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Hi Ellen,

Are you using Glenkirk as your employer? Do you have to work with

an agency?

nne

On Jan 7, 2008, at 8:32 AM, Ellen Bronfeld wrote:

> Thanks for all your input. I will forward this to my husband!

> This is truly helpful, personally for us and hopefully for many

> others as well.

> Great info!

> Ellen

>

> Ellen Garber Bronfeld

> egskb@...

> Re: Home Based Funding

>

> Hi Ellen,

>

> It sounds like you are about 2 months behind us. We received our Home

> Based Support award letter on Nov. 8th, 2007. We were approved back in

> early April, and were told that it would be 4-6 months before we would

> receive the funding. It was quite a long frustrating process, but

> considering that my son will receive $1900(3 times the current amount

> that SSI pays)each month, it was truly worth it. Now, we hear they are

> telling people that it will take 12 months from the time they apply to

> the time they will receive their award letter.

>

> I too am frustrated that we couldn't receive any of the funds until we

> met with Acces$. We met with Acces$ in early December, with Brad(great

> guy-he actually drove up from Springfield to help us fill out the

> forms), and at the end of Dec., I hadn't heard anything, whether we

> could start using the funding or not, so after calling Brad-he

> indicated

> that they were still waiting for the state to approve and assign an

> employer id number to my husband. That would be my suggestion, is that

> if anyone is in the process of waiting for the award of their funding,

> that they decide who will be their child's personal support worker

> (PSW),

> and who will be that person's employer. Call Acces$ and ask them for

> the paperwork to fill out for an employer identification number.

> See if

> you can get that paperwork filled out and approved by the state, even

> before your funding is awarded. I think anyone can apply for an

> employer identification number, it's just navigating the system to

> do it

> properly. It is quite involved to fill out forms to be a PSW

> though, so

> you may have to wait to meet with Acces$ on that one. I am one of my

> son's PSW's-you can have as many as you need, although they will all

> need to fill out lots of forms for Acces$. Then, we decided that my

> husband will be my employer, as well as the employer for our other PSW

> that we will have. All the employer has to do is sign off on the

> timesheets. Seemed like the best idea to have my husband be the

> employer, although, he could've also been another of Nick's PSW's, in

> which case, we would've had to ask someone else to be our

> employer-friend, neighbor, grandparent, etc...

>

> We can use his funding for day programs, special rec programs(although

> we have to pay ourselves, then pay the SRA), anything we need to

> for his

> personal support. We can use it for mileage, and our time, if we take

> him places. We can use it for a gym membership, anything. We are

> hiring another PSW to spend 10 hours with him each week to take him to

> the gym to work out, take him to lunch, take him on a train ride,

> to the

> library, just spend quality time with him. In most cases, unless the

> provider is a medicaid provider, you have to pay yourself first, in

> order to pay for that gym membership, you can't bill the state for it.

> What I highly suggest, is that anyone needing more information, go to

> the Family Support Network website and click on the link for the new

> Adult Waiver program, which is Home Based Support. Also, if the ARC of

> Illinois has any more training seminars on the Adult Waiver Program,

> make it a priority to go to it! It is an all day seminar, and quite

> overwhelming, but Charlotte Cronin(of FSN), who facilitated the

> seminar,

> was amazing and explained everything in detail, and in a language that

> we all could understand! They also supply you with a copy of the power

> point presentation at the beginning of the day, so as they go

> along, you

> can follow and make lots of notes!

>

> The whole process of applying for Home Based Support is quite involved

> and lengthy, but it's important to learn as much as you can, and keep

> going to the meetings, seminars, anything that will go over and over

> what the process is about, and how to do it. I'll tell you, until I

> went to the ARC training on the Adult Waiver, everything was a big

> jumbled mess in my brain, and it truly all came together that day.

> Even

> the agencies are still just learning about the Waiver, so it's not a

> well traveled highway yet. This was an excellent topic to bring up

> Ellen. thank you!

>

>

> >

> > Hi all:

> > I would like to get some dialogue going on Home Based funding. In my

> > area, a number of my friends whose young adults exited the

> > educational system this past June, applied for Home Based (Medicaid

> > Waiver) funding just prior to leaving school and most of those

> > individuals got their award letters this past month. Now the

> > question is: how to implement it?

> > I thought what I would do is journal on IPADDU about our experience

> > in applying for, receiving, and using Home Based funds, and see how

> > it goes. Anyone who has already been through the process can chime

> > in at any time to share experiences and ideas. So here goes...

> >

> > I was at a meeting in the early part of 2007 and heard that Home

> > Based funding could be applied for 6 weeks prior to exit from the

> > educational system. During our annual meeting with our CAU

> > caseworker to update Noah's PUNS, I mention that I wanted to be

> > prepared to apply for Home

> > Based funding 6 weeks prior to his June 12th exit from school. We

> > emailed back and forth and finished the necessary paperwork.

> >

> > May 8th, 2007

> > Received an email from our CAU caseworker that our paperwork for

> home

> > based had been submitted.

> > At that time, I was told it would take about 6 months and we might

> > not hear until October.

> >

> > October 2007

> > I emailed our caseworker to see " where things were " . I was told the

> > paperwork had been processed in Chicago and was in Springfield. It

> > would likely be another month.

> >

> > November 2007

> > I was told it would likely be another month.

> >

> > December 30, 2007

> > Received our letter that as of January 1, 2008, Noah was eligible

> for

> > Home Based funding. My husband's question...how does one avoid

> > losing a month of funding (at minimum) by the time you figure out

> how

> > to actually access the funding? I thought that was a VERY good

> > question and would like others who have not yet applied for or

> > received funding to think about the possibility of establishing a

> > game plan well ahead of the funding letter.

> >

> > January 2, 2008

> > We had already identified that we wanted to work with a local

> agency,

> > Glenkirk, so I emailed my contact there and our casework at CAU to

> > set up a meeting ASAP, making it clear we wanted to start using the

> > funds sooner than later. We now have a meeting set up for Wednesday,

> > January 9th with our CAU caseworker, the person at Glenkirk who

> > specializes in Home Based funding, and a Representative from Aces$,

> > the fiscal agent chosen by Illinois to process paychecks for work

> > rendered using Home Based funding.

> >

> > To Be Continued...

> >

>

>

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Hi all:

I got a letter that was sent to me by someone in the Ray Graham

catchment area. I have been made aware of this same initiative through

our local PAS/ISC Agency. There has been some money released for

additional capacity in home based medicaid waiver services. If you

have completed a PUNS, you might want to call your PAS/ISC caseworker

and check on your son or daughter's eligibility at this time.

I will download the letter to IPADDU files under transition...since

that is our timely topic of the week!

Ellen

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