Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 I was mostly bedbound for a year and a half. I couldn't wear shoes comfortably for most of that time. A CFS sufferer suggested that I try magnesium. I took 400 mg twice a day for over a year and it helped tremendously. I now only take 400mg once a day and it seems to hold me fairly well, though I do have some burning in my feet lately and I'm thinking of upping the amount. Magnesium and malic acid have helped me a lot for FM pain. My feet were burning stumps of pain before the magnesium, and after a week or two, I remember feeling the shower floor beneath my feet, and the shower water wasn't dropping on me like an instrument of torture. One doc said that my foot pain was neuropathy, but I think that it's still reversible, and when I beat this thing it will go away. Hope this helps. Barb << Message: 6 Date: Tue, 13 Jul 1999 16:32:57 EDT From: DJIMBE17@... Subject: peripheral neuropathy hi. is anyone is this list bedbound? does anyone here have peripheral neuropathy and gets sicker after trying to walk for less than one minute. i've not been able to walk for over a minute for six months now. i keep thinking things will get better but all my symptoms increase and i become severely ill if i force myself to walk at all. does anyone have a clue as to why this is happening? i have no numbness yet. i am unable to walk now and this is terrifying me. i have never heard of this as being a symptom of cfids. please, if anyone out there is experiencing or knows of anyone going through the same, let me know how you deal with it. thanks, me >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 1999 Report Share Posted July 24, 1999 Hi, Neurontin is also given for neuoropathy pain. Have you been checked for diabetes , circulstion problems or autoimmune disease? Good luck, Christie tab@... At 03:20 PM 7/14/99 EDT, you wrote: >From: KB46@... > > >I was mostly bedbound for a year and a half. I couldn't wear shoes >comfortably for most of that time. A CFS sufferer suggested that I try >magnesium. I took 400 mg twice a day for over a year and it helped >tremendously. I now only take 400mg once a day and it seems to hold me >fairly well, though I do have some burning in my feet lately and I'm thinking >of upping the amount. Magnesium and malic acid have helped me a lot for FM >pain. > >My feet were burning stumps of pain before the magnesium, and after a week or >two, I remember feeling the shower floor beneath my feet, and the shower >water wasn't dropping on me like an instrument of torture. > >One doc said that my foot pain was neuropathy, but I think that it's still >reversible, and when I beat this thing it will go away. > >Hope this helps. >Barb > > ><< Message: 6 > Date: Tue, 13 Jul 1999 16:32:57 EDT > From: DJIMBE17@... > Subject: peripheral neuropathy > > hi. > > is anyone is this list bedbound? does anyone here have peripheral neuropathy > and gets sicker after trying to walk for less than one minute. i've not >been > able to walk for over a minute for six months now. i keep thinking things > will get better but all my symptoms increase and i become severely ill if i > force myself to walk at all. does anyone have a clue as to why this is > happening? i have no numbness yet. > > i am unable to walk now and this is terrifying me. i have never heard of > this as being a symptom of cfids. please, if anyone out there is >experiencing > or knows of anyone going through the same, let me know how you deal with it. > > thanks, > me > >> > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2000 Report Share Posted May 30, 2000 I also get itchy red areas on the palms of my hand which last about a half hour, then go away. However, it also occurs in other areas, like on my legs or arms. I thought maybe it was candida or parasites. My chiropractor told me it was related to my gallbladder! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2000 Report Share Posted May 30, 2000 From: Lilienthal <spaceboy@...> >All this talk about burning feet has me interested. >I get crazy sensations in the palms of hands, almost like an itching which >drives me crazy - seems to be worse in times of stress. >Also have tingling and parathesias in my toes, esp. little toes. >Also have wierd sensations around my nose. , I had not heard of anyone else with the itching palms. I thought it was just something else weird about ME. I'll catch myself unconsciously scratching my palm by rubbing it against a table corner or something. My foot symptoms come and go, but are worse in warm weather. I attributed the itchy nose to my many allergies. -Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Dear Colin, Your wife should have been prescribed flax oil and brewers yeast, and this iatrogenic disaster would never have happened to her. Assuming it is just her feet involved with the neuropathy, I would advise nightly soaks in a warm water foot bath with H2O2 added. Put 4 oz in and have her soak her feet for 20 - 30 minutes, with the water quite warm. Make sure there is no chlorine in the water. Boiling it first would take care of that, and heat it too. Be careful not to burn her. Every other night, she could alternate with sea salt or Epsom salts or baking soda. There are lots of options, and experimentation will provide clues. All neuropathies involve lack of B vitamins, which are destroyed under stressful conditions (sound familiar?). She should start taking brewers yeast tablets daily, plus sublingual B12. And IP6 (inositol) would not be out of line if you can afford it. Blackstrap molasses makes a nice tea, and is full of B vitamins too. Make sure she is getting enough magnesium, because it is involved with the Bs in repair activities. Flora has a liquid calcium/magnesium/Vit D/zinc that is a good product, although a bit pricey. And then she would be getting her calcium as well, necessary for bone maintenance, amongst other things. The actual cost per treatment of an ozone sauna is under $1. However, to get to that, you have to spend a lot of money for equipment, so it is not a low cost proposal. Of course, 45 hyperbaric oxygen treatments would not be cheap either. The advantage of the ozone sauna over hyperbaric is that once the money is paid out, you are left with valuable equipment that will last a lifetime and treat everyone in sight, whereas with hyperbaric, you have nothing to show for for your money, except (hopefully) a lack of neuropathy. What was the cause of your daughter's cerebral spinal fluid overpressure? Was it meningitis? Best of Health! Dr. Saul Pressman, DCh Peripheral Neuropathy > Hi Saul, and All, > > 2 years ago my daughter had a life threatening increase of spinal > (cerebral) fluid pressure that put her into hospital for several weeks.. > and just last week she finally got a clean bill of health from her > neurologist. (Thank God.) But when this first happened to my daughter, my > wife got so stressed out that her blood pressure shot through the roof and > her doctor prescribed blood pressure AND cholesterol lowering medications > for her. However... After two years of testing, we (and my wife's > neurologists) now strongly suspect that a side effect from the prescribed > cholesterol lowering drug was probably responsible for her immediately > developing a painful (non-diabetic) peripheral neuropathy. I do have a > good book here about peripheral neuropathy, " Aching Toes . . . " ., and it's > chock full ideas including many alternative therapies.. > > My question now has to be, assuming that oxidative therapy is in the cards, > what's better, do you think-- Ozone Sauna [at home] therapy or hyperbaric > chamber? > > I believe the hyperbaric chamber therapy costs anywhere from $75 to $125 > per hour. (?) > > What are the average costs for at home ozone sauna therapy? > > > Best Regards > Colin Quinney > > > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Hi , Thank you for that prompt and excellent analysis/advice. At 09:58 PM 12/13/00 -0800, Saul Pressman, DCh wrote: >What was the cause of your daughter's cerebral spinal fluid overpressure? >Was it meningitis? Not meningitis. At least it was never seriously looked at. Perhaps it should have been? Cause was determined to be a side effect to a prescribed drug with my daughter (also.).. A birth control pill was prescribed to alleviate an out-of-balance hormone level (not sure which).. Weight was a factor also. Her first symptoms were an eye vision problem with eye-pressure ache and the eye specialist ignored that, patting her on the back.. It just got worse day after day after that, and unrelenting. Perhaps it was myself finally yelling to the family doctor that this was not just a normal migraine headache.. and that maybe she should see a neurologist on an emergency basis?? ..that finally got quick results. I shudder to think what would have happened if she had been delayed even another few hours. They did a spinal tap to relieve the pressure almost immediately after admission in the hospital. I live in Canada where we usually have to wait and wait and wait to get any proper treatment for even serious illnesses usually due to " testing " delays. Things are starting to get a bit better here now however. Thanks again, sir. Best Regards, Colin Quinney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Dear Colin, I live near Vancouver, and our family has had an unrelenting series of bad experiences with allopaths. Twice they have tried to kill my dad, and once my mom. My wife has had a dozen incorrect diagnoses over the years, and most of us have reached the point where we won't go near people wearing white coats. The system is crumbling and I say amen to that. Best of Health! Dr. Saul Pressman, DCh Re: Peripheral Neuropathy > Hi , > > Thank you for that prompt and excellent analysis/advice. > > At 09:58 PM 12/13/00 -0800, Saul Pressman, DCh wrote: > >What was the cause of your daughter's cerebral spinal fluid overpressure? > >Was it meningitis? > > Not meningitis. At least it was never seriously looked at. Perhaps it > should have been? Cause was determined to be a side effect to a prescribed > drug with my daughter (also.).. A birth control pill was prescribed to > alleviate an out-of-balance hormone level (not sure which).. Weight was a > factor also. Her first symptoms were an eye vision problem with > eye-pressure ache and the eye specialist ignored that, patting her on the > back.. It just got worse day after day after that, and unrelenting. Perhaps > it was myself finally yelling to the family doctor that this was not just a > normal migraine headache.. and that maybe she should see a neurologist on > an emergency basis?? ..that finally got quick results. I shudder to think > what would have happened if she had been delayed even another few hours. > They did a spinal tap to relieve the pressure almost immediately after > admission in the hospital. I live in Canada where we usually have to wait > and wait and wait to get any proper treatment for even serious illnesses > usually due to " testing " delays. Things are starting to get a bit better > here now however. > Thanks again, sir. > > Best Regards, > Colin Quinney > > > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Dear Colin, Pressurized ozone has been used in Germany and Russia as well, with good results. And subatmospheric vacuum has been used for ozone delivery, also with good results. However, the equipment is expensive and not easily available. And, in the end, it was observed that the results were not much different than ozone delivered at standard pressure, just a bit faster. Since the expense didn't seem justified, these approaches have mostly fallen by the wayside. If you wish to penetrate to the bone, DMSO will carry any substance all the way in, at little cost or risk. We have a client in Calgary with bone cancer who has kept it at bay for 7 years by spreading aloe gel on the skin and spraying DMSO on it to carry it to the bone. The doctors predicted he would be dead in six months, yet the tumors are 1/4 the size they were in 1993. And we have four clients with severe bone spurs on the spine who have treated them at home with transdermal ozone by funnel, who have avoided surgery and returned to work, with no spurs to be seen. The doctors call those ones 'spontaneous absorption'. So ozone has no difficulty in penetrating deep into the body, as long as the treatment is repeated faithfully, day after day. Best of Health! Dr. Saul Pressman, DCh Re: Peripheral Neuropathy/reply by Dr. B. > Dear Dr Bormann, and All, > > Thank you. I cannot believe the quality of information on this list. Your > response, along with Dr Pressman's is also excellent, and most welcomed. > > Let me understand if I have this correctly-- pressurized oxygen works > faster since it is pressurized, yet ozone is more active but does not > penetrate deeply enough to assist (quickly) for this malady.. since it is > not delivered under pressure-- as is hyperbaric oxygen. > > ok. This is going to probably sound like a really really dumb question but > I must risk that. Why can't ozone be administered " under pressure " like > hyperbaric oxygen (but reduced), and only to the feet-- with inflated, > pressurized ozone bags that are sealed at the ankles? > > My apologies if this idea has been dealt with in the past or if it's just > totally dumb.. (my second day on this list Thanks. > > Best Regards > Colin Quinney > > > > > At 08:37 AM 12/14/00 -0800, you wrote: > >Dear Colin: > > > >Hyperbaric Oxygen deals with pressure and it is the response to not just > the oxygen but the > >pressure that causes regrowth of new blood vessels and nerves in a > neuropathic area. Ozone > >sauna has no pressure at all...just getting oxygen to the area like in a > limb bag is not that beneficial > >either because you can't drive it deep into the tissues where the problem > is in the > >microcirculation. > > > >Also, she should be getting chelated and having i.v. alpha lipoic acid, > DMSO, among other things. You're looking > >at a minimum of 25-50 sessions to see significant improvment usually. At > our clinic where we've > >treated neuropathy with HBO and integrated methods for several years, they > typically charge $75 per > >HBO session if prepaid in blocks of 25, and $65 per i.v. drip, plus the > physician's fees. > > > >An in-home ozone sauna is not ever a bad idea (except in pulmonary cases > which I've found the design tends > >to irritate because of gas leakage into the room) but it has > limitations...that's all. It depends on how fast she > >wants relief. > > > >That's my 2 cents for now... > > > >Dr. Bormann > >http://www.arrowheadhealthworks.com/ > > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Hi Saul, At 08:58 PM 12/14/00 -0800, Dr. Saul Pressman wrote: > >If you wish to penetrate to the bone, DMSO will carry any substance all the way in, at little cost or risk. We have a client in Calgary with bone cancer who has kept it at bay for 7 years by spreading aloe gel on the skin and spraying DMSO on it to carry it to the bone. The doctors predicted he would be dead in six months, yet the tumors are1/4 the size they were in 1993. I see. Yes. . Thanks. This " spurs " a question If DMSO can carry material deep into and through the cells, why not mix DMSO with H2O2 and apply that mixture directly to her feet? (at correct concentrations, of course.) I'm not asking for a specific recommendation-- I'm just wondering if that particular technique makes any sense. Best regards, Colin Quinney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Dear Colin, Yes, that makes sense. Try a very small amount to make sure there is no reaction from this. If nothing shows up the next day, try a bit more. Go slow and experiment. Some email posters to the list have written of the danger of hydrogen sulfide gas using this combination, but I know that several doctors have recommended the use of DMSO and H2O2 for cancer patients, so perhaps the concern is overstated. Perhaps. Perhaps not. Be cautious. Best of Health! Dr. Saul Pressman, DCh Re: Peripheral Neuropathy > Hi Saul, > > At 08:58 PM 12/14/00 -0800, Dr. Saul Pressman wrote: > > > >If you wish to penetrate to the bone, DMSO will carry any substance all > the way in, at little cost or risk. We have a client in Calgary with bone > cancer who has kept it at bay for 7 years by spreading aloe gel on the skin > and spraying DMSO on it to carry it to the bone. The doctors predicted he > would be dead in six months, yet the tumors are1/4 the size they were in 1993. > > I see. Yes. . Thanks. > > This " spurs " a question > If DMSO can carry material deep into and through the cells, why not mix > DMSO with H2O2 and apply that mixture directly to her feet? (at correct > concentrations, of course.) I'm not asking for a specific recommendation-- > I'm just wondering if that particular technique makes any sense. > > Best regards, > Colin Quinney > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Maybe I'm wrong but I understand that over the years most of the MDs who practiced alternative medical techniques here have been either put in jail or run out of town, or they are very-very careful.. Here too. Doctor was shut down in BC Canada for HBOT, curing Crohn's with good results. ciao Duncan Crow duncan-nospam-crow@-nospam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Saul, That was me. I read the article the other day. I would love for it to be another empty scare, but felt I had to post it. I would assume if you have seen people using both DMSO & oxidative procedures without incidence, that it is. Thanks for setting that straight. jim Saul Pressman wrote: > Some email posters to the list have written of the danger of hydrogen > sulfide gas > using this combination, but I know that several doctors have recommended > the use of DMSO and H2O2 for cancer patients, so perhaps the concern is > overstated. ----- carpe diem, carpe pecunia, carpe femina. -- Jim Lambert jlambert@... http://www.entrance.to/madscience http://www.entrance.to/poetry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2000 Report Share Posted December 16, 2000 Hi , At 10:11 PM 12/14/00 -0800, Saul Pressman wrote: >Try a very small amount to make sure there is no reaction from this. > >If nothing shows up the next day, try a bit more. Go slow and experiment. > >Some email posters to the list have written of the danger of hydrogen >sulfide gas >using this combination, but I know that several doctors have recommended >the use of DMSO and H2O2 for cancer patients, so perhaps the concern is >overstated. > >Perhaps. Perhaps not. Be cautious. > I need to know what is clinically safe to apply to the skin because the undersides of her feet are very sensitive. I know that application of high strength DMSO can burn the skin [from extreme drying], and so also can H2O2. Also-- there is a smell an odor on the breath that makes people go away from you very quickly if you take too much DMSO. So yes, caution is definitely in the cards for her. I will experiment on myself with small concentrations of the mixture and then slowly work it up until those side effects just start to appear, then I will back-off on the concentration. Best Regards, Colin Quinney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 My dad has this & he went to a brain stem specialist for chiro treatment. As he worked on the rotation on his neck, the body healed. KALE method. Also The (non-amp micro-current energy) & the slant board helped. Electro-Renegesis http://www.electroregenesis.com/ I could not get this to work tonight but you might try some more. They were doing a study & free clinic ast yr in Springfield, MO w/ Dr. F.T. Doubler MD at Doctor's Hospital ( he is also an acupuncturist) Magnetic bed & magnetic water (N-pole only) Windell, the inventor is an Australian from CA. My dad will not continue any treatments so he is not optimal right now. · ´¨)) -:¦:- . .·´¨¨)) -:- ~Jolene~ Born2BHealed@... ((¸¸.· ..·´-:¦:- Heal me, O Lord, & I shall be healed~Jer 17:14 -:¦:- ((¸¸.´* ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 My dad has this & he went to a brain stem specialist for chiro treatment. As he worked on the rotation on his neck, the body healed. KALE method. Also The (non-amp micro-current energy) & the slant board helped. Electro-Renegesis http://www.electroregenesis.com/ I could not get this to work tonight but you might try some more. They were doing a study & free clinic ast yr in Springfield, MO w/ Dr. F.T. Doubler MD at Doctor's Hospital ( he is also an acupuncturist) Magnetic bed & magnetic water (N-pole only) Windell, the inventor is an Australian from CA. My dad will not continue any treatments so he is not optimal right now. · ´¨)) -:¦:- . .·´¨¨)) -:- ~Jolene~ Born2BHealed@... ((¸¸.· ..·´-:¦:- Heal me, O Lord, & I shall be healed~Jer 17:14 -:¦:- ((¸¸.´* ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 My dad has this & he went to a brain stem specialist for chiro treatment. As he worked on the rotation on his neck, the body healed. KALE method. Also The (non-amp micro-current energy) & the slant board helped. Electro-Renegesis http://www.electroregenesis.com/ I could not get this to work tonight but you might try some more. They were doing a study & free clinic ast yr in Springfield, MO w/ Dr. F.T. Doubler MD at Doctor's Hospital ( he is also an acupuncturist) Magnetic bed & magnetic water (N-pole only) Windell, the inventor is an Australian from CA. My dad will not continue any treatments so he is not optimal right now. · ´¨)) -:¦:- . .·´¨¨)) -:- ~Jolene~ Born2BHealed@... ((¸¸.· ..·´-:¦:- Heal me, O Lord, & I shall be healed~Jer 17:14 -:¦:- ((¸¸.´* ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 i have peripheral neuropathy. i recently saw a neurologist who treats people with chronic lyme, and many of them have PN. my EMG was normal, but he did a skin biopsy test looking for small fiber neuropathy and found that i had significant neuropathy. this DR has been having success using IVIG to treat, but it is difficult to get insurance to pay for it, and it is expensive. if you want info on this DR let me know. here is the lab that performs the test. http://www.therapath.com/ thanks bill > > Hi folks, > > I was wondering if there are a lot of people here who have peripheral > neuropathy. I was ruminating about this whole mess of this illness for me, > and I remember reading ME cases of people who have peripheral neuropathy, > and I suddenly had another thought, an " epiphany " of sorts really. > > In the fall or winter of 1986, I had a bad flu-like illness. It wasn't > like the standard flus I've had, in that it lasted longer than a few > days. It (typical nausea and diarrhea) went on for about two weeks, if I > remember right. But the thing that was the most disabling for me was that > the illness seemed to " settle " in my leg joints. I remember having extreme > difficulty with stairs, and I had to pull myself up by a railing at the > side of the stairs in this place where I was trying to do part-time > work. Walking down the stairs was hard, too, but not nearly as hard (as > one would expect) as going up the stairs. I'd never had anything like this > before that time and I do remember thinking " oh, this is what people mean > when they say an illness 'settled in their ___' (whatever joint). " This is > probably what fixed the whole thing in my mind, really. > > It was after this time when my thyroid crashed (not dxed till late 1989) -- > and then I began to get peripheral neuropathy, too, right at the same time, > 1990-1991. And then all the other symptomatology seemed to follow. > > I had heretofore associated the peripheral neuropathy with my previously > ruptured lumbar disks, but now I'm wondering about this other possible > association. Is it possible that my peripheral neuropathy has nothing at > all to do with the ruptured disks, and instead has everything to do with > the flu-like illness that " settled in my knees and ankles " ? > > > in Champaign IL > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Hi Bill, Thank you for the information. I will investigate, but I'm afraid I have no insurance -- and unless I hear back from my doctor, not one of those again, right now, either. I never had EMG for lower torso. I don't have the reflex to...what do they call the little hammer thingie they tap on your knee and ankle? That thing...I don't have any reflexes usually. None at all. And it seems to confound them, I guess because I walked into the office without falling over? I'm not sure, really, but it does seem to astound the docs when they find no reflexes. Thank you for the help, Bill. > > i have peripheral neuropathy. i recently saw a neurologist who treats > people with chronic lyme, and many of them have PN. > > my EMG was normal, but he did a skin biopsy test looking for small > fiber neuropathy and found that i had significant neuropathy. > > this DR has been having success using IVIG to treat, but it is > difficult to get insurance to pay for it, and it is expensive. > > if you want info on this DR let me know. > > here is the lab that performs the test. > > http://www.therapath.com/ > > > > thanks > bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Good Peripheral Neuropathy forum at: www.braintalk.org > > Hi folks, > > I was wondering if there are a lot of people here who have peripheral > neuropathy. I was ruminating about this whole mess of this illness for me, > and I remember reading ME cases of people who have peripheral neuropathy, > and I suddenly had another thought, an " epiphany " of sorts really. > > In the fall or winter of 1986, I had a bad flu-like illness. It wasn't > like the standard flus I've had, in that it lasted longer than a few > days. It (typical nausea and diarrhea) went on for about two weeks, if I > remember right. But the thing that was the most disabling for me was that > the illness seemed to " settle " in my leg joints. I remember having extreme > difficulty with stairs, and I had to pull myself up by a railing at the > side of the stairs in this place where I was trying to do part-time > work. Walking down the stairs was hard, too, but not nearly as hard (as > one would expect) as going up the stairs. I'd never had anything like this > before that time and I do remember thinking " oh, this is what people mean > when they say an illness 'settled in their ___' (whatever joint). " This is > probably what fixed the whole thing in my mind, really. > > It was after this time when my thyroid crashed (not dxed till late 1989) -- > and then I began to get peripheral neuropathy, too, right at the same time, > 1990-1991. And then all the other symptomatology seemed to follow. > > I had heretofore associated the peripheral neuropathy with my previously > ruptured lumbar disks, but now I'm wondering about this other possible > association. Is it possible that my peripheral neuropathy has nothing at > all to do with the ruptured disks, and instead has everything to do with > the flu-like illness that " settled in my knees and ankles " ? > > > in Champaign IL > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Yes, you're right. Thank you for reminding me. > > Good Peripheral Neuropathy forum at: > www.braintalk.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 A couple or few years ago, one of the s on our list was considering going to a Doctor on the East Coast...perhaps Carolinas? I googled the Doctor and found that he had a Specialty in Diabetes, among others. He was working on a CURE for Neuropathy. There was a little forum of his patients and followers who were 100% behind him, and believed in his work, and that he was very close to this CURE. I lost track of the info, but something may be in my saved thousands of messages. Or someone may be able to figure it out, or some on the neuropathy forum may know of this. I think a test that would identify Neuropathy damage was among those pre-ordered, then canceled at the Mayo Clinic when I went there in 2003. Katrina > > > > Good Peripheral Neuropathy forum at: > > www.braintalk.org > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 I don't know anything about this, Katrina, so anything you or anyone else finds is appreciated. > > > A couple or few years ago, one of the s on our list was considering going to a Doctor on the East Coast...perhaps Carolinas? > > I googled the Doctor and found that he had a Specialty in Diabetes, among others. He was working on a CURE for Neuropathy. There was a little forum of his patients and followers who were 100% behind him, and believed in his work, and that he was very close to this CURE. > > I lost track of the info, but something may be in my saved thousands of messages. Or someone may be able to figure it out, or some on the neuropathy forum may know of this. > > I think a test that would identify Neuropathy damage was among those pre-ordered, then canceled at the Mayo Clinic when I went there in 2003. > > Katrina > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 , Where can I get one of those forked sticks you speak of? I can't help but suspect psoas muscle [which attaches directly to the lumber discs] being hypertonic and weak. Esp. with the night time aggravation. If you haven't seen my correction techniques for psoas check it out. Dr. Todd Turnbull, DC 503-805-3865 > > A patient brought in a full page ad from a DC in Vancouver who helps people > with Peripheral Neuropathy > (PN). Tons of testimonials, etc. > My patient was given meds. By a valid doctor which gave her headaches, > shortness of breath, and other symptoms so she quit taking it. > http://www.drugs.com/condition/peripheral-neuropathy.html > This doc offers LED light therapy. I¹ve looked into this and it appears to > be a series of little LED¹s (Light Emitting Diodes). > At least there are not side effects. > > Patient has NO NUMBNESS, but tingling and burning in both feet at night > somewhat alleived by soaking then worsening at 3-4 a.m. > No low back complaints although I did wave a forked stick over her low back > and it definitely felt like it pulled to the left. > I have seen neuritis relieved by spinal care in a patient who had carpal > tunnel syndrome dx¹d by scientific methodology (peripheral nerve conduction > study) and headed for CTS surgery. I treated her scalenes, neck, upper back, > and her CTS resolved. The neurologist said it was either unrealted or she > never really had CTS. Was bad enough to expose her to general anesthesia, > surgery and infection but not bad enough to expose her to 12 chiropractic > treatments. > > What do you have to say about Peripheral Neuropathy in both feet which is > not a local foot symtom, not proportional to activity level and only comes > on at night (DDX Maneater Syndrome- Hall and Oates 1981). > > E. Abrahamson, D.C. > Chiropractic physician > Lake Oswego Chiropractic Clinic > 315 Second Street > Lake Oswego, OR 97034 > 503-635-6246 > Website: http://www.lakeoswegochiro.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 Thanks! Will be doing a couple of things and advising everyone. Forked sticks at Stix ‘R’ Us; at a location near you. E. Abrahamson, D.C. Chiropractic physician Lake Oswego Chiropractic Clinic 315 Second Street Lake Oswego, OR 97034 503-635-6246 Website: http://www.lakeoswegochiro.com From: " Dr. Todd Turnbull, DC " <drt@...> Date: Wed, 10 Nov 2010 19:27:54 -0000 < > Subject: Re: Peripheral Neuropathy , Where can I get one of those forked sticks you speak of? I can't help but suspect psoas muscle [which attaches directly to the lumber discs] being hypertonic and weak. Esp. with the night time aggravation. If you haven't seen my correction techniques for psoas check it out. Dr. Todd Turnbull, DC 503-805-3865 > > A patient brought in a full page ad from a DC in Vancouver who helps people > with Peripheral Neuropathy > (PN). Tons of testimonials, etc. > My patient was given meds. By a valid doctor which gave her headaches, > shortness of breath, and other symptoms so she quit taking it. > http://www.drugs.com/condition/peripheral-neuropathy.html > This doc offers LED light therapy. I’ve looked into this and it appears to > be a series of little LED’s (Light Emitting Diodes). > At least there are not side effects. > > Patient has NO NUMBNESS, but tingling and burning in both feet at night > somewhat alleived by soaking then worsening at 3-4 a.m. > No low back complaints although I did wave a forked stick over her low back > and it definitely felt like it pulled to the left. > I have seen neuritis relieved by spinal care in a patient who had carpal > tunnel syndrome dx’d by scientific methodology (peripheral nerve conduction > study) and headed for CTS surgery. I treated her scalenes, neck, upper back, > and her CTS resolved. The neurologist said it was either unrealted or she > never really had CTS. Was bad enough to expose her to general anesthesia, > surgery and infection but not bad enough to expose her to 12 chiropractic > treatments. > > What do you have to say about Peripheral Neuropathy in both feet which is > not a local foot symtom, not proportional to activity level and only comes > on at night (DDX Maneater Syndrome- Hall and Oates 1981). > > E. Abrahamson, D.C. > Chiropractic physician > Lake Oswego Chiropractic Clinic > 315 Second Street > Lake Oswego, OR 97034 > 503-635-6246 > Website: http://www.lakeoswegochiro.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 Hi : I love your sense of humor. I learned in the Carrick Neurology Program that with a bi lateral distribution of sensory signs, a parietal lobe lesion, either physiological or ablative lesion needs to be ruled out. You could send her too a Chiropractic Neurologist. He would do a diagnosis and provide treatment recommendations to you. I also think the AK guys get into parietal lobe stuff. If it is parietal lobe, and knowing that the right parietal lobe has bi lateral representation in brain, I'd guess the lesion to be on the right, if there is one. Alan D.C. Eugene Sports and Auto Injury Chiropractic Clinic Aspiring Chiropractic Neurologist From: drscott@...Date: Tue, 9 Nov 2010 12:12:59 -0800Subject: Peripheral Neuropathy A patient brought in a full page ad from a DC in Vancouver who helps people with Peripheral Neuropathy (PN). Tons of testimonials, etc. My patient was given meds. By a valid doctor which gave her headaches, shortness of breath, and other symptoms so she quit taking it. http://www.drugs.com/condition/peripheral-neuropathy.html This doc offers LED light therapy. I’ve looked into this and it appears to be a series of little LED’s (Light Emitting Diodes). At least there are not side effects. Patient has NO NUMBNESS, but tingling and burning in both feet at night somewhat alleived by soaking then worsening at 3-4 a.m. No low back complaints although I did wave a forked stick over her low back and it definitely felt like it pulled to the left. I have seen neuritis relieved by spinal care in a patient who had carpal tunnel syndrome dx’d by scientific methodology (peripheral nerve conduction study) and headed for CTS surgery. I treated her scalenes, neck, upper back, and her CTS resolved. The neurologist said it was either unrealted or she never really had CTS. Was bad enough to expose her to general anesthesia, surgery and infection but not bad enough to expose her to 12 chiropractic treatments. What do you have to say about Peripheral Neuropathy in both feet which is not a local foot symtom, not proportional to activity level and only comes on at night (DDX Maneater Syndrome- Hall and Oates 1981). E. Abrahamson, D.C. Chiropractic physician Lake Oswego Chiropractic Clinic 315 Second Street Lake Oswego, OR 97034 503-635-6246 Website: http://www.lakeoswegochiro.com Quote Link to comment Share on other sites More sharing options...
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