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Therese

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At 02:53 PM 12/11/06 -0800, you wrote:

>I can't describe exactly what this congestion is like, heavy bubbly stuff.

>I have bad congestion anyway, I have had a nasal reconstuctive surgery so

>this is not making it any better. Very bad headaches, and I had to stop

>the protonix I have taken for years for my stomach, so I am trying to find

>a solution for heartburn. I am getting tired again, like when I first was

>diagnosed with the CML. My skin is feeling grainy, like basketball skin. I

>had the grainy skin when I first started on Gleevec. I am looking forward

>to a blood test to see if It is affecting my counts. The side affects will

>be worth it if I get a good response. I am buying time to get ready to

>transplant. If you have any suggestions I would love to hear them. Thanks

I was not used to the level of nasal/sinus congestion that I (and others

had) with Sprycel.....a friend and I were using a Neti Pot daily for nasal

saline rinses and that helped....even twice a day. Find one at a health

food store. I did not have the headaches, but many others do. For the acid

reflux/heartburn, use some kind of greens product....any thing super

alkaline, much better than using drugs for it. A good produce is Garden of

Life Acid Defense.....also at a health food store. I did have the super dry

skin that did not feel like normal skin.....not very pliable. Use tons of

moisturizer.....even putting vaseline on your skin, olive or almond oil in

the bath water or on your skin, etc....there are many good products. At

first it did feel like I was spending a good part of my day doing all this

stuff to offset the side effects......

then they went away.

C.

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