Re: dales pure thyroxine

[Guest guest]

Where do you buy the kit and the pure thyroxine powder from? Judy

One can also buy a kit to buy powder without fillers to make your own, so can

one obtain pure thyroxine powder to put in the capsules.

> Kathleen

>

[Guest guest]

HI JUDY

This is the link where you can get the vegetarian capsules from including a kit,

but I am asking if you can just buy pure thyroxine powder, but you can get

vitamin powders. My GP is going to prescribe dales non allergic thyroxine,

but they have a gelatin capsule, which is animal origin, so I was thinking about

using the vegetarian capsules if I have any problems with gelatin by transfering

them over.

http://www.myprotein.com/uk/products/bulk_vcaps_00

Kathleen

>

> Where do you buy the kit and the pure thyroxine powder from? Judy

>

>

[Guest guest]

Hi Kathleen,

I have spoken to dale a couple of months ago when trying to find something

my daughter can take.

At the moment she is taking liquid thyroxine Evotrox and liquid Hydrocortisone

the latter one is made by BCM Specials. She has developed a reaction (GP says

its not an allergy and doesn't seem to believe it is a problem) to any tablets.

GP is not happy prescribing the liquid especially the HC because it is so

expensive. He is only doing so at the moment as the endo whats her to come off

the HC to retest, not sure what will happen if she has to start HC again. Even

the liquids cause some reaction.

When I spoke to dales they told me they have to put a filler with the

thyroxine. There were three choices of filler. I have the info somewhere but

can't remember off hand what they were.

Hope you get something you can take.

Judy

[Guest guest]

HI JUDY

I only have the information about dales from this site, which does not

state anything about a choice of fillers.

>

>

> Hi Kathleen,

>

> I have spoken to dale a couple of months ago when trying to find

something my daughter can take.

> At the moment she is taking liquid thyroxine Evotrox and liquid Hydrocortisone

the latter one is made by BCM Specials. She has developed a reaction (GP says

its not an allergy and doesn't seem to believe it is a problem) to any tablets.

GP is not happy prescribing the liquid especially the HC because it is so

expensive. He is only doing so at the moment as the endo whats her to come off

the HC to retest, not sure what will happen if she has to start HC again. Even

the liquids cause some reaction.

>

> When I spoke to dales they told me they have to put a filler with the

thyroxine. There were three choices of filler. I have the info somewhere but

can't remember off hand what they were.

>

> Hope you get something you can take.

> Judy

>

[Guest guest]

HI JUDY

I only have the information about dales from this site, which does not

state anything about a choice of fillers. My GP said that the NHS do not do

allergy testing, so its hard to locate which of the fillers is a problem to me,

but will get in touch with the chemist to see what is happening to my

prescription.I do not have the phone number of dales either.

I have tried EVOTROX and that too is quite expensive, but it was no improvement,

and its quite sweet, so what is used as a sweetener I do not know.

At the moment I am on my fifth day without GOLDSHIELD THYROXINE,and my hair is

not falling out like it was when taking it.My neck does not have two prominent

tramlines in front, as these are going back. My BP is a lot better too.

It could be that despite the blood tests saying I need more, and the fact that I

am unable to get about much due to the painful muscles that I do not need as

much thyroxine. Could it be that too much thyroxine is causing the two tramlines

in my neck to become too prominent, and they are not bad now with no thyroxine.

When I do get my prescription I will go back on the dose before I moved here,

and play things by how I feel and those tramlines,and note my BP and weight,

rather than the seemingly unreliable test results.

I cannot see that everybodies metobolic rate has to be the same. I would also

think being overactive is worse than being underactive, and not good for the

heart, and being very thin is worse, with nothing to live off if ill and unable

to eat. My weight is 121/2 stone with reserves to live on if ill.

In the hands of one GP who prescibed Pimozide, and I was ill just after that,

but he went on prescribing drug after drug, including thyroxine, and 14 years

later my weight had escalated up to 17 stone, in turn ending up with breast

cancer, incontinence and an electrolye imbalance. GP'S get paid high wages to

get patients better, but this one caused my health to worsen, and I never went

back after the electrolyte problem.

Years later having gleaned much information on Internet which is getting better

all the time I wrote to the Ombudsman, and I am sure this had something to do

with this GP retiring. I still feel however that I would love to blast his name

across the Internet like many of us do,as he has ruined my life, and family

relationships, but Sheila has forbidden this.

Kathleen

>

>

> Hi Kathleen,

>

> I have spoken to dale a couple of months ago when trying to find

something my daughter can take.

> When I spoke to dales they told me they have to put a filler with the

thyroxine. There were three choices of filler. I have the info somewhere but

can't remember off hand what they were.

>

> Hope you get something you can take.

> Judy

>

[Guest guest]

Hi Kathleen,

I would ring dales and ask them for yourself. I could have misunderstood.

Please let me know what they say as it may still be an option for my daughter at

some point.

Judy

>

> HI JUDY

> I only have the information about dales from this site, which does not

state anything about a choice of fillers.

>

[Guest guest]

HI JUDY

I have just rang dales, and the three bases they use are CELLULOSE,

CALCIUM CARBONATE AND LACTOSE. The last two are a definate NO to me, but I would

think that if the prescription is written exactly as SHEILA has stated on her

information that you will get CELLULOSE as the base, and not either of the other

two bases.

Perhaps Sheila can enlighten us on this.

Kathleen

>

> Hi Kathleen,

>

> I would ring dales and ask them for yourself. I could have

misunderstood.

>

> Please let me know what they say as it may still be an option for my daughter

at some point.

>

> Judy

[Guest guest]

Hi Kathleen, you can bet your bottom dollar that I have

forbidden such action, and will continue to forbid. Can you imagine what would

happen to me and TPA if it was reported to such a doctor that we were blasting

his name around in order to let everybody know what a bad doctor he was. That

would be the end of me and the end of TPA. If anybody has the desire to do just

that, then do it in your own name, and not on the TPA forum.

Luv - Sheila

Years later having gleaned much information on Internet which is getting better

all the time I wrote to the Ombudsman, and I am sure this had something to do

with this GP retiring. I still feel however that I would love to blast his name

across the Internet like many of us do,as he has ruined my life, and family

relationships, but Sheila has forbidden this.

Kathleen

[Guest guest]

No, I don't know anything more than you have told us here

Kathleen.

Luv - Sheila

I have just rang dales, and the three bases they use are CELLULOSE,

CALCIUM CARBONATE AND LACTOSE. The last two are a definate NO to me, but I

would think that if the prescription is written exactly as SHEILA has stated on

her information that you will get CELLULOSE as the base, and not either of the

other two bases.

Perhaps Sheila can enlighten us on this.

,_._,___

[Guest guest]

HI SHEILA

It sounds odd to me that they would put calcium carbonate as a base with

Levothyroxine, as it can interfere with it, and with Lactose surely the whole

idea of having hypoallergic levothyroxine is to avoid lactose.

In the instructions for ordering which starts of by stating CELLULOSE CAPSULES,

must mean you do get a CELLULOSE BASE, but they did say to make sure the chemist

if not ordered this before understands which base you require.

The only other thing I wondered is if they make any other drugs up that these

are their three bases that they would use, but perhaps not with Levothyroxine.

There is also another chemist which can obtain dales through another

supplier which only takes two days to get, but it means I have to go in two days

running to Farnborough, which I may well have to do.

Kathleen

>

> No, I don't know anything more than you have told us here Kathleen.

>

> Luv - Sheila

>

>

[Guest guest]

Hi Kathleen,

Can you not just ask for Evotrox liquid, that's what I'm on. Ingredients say:

each 5ml contains 100mcg levothyroxine sodium. Also contains glycerol, sodium

methyl parahydroxbenzonate (E219)

It from Kappin Limited, London.

Tess

>

> HI SHEILA

> It sounds odd to me that they would put calcium carbonate as a base with

Levothyroxine, as it can interfere with it, and with Lactose surely the whole

idea of having hypoallergic levothyroxine is to avoid lactose.

> >

> >

>

[Guest guest]

Hi Tess,

Do you have any problems with your GP prescribing it for you? As nothing has

been proven for my daughter as to why she can't tolerate Levothyroxine the GP is

not happy prescribing it because of the cost. Have you been tested by the NHS

for any allergies?

Any info would be most helpful so I don't have to have this debate every time I

try to get a prescription for it.

Judy

>

> Hi Kathleen,

>

> Can you not just ask for Evotrox liquid, that's what I'm on.

[Guest guest]

Hi Judy,

No I don't have any problems getting it at all! I can't remember if GP just gave

me it or bowel surgeon recommended I have it, I know I never asked for it.

It wasn't given to me for allergies though but to help absorption as I have

bowel disease.

I was tested for Lactose intolerance yrs ago on NHS though because my Crohn's

was flaring constantly and I've had biopsies for coeliac, I don't have that but

I was Lactose intolerant...ok now though.

Can they not test her for allergies?

Love Tess

>

> Hi Tess,

>

> Do you have any problems with your GP prescribing it for you? As nothing has

been proven for my daughter as to why she can't tolerate Levothyroxine the GP is

not happy prescribing it because of the cost. Have you been tested by the NHS

for any allergies?

>

> >

[Guest guest]

I don't know why such doctors bother treating their patients at

all, seems they are only in the business of saving (or making) money.

Luv - Sheila

Hi Tess,

Do you have any problems with your GP prescribing it for you? As nothing has

been proven for my daughter as to why she can't tolerate Levothyroxine the GP

is not happy prescribing it because of the cost. Have you been tested by the

NHS for any allergies?

Any info would be most helpful so I don't have to have this debate every time I

try to get a prescription for it.

[Guest guest]

Hi Tess,

We were told while she was in hospital there isn't a test for Lactose allergy.

She has an appointment with an allergist (at a different hospital) this month

but has had tests last year with an Immunologist but they didn't test for

Lactose only cow's milk which came back no reaction.

The problem is we have private tests for thyroid and adrenals which the NHS are

not happy to accept and now they are not listening to the patient and don't

believe her when she say her throat closes when she takes medication containing

lactose and/or maize.

Interesting it was your bowel surgeon that advised it for you as my daughter was

seen last year by gastro doctor who was very helpful and pleasant to her so I

may contact him for his advise.

Thanks Judy

>

> Can they not test her for allergies?

>

> Love Tess

[Guest guest]

It a real nightmare of a situation at the moment but I am persevering and I am

grateful for you and the member of this forum. Its help me with options and also

that I am not wrong to want prescribed what my daughter needs at this time.

Judy

>

> I don't know why such doctors bother treating their patients at all, seems

> they are only in the business of saving (or making) money.

>

> Luv - Sheila

[Guest guest]

Hi Judy,

What a load of b****** they try to spin us!!! I had to drink a glass of lactose.

Actually

just went and found this

http://www.cks.nhs.uk/patient_information_leaflet/lactose_intolerance

Patient info sheet for a test they don't do :-)

Show them that. Hopefully they won't still try and tell you then there isn't a

test!

Love Tess

>

>

> Hi Tess,

> We were told while she was in hospital there isn't a test for Lactose

allergy.

*** Moderated!!

[Guest guest]

Thanks Tess

>

http://www.cks.nhs.uk/patient_information_leaflet/lactose_intolerance

> Patient info sheet for a test they don't do :-)

> Show them that. Hopefully they won't still try and tell you then there isn't a

test!

>

[Guest guest]

MY GP told me that the NHS no longer test for alergies, am I being told the

truth. It appears that soya is the best to replace lactose containing products

with, but soya is not so good if on thyroxine from what I have seen. From this

article it appears that you need lactose to absorb calcium and magnesium, so

could this be the problem I am having with calcium, and the magnesium pills.

Could white spots under the eyes known as milk spots that babies can get just

after birth be a sign of lactose intolerence.

Its also important that the condition is found out early as it looks like it

could go on to cause bone problems. This in turn would put an extra strain and

expense to the NHS if not treated. Tess push harder and mention about what it

will cost the NHS later on.

Kathleen

> >

> >

> > Hi Tess,

> > We were told while she was in hospital there isn't a test for Lactose

allergy.

>

>

> *** Moderated!!

>

[Guest guest]

Hi Kathleen,

You do not need lactose to utilise Calcium and Magnesium! Lactose is just a

bulking agent with no medical properties, apart from causing loose bowels (i.e.

lactulose solution).

dale Pharmaceuticals use malitol as a bulking agent, which is lactose and

sucrose free. I am loctose intolerant and this is what I take and have been

taking for years. Lactose intolerant individuals have to look at the bulking

agent in any medicine, not just in Thyroxin; the other alternatives are talc,

maise starch or malitol.

The NHS should test you for Lactose intolerance, otherwise how are they going to

prescribe you lactose-free medication? What symptoms do you get from lactose?

Do you follow an exclusion diet and stay away from lactose altogether? Because

if you don't, then your GP is not going to prescribe you lactose-free

medication, rightly so.

Worst case scenario, YORK laboratories can test you for lactose intolerance

(although you can do this yourself by not eating anything with lactose for 2

weeks, see if your symptoms improve, and if you are not 100% sure, then

reintroduce it and see if you feel unwell again. If the answer is YES and Yes,

it's more than likely that you have lactose intolerance)and you can give those

results (or the results of your exclusion diet) to your GP and tell him that you

are not able to take lactose anymore.

I hope this helps!

PS. Milk spots - as far as I know - are not signs of lactose intolerance.

Anita.

>

> MY GP told me that the NHS no longer test for alergies, am I being told the

truth. It appears that soya is the best to replace lactose containing products

with, but soya is not so good if on thyroxine from what I have seen. From this

article it appears that you need lactose to absorb calcium and magnesium, so

could this be the problem I am having with calcium, and the magnesium pills.

> Could white spots under the eyes known as milk spots that babies can get just

after birth be a sign of lactose intolerence.

> Its also important that the condition is found out early as it looks like it

could go on to cause bone problems. This in turn would put an extra strain and

expense to the NHS if not treated. Tess push harder and mention about what it

will cost the NHS later on.

> Kathleen

[Guest guest]

Hi Kathleen,

The only symptoms I had were chronic loose bowels which were causing bad flare

ups of my Crohns disease. That's only reason I was tested, I was positive for

intolerance...not allergy...was sent to dietician who helped me cut out all

dairy for months then gradually reintroduce everything one at a time. I'm fine

now....in fact

total opposite where bowels are concerned :-( As far as I know loose bowels is

the only symptom of lactose intolerance....I could be wrong though!

Love Tess

>

> MY GP told me that the NHS no longer test for alergies, am I being told the

truth. It appears that soya is the best to replace lactose containing products

with, but soya is not so good if on thyroxine from what I have seen. From this

article it appears that you need lactose to absorb calcium and magnesium, so

could this be the problem I am having with calcium, and the magnesium pills.

> >

>

[Guest guest]

HI ANITA

First I have had to become vegetarian, and icecream is on the NO MENU, and I do

not have cows milk,and the last time I had cheese I was in much pain. I can get

bloating, lot of wind and upset stomach.

I am also aware that calcium carbonate is a problem, so calcium could be the

offending ingrediant, but lactose is also in many of foods containing calcium.

Lactulose also causes me problems and will not have it. The vitamin D3 that I

had problems with is from animal origins. I have sent for some D2 which is

totally vegetarian and no connections with daisies, but hopefully we will be

able to have some sunshine before long nice and natural.

I have been told my calcium blood test was ok, but have a DEXA SCAN soon.

I had some cramp last night, but although I have now been over a week without

thyroxine I also had cramp while on thyroxine. My hair does not fall out like it

did while taking thyroxine.

At the moment I feel better without thyroxine, and with the injection I had to

relieve the pain I was in has also helped, so I feel inclined to go longer

without thyroxine, as my health has never improved with taking it.There is a way

of testing for lactose intolerence by drinking two glasses of milk, and should

one have the runs 4 hours after then they say lactose is the problem, but could

it also be calcium. Is there a food that has lactose and no calcium in it so I

can be sure.

Kathleen

>

> Hi Kathleen,

>

> You do not need lactose to utilise Calcium and Magnesium! Lactose is just a

bulking agent with no medical properties, apart from causing loose bowels (i.e.

lactulose solution).

>

> dale Pharmaceuticals use malitol as a bulking agent, which is lactose

and sucrose free. I am loctose intolerant and this is what I take and have been

taking for years. Lactose intolerant individuals have to look at the bulking

agent in any medicine, not just in Thyroxin; the other alternatives are talc,

maise starch or malitol.

>

> The NHS should test you for Lactose intolerance, otherwise how are they going

to prescribe you lactose-free medication? What symptoms do you get from

lactose? Do you follow an exclusion diet and stay away from lactose altogether?

Because if you don't, then your GP is not going to prescribe you lactose-free

medication, rightly so.

>

> Worst case scenario, YORK laboratories can test you for lactose intolerance

(although you can do this yourself by not eating anything with lactose for 2

weeks, see if your symptoms improve, and if you are not 100% sure, then

reintroduce it and see if you feel unwell again. If the answer is YES and Yes,

it's more than likely that you have lactose intolerance)and you can give those

results (or the results of your exclusion diet) to your GP and tell him that you

are not able to take lactose anymore.

>

> I hope this helps!

>

> PS. Milk spots - as far as I know - are not signs of lactose intolerance.

>

> Anita.

>

>

[Guest guest]

hi All

I am about to order dales pure thyroxine for my daughter but we are unsure

about which filler. We are just decided which filler to have put in the tablet

between Avicel cellulose or Calcium carbonate. The private doctor prescribing

has suggested calcium carbonate but I'm not sure why.

She is having allergic? (well, no doctor is sure why it is happening but it is)

reaction to just about anything she takes which is why we are trying this. If I

could get just the thyroxine powder in a capsule it would be better but the

amount is so minute that it has to have some filler according to dales.

She has tried the liquid thyroxine but that causing a problem too.

Judy

>

> HI JUDY

> I have just rang dales, and the three bases they use are CELLULOSE,

CALCIUM CARBONATE AND LACTOSE.

> >

[Guest guest]

For Judy.

Luv - Sheila

From: orme.robert@...

[mailto:orme.robert@...] On Behalf Of Bob

Sent: 19 May 2011 12:15

Sheila

Subject: Re: FW: Re: dales pure thyroxine

Dear Sheila,

Potato starch or perhaps rice starch may do the 'dilution'

job.

Being food items, they ought not to be problematic, unless

an unusual prcessing method has been used to make the starch?

best wishes

Bob

On 13 May 2011 08:24, Sheila <sheila@...> wrote:

Bob, can you advise Judy regarding this

please?

Luv - Sheila

hi All

I am about to order dales pure thyroxine for my daughter but we are

unsure about which filler. We are just decided which filler to have put in the

tablet between Avicel cellulose or Calcium carbonate. The private doctor

prescribing has suggested calcium carbonate but I'm not sure why.

She is having allergic? (well, no doctor is sure why it is happening but it is)

reaction to just about anything she takes which is why we are trying this. If I

could get just the thyroxine powder in a capsule it would be better but the

amount is so minute that it has to have some filler according to dales.

She has tried the liquid thyroxine but that causing a problem too.

Judy

_,___

[Guest guest]

Hi Judy, i would think the calcium carbanate would be better as this is natural the other one is not. angel.