Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 Hello Everyone, My name is ' , I am 38 years old and I was diagnosed with CML in December 2006. I am new to all of this and I have so many questions. I was accepted at MDACC and my dr. put me on Gleevec 400mg. I am having a few side effects from the drug. My eyes stay extremely swollen all day long. I also CANNOT eat. I weight 95lbs and I have to make myself eat. I was wondering if anyone else is experiencing these side effects and if they go away over time? Any responses would be appreciated. ' --------------------------------- Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2007 Report Share Posted January 23, 2007 At 02:41 PM 1/22/07 -0800, you wrote: > My eyes stay extremely swollen all day long. I also CANNOT eat. I weight > 95lbs and I have to make myself eat. I was wondering if anyone else is > experiencing these side effects and if they go away over time? Any > responses would be appreciated. > >' HI ' Often the side effects get less over time, so maybe knowing this is helpful. You might try putting a mild cold pack on your eyes (they make some gel masks) or try moist tea bags (chamomile is good). About the eating....do you mean you cannot eat because of nausea or is it lack of appetite? both can happen with Gleevec. Discuss this with your doctor, or your MDACC physician's assistant......sometimes a medication can help. Otherwise, get calories in however you can...like one of the supplement drinks or protein drinks. I have had periods of lack of appetite and just ate comfort foods, even if they were not the most healthy choices. Hopefully this will lessen for you. Gleevec is a great drug for what used to be a very bad disease to have......so keeping it all in perspective can also be helpful. Good luck to you, C. dx 8.5 years ago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 , my grandmother has been losing her appetite, along with weight since she has been taking Gleevec. She has been taking Phenergen for nausea lately and she has gained a few pounds back. > > My eyes stay extremely swollen all day long. I also CANNOT eat. I weight > > 95lbs and I have to make myself eat. I was wondering if anyone else is > > experiencing these side effects and if they go away over time? Any > > responses would be appreciated. > > > >' > > > HI ' > > Often the side effects get less over time, so maybe knowing this is > helpful. You might try putting a mild cold pack on your eyes (they make > some gel masks) or try moist tea bags (chamomile is good). About the > eating....do you mean you cannot eat because of nausea or is it lack of > appetite? both can happen with Gleevec. Discuss this with your doctor, or > your MDACC physician's assistant......sometimes a medication can help. > Otherwise, get calories in however you can...like one of the supplement > drinks or protein drinks. I have had periods of lack of appetite and just > ate comfort foods, even if they were not the most healthy choices. > Hopefully this will lessen for you. Gleevec is a great drug for what used > to be a very bad disease to have......so keeping it all in perspective can > also be helpful. Good luck to you, > > C. > dx 8.5 years ago > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Hello Rick....Thank you for all the info. I will start working on these things this week. I will let you know how they work for me. ' Rick Olds <utfin93@...> wrote: Hi ' Sorry you are not feeling well. I have the same deal with eating. Gleevec can give you kind of low level nausea etc that makes eating not too attractive. May I suggest what I do? Include a high protein milkshake with your daily intake. Can get a cheap blender, some protein powder from a health food store and then add milk, ice cream, crushed ice, friut - whatever tastes good to you. Again try to add at least 20g of protein via the powder. Can make this taste really good and cost per serving is just pennies. Might take a multi viatmin daily also. Personally I have my biggest meal at night and preceed this with a glass of red wine. Tastes good and stimulates the appetite. See your doctor about some diurectics to minimixe the eye puffiness. Will help, but unfortunately, probably not make it go away altogether. Good Luck Rick renee grissom <reneeg8894@...> wrote: Hello Everyone, My name is ' , I am 38 years old and I was diagnosed with CML in December 2006. I am new to all of this and I have so many questions. I was accepted at MDACC and my dr. put me on Gleevec 400mg. I am having a few side effects from the drug. My eyes stay extremely swollen all day long. I also CANNOT eat. I weight 95lbs and I have to make myself eat. I was wondering if anyone else is experiencing these side effects and if they go away over time? Any responses would be appreciated. ' --------------------------------- Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 I think I have every known GI problem related to Gleevec. I have been hospitalized numerous times for dehydration associated with the side effects of Gleevec and severe Gastritis. The answer is yes. For me, I have also had/have nausea, vomiting. ongoing diarrhea, upset stomach, loose stools. I also have an incredible gurgley stomach about 30-4 minutes after taking my Gleevec. Due to these side effects as well as the intense muscle and bone aches I get after taking it, I take my Gleevec with a evening snack before bed so that I can sleep through the worse of the effects. You have to play around with it and see what works best for you. Hope that helps in some way- - 34 CML 5/13/05 Gleevec 800 mg Wife and mother of 3 (11,8,6) <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
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