Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 It sounds as if many Sll/Cllers travel. When I was diagnosed in Jan 2011, one of my assumptions was I couldn't get on a plane to travel d/t a compromised immune system. I used to get sick sometimes when I flew with a healthy immune system. Anyone have advice for traveling with SLL/CLL? Thanks, Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 I always take antibiotics with me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Peggy, Since I am post-treatment and still very immunosuppressed, my hematologist provided ongoing prescriptions for acyclovir, fluconazole, and SMZ-TMP. These 3 medications, taken prophylactically, provide (likely) protection against viral, fungal, and bacterial infections to which CLLers are vulnerable. I also travel with a 5-day dose of Tamiflu. Regards, Tim Klug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Peggy This topic is well covered in the archives and others have their personal tips A well fitting N95 mask, hand sanitizer, and a seat in first class (or at least away from cougher) is your best protection. Some like an antibiotic ointment at the entrance to the nasal passages. The only one that I believe that has been proven to help in a controlled study was the first class seat. I and many other CLLers travel all around the world. I always take Levaquin and Tamiflu and a note from my doc about my CLL and my meds Be well Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 I always wear a mask. The N95 masks can be uncomfortable, so one tends not to wear one. Stanford's BMT patients wear a double filter respirator like this: http://tinyurl.com/6cghgql 3M makes it. It is very comfortable for long-term use, but everyone will stare at you. So what! I wear a mask every time I fly. The worst I've ever gotten sick was on a full Southwest flight from San Diego to Sacramento. I ended up in the hospital for five days. It's the mask from now on. I feel vulnerable without it. Quote Link to comment Share on other sites More sharing options...
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