Re: CLL Tracker - Update

[Guest guest]

,

just re did my new info. should there be a place to

indicate a change in prognostic's prior to or post

treatment. mine were entirely diff prior to treatment than

at dx.

just a thought. thanks for doing this. What was

interesting to me were the number of women vs men is more

even than I think we've been accustomed to hearing/reading.

and the age at DX is far lower than what is seen in the

literature.

beth fillman

[Guest guest]

Beth

Re Prognostics. I feel that your point is valid. I will

consider on the next release updating and asking if these

have changed.

The reason for the diagnostic age being lower may be down

to a number of factors:

.. Earlier detection through routine blood tests is resulting

in more people being diagnosed earlier.

.. The results may be biased towards a younger generation as

a result of them being more literate/comfortable with the

use of Forums and on-line resources.

Re male verses female. I don't have an explanation for this

yet.

Regards

[Guest guest]

,

thanks. The 'usual' explanation for 'more female' has been

that women tend to seek medical help sooner, but in a

situation where in years past we've heard that in CLL the

stats were indicating more male than female that didn't

apply.... The 'impression' was so prevalent that when I was

diagnosed I was told CLL was 'the old man's disease'....

puzzled me since I was a member of neither of those clubs.

thanks again for doing this. Even if this is a work in

progress, it's a valid and valiant attempt to connect more

dots. Progress only follows a challenge to the status quo.

keep up the good work.

beth fillman