Re: Re: Neupogen will cost me $1800 per month. What should I do?

[Guest guest]

Hi Suzanne,

I think the problem is that Neupogen is not usually used cml

patients. I am one of the very few out there whose blood counts have

stayed very very low for the long term. I wrote the Alberta Cancer

Board with my problem and I am hoping they will be able to help me.

Cancer board does pay for my Gleevec (if I can get my blood to

cooperate and go back on it.) It's really nice to hear from another

Albertan. It makes me feel like I am not so geographically isolated

with this.

Cam

On Jan 8, 2007, at 1:40 PM, Suzanne wrote:

> Hi from another Albertan,

>

> I was under the impression, as Zavie says, that all " cancer " drugs

> were paid for by the Alberta Cancer Board. We have not had to pay

> for any Gleevec, or BMT related drugs, except the profolactic

> (spelling isn't my strong suite)drugs. Is Neupogen used for

> something other than cancer patients?

>

> Suzanne

> Adam's mom

> CML dx'd March 04

> MUD BMT Feb 05

> www.caringbridge.org/canada/adam

>

>

> >

> > Hi everyone,

> >

> > I feel like I have been on an emotional roller coaster the last

> few days and I just want it to

> > end. As I have shared in my posts before, I have been struggling

> with low blood counts

> > especially Neutrophils.

> >

> > My doctor prescribed Neupogen to help them bump up so I can get

> back on Gleevec. He

> > thought my insurance would cover it even though it required a

> special application. I didn't

> > worry too much about it and I began the injections. Since then all

> my counts have been

> > slowly recovering. I was elated as they have been descending ever

> since I went on Gleevec

> > which was July 06. Now I found out today that my insurance will

> not cover it. I don't know

> > what to do. It costs $1800 a month and that is half my pay check.

> I also have 3 small

> > children to provide for--I don't know what they expect me to do, I

> don't have many

> > options left.

> >

> > My local pharmacy said they would cover the cost until the paper

> work went through but

> > now the request has been rejected and so I will have to cough up

> the $1800 for the month

> > I have already been taking the drug. I really can't afford this.

> Does anyone (especially in

> > Canada, or anyone in Alberta know of any other way I can get this

> drug subsidized or

> > anything else I can take to help raise my blood counts?

> > Thanks for your help.

> >

> >

> > Cam

> >

>

>

>

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