Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Hi & welcome! The casting procedure is not fun, but the main thing to remember is tht it is completely harmless to your child. It is quick, although it seems like forever, but only lasts 10-15 mins usually. Most babies do scream and get angry, but again, they're not in pain, just angry and a bit scared maybe. My daughter was casted 4 diff. times, and she was always back to her happy self minutes after the casting was complete! As for the stares, yes, you get plenty of looks and whispers, and often comments, but you'll get used to them as treatment continues. They never really bothered me, I told myself I'd stare too if I didn't know what the band was for, it's human nature to look at something "different". Good luck with all this. Do you know what type helmet or band your baby will receive? Where abouts do you live? Welcome again! Good to have you w/us. Debbie Abby's mom DOCGrad MIbrettbec1998 <Szrejna@...> wrote: Our 6 month old was recently diagnosed with plagio. We are just waiting on word from insurance before we can get him casted. How horrible is the casting process? I saw pictures on-line and it looks terrible. I feel so bad that he will have to go through that. Also, I find myself worrying about the stares we will get from strangers when he is banded and then I feel guilty about feeling that way. Did anyone else go through that and if so how did you deal with it?For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Thank you for the welcome. He will be getting the DOC Band (I didn't realize that there were other types of bands). We live in CT so we will be going through Cranial Technologies. Why did your daughter have to be casted so many times? I thought it was a one-time shot. > Our 6 month old was recently diagnosed with plagio. We are just > waiting on word from insurance before we can get him casted. How > horrible is the casting process? I saw pictures on-line and it looks > terrible. I feel so bad that he will have to go through that. Also, > I find myself worrying about the stares we will get from strangers > when he is banded and then I feel guilty about feeling that way. Did > anyone else go through that and if so how did you deal with it? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 After I posted she was casted 4 times, I thought "oh oh, I probably confused that person!"....well Abby first wore a STARband (there are many diff. types of bands/helmets available, DOC & STAR are the more common 2), and was casted twice for that band (the ortho messed up her first cast, so did another one right after the 1st one, joy!), then after 3 mos with no success from her STARband, we switched to a DOCband by Cranial Tech, so she was casted for that, then we had an "exit cast" done when her treatment was complete. Exit casts are optional, many parents have them done just to see concrete evidence of the change from the band. But, so you are aware, many babies, not all, require 2nd bands if there's still improvement needed or if the baby outgrows their first band. Some do , some don't! Don't worry about it til the time comes. You're fortunate to be near a Cranial Tech.. They and their DOCband are outstanding!! You will be very pleased with his results.....good luck!! Debbie Abby's mom 3/1/00 STARband 11/7/00-1/26/01 DOCgrad 2/16/01-6/22/01brettbec1998 <Szrejna@...> wrote: Thank you for the welcome. He will be getting the DOC Band (I didn't realize that there were other types of bands). We live in CT so we will be going through Cranial Technologies. Why did your daughter have to be casted so many times? I thought it was a one-time shot. --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Hih: I can't help you with the casting, because we had the scanner. But as far as worrying about what other people thought... I don't really remember being overly concerned about that. I figured that people may stare, but so what? Honestly though, we have had only positive comments from strangers, either sayinghow cute he is or what a cute football helmet! And some people ask what the band is for, or if he hurt himself, etc... then I use the opportunity to explain plagio to them. Please don't worry about people staring, it honestly was not a big deal at all! Kim mom to Kurt (STARbanded 5/8/03)brettbec1998 <Szrejna@...> wrote: Our 6 month old was recently diagnosed with plagio. We are just waiting on word from insurance before we can get him casted. How horrible is the casting process? I saw pictures on-line and it looks terrible. I feel so bad that he will have to go through that. Also, I find myself worrying about the stares we will get from strangers when he is banded and then I feel guilty about feeling that way. Did anyone else go through that and if so how did you deal with it?For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Hi, Welcome to the group. The casting really isn't all that bad. It's over quickly. Yes the babies do cry but only b/c they don't like being held down. I hated the stares we got from strangers and I never got use to it. I think I'm the minority on that one, as most of our members got use to it pretty fast. Hopefully you'll be like them. Please keep us posted. --- In Plagiocephaly , " brettbec1998 " <Szrejna@m...> wrote: > Our 6 month old was recently diagnosed with plagio. We are just > waiting on word from insurance before we can get him casted. How > horrible is the casting process? I saw pictures on-line and it looks > terrible. I feel so bad that he will have to go through that. Also, > I find myself worrying about the stares we will get from strangers > when he is banded and then I feel guilty about feeling that way. Did > anyone else go through that and if so how did you deal with it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2003 Report Share Posted July 13, 2003 Hi, I also have a 6 month old (born 12/23) who was banded a couple months ago. The casting isn't fun--Hannah screamed the whole time-- but it was over really quick. And getting the band and seeing the head rounding is will worth it! I have pictures of Hannah's whole casting at http://photos./bertlingfamily if you're interested. I'd bring a lollipop and a bottle, and don't forget your camera! You get used to the stares and Hannah actually just loves the extra attention. They did an article on her in our local paper (http://www.capecodonline.com/archives/7days/mon/hannahzxsstory7.htm) and it was on the front page and now she really gets lots of extra attention and she just eats it up! My thought is that less people will notice her once she gets the band off and then she'll be wondering why she doesn't get talked to so much! , mom to Hannah DOCbanded 5/13 Cape Cod, Ma --- In Plagiocephaly , " brettbec1998 " <Szrejna@m...> wrote: > Our 6 month old was recently diagnosed with plagio. We are just > waiting on word from insurance before we can get him casted. How > horrible is the casting process? I saw pictures on-line and it looks > terrible. I feel so bad that he will have to go through that. Also, > I find myself worrying about the stares we will get from strangers > when he is banded and then I feel guilty about feeling that way. Did > anyone else go through that and if so how did you deal with it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2003 Report Share Posted July 13, 2003 Hi again, I just read the post that you will be using the Connecticut CT and thats the one we use. You won't be disappointed! Lynne is great and Hannah has had great progress. You can see her progress in photos in the " Hannah B " folder. When is the casting? , mom to Hannah DOCbanded 5/12 traveling all the way from Cape Cod! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2003 Report Share Posted July 13, 2003 I'm glad to hear from someone else in the area. Lynne seems really good. We don't have a scheduled date for the casting because we are waiting for word from insurance on if they will be covering it or not. I noticed that Hannah (by the way, she is adorable) was born 12/23...my son Tyler was born 12/22. When was Hannah banded and how long did she have to wear the band for? Also, I love how you decorated the band. Is there a special paint that needs to be used or is it just acrylic? Thank you so much for sharing your pictures and story with me...at least I don't feel so alone. --- In Plagiocephaly , " " <sarahhollis@y...> wrote: > Hi again, > I just read the post that you will be using the Connecticut CT and > thats the one we use. You won't be disappointed! Lynne is great > and Hannah has had great progress. You can see her progress in > photos in the " Hannah B " folder. When is the casting? > , mom to Hannah DOCbanded 5/12 > traveling all the way from Cape Cod! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 I see you have already rec'd some wonderful advise. I will just welcome you to the group and tell you my daughter was casted 4 times before she was finished with treatment and it never once hurt her. Dustie, mom to , DOC Grad '03 --- In Plagiocephaly , " brettbec1998 " <Szrejna@m...> wrote: > Our 6 month old was recently diagnosed with plagio. We are just > waiting on word from insurance before we can get him casted. How > horrible is the casting process? I saw pictures on-line and it looks > terrible. I feel so bad that he will have to go through that. Also, > I find myself worrying about the stares we will get from strangers > when he is banded and then I feel guilty about feeling that way. Did > anyone else go through that and if so how did you deal with it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 I am 35, was recently diagnosed with CML and have been on Gleevec for about two weeks. My side effects have been minimal. I am experiencing dryness in my nose and itching on my back. Anyone have this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 HI SORRY YOU HAD TO JOIN THE CLUB.WHAT WAS YOUR WC!ARE YOU ON 800 OF 400 MAKES A BIT OF DIFERENCE.WE ALL HAVE A LOT OF DIFFERENT EFFECTS AND SEX DIFFERENCE IS TOSSED IN THERE ALSO.YOUR SKIN WILL GET DRYER I HAVE A LOT OF EAR WAX/HANG IN THERE dxt 12 /23/06 wc 154000 Tn. [ ] Recently diagnosed I am 35, was recently diagnosed with CML and have been on Gleevec for about two weeks. My side effects have been minimal. I am experiencing dryness in my nose and itching on my back. Anyone have this? ________________________________________________________________________________\ ____ Expecting? Get great news right away with email Auto-Check. Try the Beta. http://advision.webevents./mailbeta/newmail_tools.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 Hi Efrem, Welcome to the club. I was diagnosed when I was 31 and have been on Gleevec for 5 years now. It's hard to say forsure if the dryness you are experiencing is from the Gleevec or from the dry indoor heating during winter. You could try a basic body lotion for your back to moisturize your skin and see if that helps. I've always had dryness during the winter but it is worse since I've been on Gleevec. I also have the dry nose problem and you can't imagine how many things I've tried to get relief from that. I think I could open up a pharmacy just for the nose products that I've collected. Be very careful not to use anything with a petroleum base (ie Vaseline) in your nose as it can be inhaled which could cause a type of lypoid pneumonia that is untreatable. Use only water based products or saline type sprays. Take care, Tracey > > I am 35, was recently diagnosed with CML and have been on Gleevec for > about two weeks. > > My side effects have been minimal. I am experiencing dryness in my > nose and itching on my back. Anyone have this? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 Oh yes. My itching is mainly on my ankles. Def. dry nose. > > I am 35, was recently diagnosed with CML and have been on Gleevec for > about two weeks. > > My side effects have been minimal. I am experiencing dryness in my > nose and itching on my back. Anyone have this? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 Thank You. I will try the saline drops or spray. Tracey <traceyincanada@...> wrote: Hi Efrem, Welcome to the club. I was diagnosed when I was 31 and have been on Gleevec for 5 years now. It's hard to say forsure if the dryness you are experiencing is from the Gleevec or from the dry indoor heating during winter. You could try a basic body lotion for your back to moisturize your skin and see if that helps. I've always had dryness during the winter but it is worse since I've been on Gleevec. I also have the dry nose problem and you can't imagine how many things I've tried to get relief from that. I think I could open up a pharmacy just for the nose products that I've collected. Be very careful not to use anything with a petroleum base (ie Vaseline) in your nose as it can be inhaled which could cause a type of lypoid pneumonia that is untreatable. Use only water based products or saline type sprays. Take care, Tracey > > I am 35, was recently diagnosed with CML and have been on Gleevec for > about two weeks. > > My side effects have been minimal. I am experiencing dryness in my > nose and itching on my back. Anyone have this? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 I am on 400 MG. Shipley <paulorkay@...> wrote: HI SORRY YOU HAD TO JOIN THE CLUB.WHAT WAS YOUR WC!ARE YOU ON 800 OF 400 MAKES A BIT OF DIFERENCE.WE ALL HAVE A LOT OF DIFFERENT EFFECTS AND SEX DIFFERENCE IS TOSSED IN THERE ALSO.YOUR SKIN WILL GET DRYER I HAVE A LOT OF EAR WAX/HANG IN THERE dxt 12 /23/06 wc 154000 Tn. [ ] Recently diagnosed I am 35, was recently diagnosed with CML and have been on Gleevec for about two weeks. My side effects have been minimal. I am experiencing dryness in my nose and itching on my back. Anyone have this? __________________________________________________________ Expecting? Get great news right away with email Auto-Check. Try the Beta. http://advision.webevents./mailbeta/newmail_tools.html Quote Link to comment Share on other sites More sharing options...
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