Re: G. sideeffects vs. change to sprycel

[Guest guest]

Hello Sue, Mom of

I am Annie, Mom of , 23 years old, dx'd last year 6th March,

doing very well on 400mg gleevec. He is one of the 'lucky' cml-ers

with no remarkable side effects except a newly found lease of

life! :-)

I heard your smile in this email and just had to respond with a big

cyber *HUG*.

May and Gleevec whip those phillies right into submission

and make them extinct! I know this will put a special kind of peace

into your life......

And yes, Lottie is wonderful! :-)

With love and understanding

Annie

www.livingwithcml.blogspot.com

>

> and Others:

> My daughter was all set to switchto Sprycel due to the

horrendous side effects she was having on Gleevec, 800 mg. But a

wonderful thing happened....after 18 months she finally went into a

3-log reduction! Those allusive Phillies are finally succumbing the

Gleevec. We are so overjoyed and relieved. Yep, she still has

debilitating side effects but this is about fighting cancer and she

is winning THAT fight. She will continue to try to find ways to

have a good quality of life while fighting this battle. We are

overjoyed about the 3-log and her doctor at OHSU feels she should

stay on the Gleevec afterall and we are in agreement.

>

> And Lottie, I want to thank you again for all the information

and support you provided.

>

> Sue...mom of , age 34, diagnosed 5/13/05, gleevec 600

5/28/05, changed to 800 mg. late september 2006. 3-log december

2006.

>

>

> ---------------------------------

> Be a PS3 game guru.

> Get your game face on with the latest PS3 news and previews at

Games.

>

>

[Guest guest]

>

>At 10:37 AM 1/13/2007, Loggin intelligently penned

>> and Others:

>> My daughter was all set to switchto Sprycel due to the

>> horrendous side effects she was having on Gleevec, 800 mg. But a

>> wonderful thing happened....after 18 months she finally went into

>> a 3-log reduction! Those allusive Phillies are finally succumbing

>> the Gleevec. We are so overjoyed and relieved. Yep, she still

>> has debilitating side effects but this is about fighting cancer

>> and she is winning THAT fight. She will continue to try to find

>> ways to have a good quality of life while fighting this battle. We

>> are overjoyed about the 3-log and her doctor at OHSU feels she

>> should stay on the Gleevec afterall and we are in agreement.

>

>Loggin,

>

>My husband got a 3log reduction on Gleevec, but was having

> " horrendous " side effects. His oncologist at UCLA took him off

>Gleevec for 5 months knowing that Sprycel was on its way to being

>oked by the FDA. His counts started to climb very slowly and when

>he started on Sprycel, they began to reverse and is almost back to

>where it was with Gleevec. The good thing is that his side effects

>diminished. They are not completely gone, but it is much, much

>better. Your daughter might reconsider changing to Sprycell.

>

>

>wife to diag 7/20/04

>immediately put on Gleevec 400mg

>off Gleevec 12/05

>on Sprycel 6/06 100mg

[Guest guest]

Sue,

That's wonderful news for you and . Congratulations! If

you don't mind my asking, can you describe 's side effects

on Gleevec? I'm PCRU on Gleevec, but I too have side effects (some

physical, but mostly extreme fatigue and cognitive stuff like memory

loss, impaired focus and concentration, etc.)

Warm regards.

>

> and Others:

> My daughter was all set to switchto Sprycel due to the

horrendous side effects she was having on Gleevec, 800 mg. But a

wonderful thing happened....after 18 months she finally went into a

3-log reduction! Those allusive Phillies are finally succumbing the

Gleevec. We are so overjoyed and relieved. Yep, she still has

debilitating side effects but this is about fighting cancer and she

is winning THAT fight. She will continue to try to find ways to

have a good quality of life while fighting this battle. We are

overjoyed about the 3-log and her doctor at OHSU feels she should

stay on the Gleevec afterall and we are in agreement.

>

> And Lottie, I want to thank you again for all the information

and support you provided.

>

> Sue...mom of , age 34, diagnosed 5/13/05, gleevec 600

5/28/05, changed to 800 mg. late september 2006. 3-log december

2006.

>

>

> ---------------------------------

> Be a PS3 game guru.

> Get your game face on with the latest PS3 news and previews at

Games.

>

>

[Guest guest]

Hi ,

Have you ever tried taking Magnesium for your fatigue and cognitive

issues? Gleevec seems to deplete various electrolytes in some people

(phosphorus, potassium etc) and if you read the symptoms of magnesium

deficiency, you'll see that extreme fatigue, muscle cramps and

impaired cognitive function are all listed as symptoms. A word of

caution though, magnesium is a powerful laxative

Tracey

> >

> > and Others:

> > My daughter was all set to switchto Sprycel due to the

> horrendous side effects she was having on Gleevec, 800 mg. But a

> wonderful thing happened....after 18 months she finally went into a

> 3-log reduction! Those allusive Phillies are finally succumbing

the

> Gleevec. We are so overjoyed and relieved. Yep, she still has

> debilitating side effects but this is about fighting cancer and she

> is winning THAT fight. She will continue to try to find ways to

> have a good quality of life while fighting this battle. We are

> overjoyed about the 3-log and her doctor at OHSU feels she should

> stay on the Gleevec afterall and we are in agreement.

> >

> > And Lottie, I want to thank you again for all the information

> and support you provided.

> >

> > Sue...mom of , age 34, diagnosed 5/13/05, gleevec 600

> 5/28/05, changed to 800 mg. late september 2006. 3-log december

> 2006.

> >

> >

> > ---------------------------------

> > Be a PS3 game guru.

> > Get your game face on with the latest PS3 news and previews at

> Games.

> >

> >

[Guest guest]

That's very interesting, Tracey. I'll have to speak with my doc

about that. Thanks!

> > >

> > > and Others:

> > > My daughter was all set to switchto Sprycel due to the

> > horrendous side effects she was having on Gleevec, 800 mg. But

a

> > wonderful thing happened....after 18 months she finally went

into a

> > 3-log reduction! Those allusive Phillies are finally succumbing

> the

> > Gleevec. We are so overjoyed and relieved. Yep, she still has

> > debilitating side effects but this is about fighting cancer and

she

> > is winning THAT fight. She will continue to try to find ways to

> > have a good quality of life while fighting this battle. We are

> > overjoyed about the 3-log and her doctor at OHSU feels she

should

> > stay on the Gleevec afterall and we are in agreement.

> > >

> > > And Lottie, I want to thank you again for all the

information

> > and support you provided.

> > >

> > > Sue...mom of , age 34, diagnosed 5/13/05, gleevec

600

> > 5/28/05, changed to 800 mg. late september 2006. 3-log december

> > 2006.

> > >

> > >

> > > ---------------------------------

> > > Be a PS3 game guru.

> > > Get your game face on with the latest PS3 news and previews at

> > Games.

> > >

> > >