Re: Postings from around the world, my basic info

[Guest guest]

At 07:16 PM 2/12/07 +0000, you wrote:

>A side note--I absolutely loved the article posted about vitamin D--I

>would encourage all to read it if you haven't already. We should all

>be taking supplemental D, I think! I have read other articles about

>it being hailed as one of the more important vitamins for good

>health, and for those of us who live in the rainy parts of the world

>where it is dark all winter and lots of bugs floating around for us

>to catch, it makes sense to take extra D to keep us healthy. I wonder

>what the ideal dosage of this would be?

First, my brief introduction....I am an old timer (dx in 1998) and a slow

responder to the cml drugs (was on Gleevec for over 5 years, now on Sprycel

just over a year). I have been Dr. Druker's patient since Feb. 2000 (an

early Gleevec trial).....so I have had the privilege and opportunity to

'pick his brain' almost every 3 months for years! When I post, usually in

response to someone, that is the information that I pass along.....plus the

fact that I worked in the medical field as a physical therapist with lots

of doctor contact for about 30 years..........and that fact that I have the

opportunity in my community (Eugene, Oregon) to work with a naturopath

trained in oncology. I feel like I have the 'best of both

worlds " .....western and alternative/complementary medicine and try to share

what I learn.

Other than that I am single, just turned 60 and will be going on my first

cruise next month! It is a Disney Cruise with family.

Now about Vit D......it was named a vitamin, but it actually acts like a

hormone....and it has to do with cell differentiation. My oncology

naturopath has always felt it was important, and right from the start we

tested my vitamin D level, which was 'in the basement'.

Normal range on testing used to be about 20-57 ng/mL. Natuopaths have

always felt this was too low.....mine wanted it to be 80-100 for a cancer

patient. Now the labs have increased this normal range to 32-80 ng/mL.

I have been taking a daily supplement of 2000 iu of Vit D3 (it needs to be

D3 which is not what they have fortified milk and other products

with).........but we do periodic testing for me. My lab results for the

Vitamin D, 25-Hydroxy test started at 9.4 and have only slowly increased to

62.5 (over 2 years).

To take the 2,000 iu dose you should do the blood test to see where you are

starting....it will depend on where you live (how much sun), skin color,

etc. Hopefully R. will respond with a suggested dose.

One last comment is that this is frequently now referred to as the

anti-cancer vitamin.....and that OHSU is doing some research trials with

megadoses of Vit D in certain cancers (like prostate). Goggle Vit D and you

will come up with some great information.

And Vicki, I am so happy that you will be seeing Dr. Druker

soon.......anyone who is not having a 'typical' response to Gleevec needs

to see a CML specialist for the best care.

C.

also go by Maui Nanc (my turtle, slow responder name)

[Guest guest]

,

Where do you go to get tested for vitamin deficiencies? My Chiro is

also a naturopath and a big proponent of toxicity and hormone level

testing. He feels that hormone imbalance is the biggest cause for

health issues. He promotes compounding pharmacies where they make

custom creams rich in the components that offset your personal

hormonal imbalances. You just rub the cream on your skin and the

nutrients are absorbed. I was really fascinated by the conversation

and have always been meaning to research more.

> >A side note--I absolutely loved the article posted about vitamin D-

-I

> >would encourage all to read it if you haven't already. We should

all

> >be taking supplemental D, I think! I have read other articles about

> >it being hailed as one of the more important vitamins for good

> >health, and for those of us who live in the rainy parts of the

world

> >where it is dark all winter and lots of bugs floating around for us

> >to catch, it makes sense to take extra D to keep us healthy. I

wonder

> >what the ideal dosage of this would be?

>

>

> First, my brief introduction....I am an old timer (dx in 1998) and

a slow

> responder to the cml drugs (was on Gleevec for over 5 years, now on

Sprycel

> just over a year). I have been Dr. Druker's patient since Feb. 2000

(an

> early Gleevec trial).....so I have had the privilege and

opportunity to

> 'pick his brain' almost every 3 months for years! When I post,

usually in

> response to someone, that is the information that I pass

along.....plus the

> fact that I worked in the medical field as a physical therapist

with lots

> of doctor contact for about 30 years..........and that fact that I

have the

> opportunity in my community (Eugene, Oregon) to work with a

naturopath

> trained in oncology. I feel like I have the 'best of both

> worlds " .....western and alternative/complementary medicine and try

to share

> what I learn.

>

> Other than that I am single, just turned 60 and will be going on my

first

> cruise next month! It is a Disney Cruise with family.

>

> Now about Vit D......it was named a vitamin, but it actually acts

like a

> hormone....and it has to do with cell differentiation. My oncology

> naturopath has always felt it was important, and right from the

start we

> tested my vitamin D level, which was 'in the basement'.

>

> Normal range on testing used to be about 20-57 ng/mL. Natuopaths

have

> always felt this was too low.....mine wanted it to be 80-100 for a

cancer

> patient. Now the labs have increased this normal range to 32-80

ng/mL.

>

> I have been taking a daily supplement of 2000 iu of Vit D3 (it

needs to be

> D3 which is not what they have fortified milk and other products

> with).........but we do periodic testing for me. My lab results for

the

> Vitamin D, 25-Hydroxy test started at 9.4 and have only slowly

increased to

> 62.5 (over 2 years).

>

> To take the 2,000 iu dose you should do the blood test to see where

you are

> starting....it will depend on where you live (how much sun), skin

color,

> etc. Hopefully R. will respond with a suggested dose.

>

> One last comment is that this is frequently now referred to as the

> anti-cancer vitamin.....and that OHSU is doing some research trials

with

> megadoses of Vit D in certain cancers (like prostate). Goggle Vit D

and you

> will come up with some great information.

>

> And Vicki, I am so happy that you will be seeing Dr. Druker

> soon.......anyone who is not having a 'typical' response to Gleevec

needs

> to see a CML specialist for the best care.

>

> C.

> also go by Maui Nanc (my turtle, slow responder name)

>

[Guest guest]

At 02:15 PM 2/13/07 +0000, you wrote:

>Where do you go to get tested for vitamin deficiencies? My Chiro is

>also a naturopath and a big proponent of toxicity and hormone level

>testing. He feels that hormone imbalance is the biggest cause for

>health issues. He promotes compounding pharmacies where they make

>custom creams rich in the components that offset your personal

>hormonal imbalances. You just rub the cream on your skin and the

>nutrients are absorbed. I was really fascinated by the conversation

>and have always been meaning to research more.

Hi ,

I have only been tested for Vit. D level....that test is called Vit. D

25-Hydroxy and any MD or naturopath can order the test. It is just a blood

draw, then sent to specialty lab and it takes maybe 7-10 days to get

results. Seeing as how Vit D level is thought to be important to cancer

patients, I think it is worth doing to see where you stand. My initial test

was low, below normal range.....and my naturopath actually wanted the level

to be above the normal range (and just recently they have increased the

'normal' range).

Other alternative stuff we have done over that last couple years

includes.....checking stool to see if you have normal gut bacteria.

Something like 70% of your immune system involves your gut. And then to

take Probiotics to increase the normal gut bacteria.

I also did heavy metal testing, was high in lead and some mercury, and

detoxed from that. Interestingly, lead is stored in the bone next to the

marrow.....and I ended up with a bone marrow disease??? Once I got rid of

the lead, my Gleevec anemia improved greatly.

None of my alternative approaches has been a problem for Dr. Druker/OHSU.

Naturopaths also have a 4 year medical education, they just have a

different focus.

Good luck to you .

C.

[Guest guest]

Love the idea of a survey to see where we are all from.

I'm Jane and I live in Cape Town, South Africa. I am 48 yrs old,

married with 3 children (22), Caitlin (19) and (16)

and 2 foster children - Rochelle (30) and (24). All but

Rochelle still live at home. Rochelle is married with a baby and

lives in Malawi. My brother and my mother-in-law also live with us.

I was diagnosed in Novemebr 2005, went on to 400mg Gleevec in

February 2006 and am a proud member of Zavie's sero club.

I am now " retired on disability " but was the Director: Transformation

for the City of Cape Town. I am now a member of a small company

specialising in Business Process Re-engineering, Public participation

and Event Management for Local Government. My husband, is

something very clever in computers as is his brother - who lives in

Texas.

We have 8 dogs, 6 cats and two horses.

Our noisy, lively household is a good place to have CML in because

there isn't much opportunity for feeling sorry for myself.

Really interested to hear about the rest of you.

[Guest guest]

, what did they do to detox you for the metal?

Barbara

Dx 07-06

400mg Gleevec

Metro Atlanta

_____

From: [mailto: ] On Behalf Of

Cogan

Sent: Tuesday, February 13, 2007 11:14 AM

Subject: Re: [ ] Re: Postings from around the world, my basic info

At 02:15 PM 2/13/07 +0000, you wrote:

>Where do you go to get tested for vitamin deficiencies? My Chiro is

>also a naturopath and a big proponent of toxicity and hormone level

>testing. He feels that hormone imbalance is the biggest cause for

>health issues. He promotes compounding pharmacies where they make

>custom creams rich in the components that offset your personal

>hormonal imbalances. You just rub the cream on your skin and the

>nutrients are absorbed. I was really fascinated by the conversation

>and have always been meaning to research more.

Hi ,

I have only been tested for Vit. D level....that test is called Vit. D

25-Hydroxy and any MD or naturopath can order the test. It is just a blood

draw, then sent to specialty lab and it takes maybe 7-10 days to get

results. Seeing as how Vit D level is thought to be important to cancer

patients, I think it is worth doing to see where you stand. My initial test

was low, below normal range.....and my naturopath actually wanted the level

to be above the normal range (and just recently they have increased the

'normal' range).

Other alternative stuff we have done over that last couple years

includes.....checking stool to see if you have normal gut bacteria.

Something like 70% of your immune system involves your gut. And then to

take Probiotics to increase the normal gut bacteria.

I also did heavy metal testing, was high in lead and some mercury, and

detoxed from that. Interestingly, lead is stored in the bone next to the

marrow.....and I ended up with a bone marrow disease??? Once I got rid of

the lead, my Gleevec anemia improved greatly.

None of my alternative approaches has been a problem for Dr. Druker/OHSU.

Naturopaths also have a 4 year medical education, they just have a

different focus.

Good luck to you .

C.

[Guest guest]

Hi Jane I wonder if menbers know of the profile that one can fill out on the C

M L page can include a pic Tn.

[ ] Re: Postings from around the world, my basic info

Love the idea of a survey to see where we are all from.

I'm Jane and I live in Cape Town, South Africa. I am 48 yrs old,

married with 3 children (22), Caitlin (19) and (16)

and 2 foster children - Rochelle (30) and (24). All but

Rochelle still live at home. Rochelle is married with a baby and

lives in Malawi. My brother and my mother-in-law also live with us.

I was diagnosed in Novemebr 2005, went on to 400mg Gleevec in

February 2006 and am a proud member of Zavie's sero club.

I am now " retired on disability " but was the Director: Transformation

for the City of Cape Town. I am now a member of a small company

specialising in Business Process Re-engineering, Public participation

and Event Management for Local Government. My husband, is

something very clever in computers as is his brother - who lives in

Texas.

We have 8 dogs, 6 cats and two horses.

Our noisy, lively household is a good place to have CML in because

there isn't much opportunity for feeling sorry for myself.

Really interested to hear about the rest of you.

________________________________________________________________________________\

____

Don't pick lemons.

See all the new 2007 cars at Autos.

http://autos./new_cars.html

[Guest guest]

Hello All,

Though I would join in on the survey:

My name is Coralee and I live in small rural town beneath the Rocky

Mountains in Alberta, Canada.

My husband Cam is the one who has cml. He is 33 and I am 31. We have

3 children- Reggie (8), Marin (5), and (3).

Both of us work full time as teachers. My husband was diagnosed in

June of 2006.

I look forward to hearing all of your introductions.

Have a great day!

Coralee

On Feb 13, 2007, at 9:20 AM, regentmahogany wrote:

> Love the idea of a survey to see where we are all from.

>

> I'm Jane and I live in Cape Town, South Africa. I am 48 yrs old,

> married with 3 children (22), Caitlin (19) and (16)

> and 2 foster children - Rochelle (30) and (24). All but

> Rochelle still live at home. Rochelle is married with a baby and

> lives in Malawi. My brother and my mother-in-law also live with us.

>

> I was diagnosed in Novemebr 2005, went on to 400mg Gleevec in

> February 2006 and am a proud member of Zavie's sero club.

>

> I am now " retired on disability " but was the Director: Transformation

> for the City of Cape Town. I am now a member of a small company

> specialising in Business Process Re-engineering, Public participation

> and Event Management for Local Government. My husband, is

> something very clever in computers as is his brother - who lives in

> Texas.

>

> We have 8 dogs, 6 cats and two horses.

>

> Our noisy, lively household is a good place to have CML in because

> there isn't much opportunity for feeling sorry for myself.

>

> Really interested to hear about the rest of you.

>

>

>

This email has been scanned by Barracuda Network's Anti-Virus and Spam Firewall.

[Guest guest]

At 11:25 AM 2/13/07 -0500, you wrote:

>, what did they do to detox you for the metal?

>

>Barbara

Hi Barbara,

Really what I did was a conventional method....I know there are others out

there. Once you ingest heavy metals (from whatever source) they do not

leave your body easily and are stored long term in tissues. The metals have

an electrical charge. I used a westen medicine drug (DMSA...you can goggle

that) that was developed for lead poisoning in children. It has the

opposite electrical charge (or some free hydrogen ions I believe) that

clomp onto any heavy metal in your body (ie bind tightly) and then they are

excreted mainly in the urine.

To test...you take a loading dose of DMSA early in the AM and collect urine

for 6 hours and then a sample is sent to a lab. This lab (Doctor's Data)

tested for 15 different heavy metals....including arsenic, lead, mercury,

nickel, etc. The results show if you are in the reference (normal) range,

are elevated or very elevated. My lead should have been less than 5....and

it was 14 (elevated range).

Then to detox from the metals, I used the same drug, DMSA, to draw the

metals out of my body. This was all under the care of a naturopath.....and

I used certain supplements for liver support, etc. I also had my mercury

fillings removed......even though my mercury level was not that high.

If you are interested in this at all, I would try to find an alternative

health care practitioner for guidance. For me, it made a huge difference in

my health......esp. my energy level. I think there are other products on

the market, that you might find in a health food store or nutrition store,

but I don't know much about them. Natuopaths are licensed in Oregon and my

health insurance even covered part of my costs.

C.

[Guest guest]

> >A side note--I absolutely loved the article posted about vitamin D-

-I

> >would encourage all to read it if you haven't already. We should

all

> >be taking supplemental D, I think! I have read other articles about

> >it being hailed as one of the more important vitamins for good

> >health, and for those of us who live in the rainy parts of the

world

> >where it is dark all winter and lots of bugs floating around for us

> >to catch, it makes sense to take extra D to keep us healthy. I

wonder

> >what the ideal dosage of this would be?

>

>

> First, my brief introduction....I am an old timer (dx in 1998) and

a slow

> responder to the cml drugs (was on Gleevec for over 5 years, now on

Sprycel

> just over a year). I have been Dr. Druker's patient since Feb. 2000

(an

> early Gleevec trial).....so I have had the privilege and

opportunity to

> 'pick his brain' almost every 3 months for years! When I post,

usually in

> response to someone, that is the information that I pass

along.....plus the

> fact that I worked in the medical field as a physical therapist

with lots

> of doctor contact for about 30 years..........and that fact that I

have the

> opportunity in my community (Eugene, Oregon) to work with a

naturopath

> trained in oncology. I feel like I have the 'best of both

> worlds " .....western and alternative/complementary medicine and try

to share

> what I learn.

>

> Other than that I am single, just turned 60 and will be going on my

first

> cruise next month! It is a Disney Cruise with family.

>

> Now about Vit D......it was named a vitamin, but it actually acts

like a

> hormone....and it has to do with cell differentiation. My oncology

> naturopath has always felt it was important, and right from the

start we

> tested my vitamin D level, which was 'in the basement'.

>

> Normal range on testing used to be about 20-57 ng/mL. Natuopaths

have

> always felt this was too low.....mine wanted it to be 80-100 for a

cancer

> patient. Now the labs have increased this normal range to 32-80

ng/mL.

>

> I have been taking a daily supplement of 2000 iu of Vit D3 (it

needs to be

> D3 which is not what they have fortified milk and other products

> with).........but we do periodic testing for me. My lab results for

the

> Vitamin D, 25-Hydroxy test started at 9.4 and have only slowly

increased to

> 62.5 (over 2 years).

>

> To take the 2,000 iu dose you should do the blood test to see where

you are

> starting....it will depend on where you live (how much sun), skin

color,

> etc. Hopefully R. will respond with a suggested dose.

>

> One last comment is that this is frequently now referred to as the

> anti-cancer vitamin.....and that OHSU is doing some research trials

with

> megadoses of Vit D in certain cancers (like prostate). Goggle Vit D

and you

> will come up with some great information.

>

> And Vicki, I am so happy that you will be seeing Dr. Druker

> soon.......anyone who is not having a 'typical' response to Gleevec

needs

> to see a CML specialist for the best care.

>

> C.

> also go by Maui Nanc (my turtle, slow responder name)

>

Hi everyone i was dx Oct.25th o6 i have been on 400mg. Gleevec

since. I live in Baltimore land U.S.A. and i am a hairdresser

since I have been 17 and i am 57,with a few breaks when i had my 3

children age 37, 26,and 24. I often wonder what all those chemicals

have done to me through the years. On June21, o6 my vitamin D 25

Hydroxy test said it was 15, my doc put me on 50,000iu of vitamin D

one pill a week for 4 weeks then once a month my next test it was 57,

and the one i just had was 33.1 he now put me on 50,000iu twice a

month. I do feel much better since i have been on it {some of the

bone pain went away]but that was before i new I had cml. When I got

dx. my wbc was 15.5 I was very thankfull I got dx.so early I had a

bmb in Oct which was positive for the fusion gene. I had 1% blast 4%

Lymphocytes 2% T cells and 1% B cells. I just had my pcr after being

on Gleevec for 3 months. I thought since being dx so early and all my

blood work being normal that i would have been in the zero club,but

my onc.said not yet it still showed I was positive for the fusion

gene.I don't know what this means but these were my numbers b2a2

o.oo1% b3a2 0.165, ela2 0.001%. I don't really know what all this

means.Does anyone know how close I am? Anyway thank you all for all

your imformation you have been my saviors, because i feel I get more

imformation from you guys than I do my Doc. I know i'm on the right

tract with him but I feel more comfortable with you guys, that brings

me to the question someone answered for me last week When do you get

another opinion? I guess I don't need one yet. I asked him about

going to a naturopath and he told me it would be a waste of my money

because Gleevec is the only way to go. I wasn't going off of Gleevec

I just wanted to know what else can a naturopath

do for you . Thanks again everyone you really make me feel more

comfortable about my cml atleast i don't have to wait for my onc to

let me know what's new Lots of love to all.....Esther

[Guest guest]

Hello all;

I'm living Istanbul/Turkey. And i'm the only one from Turkey in this group.

26 years old. Diagnosed 1 March 2006. First month i used Hydrea, then started

Gleevec and still on it. My latest PCR result is 0.0007. I hope PCR-U next time.

I'm a member of this group for nearly a year and i love to be. I've learned a

lot of things here. I shared my fears my questions. Thank you all for your

support and making me feel not lonely. You are all my friends and in my prayers.

Yusuf

---------------------------------

Don't be flakey. Get for Mobile and

always stay connected to friends.

[Guest guest]

At 07:15 PM 2/13/07 +0000, you wrote:

>On June21, o6 my vitamin D 25

>Hydroxy test said it was 15, my doc put me on 50,000iu of vitamin D

>one pill a week for 4 weeks then once a month my next test it was 57,

>and the one i just had was 33.1 he now put me on 50,000iu twice a

>month.

> I asked him about

>going to a naturopath and he told me it would be a waste of my money

>because Gleevec is the only way to go. I wasn't going off of Gleevec

>I just wanted to know what else can a naturopath

Hi Esther,

I also went on the slow release 50,000 iu Vit D ....once a week for 7

weeks. I am impressed that you oncologist knew to consider this!

Most medical doctors know very little about naturopaths, not about their

training or their expertise. My local onc just told me 'he did not want to

see me waste a lot of money " but had not objections!! ha ha

Dr. Druker KNOWS that what I have done with my naturopath has complemented

my medical treatment. One thing they can do is work with the side effects

of Gleevec, if you are having any. Here is one example. When I started

Sprycel......I developed some peripheral neuropathy in my feet (numb toes).

Dr. Druker did not know what to do about it.......my naturopath had about 3

suggestions. I started using alpha lipoic acid (a pill).........and it

really diminished the problem. It is actually a documented treated for

diabetic peripheral neuropathy but not one that most medical doctors will

know about. So, that is the value of combining both....but if you are not

having any side effects, then maybe there is not reason to see one.

Glad you are doing well.

C.

[Guest guest]

Yusuf, You are right, we are your friends, and we are all in the same

boat! We are so glad you are a member and you are in my prayers, too.

It is great when we can help and encourage each other! Your age is

right between the ages of my two daughters, who are 22 and 28. I am

52 and was diagnosed in October, 2006. I am on Gleevec too, but it

isn't working very well for me, so I am going to go see Dr

Druker (discoverer/inventor of Gleevec) on March 1. Wish me luck!

Best wishes,

Vicki from Lynnwood, WA, USA (North of Seattle)

>

> Hello all;

>

> I'm living Istanbul/Turkey. And i'm the only one from Turkey in

this group. 26 years old. Diagnosed 1 March 2006. First month i used

Hydrea, then started Gleevec and still on it. My latest PCR result is

0.0007. I hope PCR-U next time.

>

> I'm a member of this group for nearly a year and i love to be.

I've learned a lot of things here. I shared my fears my questions.

Thank you all for your support and making me feel not lonely. You are

all my friends and in my prayers.

>

> Yusuf

>

>

>

> ---------------------------------

> Don't be flakey. Get for Mobile and

> always stay connected to friends.

>

>

[Guest guest]

> >On June21, o6 my vitamin D 25

> >Hydroxy test said it was 15, my doc put me on 50,000iu of vitamin D

> >one pill a week for 4 weeks then once a month my next test it was

57,

> >and the one i just had was 33.1 he now put me on 50,000iu twice a

> >month.

> > I asked him about

> >going to a naturopath and he told me it would be a waste of my

money

> >because Gleevec is the only way to go. I wasn't going off of

Gleevec

> >I just wanted to know what else can a naturopath

>

>

> Hi Esther,

>

> I also went on the slow release 50,000 iu Vit D ....once a week for

7

> weeks. I am impressed that you oncologist knew to consider this!

>

> Most medical doctors know very little about naturopaths, not about

their

> training or their expertise. My local onc just told me 'he did not

want to

> see me waste a lot of money " but had not objections!! ha ha

> Dr. Druker KNOWS that what I have done with my naturopath has

complemented

> my medical treatment. One thing they can do is work with the side

effects

> of Gleevec, if you are having any. Here is one example. When I

started

> Sprycel......I developed some peripheral neuropathy in my feet

(numb toes).

> Dr. Druker did not know what to do about it.......my naturopath had

about 3

> suggestions. I started using alpha lipoic acid (a pill).........and

it

> really diminished the problem. It is actually a documented treated

for

> diabetic peripheral neuropathy but not one that most medical

doctors will

> know about. So, that is the value of combining both....but if you

are not

> having any side effects, then maybe there is not reason to see one.

>

> Glad you are doing well.

> C.

>

hi it was my GP doctor that put me on vitamin D I have

been going to both Doctors every month and they both take teir own

blood work. I now will be going to my GP in 2 months and my onc.in 3

months My GP takes good care of me also.

[Guest guest]

> >On June21, o6 my vitamin D 25

> >Hydroxy test said it was 15, my doc put me on 50,000iu of vitamin D

> >one pill a week for 4 weeks then once a month my next test it was

57,

> >and the one i just had was 33.1 he now put me on 50,000iu twice a

> >month.

> > I asked him about

> >going to a naturopath and he told me it would be a waste of my

money

> >because Gleevec is the only way to go. I wasn't going off of

Gleevec

> >I just wanted to know what else can a naturopath

>

>

> Hi Esther,

>

Hi just wanted to know is the alpha lipoic acid a

vitamin or a perscription I have a few clients with diabetic

neuropathy maybe it will help them. Does it have a mg.How much do you

take. thanks again for all your info

Esther

> I also went on the slow release 50,000 iu Vit D ....once a week for

7

> weeks. I am impressed that you oncologist knew to consider this!

>

> Most medical doctors know very little about naturopaths, not about

their

> training or their expertise. My local onc just told me 'he did not

want to

> see me waste a lot of money " but had not objections!! ha ha

> Dr. Druker KNOWS that what I have done with my naturopath has

complemented

> my medical treatment. One thing they can do is work with the side

effects

> of Gleevec, if you are having any. Here is one example. When I

started

> Sprycel......I developed some peripheral neuropathy in my feet

(numb toes).

> Dr. Druker did not know what to do about it.......my naturopath had

about 3

> suggestions. I started using alpha lipoic acid (a pill).........and

it

> really diminished the problem. It is actually a documented treated

for

> diabetic peripheral neuropathy but not one that most medical

doctors will

> know about. So, that is the value of combining both....but if you

are not

> having any side effects, then maybe there is not reason to see one.

>

> Glad you are doing well.

> C.

>

[Guest guest]

At 02:22 AM 2/14/07 +0000, you wrote:

>Hi just wanted to know is the alpha lipoic acid a

>vitamin or a perscription I have a few clients with diabetic

>neuropathy maybe it will help them. Does it have a mg.How much do you

>take. thanks again for all your info

>

>Esther

ALA (alpha lipoic acid) is an over the counter supplement. It is a major

anti-oxidant and has many other good benefits. It comes in different

strengths......like 150mg and 300mg. For the peripheral neuropathy you take

300-600mg a day. It is a bit hard on the stomach, like Gleevec, and needs

to be buried in food. If it is going to help neuropathy, you will know in a

short time.........I think I could tell in half a week or so. My naturopath

said, it either works for people for the neuropathy or it doesn't and you

will know in a short time. Another thing to try is chamomile tea.....get

organic tea or bags and steep for about 15 minutes to get the full benefit.

C.

[Guest guest]

> >Hi just wanted to know is the alpha lipoic acid a

> >vitamin or a perscription I have a few clients with diabetic

> >neuropathy maybe it will help them. Does it have a mg.How much do

you

> >take. thanks again for all your info

> >

> >Esther

>

> ALA (alpha lipoic acid) is an over the counter supplement. It is a

major

> anti-oxidant and has many other good benefits. It comes in

different

> strengths......like 150mg and 300mg. For the peripheral neuropathy

you take

> 300-600mg a day. It is a bit hard on the stomach, like Gleevec, and

needs

> to be buried in food. If it is going to help neuropathy, you will

know in a

> short time.........I think I could tell in half a week or so. My

naturopath

> said, it either works for people for the neuropathy or it doesn't

and you

> will know in a short time. Another thing to try is chamomile

tea.....get

> organic tea or bags and steep for about 15 minutes to get the full

benefit.

>

> C.

>

hi you are also a wealth of imformation thanks i'm going to

pass it on.

Esther