Re:Postings from around the world

[Guest guest]

Hi ya'll i live in Wichita Falls Tx,i'm 41 moved furniture for 17 years and now

pretty much sleep most of the time lol. I was diagnosed on fathers day 06 [what

a great present] my Dr. did have me on Gleevec to start with, but thought i was

having unusal side effects from it.I lost 70 pounds in 3 weeks and my left side

[to incude vocal cords] became partialy paralized As it turns out i may also

have MS....[great] I have been back on Gleevec for about 1 and 1/2 months now

with just the normal side effects haha.

I have been turned down twice now by SSI, i do have an attorey.It is very

frustrating not to be able to contribute to our finances as my left side still

doesnt work well. I used to move sofas by myself now i'm lucky if i can pick up

my 3 year old daughter. does anyone have suggestions.

---------------------------------

Don't pick lemons.

See all the new 2007 cars at Autos.

[Guest guest]

Holy smokes Dave, I didn't think it was humanly possible to lose 70

lbs in three weeks! Did you keep that weight off? The very concept

boggles my mind.

Have you had an MRI to confirm or rule out the MS diagnosis? I would

think that this would be your next step. Sorry I can't be of much

help with the SSI issue, the system in Canada is obviously very

different.

One of the side effects of Gleevec is muscle pain (myalgia) which may

or may not be contributing to your inability to lift heavy things. I

don't think there's much that can be done about this side effect,

other than the usual (heat, Advil and taking it easy). I hope that

things get better for you though. Many of the side effects tend to

get easier with time and I hope that you're one of the ones that

finds this to be the case.

Take care and welcome to the group,

Tracey

36 yrs old

dx Jan 2002

--- In , Willingham <mustache_dave@...>

wrote:

>

> Hi ya'll i live in Wichita Falls Tx,i'm 41 moved furniture for 17

years and now pretty much sleep most of the time lol. I was diagnosed

on fathers day 06 [what a great present] my Dr. did have me on

Gleevec to start with, but thought i was having unusal side effects

from it.I lost 70 pounds in 3 weeks and my left side [to incude vocal

cords] became partialy paralized As it turns out i may also have

MS....[great] I have been back on Gleevec for about 1 and 1/2 months

now with just the normal side effects haha.

> I have been turned down twice now by SSI, i do have an attorey.It

is very frustrating not to be able to contribute to our finances as

my left side still doesnt work well. I used to move sofas by myself

now i'm lucky if i can pick up my 3 year old daughter. does anyone

have suggestions.

>

>

> ---------------------------------

> Don't pick lemons.

> See all the new 2007 cars at Autos.

>

>

[Guest guest]

At 09:09 AM 2/13/07 -0800, you wrote:

>Hi ya'll i live in Wichita Falls Tx,i'm 41 moved furniture for 17 years

>and now pretty much sleep most of the time lol. I was diagnosed on fathers

>day 06 [what a great present] my Dr. did have me on Gleevec to start with,

>but thought i was having unusal side effects from it.I lost 70 pounds in 3

>weeks and my left side [to incude vocal cords] became partialy paralized

>As it turns out i may also have MS....[great] I have been back on Gleevec

>for about 1 and 1/2 months now with just the normal side effects haha.

>I have been turned down twice now by SSI, i do have an attorey.It is very

>frustrating not to be able to contribute to our finances as my left side

>still doesnt work well. I used to move sofas by myself now i'm lucky if i

>can pick up my 3 year old daughter. does anyone have suggestions.

Hi ,

If you had very high platelets (like a million or more) at the time of

diagnosis, I wonder if you had a stroke. As a physical therapist, I worked

quite a bit with MS in the past and it is NOT usual to be a one-sided

problem. It sounds like a neurologist needs to do a work up on you.

Your attorney should get you easily qualified for SS disability. I hope get

some answers and see some improvement soon. Let us know how it goes for you.

My best to you,

C. (Eugene, Oregon)