Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Why would a hitherto healthy muscle will suddenly stop working? The nerves... Why would the nerves work?\ Maybe someone messed them up. But who... No one messed with my nerves...Hang on. I had three root canals at the dentist in the past five years... They kill the nerve....and when I get the so called spasm, it goes from chest to jaw! Just wondering if there is a thread...Had any of you undergone root treatments in the years before the onset of A? Dorian Wolfson, London. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Questions about the possible causes come up here frequently and most of us would like to understand better, where their " A " is coming from. The most recent examples in this group are the root treatment and Amalgan. However it seems to be unlikely, since 1. there are much more people with Amalgan and/or a root treatment than with " A " . On the other hand each poll in this group that asked for possible causes showed that there are many people without the possible cause. There are even web-pages discussing " A " of pets. Pets usually don't have Amalgan or root treatments. They also don't take anti-depressiva or drugs or things like that. And it is even unclear if there is only one reason. Since the symptoms differ between the people with " A " it is also possible that there is more than one reason. In short, I fear with polls like this we cannot find the reason. This would require a systematic study with high statistics, e.g. a high number of people with " A " . Lars. > > > Why would a hitherto healthy muscle will suddenly stop working? > > The nerves... Why would the nerves work?\ > > Maybe someone messed them up. But who... No one messed with my nerves...Hang on. I had three root canals at the dentist in the past five years... They kill the nerve....and when I get the so called spasm, it goes from chest to jaw! > > > > Just wondering if there is a thread...Had any of you undergone root treatments in the years before the onset of A? > > Dorian Wolfson, London. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 I agree with Lars' reasoning. Some of us have asthma, some don't. Some have allergies, some don't. Some have had Chicken Pox (varicella), some haven't. Some have had recurrent infection problems (tonsillitis, etc.), some haven't. Some have autoimmune disorders, some don't. Some are old, some are young. Some are overweight, some are normal, some are thin. You get the idea. Personally, I've never had a root canal and I doubt I'll ever need one. I did, however, have over a decade of constant tonsillitis / strep infections and ear infections. I do have allergies, but I don't have asthma, I haven't had Chicken Pox, and I was in my mid-20's when my symptoms first showed up. Debbi in Michigan Questions about the possible causes come up here frequently and mostof us would like to understand better, where their "A" is coming from.The most recent examples in this group are the root treatment andAmalgan. However it seems to be unlikely, since 1. there are much morepeople with Amalgan and/or a root treatment than with "A". On theother hand each poll in this group that asked for possible causesshowed that there are many people without the possible cause.There are even web-pages discussing "A" of pets. Pets usually don'thave Amalgan or root treatments. They also don't take anti-depressivaor drugs or things like that.And it is even unclear if there is only one reason. Since the symptomsdiffer between the people with "A" it is also possible that there ismore than one reason.In short, I fear with polls like this we cannot find the reason. Thiswould require a systematic study with high statistics, e.g. a highnumber of people with "A".Lars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 And if everybody with " A " had chickenpox, or allergies or something else (which seems not to be the case),then there would be still the question " Why only we? Why is " A " so rare? " , since all of this possible causes are much, much more common than " A " . Lars. > I agree with Lars' reasoning. > > Some of us have asthma, some don't. > Some have allergies, some don't. > Some have had Chicken Pox (varicella), some haven't. > Some have had recurrent infection problems (tonsillitis, etc.), some haven't. > Some have autoimmune disorders, some don't. > Some are old, some are young. > Some are overweight, some are normal, some are thin. > You get the idea. > > Personally, I've never had a root canal and I doubt I'll ever need one. I did, however, have over a decade of constant tonsillitis / strep infections and ear infections. I do have allergies, but I don't have asthma, I haven't had Chicken Pox, and I was in my mid-20's when my symptoms first showed up. > > Debbi in Michigan > Questions about the possible causes come up here frequently and most > of us would like to understand better, where their " A " is coming from. > > The most recent examples in this group are the root treatment and > Amalgan. However it seems to be unlikely, since 1. there are much more > people with Amalgan and/or a root treatment than with " A " . On the > other hand each poll in this group that asked for possible causes > showed that there are many people without the possible cause. > > There are even web-pages discussing " A " of pets. Pets usually don't > have Amalgan or root treatments. They also don't take anti-depressiva > or drugs or things like that. > > And it is even unclear if there is only one reason. Since the symptoms > differ between the people with " A " it is also possible that there is > more than one reason. > > In short, I fear with polls like this we cannot find the reason. This > would require a systematic study with high statistics, e.g. a high > number of people with " A " . > > Lars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 --- Hi, I have never had any root treatments. Jenifer In achalasia , dennis matt <iopt182@y...> wrote: > > > Why would a hitherto healthy muscle will suddenly stop working? > > The nerves... Why would the nerves work?\ > > Maybe someone messed them up. But who... No one messed with my nerves...Hang on. I had three root canals at the dentist in the past five years... They kill the nerve....and when I get the so called spasm, it goes from chest to jaw! > > > > Just wondering if there is a thread...Had any of you undergone root treatments in the years before the onset of A? > > Dorian Wolfson, London. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 -- Hi, Debbi said something that made me think. In the beginning of my problem I swore it came from an ear infection. I was getting dizzy and was wheezing went to the doctors and he said I had a double ear infection that spread to my and put me on antibiotics and an inhaler, only used inhaler a couple times. I hadn't had an ear infection since I was a kid. A couple of months after this was when my first symptoms developed. Jenifer - In achalasia , " Debbi Heiser " <heiser@t...> wrote: > I agree with Lars' reasoning. > > Some of us have asthma, some don't. > Some have allergies, some don't. > Some have had Chicken Pox (varicella), some haven't. > Some have had recurrent infection problems (tonsillitis, etc.), some haven't. > Some have autoimmune disorders, some don't. > Some are old, some are young. > Some are overweight, some are normal, some are thin. > You get the idea. > > Personally, I've never had a root canal and I doubt I'll ever need one. I did, however, have over a decade of constant tonsillitis / strep infections and ear infections. I do have allergies, but I don't have asthma, I haven't had Chicken Pox, and I was in my mid- 20's when my symptoms first showed up. > > Debbi in Michigan > Questions about the possible causes come up here frequently and most > of us would like to understand better, where their " A " is coming from. > > The most recent examples in this group are the root treatment and > Amalgan. However it seems to be unlikely, since 1. there are much more > people with Amalgan and/or a root treatment than with " A " . On the > other hand each poll in this group that asked for possible causes > showed that there are many people without the possible cause. > > There are even web-pages discussing " A " of pets. Pets usually don't > have Amalgan or root treatments. They also don't take anti- depressiva > or drugs or things like that. > > And it is even unclear if there is only one reason. Since the symptoms > differ between the people with " A " it is also possible that there is > more than one reason. > > In short, I fear with polls like this we cannot find the reason. This > would require a systematic study with high statistics, e.g. a high > number of people with " A " . > > Lars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Lars wrote: >... On the >other hand each poll in this group that asked for possible causes >showed that there are many people without the possible cause. There are people that get lung cancer that have never been around cigarets. It would be wrong to conclude from this that cigarets do not cause cancer. >There are even web-pages discussing " A " of pets. Pets usually don't >have Amalgan or root treatments. They also don't take anti-depressiva >or drugs or things like that. A problem can have different causes in different species. >And it is even unclear if there is only one reason. Right. There could easily be more than one cause. One should not be looking for only 100% correlation. A correlation that is different from the norm could be important, even if not 100%. Putting all this together you could have something that 90% of the general population is exposed to that causes, or predisposes to, achalasia, resulting in only 0.0001% of the people that are exposed to it getting achalasia, but only be a factor in a portion of the cases of achalasia. If you took a poll about it, some with achalasia would never have been exposed, most without achalasia would have been exposed, and some with achalasia would have been exposed. The thing to look for would be that the percent of those with achalasia that have been expose would not be 90%, probably higher but less than 100%. Hard to see in a small poll. For multiple sclerosis there is a correlation to cow milk that studies have found. Populations with less cow milk consumption have less MS. Populations without cow milk consumption are virtual MS free. Just think for a moment how common drinking cow milk is. And, a disease that has only one cause can effect different people differently. So, even though we do not all have it the same, it could be that 100% of us have something in common that we have never noticed. >In short, I fear with polls like this we cannot find the reason. This >would require a systematic study with high statistics, e.g. a high >number of people with " A " . You are probably right, but it is hard to prove a negative. That is, you can not prove that polls like this will never produce something that could lead to a better understanding of achalasia. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Lars wrote: >And if everybody with " A " had chickenpox, or allergies or something >else (which seems not to be the case),then there would be still the >question " Why only we? Why is " A " so rare? " , since all of this >possible causes are much, much more common than " A " . It is possible that a number of things need to come into play for a disease to take hold. Any one of the factors alone would to some degree predispose you to the disease but would not mean you would get it. Again, think of MS and cow milk. Something more than cow milk is probably part of the cause, but cow milk seems to be a factor. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 Thanks guys for letting me know.....sometimes when you are at the docs office you forget to ask things!!!! > Hi Group, > Here is a question I have never asked and didn't even think of > until a few minutes ago....The doctors told me that a parent that has > BPES has a 50% chance of passing it on to their children. So I > understand that part about how some of your children have gotten it. > My husbnad abd I took our daughter ( Rose) to a genetisist and we > were told she was a new mutation. I never thought to ask was there > something that during my pregnancy that I may have done wrong to > affect that gene and cause the Bleph? Does anyone out there know what > casues it??? > > love to all, amy hinchman > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Does anyone know how I may have gotten this disease, and, can you ever be CURED? I'm 48 years old and was diagnosed 4 months ago.I'm not sure how long I've had it but when I noticed a major mental fog 5 months ago I started looking on the Internet and found hypogonadism.I had all the symptoms,some longer than others.When I was tested I was at 57.5. Thanks for the help, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 > > Does anyone know how I may have gotten this disease, and, can you ever > be CURED? I'm 48 years old and was diagnosed 4 months ago.I'm not sure > how long I've had it but when I noticed a major mental fog 5 months ago > I started looking on the Internet and found hypogonadism.I had all the > symptoms,some longer than others.When I was tested I was at 57.5. > Thanks for the help, -------------------------------------- Hi , I think it would be impossible for anyone here to answer your question any better than your own doctor can. Personally, I believe that much of life is random, good and bad and inbetween, and your now experiencing hypogonadism at 48 falls squarely into the " stuff happens " bad category. Many here, and on other much more serious life threatening public boards, have found their own private ways to rationalize the " whys " of their condition, and go about their lives just dealing with the symptoms. Because you are recently diagnosed, I suspect you will have to go through a period, hopefully not too long, of self pity or attempts to assign " blame " . Personally, I think it helps one to accept their lot in life by remembering literally billions of other humans who spent their lives, however brief, suffering horrible pain and death. A real wake up call is to go visit a children's cancer hospital, and leave knowing many of these innocent lives will die without ever experiencing anything good at all about being alive. Hypogonadism, when viewed relative to many other afflictions, is not so bad. My thoughts reflect only how I personally from my own recognition, had to learn to deal with this disease. I hope you find your own way. Norton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Hi Tracey, Of course, it is easy for me to blame procedures from my past for my cml. I needed to be reminded that there are many others, like you, who have no radiation or chemo in their past. Maybe my cml came from some of those procedures and maybe it didn't. I guess it's just natural to wonder why I got it. Unfortunately, we have it, so does it really matter? I'm glad to know it is an acquired disease and not an inherited one. There is some comfort in knowing it doesn't get genetically passed on to our kids. in NY Quote Link to comment Share on other sites More sharing options...
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