Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hi Tracey, Nothing wrong with being chatty, except for clearing out the emails. I didnt get on for 3 days and had 92 emails on this site, and another 40some on the other. I read your email about radiation and chemo and you might have a point, because both could do it. I know chemo can cause other things down the line and we all know about radiation. With me I dont know where it came from. My son had AML at age 20 and has been in remission for almost 15 yrs. As for me, I have had CML for over 5 yrs. There is no history that my family or I can come up with, but a few young deaths that were at a time when leukemia wasnt known. I just feel like the dirty bomb that has been inserted into the genetics of my family, and worry so much about my grandbabies and other children. I hope all is well with you and yours. God bless, Denice Tracey <traceyincanada@...> wrote: Hi Denice, Statistically speaking, there are far more Americans on this list than any other group but for some reason, the Canadians do seem to do a lot of the posting. I guess we're a chatty bunch Tracey --- In , denice landry <daiseymillertoo@...> wrote: > > So much of the email comes from Canada and other states, I was wondering if any members of this group live in Houston. > If so, I would like to establish an informal social/support group, if there is any interest. > An ear and a laugh is so important for all of us! > God bless all, > Denice > > > --------------------------------- > Need a quick answer? Get one in minutes from people who know. Ask your question on Answers. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hi Tracey, Yeah, I know what the experts say, but with my youngest having AML, I cant help but think the experts dont know everything! Denice Tracey <traceyincanada@...> wrote: Hi Denice, Don't worry for a second that you might have bad genes that could be passed to your grandchildren. All of the experts agree that CML is NOT inherited and there is no chance that you can pass the Philadelphia chromosome on to your off spring. The mutation that causes CML is " acquired " which means that you developed it sometime during your life, you weren't born with it and you can't pass it on. Take care, Tracey --------------------------------- Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 At 01:08 PM 1/12/07 -0800, you wrote: >Yeah, I know what the experts say, but with my youngest having AML, I cant >help but think the experts dont know everything! CML itself is not inherited.....but there can be (an unknown) disposition toward it or any other cancer. Others on the CML lists have mentioned family histories with lots of various types of leukemia among blood related people. And there are also 'clusters' of leukemia and other cancers......so all is not known. In this discussion about what lead to us getting leukemia, I am not a person who spends much time wondering........I just caulk it up to 'bad luck'........especially when you realize that there are people who have the ph+ chromosome and do not develop CML (this is known). Somehow their immune system recognized the defect and eliminated it.......and then there is the theory that 'ours' did not because the defect was in a primary stem cell. Personally I think that if your body had a lot of free radicals that the liver could not handle, this can cause some RNA defects. Free radicals could be from pesticide exposure, heavy metals, possibly a medication, etc. The liver actually has 2 phases of detoxification.....when something is broken down in phase 1, it can actually be more toxic to the body than the original molecule........and if there are not sufficient enzymes for phase 2 of liver detox, then you get free radicals that do damage to body tissues (and cause aging). This is why you want a diet rich in anti-oxidants. Most of this is not stuff that you will learn from Western medicine practitioners (until recently) and this is why naturopathic medicine is so interesting (and I would say beneficial). Also, this is mainly what people are talking about when they say alternative and complementary medicine. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 I understand what you are saying Amy and I agree with you...there are definite predispositions for various diseases....and I am not talking environment (example- heart attacks in a family with obesity and bad eating/exercising habits) My husband's family have dealt with a lot of cancer - mainly lymphoma and leukemia....so it tells me as well as our Dr confirming it - there seems to be a weakness in the immune systems that doesn't zap those cells off the hop as most people's systems do. But do I think my children are destined for cancer?? No, not any more than the next person. We continue to practice healthy eating, exercise, try to stay away from carcinegenics and in the end hope it counts for something- maybe just being healthy when dealing with health issues. My husband is a super healthy CML patient, sure he has some wicked side effects but starting with good health has been of a huge benefit. I had a friend recently pass away from pancreatic cancer - it was terminal, but he said the most poinant thing when asked if he was mad at God when diagnosed with a terminal disease- He said " We're all terminal - we just don't know when " . That comment from him made me realize we all have our own path, and we have no idea what it will be. I hope you do not develop CLL either nor for the rest of your family have to deal with this again... Have a good weekend as well! Shalyn www.dropshots.com/shalynl " Catch on fire with enthusiasm and people will come for miles to watch you burn. " - Wesley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 To all, I absolutely feel this is a chink in the family iron. Even my Dr. has been careful not to dismiss it. He was my son,s Dr. when he had AML, and I asked him about treating a mother/son combo. His reply was I would be surprised at the family combinations he's treated. That tells me something right there!!! Denice shalyn@... wrote: I understand what you are saying Amy and I agree with you...there are definite predispositions for various diseases....and I am not talking environment (example- heart attacks in a family with obesity and bad eating/exercising habits) My husband's family have dealt with a lot of cancer - mainly lymphoma and leukemia....so it tells me as well as our Dr confirming it - there seems to be a weakness in the immune systems that doesn't zap those cells off the hop as most people's systems do. But do I think my children are destined for cancer?? No, not any more than the next person. We continue to practice healthy eating, exercise, try to stay away from carcinegenics and in the end hope it counts for something- maybe just being healthy when dealing with health issues. My husband is a super healthy CML patient, sure he has some wicked side effects but starting with good health has been of a huge benefit. I had a friend recently pass away from pancreatic cancer - it was terminal, but he said the most poinant thing when asked if he was mad at God when diagnosed with a terminal disease- He said " We're all terminal - we just don't know when " . That comment from him made me realize we all have our own path, and we have no idea what it will be. I hope you do not develop CLL either nor for the rest of your family have to deal with this again... Have a good weekend as well! Shalyn www.dropshots.com/shalynl " Catch on fire with enthusiasm and people will come for miles to watch you burn. " - Wesley --------------------------------- Be a PS3 game guru. Get your game face on with the latest PS3 news and previews at Games. Quote Link to comment Share on other sites More sharing options...
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