Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 The whole vitamin D issue has me totally frustrated. I was put on 50,000 u of Vitamin D2 (thought, like others, that it was D3), then 100,000 U weekly. I just got my latest labs back. My overall level is up at 93 with a reference range of 30 - 100. But when I look at the breakdown my D3 is only 6 ng/ml while my Vitamin D2 is at 87 ng/hl. I want to be in a healthy range for bone health - osteopenia being an issue. I know the jury is out on whether increasing the D3 level makes a difference after diagnosis, but it doesn't hurt to be on the safe side for that reason as well. Do I continue with D2, add D3 as well, or just take D3 and if that is the answer is dosing basically equal or should I adjust up or down if changing from D2 to D3???????? I have an appointment coming up with my primary care to discuss this and would like to go into the discussion as informed as possible. She is very open to input that relates to my CLL. Any input appreciated!! Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Are these units right? 50,000+ IU? I thought a megadose was 1000 IU. > > The whole vitamin D issue has me totally frustrated. I was put on > 50,000 u of Vitamin D2 (thought, like others, that it was D3), then > 100,000 U weekly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 I know several other people who were put on the same dose weekly, not daily, and monitored closely until the D level went up. If you start dong a lot of reading on this subject it's very difficult to know who to believe. Suggested daily doses ranged from 1000 to 5000u. Most of the articles I read suggest Vitamin D3 and all suggested making sure your level is monitored, esp. if you are taking mega doses because you are deficient. It seems we all have different needs as far as a maintenance dose goes. Pat On 1/20/11, mschaeffer3 <mschaeffer3@...> wrote: > > Are these units right? 50,000+ IU? I thought a megadose was 1000 IU. > > >> >> The whole vitamin D issue has me totally frustrated. I was put on >> 50,000 u of Vitamin D2 (thought, like others, that it was D3), then >> 100,000 U weekly. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 My wife and I continue to take 5000 IU daily and have our levels checked every 6 months. We're both in normal ranges and feel well. I was originally taking 8,000 IU daily based upon what my nutritionist told me. Minimum I would suggest is 1,000 IU. D3 Best to y'all. On Fri, Jan 21, 2011 at 9:10 AM, Beth Fillman wrote: > my gp is adamant about D3 only, and finding the most > absorbable 'brand'. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 My wife and I are taking 50,000u 2x / month of pharmaceutical grade D that we received from her internist who is also monitoring her blood levels. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Thanks for all the responses. If you are taking prescription Vitamin D you should check with your pharmacist about whether it's D2 or D3. I thought I was taking D3 - the label just said Vit D and the dose. It in fact was D2 and I noticed that when I refilled the prescription the label specified D2, so maybe all of this taught my pharmacy something. My pharmacist is wonderful and very careful about checking things like drug interactions, appropriate doses,etc. He is a great backup to a good medical team and the doctors in the area respect the fact that he will question something that seems off (eg when the fact that I'm on coumaden might be an issue with a new prescription). I understand the issue of overall vit D levels being within a certain range. It's the fact that the reports then break things down into D2 and D3 levels where I have a problem. Should the D3 level be within a certain range or does it matter if it's much lower than the D2 level. Thanks Pat On 1/21/11, Sharon - Medical <smodesti18@...> wrote: > My wife and I are taking 50,000u 2x / month of pharmaceutical grade D that > we received from her internist who is also monitoring her blood levels. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 Diagnosed in May 2010 I am on watch and wait; wbc 22,800. After reading the importance of vitamin D on this forum I decided have my level checked. I was surprised to find my insurance does not cover this as part of my routine blood test! I decided to pay for it out of pocket (still don't know how much it will cost) and found my level is 37, which is on the low side of normal (32 - 100). I have been supplementing with 1000 iu of vitamin D3 per day since last November, and my doc says to stay with that. I plan to have my level checked again in a May by my general practice doctor, and I'm told insurance will cover it then. Does this make any sense? Why doesn't insurance cover vitamin D monitoring at my oncologist office? Hollie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 Pat, I don't know anything about D2, but I know there is a range for D3 and it should be on your lab report. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 Normalizing Vitamin D levels may or may not have any effect in CLL. The recent Mayo clinical study was very clear on this. " Whether normalizing vitamin D levels in deficient CLL patients would improve outcome merits clinical testing. " http://bloodjournal.hematologylibrary.org/cgi/content/short/blood-2010-07-295683\ v1 ~chris > > Diagnosed in May 2010 I am on watch and wait; wbc 22,800. After reading the importance of vitamin D on this forum I decided have my level checked. I was surprised to find my insurance does not cover this as part of my routine blood test! I decided to pay for it out of pocket (still don't know how much it will cost) and found my level is 37, which is on the low side of normal (32 - 100). I have been supplementing with 1000 iu of vitamin D3 per day since last November, and my doc says to stay with that. I plan to have my level checked again in a May by my general practice doctor, and I'm told insurance will cover it then. Does this make any sense? Why doesn't insurance cover vitamin D monitoring at my oncologist office? > > Hollie > > Quote Link to comment Share on other sites More sharing options...
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