Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 Thank you so much, , I will put it in my letter to my Endo. I had terrible toxic symptoms and have now stopped T4 and am going T3 only. I knew about my Urea as the consultant at A & E suggested I drink more water but I didn't see the Creatinine. He told me that all my other tests were normal but wouldn't give me the ranges. I got the ranges from other blood tests done at Guy's (I believe the Princess University Hospital use the same ranges because my tests read similiarly. Love Jacquie > What jumps out at me from the above are your Urea and Creatinine.... > both are elevated and that indicates that your kidney function might be > compromised, which could have the effect of making you feel pretty awful > as toxins are building up in your body. Please ask your GP to re-check > and if necessary investigate your kidney function further. > > > > Best wishes, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 Yesterday, 1st Jan, I decided to go T3 only. I was originally on 50mcg T4 and 20mcg T3 and suffering severe hypothyroidism and perspiring to the point I was totally drenched all the time and sheets needed changing constanty (having no energy, this was an ordeal). I then changed my dose to 25mcg T4 and 30mcg T3. My sweating went away and then after a week returned but not as severe as before. So I then dropped the T4 completely and raised T3 to 42.5mcg. Last night, I ventured out to get a take-away a short walk away (having the flu I've been unable to go out and have no food at home) for the first time since 23 Dec. when I went to A & E at my Endo's request, and felt I could walk much faster on T3, and it actually felt good being out. This morning I woke up at 6.30am (sweating slightly again) and took a dose of 12.5mcg T3 at 7am and after two cups of tea and toast.... it was just after 10am and I couldn't keep my eyes open anymore. I slept right through to 1.30pm and now at 4pm, having taken my 3rd dose out of 4, my eyelids are droopy and I'm wanting to go to sleep again. Is this the flu interacting with the T3 or toxicity from T4. I know I have adrenal issues but am waiting for my appointment with him once he's read my letter with all the attachments from our Files section.What should I do? I'm due to see my Endo on 26 January and he is expecting me to have a thyroid function test before my visit. I have written a long letter to him but am still stuck on the second last paragraph informing him of my change in regime my TFT will be very different to what he was expecting. What should I say? So far: "I have received your letter of 23December, and must bring to your attention that your current treatment is notworking for me. I can no longer put my life on hold, waiting for an improvement on this regime, and waiting for Erfa Thyroid to be approved, and with your current regimen making me increasingly ill. I have been left with no choice but to adjust the T4/T3 dose myself in order to get through the days. Since reducing my dose of T4 to 25mcg and gradually increasing my T3 to 47.5mcg per day, I am no longer continually drenched in perspiration although I do still have hot flashes, and my muscle strength and cognitive functioning has also increased slightly. I am monitoring my pulse, temperature and symptoms during this period. This change in dose is helping me while desperately trying to recover from a dreadful flu virus which I unfortunately caught at A & E."The problem is, I am no longer taking any T4 now. How do I tell him this in my letter? I am also so angy because when I reported my sweating and perspiration he wrote a letter to my medical practice saying:"Ms Falkowski rang to report symptoms of sweating(in my absence my secretary had suggested she go to A & E as per my lastletter but she did not want to). She maybe taking different doses of T3 in addition to T4 to that outlined in my letterof 8th December. I would have real concernswith her taking anymore T3 than detailed in my letter of 8th December and wewill ring to make sure she is aware of this. T3 at the wrong dose can be potentially dangerous and that is why I had arranged> for her to have dosing tests as a day case. The doses we monitored on that day did not seem to affect her adversely and I would therefore recommend she does not takeany more T4 and T3 than that. I wouldcertainly be uncomfortable sanctioning higher doses of T4 and T3 at thispoint. She has an appointment to see mein January 2011 and I hope to speak to her about this then. In the interim it is important that she reportsany worsening symptoms such as palpitations, muscle weakness, sweating, heat intolerance or weight loss urgently." So, he expected me to suffer extreme hypo symptoms until he was able to see me on the 26th and then STILL NOT do anything except 'discuss it with me' . I am also unsure whether to persevere on 42.5mcg T3 only - I know the T4 really makes me ill - but I can't understand the fatique unless it's flu related.... or could it be because I suddenly stopped T4?I also feel terribly deceived because I telephoned the PCT on the 30th and found out that they had no record of his request for Erfa. They gave me a fax number for his secretary to fax the request directly to them but she had no knowledge of it. He told me three months ago that he had requested it and the PCT said that it takes 48 hours to process! I have included this in my letter.One last thing, I stopped taking the pill over 2 months ago and have not menstruated since. Shouldn't tests to be done why this is? And which tests?Any advice appreciated. Thank you for reading! Love> Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 Oh dear ....... I think you might have painted yourself into a corner here, Jacquie, and your endo doesn't seem very sympathetic. He is singing from the RCP-hymn sheet, yet without making too much sense – On one hand he "....would certainly be uncomfortable sanctioning higher doses of T4 and T3 at this point...." on the other hand he has not even checked your FT3, and neither your TSH nor your FT4 give the slightest grounds for concern of you being overdosed – so what makes him so "uncomfortable"? - seems a clear case of `RCP-itis' to me.....the fear of going against the "guidelines". I'd rather imagine that if you tell him that you have stopped the T4 altogether, he's likely to get angry and anything you may say to him to justify your decision will fall on deaf ears. If you tell him that you have upped your T3 and dropped the T4 I would not mind betting that your endo will blame your sweats on the T3 and take it as "proof" that you are overdosing....and it probably will not occur to him to check if the symptoms you are experiencing *might* be less of a result of whatever thyroid medication you are currently taking, but a result of uremic poisoning in conjunction with insufficient thyroid treatment. I emphasize the word `might', because there is no way I could say that with any conviction; but it is a possibility and would explain your symptoms. Your Urea and Creatinine were not terribly high – certainly not high enough to warrant a diagnosis of kidney failure, but when you look at the whole picture of insufficient thyroid treatment and elevated kidney figures, then to my mind uremic poisoning should at least be considered. The symptoms you list – extreme fatigue and sleepiness and missing periods are classic. ( http://www.aakp.org/aakp-library/symptoms-of-uremic-poisoning/ ) I do not know where the sweating comes in, but since reduced kidney function also alters thyroid function and sex hormones, hot flushes and night sweats would not be surprising symptoms – they usually are caused by sex hormone changes .... add to that the high probability of low adrenal reserve, and it could all make sense. I also feel terribly deceived because I telephoned the PCT on the 30th and found out that they had no record of his request for Erfa. They gave me a fax number for his secretary to fax the request directly to them but she had no knowledge of it. He told me three months ago that he had requested it and the PCT said that it takes 48 hours to process! I have included this in my letter. Hmmm – why does that not surprise me? Is there any possibility that you could buy Erfa yourself ? It would make your life a lot easier if you could just say to your endo – `look, if I buy Erfa myself, would you be prepared to monitor me?'.... they usually are more agreeable to that, because it lets them off the hook. They can then put in your medical notes `patient insists on Erfa medication, which she buys herself' and then no GMC can touch them..... . The average cost for paying for Erfa yourself would come to about £100 - £ 150 per year all in if you needed say 2 grains or a little more .... As for your letter.... I don't know how to best handle this, but if it were me – coward that I am - I would rather ask some questions than offer too much detailed information about your current changes in thyroid medication. My slant would be – could my symptoms suggest uremic poisoning, given the elevated kidney parameters and might this be the reason the thyroid medication does not work? – bearing in mind that for instance most of the T4 conversion to T3 happens in the liver ... and liver and kidney work hand in hand.... – just thinking aloud... All the best, and good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 I sent this a few hours earlier, but it had not come through.... apologies if it now appears twice....... Oh dear ....... I think you might have painted yourself into a corner here, Jacquie, and your doctor doesn't seem very sympathetic. He is singing from the RCP-hymn sheet without making too much sense – On one hand he "....would certainly be uncomfortable sanctioning higher doses of T4 and T3 at this point...." on the other hand he has not even checked your FT3, and neither your TSH nor your FT4 give the slightest reason for concern of you being overdosed – so what makes him so "uncomfortable"? - seems a clear case of `RCP-itis' to me.....the fear of going against the "guidelines". I'd rather imagine that if you tell him that you have stopped the T4 altogether, he's likely to get angry and anything you may say to him to justify your thyroid medication will fall on deaf ears. If you tell him that you have upped your T3 and dropped the T4 I would not mind betting that your GP will blame your sweats on the T3 therapy and take it as "proof" that you are overdosing....and it probably will not occur to him to check if the symptoms you are experiencing *might* be less of a result of whatever thyroid medication you are currently taking, but a result of uremic poisoning in conjunction with insufficient thyroid treatment. I emphasize the word `might', because there is no way I could say that with any conviction; but it is a possibility. Your Urea and Creatinine were not terribly high – certainly not high enough to warrant a diagnosis of kidney failure, but when you look at the whole picture of insufficient thyroid treatment and elevated kidney figures, then to my mind uremic poisoning should at least be considered. The symptoms you list – extreme fatigue and sleepiness and missing periods are classic. ( http://www.aakp.org/aakp-library/symptoms-of-uremic-poisoning/ ) I do not know where the sweating comes in, but since reduced kidney function also alters thyroid function and sex hormones, hot flushes and night sweats would not be surprising symptoms – they usually are caused by sex hormone changes .... add to that the high probability of low adrenal reserve, and it could all make sense. I also feel terribly deceived because I telephoned the PCT on the 30th and found out that they had no record of his request for Erfa. They gave me a fax number for his secretary to fax the request directly to them but she had no knowledge of it. He told me three months ago that he had requested it and the PCT said that it takes 48 hours to process! I have included this in my letter. Hmmm – why does that not surprise me? Is there any possibility that you could buy Erfa yourself ? It would make your life a lot easier if you could just say to your endo – `look, if I buy Erfa myself, would you be prepared to monitor me?'.... they usually are more agreeable to that, because it lets them off the hook. They can then put in your medical notes `patient insists on Erfa medication, which she buys herself' and then no GMC can touch them..... The average cost for paying for Erfa yourself would come to about £100 - £ 150 per year all in.... to my mind a small price to pay for the chance to regain full health. As for your letter.... I don't know how to best handle this, but if it were me – coward that I am - I would rather ask some questions than offer too much detailed information about your current changes in thyroid medication. My slant would be – could my symptoms suggest uremic poisoning, given the elevated kidney parameters and might this be the reason the thyroid medication does not work? – bearing in mind that for instance most of the T4 conversion to T3 happens in the liver ... and liver and kidney work hand in hand.... – just thinking aloud. All the best and good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Hi all and thank you, , for your reply. I wrote to him in depth (5 pages) with plenty of attachments and he was quite upset when he received it. I am currently on 70mcg T3 but brain still not functioning properly and no energy etc. The positives are that I am no longer constantly sweating profusely, no night sweats, sleeping through the night and am able to stay awake during the day even though I am not capable of doing anything. Endo still won't sanction any dose of T3 above 20mcg and doesn't want to be seen as 'condoning' my decision to go off T4 and self medicate. He has therefore ordered tests - blood results attached although still waiting for 24 hour urine Steroid Hormone Profile and 24 hour Cortisol and DHEAS - and wants to refer me to http://bit.ly/ei3Qnf who also happens to be on the committee of http://bit.ly/gYmbON (page 4) for a second opinion. This link shares his views on hypothyroidism http://bit.ly/eetCmE - hence he doesn't believe in T3! What would you do in my position? So far, I have told my new GP (who is hopeless) that I do not want to see this other endo because he does not believe in NDT or T3, and would he write to my endo telling him that I would prefer to see Dr S at Chelsea & Westminster Hospital. He said he would do so but that I must also write to him myself with my reasons. Can anyone email me their experiences with Dr S at Chelsea and Westminster, and if you know if he prescribes high dosages of T3 or choice of NDT with T3? I have tried ringing Dr S' secretary several times, but can't get through.My next appointment with my current endo is in May but his secretary told me he would be calling me once all my tests are back, instead of writing to me, which I'm not happy with as my brain is not functioning properly and I'm still ill.Also, I cannot afford to buy anymore T3 so I have about 2 months worth (which is why I can't increase it) and then I don't know what will happen - I'm so stressed. I know it takes months to see another endo and I haven't even been referred yet. My GP refuses to and says its for my endo to do! I have not had a period in months since stopping the pill (Amenorrhoea) and am unsure if I can still conceive. Is there anything in these blood tests which would tell me that? Will be 47 in March!My blood tests are below for anyone who would be kind enough to interpret them: BLOOD TESTS 01.02.11 (STILL WAITING FOR 24 HR URINE STEROID HORMONE PROFILE & URINE CORTISOL/DHEAS) NB: Taking various meds inc Vit B multivitamins and on 60mcg T3 but not for 24 hrs before TSH test Selenium Iron Total Iron Binding Capacity Iron Saturation Serum Ferritin Vitamin B12 Serum folate Albumin Alkaline Phosphatase Not sent for Analysis 22 micromol/L 49 micromol/L 45% 314 ng/mL 515 ng/L 6.9 ng/mL 41 g/L 99u/L 9 to 30 45 to 80 15 to 56 10 to 291 150 to 950 3.2 to 24.0 34 to 48 25 to 114 Fasting Glucose 4.9 mmol/L 3.0 to 6.0 Comments: Provided confirmed on two occasions or findings confirmed by random glucose and not a known diabetic on treatment. Diabetes excluded Cortisol 485 mol/L Comments: AM sample Cortisol 7 to 9 am reference range 119 to 618 nmol/L Hours fasting 13 hours fasting 12 to 14 Free T4 Free T3 TSH Prolactin FSH 4.4 mol/L 3.7 pmol/L <0.01 mu/L 137 miu/L 88.1 iu/L 9.4 to 22.7 3.5 to 6.5 0.35 to 5.50 59 to 619 2.5 to 10.2 Comments: Elevated FSH suggests menopause/perimenopausal state FSH Follicular phase FSH Mid cycle FSH Luteal phase FSH Post menopause 2.5 – 10.2 3.4 – 33.4 1.5 – 9.1 23 – 116.3 LH 91.1 iu/L 1.9 to 12.5 Comments: LH Follicular phase LH Mid cycle LH Luteal phase LH Post menopause LH when on oral contraceptive LH when pregnant 1.9 – 12.5 8.7 – 76.3 0.5 – 16.9 15.9 – 54.0 0.7 – 5.6 Less than 1.5 Oestradiol 586 pmol/L 69 to 2095 Comments: Oestradiol reference ranges: Oestradiol Follicular phase: Oestradiol Mid cycle: Oestradiol Luteal phase Oestradiol Post menopause 69 – 905 130 – 2095 82 – 940 Less than 163 Testosterone 3.3 nmol/L 0.5 to 2.6 Dehydroepiandrosterone SO4 Has to be sent away for analysis Specimen Sent away for analysis Comments: Sent to QE on 11:2:11 by courier for Zinc and to St 's by post for DHEAS. Blood - Reason for Specimen: 2SSP Hb A1c IFCC Hb A1c 5.4% 36 mmol/mol 4.0 to 6.0 20 to 42 From 01/06/2009 HbA1c results will be dual reported. The result will be expressed as a % and in the new IFCC standardised units of mmol/mol. After 18 months only the new IFCC standardised units will be used. 09:00 Serum –Reason for specimen: 2SSP Creatinine Calcium Adjusted Calcium Magnesium Adjusted Magnesium 114 micromol/L 2.49 mmol/L 2.51 mmol/L 0.83 mmol/L 0.79 mmol/L 62 to 98 2.15 to 2.50 2.15 to 2.50 0.63 to 1.05 0.63 to 1.05 Comments: Adjusted magnesium is magnesium+ ( (31.7 – Albumin) *0.0042) Phosphate Serum Vitamin D 1.44 mmol/L 20.4 mcg/L Zinc Has been sent away for analysis Thank you so much for reading!LoveJacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Hello Jacquie, Well, they have been thorough J....- the picture that I can see from your lab results is that you possibly have or have had an inflammation/infection (can't say what or where) because your Creatinine was very slightly elevated (that means your kidneys have been working overtime to eliminate waste products and toxins). Your 9 am cortisol level looks good (485) ... but that does not mean that you can't have adrenal fatigue. Without seeing a salivary adrenal profile over 24 hours, there is no way of knowing if this cortisol level will last you through the day. Your sex hormone profile suggests that you are either peri-menopausal or actually full on going through the menopause. Your FSH is pretty high, so I'd guess you are already in the midst of it, but I do not claim to have much knowledge of interpreting sex hormones – I just read the lab comments. You going through the menopause could explain a lot of things, in particular your sweats. This is usually how the menopause starts... with blooming sweats; my own periods stopped at the age of 47 too, btw... and then the hot flushes and cold night sweats started and I felt like I was just about to faint – to begin with the hot flushes were coming and going, then coming on thick and fast, one every hour, day and night – I suffered for 10 long, lonely years. No doctor was able to help – everyone told me that this was `normal' and not an illness. I now know that they were wrong. My thyroid was failing and all my hormones had turned upside down. The stress from nearly expiring every 60 minutes wrecked my adrenals and auto-antibodies were attacking and destroying my thyroid gland. I only got those flushes under control when I was finally diagnosed and treated 10 years later. It would have saved me years of misery if I had known then what I know now. Your minerals and vitamins – I think you would benefit from supplementing folic acid and B12. Both are not particularly low, but nearer the upper norm would be better. Your Ferritin is quite high – no idea why - and I would have that checked regularly. Funnily enough I used to have high Ferritin levels too, but they normalized themselves after a couple of years on thyroid meds. I still don't know what had caused the high levels. Your Magnesium level could be a little higher – nearer the top of the norm would be better. Taking Magnesium Citrate might help with muscle pains. I am a little concerned about your Vit D level , although there is no ref range with it, and that would be very important to know. Perhaps this lab has a very different range, but I would expect a good D3 level to be around the 100 mark – yours is 20.4 . Since your alkaline phosphatase is relatively high within the ref range I suspect that your Vit D3 levels are indeed much too low, even without knowing the ref range (low D3 can cause high ALP). Now – your thyroid panel.... well, that is surprising. I know, you have stopped your T4, so I do expect the FT4 to be low – and since you are taking T3, it is perfectly ok that your TSH is suppressed – what I can't understand is why your FT3 is barely in range. When exactly did you take your last dose of T3 before the blood draw? If it had been 24 hours or more, then that would explain the low figure. 70 mcg is not enough as the sole source of thyroid hormone. Your FT4 is practically non-existent, so your body has no reserves to make more T3 and within 24 hours your 70 mcg of T3 are probably all used up. But if you had taken your T3 within a few hours of the blood draw, then where has it disappeared to?? If you want my honest opinion, Jacquie, I think you would make your life more difficult if you wanted to carry on with a T3-only therapy. You would very likely need more than the 70 mcg you are currently taking and you would have to fight with your doctors. It is just possible that many of your current symptoms were not caused by the T4 as you thought (although I hasten to add that I am not a friend of synthetic T4 either), but caused by menopause, general hormone imbalances and possibly D3 deficiency, low-ish B12 and folate as well as a general lack of thyroid hormone. But I must stress that I can only make assumptions on the basis of those lab results and your description of symptoms. In my view a T3-only therapy makes only sense when there is an rT3 problem, and in your case there can't be one, since your FT3 is barely in range and your FT4 is practically non-existent. If I were in your position, rather than fight with your doctor for getting more T3 prescribed (which he will not do anyway), I would seriously consider buying yourself some NDT – preferably Erfa thyroid, but if this were financially not possible, consider Thiroyd from Thailand ... that is effectively half the price and it is very good. I take that myself. You might also benefit from using Serenity cream. Your sex hormones are obviously in turmoil, so Progesterone would very likely help. I can't comment on your adrenal function other than say that your adrenals are basically working and your morning cortisol looks ok. I would imagine that the reason you are unable to "function" properly is due to your extremely low thyroid levels. You might turn yourself around if you started on NDT.... just guessing, of course, but I think it would be worth a try. With best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 Hi So sorry to here how much you had to endure on your own. I know the feeling and truly sympathise. I've taken some time to respond because I have become increasingly weaker and my muscles are simply wasting away. I researched buying NDT but I couldn't find anywhere where I could get only enough to trial myself on them for a month or so, so I decided to up my T3 to 125mcg which is better for me although I am still very ill. By the way, the TFT results were on 60mcg T3 only and I hadn't taken any for 24 hours before the test. My T3 should be higher now that I have upped my dose to 125mcg T3. Now, this is where I need you, Sheila, Bob, or anyone who understands my latest lab results which apparently feature Cushing's. This could explain my terrible sweating, piercing headaches, ammenoreah (had my first light period in 7 months) and other symptoms. The tests were done twice because pathology didn't think the first urine sample was complete and so i have two very similar reports. I posted them on the NDT Adrenal Group and the link is: NaturalThyroidHormonesADRENALS/files/OUR%20\ LABS/Jacquie%20F/ Herewith is another link which I found which seems to verify my results as Cushing's, although a fresh mind may see it differently.... I'm in overdrive and very emotional because I so need a diagnosis and this waiting is killing me.... http://joe.endocrinology-journals.org/cgi/content/abstract/24/2/199 If you aren't a member and cannot access NDT link,then please let me know and I will write them on here. My endiot has not seen them as he has been on holiday and won't be returning since after Easter. I left a message for his registrar to call me but... nothing!! I have made another appointment some time ago with Dr S at Chelsea & Westminster for the 16th May. It is a long wait in light of my results and I am truly nervous. I am hoping that he will also trial me on NDT. I just want a diagnosis as I have suspected that I have had Cushing's for over four years now, since a friend in South Africa was diagnosed shortly after I had stayed with him for a week, and we had exactly the same symptoms. But even suggesting it has made my GP/endiot think I'm psychotic! (I've read my medical files!) I'd be so grateful for any of your views, suggestions and support. Thank you! Love Jacquie PS: All 5 of my urine free cortisols came back 'normal'. > If I were in your position, rather than fight with your doctor for > getting more T3 prescribed (which he will not do anyway), I would > seriously consider buying yourself some NDT – preferably Erfa > thyroid, but if this were financially not possible, consider Thiroyd > from Thailand ... that is effectively half the price and it is very > good. I take that myself. You might also benefit from using Serenity > cream. Your sex hormones are obviously in turmoil, so Progesterone would > very likely help. I can't comment on your adrenal function other > than say that your adrenals are basically working and your morning > cortisol looks ok. I would imagine that the reason you are unable to > " function " properly is due to your extremely low thyroid levels. > You might turn yourself around if you started on NDT.... just guessing, > of course, but I think it would be worth a try. > > > > With best wishes, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2011 Report Share Posted April 15, 2011 From: thyroid treatment [mailto:thyroid treatment ] On Behalf Of falkowski_uk Sent: 14 April 2011 17:54 thyroid treatment Subject: Re: T3 and still hypo and in despair - advice needed please Hi So sorry to here how much you had to endure on your own. I know the feeling and truly sympathise. I've taken some time to respond because I have become increasingly weaker and my muscles are simply wasting away. I researched buying NDT but I couldn't find anywhere where I could get only enough to trial myself on them for a month or so, so I decided to up my T3 to 125mcg which is better for me although I am still very ill. By the way, the TFT results were on 60mcg T3 only and I hadn't taken any for 24 hours before the test. My T3 should be higher now that I have upped my dose to 125mcg T3. Now, this is where I need you, Sheila, Bob, or anyone who understands my latest lab results which apparently feature Cushing's. This could explain my terrible sweating, piercing headaches, ammenoreah (had my first light period in 7 months) and other symptoms. The tests were done twice because pathology didn't think the first urine sample was complete and so i have two very similar reports. I posted them on the NDT Adrenal Group and the link is: NaturalThyroidHormonesADRENALS/files/OUR%20LABS/Jacquie%20F/ Herewith is another link which I found which seems to verify my results as Cushing's, although a fresh mind may see it differently.... I'm in overdrive and very emotional because I so need a diagnosis and this waiting is killing me.... http://joe.endocrinology-journals.org/cgi/content/abstract/24/2/199 If you aren't a member and cannot access NDT link,then please let me know and I will write them on here. My endiot has not seen them as he has been on holiday and won't be returning since after Easter. I left a message for his registrar to call me but... nothing!! I have made another appointment some time ago with Dr S at Chelsea & Westminster for the 16th May. It is a long wait in light of my results and I am truly nervous. I am hoping that he will also trial me on NDT. I just want a diagnosis as I have suspected that I have had Cushing's for over four years now, since a friend in South Africa was diagnosed shortly after I had stayed with him for a week, and we had exactly the same symptoms. But even suggesting it has made my GP/endiot think I'm psychotic! (I've read my medical files!) I'd be so grateful for any of your views, suggestions and support. Thank you! Love Jacquie PS: All 5 of my urine free cortisols came back 'normal'. > If I were in your position, rather than fight with your doctor for > getting more T3 prescribed (which he will not do anyway), I would > seriously consider buying yourself some NDT – preferably Erfa > thyroid, but if this were financially not possible, consider Thiroyd > from Thailand ... that is effectively half the price and it is very > good. I take that myself. You might also benefit from using Serenity > cream. Your sex hormones are obviously in turmoil, so Progesterone would > very likely help. I can't comment on your adrenal function other > than say that your adrenals are basically working and your morning > cortisol looks ok. I would imagine that the reason you are unable to > " function " properly is due to your extremely low thyroid levels. > You might turn yourself around if you started on NDT.... just guessing, > of course, but I think it would be worth a try. > > > > With best wishes, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2011 Report Share Posted April 15, 2011 Hi Jacquie How are your doctors treating you at the moment? Have they given you a firm diagnosis of Cushing's Syndrome. It does sound as if this could be your problem. Have a look at http://www.aboutcushings.com/treatment-options.jsp?s_kwcid=TC|12467|cushings%20disease%20treatments||S|b|4256642096 & gclid=CKLGw6minqgCFcJP4QodnHHqHA I have had a look at your blood tests and see that your ferritin level is very high, well above the reference range and that both your B12 and Folate need increasing. B12 should always be near to the top of the reference range and I would take B12 1000mgs (sublingually). You may find you improve a little by starting Folate 5mgs to start with, but talk to your GP about this. Were you only taking T3 alone when you had your thyroid function tests done, showing your free T4 to be outside the bottom of the reference range and your free T3 to be only .2 points above the bottom of the range. Your FSH is very high, but this could indicate you are peri/menopausal - Cushings Syndrome - PCOS (but you don't have the weight gain usually associated with this) - or adrenal/pituitary tumour. Are you taking any adrenal supplements at the moment or have they stopped these? I wouldn't wait for y our endo. to get back from holiday, or for your appointment with S - but what I would do is to telephone Dr Peatfield urgently 01883 623 125 and be guided by him. Tell him that Sheila asked you to contact him. Have ready all your thyroid and adrenal results, especially those marked with an asterisk and list your symptoms. Let me know his recommendations. Meanwhile, call the Registrar again and keep on until you get a response from him. They must NOT sit on this and do nothing. Luv - Sheila Now, this is where I need you, Sheila, Bob, or anyone who understands my latest lab results which apparently feature Cushing's. This could explain my terrible sweating, piercing headaches, ammenoreah (had my first light period in 7 months) and other symptoms. I posted them on the NDT Adrenal Group and the link is: NaturalThyroidHormonesADRENALS/files/OUR%20LABS/Jacquie%20F/ My endiot has not seen them as he has been on holiday and won't be returning since after Easter. I left a message for his registrar to call me but... nothing!! I have made another appointment some time ago with Dr S at Chelsea & Westminster for the 16th May. It is a long wait in light of my results and I am truly nervous. I am hoping that he will also trial me on NDT. _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 >> Hi JacquieHi SheilaThank you, once again, for coming to my rescue!! I was besides myself and I cried when I received your email. I immediately went about finding my TFTs, symptoms etc before calling Dr Peatfield. I spoke to Jo as Dr P was on holiday for a week, and went through my starred lab results as well as symptoms and some TFTs. She was wonderful and told me that all my cortisol ranges were very high and that I must write to him enclosing my labs and explain what meds I'm on (and have been taking) plus symptoms, TFTs, thyroid meds, etc. and he will review it in a week's time when he is back from holiday. She said at least he may help me be better prepared when dealing with doctors.I then had to go to the village and when I came back, I went straight to sleep and didn't wake up till about 11am. I tried writing a response to you first but lost it when my Firefox crashed on me and it was just too much to rewrite, and I was so tired. I've been on a rollercoaster ride and now I must get this letter written to him today or tomorrow. > > How are your doctors treating you at the moment? Have they given you a firm> diagnosis of Cushing's Syndrome. It does sound as if this could be your> problem. Have a look at> http://www.aboutcushings.com/treatment-options.jsp?s_kwcid=TC|12467|cushings> %20disease%20treatments||S|b|4256642096> <http://www.aboutcushings.com/treatment-options.jsp?s_kwcid=TC|12467|cushing> s%20disease%20treatments||S|b|4256642096 & gclid=CKLGw6minqgCFcJP4QodnHHqHA>> & gclid=CKLGw6minqgCFcJP4QodnHHqHA My doctors are not aware of these results at all. My endo saw the first one but before I could question him, he had to take another call which was apparently more important than my results, and I've not heard from him since. His secretary's explanation was that he was very busy in his private practice!!> > I have had a look at your blood tests and see that your ferritin level is> very high, well above the reference range and that both your B12 and Folate> need increasing. B12 should always be near to the top of the reference range> and I would take B12 1000mgs (sublingually). You may find you improve a> little by starting Folate 5mgs to start with, but talk to your GP about> this.Sheila, my ferritin AND creatinine have ALWAYS been high ---- I have no idea why and no one seems to be investigating it, even though I have pointed it out.Thank you... yes, I am aware of my B12 and folate. and have pointed it out to me and I am taking Vit B Srtong Compound but will have to speak with my GP about this. He just doesn't seem to want to know, and since this is my 6th GP, I'm worn out from changing. I am aware and will push for these supplements.> > Were you only taking T3 alone when you had your thyroid function tests done,> showing your free T4 to be outside the bottom of the reference range and> your free T3 to be only .2 points above the bottom of the range. Your FSH is> very high, but this could indicate you are peri/menopausal - Cushings> Syndrome - PCOS (but you don't have the weight gain usually associated with> this) - or adrenal/pituitary tumour. Are you taking any adrenal supplements> at the moment or have they stopped these?Yes, I was on 60mcg T3 ONLY when I had my TFTs in January (and feeling awful). , mentioned that perhaps I wasn't on enough T3 and I have since increased this to 125mcg T3 ONLY.... and feel much better for it. (Thank you, !)> > I wouldn't wait for y our endo. to get back from holiday, or for your> appointment with S - but what I would do is to telephone Dr Peatfield> urgently 01883 623 125 and be guided by him. Tell him that Sheila asked you> to contact him. Have ready all your thyroid and adrenal results, especially> those marked with an asterisk and list your symptoms. Let me know his> recommendations.> > Meanwhile, call the Registrar again and keep on until you get a response> from him. They must NOT sit on this and do nothing. Jo said that I have most probably had this for many years and so I should try and relax, watch movies etc and take my mind off it until I hear from Dr P. I doubt the registrar can do much anyway as she works for my endo and wouldn't do anything without his permission. By the way, it was that letter we sent in January, copying the Practice Manager, which got him to do these tests. I requested a Adrenal Salivary Stress Index test (which we knew he wouldn't do) but to pacify me, and prove me wrong, he compromised and did these tests instead. I can't thank you enough, Sheila, for the time you spent in helping me. It's taken a while but we seem to have got some results! Love Jacquie xPS: This is the last letter my endo wrote to my GP (without copying me for the very first time). Grammar, punctuation, spelling is his:14/02/11Dear Dr TThank you taking my call last week. Further to my clinic letters I have received Ms. Falkowski's most recent results: TSH <0.01, fT3 3.7 and fT4 4.4.These results confirm my clinical suspicion that she is having too much T3 (the fT3 is normal but he TSH is more sable and the fact that it suppressed with low fT4 indicates over-replacement with T3). [What clinical suspicion? I was upfront with him and my GP from the beginning to exactly how much I was on - 60mcg T3!!)As we discussed my impression and advice is as follows:(1) That she is over-replaced with T3(2) That she took it upon herself to increase the dose of T3 and stop T4(3) That I am only willing on grounds of safety for Mrs Falkowski to prescribe no more than 10mcg twice daily of T3 after having reduced the optimal dose of L-Thyroxine by 50mcg as per the safety/dosing study I carried out a few months ago. [He's referring to the Planned Investigation Unit] The dose in Dec was 50mcg of L-Thyroxine and total of 20mcg of t3 in divided doses (she could have slightly more t4 on this regime given her body weight). She knows I am not willing to prescribe any other thyroid preparations or higher doses of T3 in light of these developments. (4) That we try and make sure one does not ascribe her residual symptoms to a cause(s) other than thyroid - otherwise one runs the risk of being distracted from dealing with other potential causes. [What does this mean? Is he saying that my other symptoms are thyroid or are not thyroid - I don't understand? Could you explain this point (4) to me especially as I cannot seem to grasp what he is trying to say ](5) I continue to investigate her for other causes and would be happy to rule them out - details are as per previous letters . [None of these latest tests are in any letter previously written by him - I'm disgusted that my GP didn't question him about this!)(6) I have offered her a second opinion but she was not willing at the time to take this on the basis that she felt she may get similar advice. [i didn't refuse - his offer was with Dr V at the Royal Free, on the BTA Board which was a no-no... I was hoping to discuss it further with him but hey ho... ](7) I would be grateful as we discussed if you could kindly issue 2 weekly prescriptions as discussed to ensure she does not take more T3 than advised - assuming she wishes to return to the same doses. [Huh? I was never told this and missed 3 weeks of T3 which my surgery refused to give me. How is this going to stop me from taking more T3? He has just caused more admin for the surgery as I now have to call them every two weeks to get them to send the prescription to the pharmacy, instead of once a month!](8) She may benefit from counseling/Psychiatric assessment if this has not been carried out in the past. I appreciate this is a difficult subject especially if she feels she is unwell because of her thyroid condition. Nevertheless, it maybe worth excluding any psychiatric component that could respond favourably to treatment. I am not sure she will accept this however. [i guess we all have had this written about us when they're out of their depth!!]Thank you.Yours sincerelyDr L> > Luv - Sheila> > Now, this is where I need you, Sheila, Bob, or anyone who understands my> latest lab results which apparently feature Cushing's. This could explain my> terrible sweating, piercing headaches, ammenoreah (had my first light period> in 7 months) and other symptoms.> > I posted them on the NDT Adrenal Group and the link is: > NaturalThyroidHormonesADRENALS/files/OU> R%20LABS/Jacquie%20F/> > My endiot has not seen them as he has been on holiday and won't be returning> since after Easter. I left a message for his registrar to call me but...> nothing!!> > I have made another appointment some time ago with Dr S at Chelsea & > Westminster for the 16th May. It is a long wait in light of my results and I> am truly nervous. I am hoping that he will also trial me on NDT.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 I forgot to mention that I have had a scan for PCOS and it was negative. And that I have never been on any adrenal supplements. In fact, I used to be a supplement junkie since my early 20s. Specifically Coenzyme Q10, multivitamins, the major B vitamins plus countless others but, some years ago, I could no longer afford this regime. I believe the Q10 and B vitamins kept me going for longer than I would have. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 I am delighted you telephoned Dr Peatfield's office and that you had such a good conversion with Jo. I know that he will help you all he can. My doctors are not aware of these results at all. My endo saw the first one but before I could question him, he had to take another call which was apparently more important than my results, and I've not heard from him since. His secretary's explanation was that he was very busy in his private practice!! Hmm! Shows that money is obviously more important to him than his patients Sheila, my ferritin AND creatinine have ALWAYS been high ---- I have no idea why and no one seems to be investigating it, even though I have pointed it out. Are there other members of your family with high ferritin levels? Haemachromatosis I believe is only considered if the ferritin level is over 1000 - sure I read this somewhere - so you are a long way from there, but your high ferritin (stored iron) needs to be investigated. Thank you... yes, I am aware of my B12 and folate. and have pointed it out to me and I am taking Vit B Srtong Compound but will have to speak with my GP about this. He just doesn't seem to want to know, and since this is my 6th GP, I'm worn out from changing. I am aware and will push for these supplements. Probably doesn't want to know because he might show his ignorance - some doctors don't want to learn, others are too busy to take time out to learn - and often, it is up to us patients to teach them - some are actually grateful for being given references to show the connection between low levels of vits/minerals and hypothyroidism. Jo said that I have most probably had this for many years and so I should try and relax, watch movies etc and take my mind off it until I hear from Dr P. I doubt the registrar can do much anyway as she works for my endo and wouldn't do anything without his permission. I agree with Jo - go and sit in the sunshine and relax. By the way, it was that letter we sent in January, copying the Practice Manager, which got him to do these tests. I requested a Adrenal Salivary Stress Index test (which we knew he wouldn't do) but to pacify me, and prove me wrong, he compromised and did these tests instead. This is really good news. It feels so good to know that doctors WILL take heed of the written word - I am hearing this more and more, especially sending a copy of the letter to the Head of Practice and asking for the letter to be placed into your medical notes. They will learn, little by little… PS: This is the last letter my endo wrote to my GP (without copying me for the very first time). Grammar, punctuation, spelling is his: Thank you taking my call last week. Further to my clinic letters I have received Ms. Falkowski's most recent results: TSH <0.01, fT3 3.7 and fT4 4.4. These results confirm my clinical suspicion that she is having too much T3 (the fT3 is normal but he TSH is more sable and the fact that it suppressed with low fT4 indicates over-replacement with T3). [What clinical suspicion? I was upfront with him and my GP from the beginning to exactly how much I was on - 60mcg T3!!) Doesn't this endoprat know that taking ANY forum of T3, synthetic or natural, will suppress the TSH. The pituitary recognises that there is sufficient thyroid hormone being secreted by the thyroid gland so has no need to send out high levels of TSH to tell the gland to secrete more. These thyroid function tests only show what level of thyroid hormone there is in your blood - they do not show the amount of thyroid hormone at the cellular level. Don't understand what he is saying - or perhaps it is he who doesn't understand! As we discussed my impression and advice is as follows: (1) That she is over-replaced with T3 Rubbish!He's going by your suppressed TSH only. (2) That she took it upon herself to increase the dose of T3 and stop T4 That's your perogative - you are as intelligent as he is and know (perhaps more) about your condition than he does and have probably read more about treating the symptoms of hypothyroidism and what's needed. He is another one who obviously believes that everybody is capable of converting T4 into the active T3. For a large minority of us, we are not! (3) That I am only willing on grounds of safety for Mrs Falkowski to prescribe no more than 10mcg twice daily of T3 after having reduced the optimal dose of L-Thyroxine by 50mcg as per the safety/dosing study I carried out a few months ago. [He's referring to the Planned Investigation Unit] The dose in Dec was 50mcg of L-Thyroxine and total of 20mcg of t3 in divided doses (she could have slightly more t4 on this regime given her body weight). She knows I am not willing to prescribe any other thyroid preparations or higher doses of T3 in light of these developments. How insulting What was this 'safety dosing study' he did and on how many patients. Was this peer reviewed? (4) That we try and make sure one does not ascribe her residual symptoms to a cause(s) other than thyroid - otherwise one runs the risk of being distracted from dealing with other potential causes. [What does this mean? Is he saying that my other symptoms are thyroid or are not thyroid - I don't understand? Could you explain this point (4) to me especially as I cannot seem to grasp what he is trying to say ] Very vague. Unless he is actually hinting that you might be suffering with 'Type 2' hypothyroidism which would mean you need T3 only but doesn't want to have to admit this because the RCP, BTA et al statements that everybody does well on T4 only, and that T3 should not be prescribed. Most doctors believe that 'Hypothyroidiosm' only relates to failure of the thyroid gland - they never consider any other possibility as they have never been taught otherwise. Type 1 hypothyroidism is defined as primary, secondary, and tertiary hypothyroidism and is properly associated with insufficient secretion by the thyroid gland. The most common cause originating within the thyroid gland is disease process. It would however still be considered primary, secondary and tertiary hypothyroidism (Type 1), even if it is due to a damaged gland, e.g. when damage is caused in an accident or damaged due to excessive exposure to radioactivity. Type 1 Hypothyroidism may be corrected by using levothyroxine (T4-only) replacement. However, your symptoms could be caused " other than thyroid " - and this we call Type 2 Hypothyroidism and this 'non-thyroidal' illness is what you appear to be suffering with. Type 2 hypothyroidism is defined as deficiencies in the peripheral conversion of T4 to T3, the subsequent reception of T3, and the use of T3 by the body's cells. This ignored hypothyroidism reduces the amount of the active thyroid hormone T3 in the body, producing the same sort of symptoms that Type 1 hypothyroidism does. Environmental toxins may also cause or exacerbate the problem. The pervasiveness of Type 2 hypothyroidism has yet to be recognised by mainstream medicine but already is in epidemic proportions. Type 2 hypothyroidism can be corrected by T3 hormone replacement therapy - and not be thyroxine-only therapy. If that's not what he is on about - I can't help - you should ask him to explain this to you. (5) I continue to investigate her for other causes and would be happy to rule them out - details are as per previous letters . [None of these latest tests are in any letter previously written by him - I'm disgusted that my GP didn't question him about this!) Then question your GP as to the reason he didn't mention this. (6) I have offered her a second opinion but she was not willing at the time to take this on the basis that she felt she may get similar advice. [i didn't refuse - his offer was with Dr V at the Royal Free, on the BTA Board which was a no-no... I was hoping to discuss it further with him but hey ho... ] Yes, I remember that - the endo. you were offered is an active member of the BTA and would have been no help to your specific case. (7) I would be grateful as we discussed if you could kindly issue 2 weekly prescriptions as discussed to ensure she does not take more T3 than advised - assuming she wishes to return to the same doses. [Huh? I was never told this and missed 3 weeks of T3 which my surgery refused to give me. How is this going to stop me from taking more T3? He has just caused more admin for the surgery as I now have to call them every two weeks to get them to send the prescription to the pharmacy, instead of once a month!] (8) She may benefit from counseling/Psychiatric assessment if this has not been carried out in the past. I appreciate this is a difficult subject especially if she feels she is unwell because of her thyroid condition. Nevertheless, it maybe worth excluding any psychiatric component that could respond favourably to treatment. I am not sure she will accept this however. [i guess we all have had this written about us when they're out of their depth!!] To be honest Jacquie, I encourage people to take up such a recommendation because it is psychiatrists who are the one's who find out that the cause of their patients symptoms is often a lack of the active thyroid hormone T3. They add T3 to some of their patients prescriptions. It would be good for a psychiatrist to write back to this endoprat and tell him there is nothing wrong with you psychologically - nothing that a little more T3 couldn't put right. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 Thank you taking my call last week. Further to my clinic letters I have received Ms. Falkowski's most recent results: TSH <0.01, fT3 3.7 and fT4 4.4.These results confirm my clinical suspicion that she is having too much T3 (the fT3 is normal but he TSH is more sable and the fact that it suppressed with low fT4 indicates over-replacement with T3). [What clinical suspicion? I was upfront with him and my GP from the beginning to exactly how much I was on - 60mcg T3!!)As we discussed my impression and advice is as follows:(1) That she is over-replaced with T3(2) That she took it upon herself to increase the dose of T3 and stop T4(3) That I am only willing on grounds of safety for Mrs Falkowski to prescribe no more than 10mcg twice daily of T3 after having reduced the optimal dose of L-Thyroxine by 50mcg as per the safety/dosing study I carried out a few months ago. [He's referring to the Planned Investigation Unit] The dose in Dec was 50mcg of L-Thyroxine and total of 20mcg of t3 in divided doses (she could have slightly more t4 on this regime given her body weight). She knows I am not willing to prescribe any other thyroid preparations or higher doses of T3 in light of these developments. (4) That we try and make sure one does not ascribe her residual symptoms to a cause(s) other than thyroid - otherwise one runs the risk of being distracted from dealing with other potential causes. [What does this mean? Is he saying that my other symptoms are thyroid or are not thyroid - I don't understand? Could you explain this point (4) to me especially as I cannot seem to grasp what he is trying to say ](5) I continue to investigate her for other causes and would be happy to rule them out - details are as per previous letters . [None of these latest tests are in any letter previously written by him - I'm disgusted that my GP didn't question him about this!)(6) I have offered her a second opinion but she was not willing at the time to take this on the basis that she felt she may get similar advice. [i didn't refuse - his offer was with Dr V at the Royal Free, on the BTA Board which was a no-no... I was hoping to discuss it further with him but hey ho... ](7) I would be grateful as we discussed if you could kindly issue 2 weekly prescriptions as discussed to ensure she does not take more T3 than advised - assuming she wishes to return to the same doses. [Huh? I was never told this and missed 3 weeks of T3 which my surgery refused to give me. How is this going to stop me from taking more T3? He has just caused more admin for the surgery as I now have to call them every two weeks to get them to send the prescription to the pharmacy, instead of once a month!](8) She may benefit from counseling/Psychiatric assessment if this has not been carried out in the past. I appreciate this is a difficult subject especially if she feels she is unwell because of her thyroid condition. Nevertheless, it maybe worth excluding any psychiatric component that could respond favourably to treatment. I am not sure she will accept this however. [i guess we all have had this written about us when they're out of their depth!!]Thank you.Yours sincerelyDr L Oh well, there you have it, Jacquie - that's you told !<g> - And now you have it in writing; patients who take matters into their own hands because incompetent doctors are unable to help them must be mental ... Your endo is full of a 4-letter word that starts with S and ends with T ! - A friend had me in stitches the other day when she cited something her good doctor had `let slip' when referring to a colleague – this doctor said to her.... 'between you and me, some physicians think they are so close to God they get altitude sickness and their brains rot'.... he wasn't referring to your endo by any chance, was he J ? Honestly, if any doctor were taking the liberty to talk down to me/about me in such a pompous and condescending manner, I would make him or her grasp the true meaning of `hell hath no fury like a woman scorned'. Keep that letter safe, Jacquie; you may want to refer to it later and make him eat his words when you're got sorted out by a doctor who actually understands adrenal and thyroid conditions and you have been given the diagnosis and treatment that this idiot is unable to establish. Oh, and you are not alone puzzling over the meaning of point 4); dear Dr. L. is talking through one of his lower orifices .... - Altitude sickness, y 'know J - I think in point 4) he is insinuating that all your current symptoms are self-inflicted and caused by you ignoring his instructions and dropping the precious T4 in favour of a T3-only therapy J ....he is making it very clear in point 8) that only someone with a mental impairment would contemplate such a crazy thing and not recognize his godlike superiority. Run a mile from this egomaniac, Jacquie. There is no way on earth that you will get anywhere with him. I would ask in writing for a referral to an endo of your own choice and let him know that you have no confidence nor trust in his ability to treat you. I am sorry I somehow missed your previous posts – but I'm afraid I can't comment on a possible Cushing's issue. I am not knowledgeable about Cushing's and can't interpret those results. Hopefully Dr. P. will be available soon and help you make sense of it all. With very best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 A couple of years ago I saw this egomaniac - , you have hit the nail on the head with that description of him! I had medical insurance at the time, so saw him privately and it was obvious to me that the £s were rolling around in his brain. He wanted to wean me off all thyroxine and prove that all my symptoms were due to other things. He never got the chance! Again, his letter to my GP was full of mistakes. Jacqui, you will do far better with the lovely Dr P. All the best > Run a mile from this egomaniac, > Jacquie. There is no way on earth that you will get anywhere with him. I > would ask in writing for a referral to an endo of your own choice and > let him know that you have no confidence nor trust in his ability to > treat you. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 Can somebody send me this egomaniac's name please so I can keep it safe on my doctors list NOT recommended for our members. BTW this must be sent to me privately and is NOT for public viewing, but if anybody writes to me privately asking about seeing a certain doctor, I can warn them of what others have reported about him/her. Send to [sheila@...] Luv - Sheila A couple of years ago I saw this egomaniac - , you have hit the nail on the head with that description of him! I had medical insurance at the time, so saw him privately and it was obvious to me that the £s were rolling around in his brain. He wanted to wean me off all thyroxine and prove that all my symptoms were due to other things. He never got the chance! Again, his letter to my GP was full of mistakes. Jacqui, you will do far better with the lovely Dr P. > Run a mile from this egomaniac, > Jacquie. There is no way on earth that you will get anywhere with him. I > would ask in writing for a referral to an endo of your own choice and > let him know that you have no confidence nor trust in his ability to > treat you. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 Sheila, I wrote to you two years ago to tell you that this man was an endoprat, after originally finding him on your list of good docs. You said then that you would take him off the list. I'll drop you another email though, just to be on the safe side. > > Can somebody send me this egomaniac's name please so I can keep it safe on > my doctors list NOT recommended for our members. Quote Link to comment Share on other sites More sharing options...
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