Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 AMEN MAUREEN!!!!! [low dose naltrexone] Message for wrote: "I have talked to my neuro about trying LDN but he didn't think it was a good idea especially since no trials have have been done or if there is any long term damage from the use. Any suggestions to get my doctor on board?"Try educating your doctor. If he is concerned about long-term damage, he plainly doesn't know anything about LDN. The FDA determined the safety of 50mg Naltrexone in 1984; people have been taking it with virtually no side effects since then. At 4.5mg, LDN is one of the safest medications you can take. If this fails -- if your doctor still won't come on board -- throw him overboard and find another doctor. It's your boat, your health, your life. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 This what I do...I open the capsule cause I can't swallow pills and mix it with juice in a spoon and take it and I have had no probelms at all. Always A Friend, Crystal You can sidestep this issue if you open the capsules and dump thecontents into a cup of juice. People who have trouble swallowing theLDN capsules often do this. bentleyfam26 <mclarke@...> wrote: wrote: "Calcium carbonate.... is there any problem with time release otherthan it may not work?"Nope. Calcium carbonate is occasionally packed too tight in the capsule,which can cause a slow-release reaction, rather than the desiredfast-release. Other than that, there are seldom any negative issues*associated with calcium carbonate. You can sidestep this issue if you open the capsules and dump thecontents into a cup of juice. People who have trouble swallowing theLDN capsules often do this. ------------*Calcium carbonate is a mineral that occurs naturally in limestone, marble and coral. Crushed to a fine, flavorless, odourless powder, it is a natural food additive, and the most common ingredient in calcium supplements and antacids.Calcium is absorbed by the small intestine and is used by the body to build bone tissue. Calcium supplements are generally well tolerated, but in some patients may cause constipation, bloating, gas and flatulence. People with kidney stones, hypercalcemia, sarcoidosis, hyperparathyroidism, hypervitaminosis D or cancer should not take calcium carbonate.People taking calcium supplements are usually advised to take them with food. For more about LDN fillers, go to http://gazorpa.com/LDNFillers.html.Hope this helps... Maureen (Gazorpa) My MS & TM WebSite www.crystalangel.org New Messenger with Voice. Call regular phones from your PC for low, low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Maureen, Thanks, He already new about it. He's prescribed it before. But we talked about what he knows vs. what I know. It was a good conversation. He knows everything about LDN. All The Best, On Apr 19, 2006, at 8:32 PM, bentleyfam26 wrote: > wrote: " Good News!!! I saw my new Neuro today! What a great > guy! He had no problems at all writing a script for LDN for me! > Thanks Guys! " > > Way to go, ! > > Did your new neuro already know about LDN, or did you educate him? > > Just curious... > > Maureen > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 [low dose naltrexone] Message for " Blincoe" wrote: Height 6 ft Weight 350 Gender Female Dosage 3.5 mgBeen on LDN for a month-----------------------------------Sorry, , but I can't enter your information into the poll unlessit is complete... this is no time to be shy! : ) -- Maureen (Gazorpa) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 , Thanks so much for your last post. It is so weird how similar our situations are. My husband, also 33yrs, was diagnosed at the end of June so we have been in this game for about six months as well. Also, my husband, like yours, is getting so he does not want to focus so much on the cml so I might be taking over posting for him. Our doctor told us the same story about it taking his blood cells a long time to regenerate because he was 96% Phil.Chrom. He told us to give it time and we have done just that. He went off Gleevec (400mg) in October and has been off ever since--sort of. When part of his counts started coming back he went back on at 200mg but they dropped again after only 4 day on. Back off again. I appreciated what you said about being tied to the NUMBERS. I have been making myself crazy over them. Currently he is getting CBC's two times a week because he is such an abnormal case. At Christmas his counts were so low that when he caught the flu from my son it absolutely leveled him. He could barely move or get out of bed for 10 days. We just keep thinking and hoping that any day these stupid counts are going to start recovering. Today he had a red blood cell transfusion so he is perking up a bit. We are still fighting to get coverage for his Neupogen but for the time being are paying for it out of pocket. I went to pick up his second batch of it today from the pharmacy and it was hard controlling my emotions as the clerk rang up my bill for $2100. She checked it three times because she didn't think it was the right total. Right now it is the only thing we have that will provide a way for him to get back on Gleevec so we will just have to find a way to pay for it. I am so grateful for this group and all the knowledge that it has provided for us. I really liked what Tracey said in a previous post. When you have information it takes a lot of the fear away, and the more I learn the better I am able to deal with things. I'll continue to search for info that will help my husband's case and I so appreciate your story that you were willing to share. Thanks for all your positive insight. I will continue to hope and pray for my husband and for all of you. Coralee Wife of Cam Dx June 2006 On Jan 17, 2007, at 3:18 PM, Cervera wrote: > I will get all the info to you in the next day or so--I have so many > numbers, etc. floating in my head from that time. My husband knows > ALL of > it--though is not a member of this forum--ironically, me, the > worried wife > is a member! He feels really good most days and feels he doesnt > need to > focus so much on CML...he needs to be educated, yes, but dwell on > it, no. Is > that how your husband is?! > > They tried everything to boost his counts while in the hospital--I > am sure > of neupogen, and I will get you the name of the other one as well. > Basically, his doctor (she has about 8 patients on Gleevec), really > felt > that it was a matter of TIME before his counts went back > up.....something > did not want to hear after being in the hospital for weeks > with no end > in sight, and his counts remaning low. He had severe fevers for > about 10 > days--that usually spiked to 103 - 103.5. He had no immune system > and was in > isolation, and through all of it baffled his docs because for the > mosat > part, he felt pretty good. His onc explained how Gleevec is such a > " wonder > drug " because it only targets the cancerous cells...where as chemo, > radiation and other forms of treatment actually cant differentiate > between > " good " (healthy) cells and " bad " (cancerous) cells. When my husband > was > diagnosed with CML, his WBC was 449,000--off the charts. His doc > (whom, I > might add is our second oncologist--first one had no experience > with CML and > had horrible bedside manners), explained that she believes his > counts got > completely wiped out because the majority of his cells were > cancerous...and...that is what Gleevec targets. So, because most of > his > cells were cancerous, Gleevec was killing off those cells...leaving > him not > many healthy cells. Makes sense. So--she kept explaining that we > need to > give it time for his cells to regenerate. He was off Gleevec for 1 > month, > and they slowly slowly got him back on it. I wrote to Dr. Druker > during that > time (he invented Gleevec), and he was quick to say: " STAY ON > GLEEVEC and if > need be, take WBC boosters. " Druker did not think it was a good > idea to be > off of Gleevec at all...we mentioned this to my husband's onc, but > ultimately we let her treat my husband since he was HER patient and > not Dr. > Druker's....she knows his entire history! > > All in all, this is a " touch and go " situation. My husband's onc > checks his > blood counts weekly and has for 4 months now. Just this week she > said " lets > wait 2 weeks to check it out...and then hopefully once we > 'stabilize', we > can go a month, and then longer. " But, it is better safe than > sorry, so my > husband went for his weekly blood draw today. I am at work, and > dont know > the results yet---so who knows...maybe his counts have dropped a > little. > > I might add that the only reason we found out had CML was > because he > was having numbness on the left side of his mouth and a little in > his left > hand--that is what got us to the ER. After tests it was revealed > that at the > age of 33, he had suffered a stroke because of a blood clot in his > brain all > due to CML. SCARY SCARY summer last year---he had to undergo 3 > emergency > brain surgeries, leukopherysis treatments, was on hydrea, then started > Gleevec. And--to complicate things more--I was still on maternity > leave > because our first child was only 2 months old when all of this > happened...in > a matter of one week I went from a happy new mom, to a stress case > who was > staring single-motherhood straight in the face with a husband who > was in the > ICU. > > I believe that everything happens for a reason...and we have gone > through > some rough times with CML (and brain surgery that he almost did not > make it > through)...but we have learned tons about this disease and life in > general...so out of bad, good things happened. I have also learned > to not > get all caught up in the NUMBERS. Healthy people's counts fluctuate > all the > time, also...so if one week 's counts are lower than another > week...I > used to freak out. But now, I take each day one day at a time, I > pray alot, > and I thank God each day for my husband, my son, and the doctors and > scientists who have created such amazing drugs. > > Hang in there and I will email you 's numbers when I have the > specifics > in front of me. > > Regards, > (aka Weez) > > >> From: coralee williams <coralee.williams@...> >> Reply- >> >> Subject: Re: [ ] Digest Number 602 >> Date: Wed, 17 Jan 2007 14:01:21 -0700 >> >> Dear , >> >> It was really interesting hearing your husband's story. We are kind >> of in the same boat. If you don't mind my asking how low were his >> neutrophils when he was hospitalized? Were all his counts low or just >> neuts? Did he ever use growth factors and if so which ones? Sorry for >> all the questions but your situation seems very similar to my >> husbands. >> >> Coralee >> Wife of Cam >> Dx June 2006 >> >> On Jan 17, 2007, at 1:03 PM, Cervera wrote: >> >>> " I Aint Finished Yet " and all--- >>> I am soooooooooo glad you wrote this email---it is important to >>> remember >>> that of course there are certain " rules of thumb " when treating CML >>> and any >>> disease for that matter--but--ultimately---we are all human beings >>> and all >>> respond differently! My husband was diagnosed July of 2006. He was >>> on 600mg >>> of Gleevec, could not tolerate it, then went to 500. He then became >>> severly >>> neutropenic and was hospitalized for 1 month and taken off Gleevec. >>> It was >>> resumed at 200mg and quickly went up to 300--where he stayed for >>> about 1.5 >>> months while his numbers steadly increased. He has now been back on >>> 400mg >>> for about 2 weeks now, and doing well. But--who knows...maybe in >>> another >>> couple weeks they will realize 300mg is his " magic " doseage. We, >>> too, (along >>> with his doc that we really like), know that 400mg is optimal >>> doseage---for >>> MOST people. But, is an individual and his doctor has to treat >>> him that >>> way, using her knowledge in treating other patients, of course, but >>> responding to 's body and what his body is telling her to do. >>> We live in >>> the Los Angeles area and are lucky to have had access to some very >>> good >>> doctors, many of whom are out of the City of Hope Cancer Center, >>> and many of >>> whom were involved in the trials of Gleevec. But, even they were >>> differering >>> in opinions when it came to my husband's neutropenia and whether or >>> not to >>> take him off Gleevec, reduce it, give him WBC boosters, put him on >>> a bone >>> marrow transplant list, etc. >>> >>> I feel like the more posts I read on this forum, the more " scared " >>> I get >>> about my husband's future. But--then I remind myself that what >>> might be the >>> " norm " for most people with CML, might not work for him. I am glad >>> to know >>> that " I Aint Finished Yet " has achieved a 0/Negative " on the FISH >>> Test with >>> only being on 300mg...thanks for sharing! >>> >>> Weez >>> >>> >>>> From: IAintFinishedYet <kttweety@...> >>>> Reply- >>>> >>>> Subject: Re: [ ] Digest Number 602 >>>> Date: Wed, 17 Jan 2007 04:44:12 -0800 (PST) >>>> >>>> Hey Cam: >>>> 4 years ago when I was where you are now in your survival; I had >>>> to: 1) >>>> fire my diagnosing Oncologist; #2) educate myself with information >>>> from my >>>> sister & brother survivors who were 'in the know', and #3 >>>> communicate with >>>> my current Oncologist. I was hospitalized many times, given Procrit >>>> injections, adjustments of dosage from 200-600 m.g. and finally >>>> 300 m.g. >>>> proved to be my niche to reach " 0/Negative " on the FISH Test. Many >>>> Hematologists & Oncologists say that 300 or below is not >>>> beneficial to our >>>> survival or our becoming 'resistant'. I cannot stress enough that >>>> as we are >>>> all statistics. . .we are also individuals in our survival. My >>>> age, weight, >>>> & overall health made it impossible for me to tolerate 600 or 800 >>>> at the >>>> beginning. . .I went through H**l with side effects as my body >>>> adjusted to >>>> the gold. My body also didn't tolerate 400 m.g. until a year ago. >>>> I don't know your age, weight or overall health, and your H/O >>>> may be a >>>> Newbie to this also. Therefore; Relax & Enjoy your new life as a >>>> survivor, >>>> arm yourself with information and get support from the group, and >>>> remember >>>> 'too much information in some cases may be more detrimental-- >>>> than not >>>> enough information'. >>>> Take care, I have All in my prayers. >>>> >>>> >>>> " K " >>>> " I AIN'T FINISHED YET " !!! >>>> >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Hi there-- I will pray for your husband and you, too--because others have said it and I will, too-- even though we are not the patient, it is still diffiuclt to be the loved one of a person with CML!!! I really cannot stress enough how much my attitude changed when I was not caught up in the numbers game anymore. Just today my husband (feeling very well), went for his blood draw. I called to ask if his onc had called yet to report it to him...he laughed and said.. " ...yeahhh..she called and said I was techincally DEAD. OK kidding...but... Wow---ease up...I am alive, feeling pretty good, breathing, enjoying my day....so what if my numbers are a little low, a little high...she hasnt called yet...so let's stop worrying about it. " Spoken as a true man who is living with a worried wife...although, even he will tell you how much better I have gotten over the last few months. $2100 is rough. REALLY rough, I feel for you and wish I could do something to help change healthcare costs. I will continue praying for you and for all on this forum, that we continue to educate eachother and remain upbeat and hopeful for the future of this disease. >From: coralee williams <coralee.williams@...> >Reply- > >Subject: [ ] Message for >Date: Wed, 17 Jan 2007 19:07:33 -0700 > >, > >Thanks so much for your last post. It is so weird how similar our >situations are. My husband, also 33yrs, was diagnosed at the end of >June so we have been in this game for about six months as well. Also, >my husband, like yours, is getting so he does not want to focus so >much on the cml so I might be taking over posting for him. Our doctor >told us the same story about it taking his blood cells a long time to >regenerate because he was 96% Phil.Chrom. He told us to give it time >and we have done just that. He went off Gleevec (400mg) in October >and has been off ever since--sort of. When part of his counts started >coming back he went back on at 200mg but they dropped again after >only 4 day on. Back off again. I appreciated what you said about >being tied to the NUMBERS. I have been making myself crazy over them. >Currently he is getting CBC's two times a week because he is such an >abnormal case. At Christmas his counts were so low that when he >caught the flu from my son it absolutely leveled him. He could barely >move or get out of bed for 10 days. We just keep thinking and hoping >that any day these stupid counts are going to start recovering. > >Today he had a red blood cell transfusion so he is perking up a bit. >We are still fighting to get coverage for his Neupogen but for the >time being are paying for it out of pocket. I went to pick up his >second batch of it today from the pharmacy and it was hard >controlling my emotions as the clerk rang up my bill for $2100. She >checked it three times because she didn't think it was the right >total. Right now it is the only thing we have that will provide a >way for him to get back on Gleevec so we will just have to find a way >to pay for it. > >I am so grateful for this group and all the knowledge that it has >provided for us. I really liked what Tracey said in a previous post. >When you have information it takes a lot of the fear away, and the >more I learn the better I am able to deal with things. I'll continue >to search for info that will help my husband's case and I so >appreciate your story that you were willing to share. Thanks for all >your positive insight. I will continue to hope and pray for my >husband and for all of you. > >Coralee >Wife of Cam >Dx June 2006 > > >On Jan 17, 2007, at 3:18 PM, Cervera wrote: > > > I will get all the info to you in the next day or so--I have so many > > numbers, etc. floating in my head from that time. My husband knows > > ALL of > > it--though is not a member of this forum--ironically, me, the > > worried wife > > is a member! He feels really good most days and feels he doesnt > > need to > > focus so much on CML...he needs to be educated, yes, but dwell on > > it, no. Is > > that how your husband is?! > > > > They tried everything to boost his counts while in the hospital--I > > am sure > > of neupogen, and I will get you the name of the other one as well. > > Basically, his doctor (she has about 8 patients on Gleevec), really > > felt > > that it was a matter of TIME before his counts went back > > up.....something > > did not want to hear after being in the hospital for weeks > > with no end > > in sight, and his counts remaning low. He had severe fevers for > > about 10 > > days--that usually spiked to 103 - 103.5. He had no immune system > > and was in > > isolation, and through all of it baffled his docs because for the > > mosat > > part, he felt pretty good. His onc explained how Gleevec is such a > > " wonder > > drug " because it only targets the cancerous cells...where as chemo, > > radiation and other forms of treatment actually cant differentiate > > between > > " good " (healthy) cells and " bad " (cancerous) cells. When my husband > > was > > diagnosed with CML, his WBC was 449,000--off the charts. His doc > > (whom, I > > might add is our second oncologist--first one had no experience > > with CML and > > had horrible bedside manners), explained that she believes his > > counts got > > completely wiped out because the majority of his cells were > > cancerous...and...that is what Gleevec targets. So, because most of > > his > > cells were cancerous, Gleevec was killing off those cells...leaving > > him not > > many healthy cells. Makes sense. So--she kept explaining that we > > need to > > give it time for his cells to regenerate. He was off Gleevec for 1 > > month, > > and they slowly slowly got him back on it. I wrote to Dr. Druker > > during that > > time (he invented Gleevec), and he was quick to say: " STAY ON > > GLEEVEC and if > > need be, take WBC boosters. " Druker did not think it was a good > > idea to be > > off of Gleevec at all...we mentioned this to my husband's onc, but > > ultimately we let her treat my husband since he was HER patient and > > not Dr. > > Druker's....she knows his entire history! > > > > All in all, this is a " touch and go " situation. My husband's onc > > checks his > > blood counts weekly and has for 4 months now. Just this week she > > said " lets > > wait 2 weeks to check it out...and then hopefully once we > > 'stabilize', we > > can go a month, and then longer. " But, it is better safe than > > sorry, so my > > husband went for his weekly blood draw today. I am at work, and > > dont know > > the results yet---so who knows...maybe his counts have dropped a > > little. > > > > I might add that the only reason we found out had CML was > > because he > > was having numbness on the left side of his mouth and a little in > > his left > > hand--that is what got us to the ER. After tests it was revealed > > that at the > > age of 33, he had suffered a stroke because of a blood clot in his > > brain all > > due to CML. SCARY SCARY summer last year---he had to undergo 3 > > emergency > > brain surgeries, leukopherysis treatments, was on hydrea, then started > > Gleevec. And--to complicate things more--I was still on maternity > > leave > > because our first child was only 2 months old when all of this > > happened...in > > a matter of one week I went from a happy new mom, to a stress case > > who was > > staring single-motherhood straight in the face with a husband who > > was in the > > ICU. > > > > I believe that everything happens for a reason...and we have gone > > through > > some rough times with CML (and brain surgery that he almost did not > > make it > > through)...but we have learned tons about this disease and life in > > general...so out of bad, good things happened. I have also learned > > to not > > get all caught up in the NUMBERS. Healthy people's counts fluctuate > > all the > > time, also...so if one week 's counts are lower than another > > week...I > > used to freak out. But now, I take each day one day at a time, I > > pray alot, > > and I thank God each day for my husband, my son, and the doctors and > > scientists who have created such amazing drugs. > > > > Hang in there and I will email you 's numbers when I have the > > specifics > > in front of me. > > > > Regards, > > (aka Weez) > > > > > >> From: coralee williams <coralee.williams@...> > >> Reply- > >> > >> Subject: Re: [ ] Digest Number 602 > >> Date: Wed, 17 Jan 2007 14:01:21 -0700 > >> > >> Dear , > >> > >> It was really interesting hearing your husband's story. We are kind > >> of in the same boat. If you don't mind my asking how low were his > >> neutrophils when he was hospitalized? Were all his counts low or just > >> neuts? Did he ever use growth factors and if so which ones? Sorry for > >> all the questions but your situation seems very similar to my > >> husbands. > >> > >> Coralee > >> Wife of Cam > >> Dx June 2006 > >> > >> On Jan 17, 2007, at 1:03 PM, Cervera wrote: > >> > >>> " I Aint Finished Yet " and all--- > >>> I am soooooooooo glad you wrote this email---it is important to > >>> remember > >>> that of course there are certain " rules of thumb " when treating CML > >>> and any > >>> disease for that matter--but--ultimately---we are all human beings > >>> and all > >>> respond differently! My husband was diagnosed July of 2006. He was > >>> on 600mg > >>> of Gleevec, could not tolerate it, then went to 500. He then became > >>> severly > >>> neutropenic and was hospitalized for 1 month and taken off Gleevec. > >>> It was > >>> resumed at 200mg and quickly went up to 300--where he stayed for > >>> about 1.5 > >>> months while his numbers steadly increased. He has now been back on > >>> 400mg > >>> for about 2 weeks now, and doing well. But--who knows...maybe in > >>> another > >>> couple weeks they will realize 300mg is his " magic " doseage. We, > >>> too, (along > >>> with his doc that we really like), know that 400mg is optimal > >>> doseage---for > >>> MOST people. But, is an individual and his doctor has to treat > >>> him that > >>> way, using her knowledge in treating other patients, of course, but > >>> responding to 's body and what his body is telling her to do. > >>> We live in > >>> the Los Angeles area and are lucky to have had access to some very > >>> good > >>> doctors, many of whom are out of the City of Hope Cancer Center, > >>> and many of > >>> whom were involved in the trials of Gleevec. But, even they were > >>> differering > >>> in opinions when it came to my husband's neutropenia and whether or > >>> not to > >>> take him off Gleevec, reduce it, give him WBC boosters, put him on > >>> a bone > >>> marrow transplant list, etc. > >>> > >>> I feel like the more posts I read on this forum, the more " scared " > >>> I get > >>> about my husband's future. But--then I remind myself that what > >>> might be the > >>> " norm " for most people with CML, might not work for him. I am glad > >>> to know > >>> that " I Aint Finished Yet " has achieved a 0/Negative " on the FISH > >>> Test with > >>> only being on 300mg...thanks for sharing! > >>> > >>> Weez > >>> > >>> > >>>> From: IAintFinishedYet <kttweety@...> > >>>> Reply- > >>>> > >>>> Subject: Re: [ ] Digest Number 602 > >>>> Date: Wed, 17 Jan 2007 04:44:12 -0800 (PST) > >>>> > >>>> Hey Cam: > >>>> 4 years ago when I was where you are now in your survival; I had > >>>> to: 1) > >>>> fire my diagnosing Oncologist; #2) educate myself with information > >>>> from my > >>>> sister & brother survivors who were 'in the know', and #3 > >>>> communicate with > >>>> my current Oncologist. I was hospitalized many times, given Procrit > >>>> injections, adjustments of dosage from 200-600 m.g. and finally > >>>> 300 m.g. > >>>> proved to be my niche to reach " 0/Negative " on the FISH Test. Many > >>>> Hematologists & Oncologists say that 300 or below is not > >>>> beneficial to our > >>>> survival or our becoming 'resistant'. I cannot stress enough that > >>>> as we are > >>>> all statistics. . .we are also individuals in our survival. My > >>>> age, weight, > >>>> & overall health made it impossible for me to tolerate 600 or 800 > >>>> at the > >>>> beginning. . .I went through H**l with side effects as my body > >>>> adjusted to > >>>> the gold. My body also didn't tolerate 400 m.g. until a year ago. > >>>> I don't know your age, weight or overall health, and your H/O > >>>> may be a > >>>> Newbie to this also. Therefore; Relax & Enjoy your new life as a > >>>> survivor, > >>>> arm yourself with information and get support from the group, and > >>>> remember > >>>> 'too much information in some cases may be more detrimental-- > >>>> than not > >>>> enough information'. > >>>> Take care, I have All in my prayers. > >>>> > >>>> > >>>> " K " > >>>> " I AIN'T FINISHED YET " !!! > >>>> > >>>> > >>>> > >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 >others have said it and I > will, too-- even though we are not the patient, it is still diffiuclt to be > the loved one of a person with CML!!! ****************************************** Hi Again, I actually believe that it's harder to be the loved one than it is to be the patient. As the patient, we have some amount of control over things but as the loved one, you just sit by and worry about us feeling somewhat helpless. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 At 02:54 AM 1/18/07 +0000, you wrote: >I actually believe that it's harder to be the loved one than it is to >be the patient. As the patient, we have some amount of control over >things but as the loved one, you just sit by and worry about us feeling >somewhat helpless. > >Tracey Hi Tracey, There is definitely stress on the caregiver........trying to help as much as possible, sometimes taking the brunt of the patient's anger or other feelings....and helping with care (esp for a parent).....or being the take charge person if the patient is in denial............and there can also be survivor's guilt. It is an interesting discussion topic......but I don't think that one has more stress than the other, the nature of the stress is just different. The patient is the one who 'could die'......who no longer knows what their future is, etc. One of my all-time favorite comments was made by Jerry Mayfield.......who finally found a successful Rx for himself with Sprycel and said........ " now I can put away my 'no long term plans t-shirt' " and another follow wrote that when he had a successful Rx, he knew he could go buy some new leather shoes!! C. Quote Link to comment Share on other sites More sharing options...
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