Re: cll and visual problems

[Guest guest]

May be best to consult an eye doctor just to make

sure something not going on with your retina ..

Lynn

>

> Has anyone on this list had visual problems such as lights,

> streaks, etc. with cll that has low hemoglobin?

>

> Thanks,

> Ellen

[Guest guest]

I had inflammation, redness, and pain prior to diagnosis and

treatment. All of these issues were gone after my third

treatment and remain gone well after my 8th. I also

experienced hearing loss which is also gone.

[Guest guest]

Hi Ellen

It is probably wise for CLL patients to visit to an

ophthalmologist every two years, perhaps annually in some

cases.

CLL can infiltrate the eye...although fairly rare.

" Ocular involvement in leukaemia can precede the diagnosis

of leukaemia, can occur during the course of the disease, or

be a sequel to therapy with steroids, chemotherapy, bone

marrow transplantation or total body irradiation. From an

aetiopathogenetic standpoint, ocular involvement can be

direct as a result of leukaemic infiltration or indirect due

to effects of anaemia, thrombocytopenia, hyperviscosity,

immunosuppression or infections. "

" The prevalence of ocular disease in chronic lymphocytic

leukaemia "

http://www.nature.com/eye/journal/v17/n1/full/6700278a.html

[Guest guest]

I have had a few episodes where I was seeing a color

spectrum radiating through my visual field. I'm seeing a

retina specialist next week to get it checked out. The few

times it has happened was when I was very tired.

Ron

[Guest guest]

I saw my eye doctor today and it appears that my problem

with the light streaks, etc., is due to posterior vitreous

detachment, a benign condition that most older people get

when the vitreous tugs at the retina and eventually

separates from the retina. The vitreous is the white,

jelly-like part of the eye, it liquifies more and more as

one ages. Unrelated to cll. I had one about a year ago in

the other eye, but this one presented slightly differently.

It's still scary, though. You have to wait it out. It took

me about 1/2 a year to stop seeing flashes of light

peripherally in the right eye. You also get this giant

floater (usually) called a Weiss ring. It's real

bothersome, but apparently is a good thing, as it is

protective of the retina when you get a PVD.

Ellen