Re: Clinical trial of Estrybon

[Guest guest]

Hi Brett,

We have been dealing with the CLL for 15 years. 1st 7 years was W & W. Registered

with MDA transplant unit. They only found 1 9/10 match and 2 5/6. cord blood

match. With both CLL and MDS and age 66, there is a 30-40% mortality rate 1st

couple of years adfter transplant. We talked ab out and my wife will only chose

SCT as last resort. That's why I went out and found the Estybon trial on my own.

I wish you and your wife well,

Hal

Re: Clinical trial of Estrybon

Hal,

I noted your wife's deletions which are similar to my wife's 11 & 17 (5,8, 19,

20, 21, 23 etc.) and Zap as well. My wife also has a difficult case complicated

by CNS Lupus. She was Dx in Oct. '10. Still on W & W, although she already had a

major sinus infection, and was hospitalized for a week with pneumonia and a

blood infection.

Has your Onc discussed a transplant? That seems to be a consideration with my

wife due to the 17p deletion.

Still trying to get my bearings.

Brett