Re: New and wanted to share story(long)

[Guest guest]

Hi ,

You and are not alone. We have a couple of members who had

transplants but relapsed after a while and are now on Gleevec. They

are all doing fantasticaly so try not to worry. I hope one of them

will write in to share their story with you but I know that a few of

them are doing so well, that they've gotten back to living and have

no need for the support groups anymore.

If you have any specific questions, don't hesitate to ask but in the

mean time, you should know that you're not alone and you have every

reason in the world to be hopeful. Gleevec is a marvelous drug and

there has been a huge amount of progress in treating CML so the

future looks very bright for us.

Take care,

Tracey

dx Jan 2002

>

> Hello everyone,

> My name is and my husbands name is . was dx with

CML

> in January of 2002. He had a BMT in April of 2002 because he had a

> brother that matched and that is what our doctor recomended for us

to

> do. We had some major GVHD problems and after three long years

> went back to work. The last two years have gone pretty well and we

> even got a suprise little baby. We didn't think we could have any

more

> kids after going through the BMT. We finally felt like life was

> getting back to normal. Well that is not in the cards. We just

found

> out that his CML is back and so now we are starting all over

again. We

> have decided to give the Gleevec a try instead of trying to give

> GVHD again. We are hoping Gleevec will be affective. (He has not

> started the Gleevec yet because we are waiting for insurance

> approval). is going through some major depression right now

and

> I am hoping we can find some support from others as we start on

this

> road again. You all seem very kind and I hope to get to know you

all

> better. Thank you for reading.

>

>

[Guest guest]

Dear ,

I can't imagine what it feels like to have to start all over again

after what you've been through. I can understand feeling

depressed. Just have faith that, after a while, your lives will

reach a " new normal " and that will eventually begin to feel

better. I pray for you that Gleevec works, without side effects,

and that it affords a good quality (and quantity) of life so

that you can enjoy each other and your little baby.

In the meantime, he might consider an anti-depressant to help him

through this rough time. After thinking I could " tough it out " and

trying to avoid yet another medication, I was persuaded to try an

anti-depressant (Wellbutrin) and it has worked well.

Do you mind my asking how old is? I've always heard that age

has a lot to do with BMT response, but I have no idea what is " young

enough " or " too old. " And I have no idea whether age has any impact

on relapse rates. Just curious.

Anyway, welcome to the board and feel free to visit anytime for

support, information or just to rant if you need to.

Warm regards.

>

> Hello everyone,

> My name is and my husbands name is . was dx with

CML

> in January of 2002. He had a BMT in April of 2002 because he had

a

> brother that matched and that is what our doctor recomended for us

to

> do. We had some major GVHD problems and after three long years

> went back to work. The last two years have gone pretty well and

we

> even got a suprise little baby. We didn't think we could have any

more

> kids after going through the BMT. We finally felt like life was

> getting back to normal. Well that is not in the cards. We just

found

> out that his CML is back and so now we are starting all over

again. We

> have decided to give the Gleevec a try instead of trying to give

> GVHD again. We are hoping Gleevec will be affective. (He has not

> started the Gleevec yet because we are waiting for insurance

> approval). is going through some major depression right now

and

> I am hoping we can find some support from others as we start on

this

> road again. You all seem very kind and I hope to get to know you

all

> better. Thank you for reading.

>

>

[Guest guest]

Dear -- It seems that I've read about others who have needed

gleevec years after a BMT and have done well on the medication. And

there are other medications, too, so please try to keep the faith.

Prayers for you and as you face this new challenge. Sounds to

me like he's lucky to have such a loving partner.

Kathy

dx 5/03

>

> Hello everyone,

> My name is and my husbands name is . was dx with

CML

> in January of 2002. He had a BMT in April of 2002 because he had a

> brother that matched and that is what our doctor recomended for us

to

> do. We had some major GVHD problems and after three long years

> went back to work. The last two years have gone pretty well and we

> even got a suprise little baby. We didn't think we could have any

more

> kids after going through the BMT. We finally felt like life was

> getting back to normal. Well that is not in the cards. We just

found

> out that his CML is back and so now we are starting all over

again. We

> have decided to give the Gleevec a try instead of trying to give

> GVHD again. We are hoping Gleevec will be affective. (He has not

> started the Gleevec yet because we are waiting for insurance

> approval). is going through some major depression right now

and

> I am hoping we can find some support from others as we start on

this

> road again. You all seem very kind and I hope to get to know you

all

> better. Thank you for reading.

>

>