Re: Re: Glad to have this group

[Guest guest]

Annie,

That is great!! I am happy for only having minimal side effects, at

least he won't have to take a bunch of pain meds to function, and in time

get his life back to normal. Stay strong , and you do the same Annie.

Gleevec is a wonderful drug. Without it and I would not have near the

bright future we are going to have before it came along. Take care and hang

in there,

Terry

dxed 04

remission also in 04 400mg's a day on Gleevec

On 1/4/07, Annie <ibannie@...> wrote:

>

> Hey there!

> Sorry that you have reason for this support group, but you have found

> a good place to be with cml.

> My son, - age 23 now, has cml. Dx'd March 06 and also doing

> simply great! Gleevec 400mg, absolutely minimal side effects and

> another PCR coming up tomorrow. His (hopefully) last BMB for a while

> also delivered a negative and he has been CCR for a good few months

> already. He holds a full time job and went back to college after

> diagnosis, night classes, and is doing wonderfully there too. It

> seems as if this diagnosis has really spurred him on to really live

> his life - its really wonderful to see the positive changes in him

> since he was diagnosed. Watching how he is dealing with all this has

> taught me so much, humbled me and strengthened me too.

>

> I am glad to hear that you have no major side effects and zero's -

> lets trust that it will stay that way forever!. Here I have

> encouraged my kids to get WAY above zero's all those years in school -

> now I pray for the Big Zero to stay with forever! lol.

>

> May you keep doing well.

> love

> Annie

> 's mom

> www.livingwithcml.blogspot.com

>

> >

> > I just joined this group and I am very happy that others with this

> > disease are interested in meeting on-line with one another. I was

> dx

> > with CML 11/05 and have been on Gleevec ever since with awesome

> > results. No major side effects and zero on PCR from BMB on 11/06.

> > Hopefully my last BMB I will have to have.

> > I am looking forward to providing encouragement to others and

> getting

> > words of encouragement from you all.

> >

>

>

>

--

Nothing's ever wrong..But nothing's ever right..Such a cruel contradiction!

[Guest guest]

Hi Annie,

I am glad you are doing as much as you can to help your son. I was diagnosed

last year when I was 39, I was overwhelmed (It was caught by accident, I had no

idea I was sick and my white count was 220,000). This disease makes you take

stock in your life and start living as if there is no tomorrow. I have been

taking 400mg of Gleevec for over a year, and I am doing great, no real side

effects to complain about, I never felt like I had cancer, nor do I feel like I

am a cancer survivor. I was told by my leukemia specialist to plan on living

20-30 years, with all the new medications my doctor feels I will always have a

treatment that works. Please pass on to your son, that he needs to plan on a

long life.

Annie <ibannie@...> wrote:

Hey there!

Sorry that you have reason for this support group, but you have found

a good place to be with cml.

My son, - age 23 now, has cml. Dx'd March 06 and also doing

simply great! Gleevec 400mg, absolutely minimal side effects and

another PCR coming up tomorrow. His (hopefully) last BMB for a while

also delivered a negative and he has been CCR for a good few months

already. He holds a full time job and went back to college after

diagnosis, night classes, and is doing wonderfully there too. It

seems as if this diagnosis has really spurred him on to really live

his life - its really wonderful to see the positive changes in him

since he was diagnosed. Watching how he is dealing with all this has

taught me so much, humbled me and strengthened me too.

I am glad to hear that you have no major side effects and zero's -

lets trust that it will stay that way forever!. Here I have

encouraged my kids to get WAY above zero's all those years in school -

now I pray for the Big Zero to stay with forever! lol.

May you keep doing well.

love

Annie

's mom

www.livingwithcml.blogspot.com

>

> I just joined this group and I am very happy that others with this

> disease are interested in meeting on-line with one another. I was

dx

> with CML 11/05 and have been on Gleevec ever since with awesome

> results. No major side effects and zero on PCR from BMB on 11/06.

> Hopefully my last BMB I will have to have.

> I am looking forward to providing encouragement to others and

getting

> words of encouragement from you all.

>

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