrease and stay down. I just wanted everyone to know. Everyone here **************One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol?redir=h\ ttp://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Keri great news I have been free of it for years now. I did have to get off it faster then you and when I was on remicade i was still on it big time. My Ra has a few time talked about having me go back to the roids but so far we have stayed off it. I hope not to ever return but if needed I will . I can say it has not always been easy for me but the side effects of it just made it a need to deal. for any one thinking or planing on also doing this with there Predasion please please do not do this on your own ! only do this with your doctors help and full working with you! always remember what works for one person dose not mean it will work for you the same as each of us are as different as the snow flakes that fall. no two alike at all close but never the same . hugs all the rednecks Marty & G. the redneck's my space http://www.myspace.com/martyg58 To learn about Stills Disease http://www.stillsdisease.org/stills_info For conservitive minded people http://www.americac2c.org " If we ever forget that we're one nation under God, then we will be a nation gone under. " ~ Reagan In the old days a man who saved money was a miser; nowadays he's a wonder. ~Author Unknown A nation can survive its fools and even the ambitious. But it cannot survive treason from within.~Cicero " The most terrifying words in the English language are: I'm from the government and I'm here to help. " ~ Reagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Keri great news I have been free of it for years now. I did have to get off it faster then you and when I was on remicade i was still on it big time. My Ra has a few time talked about having me go back to the roids but so far we have stayed off it. I hope not to ever return but if needed I will . I can say it has not always been easy for me but the side effects of it just made it a need to deal. for any one thinking or planing on also doing this with there Predasion please please do not do this on your own ! only do this with your doctors help and full working with you! always remember what works for one person dose not mean it will work for you the same as each of us are as different as the snow flakes that fall. no two alike at all close but never the same . hugs all the rednecks Marty & G. the redneck's my space http://www.myspace.com/martyg58 To learn about Stills Disease http://www.stillsdisease.org/stills_info For conservitive minded people http://www.americac2c.org " If we ever forget that we're one nation under God, then we will be a nation gone under. " ~ Reagan In the old days a man who saved money was a miser; nowadays he's a wonder. ~Author Unknown A nation can survive its fools and even the ambitious. But it cannot survive treason from within.~Cicero " The most terrifying words in the English language are: I'm from the government and I'm here to help. " ~ Reagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Keri,I'm so happy for you!!!!! There is light at the end of the tunnel. I'm down to 25 mg as of this week...and am doing it slowly...so hopefully in a few years I can yell " I'm Prednisone free! " too! Happy Thanksgiving...you really have reason to celebrate! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Keri,I'm so happy for you!!!!! There is light at the end of the tunnel. I'm down to 25 mg as of this week...and am doing it slowly...so hopefully in a few years I can yell " I'm Prednisone free! " too! Happy Thanksgiving...you really have reason to celebrate! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 Hi all: I have a quick question about using prednisone to shrink swollen lymph nodes. First off, I am not debilitated by swollen lymph nodes yet, from time to time, have a few in my neck and under my jawline that pop out a bit (noticeably) and just, well, bug me. They came on in the first place after an exposure to a virus in February that I felt mildly but never got sick from. Still, my lymph nodes went crazy and then subsided once the illness went away.What I have now are the residual ones that pop out every once and awhile. I am also on W/W. My GP has suggested I take prednisone to shrink them down. Again, they are not painful and they don't bother normal function. Thoughts? side effects? dosage? Thanks in advance. jason Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 Re: Prednisone to shrink lymph nodes - ask your hematologist. Your GP may be very good, but this is a question for someone who knows CLL. When I end up with laryngitis with a concert coming up it's the first thing I want and my GP doesn't see it as an issue, but my hematologist does not want me on steroids unnecessarily and her definition of necessary is different from mine in this type of situation, but I go with her advice. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 My Oncologist has given me the *Medrol* Dosepak, which is also known as methyprednisolone, starts with six pills (24 milligrams) and takes one fewer each day, until the pack is finished. I have had good luck with this to shrink my neck and under chin lymph nodes. He gave me this at Christmas time and then again in March. My nodes really don't bother me just the odd swelling and people who don't know my diagnose asking me what is wrong with my neck. I was in remission since 1994 until last June my WBC jumped up to 65,000 and I am on W and W. Quote Link to comment Share on other sites More sharing options...
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