Re: Not feeling too good

[Guest guest]

Hi C

First of all, BIG HUGS. I went on a T3 only protocol at the end of November and

after three weeks I basically had a nervous breakdown with severe anxiety and

paranoia. I am still trying to recover from it, despite having withdrawn the T3

only protocol on the 26/12. I have switched back to natural with a tiny amount

of T3 (6.25) and plan to raise my NTH as normal while building up my iron, B

vits and zinc.

I was beyond DEPSERATE on T3 only and felt so alone because I wasn't under the

care of a doc while doing this, and your average GP barely understand T3, let

alone RT3!! So, I can so relate to your post.

In my case, a part of me was/is heartbroken over it as my thyroid symptoms were

GONE - I was losing weight, felt warm/but not too hot, had lots of energy and

felt physically great. However, I was a complete mess mentally. From looking at

previous labs, it seems that my borderline anaemia turned into outright anaemia

on T3 only, which explains my symptoms.

It COULD be hyperthyroidism if you have been on T3 for more than 12 weeks, but

if it is less than 12 weeks I would advice looking at adrenals (high or low

cortisol) and iron. Have you had any of these evaluated?

[Guest guest]

Hi have a look at our web site www.tpa-uk.org.uk and in the Menu, click on

hyPERthyroidism and then on 'Symptoms and Signs' in the drop down Menu. Have

you had recent thyroid function testing, and if so, let us have the results

with the reference ranges for each test.

Don't know whether or not you have seen this but there is an

excellent article on testosterone in Wikipedia with over 90 references. http://en.wikipedia.org/wiki/Testosterone

Luv - Sheila

What are the symptoms of hyperthyroidism

please?

since starting testostereone i've lost most of my appetite (and 6lbs, in a

week), and now don't feel too good mentally: losing the plot to be honest

the obvious answer is that it's something to do wtih the testosterone. but i

wondered if perhaps it could be that increased T has revealed hyperthyroidism?

ok iknow this might sound crazy but it does kind of fit at least some of it

does.

[Guest guest]

Hello Lynne

Have you done the 24 hour salivary adrenal profile and if so,

what were the results. Are you sure that you are not suffering with low adrenal

reserve and that is the reason you are unable to take T3 on it's own?

Luv - Sheila

First of all, BIG HUGS. I went on a T3 only protocol at the end of November and

after three weeks I basically had a nervous breakdown with severe anxiety and

paranoia. I am still trying to recover from it, despite having withdrawn the T3

only protocol on the 26/12. I have switched back to natural with a tiny amount

of T3 (6.25) and plan to raise my NTH as normal while building up my iron, B

vits and zinc.

I was beyond DEPSERATE on T3 only and felt so alone because I wasn't under the

care of a doc while doing this, and your average GP barely understand T3, let

alone RT3!! So, I can so relate to your post.

In my case, a part of me was/is heartbroken over it as my thyroid symptoms were

GONE - I was losing weight, felt warm/but not too hot, had lots of energy and

felt physically great. However, I was a complete mess mentally. From looking at

previous labs, it seems that my borderline anaemia turned into outright anaemia

on T3 only, which explains my symptoms.

It COULD be hyperthyroidism if you have been on T3 for more than 12 weeks, but

if it is less than 12 weeks I would advice looking at adrenals (high or low

cortisol) and iron. Have you had any of these evaluated?

[Guest guest]

Same this happened to me and it was also due to Low Iron because I am on HC and

took up to 35mg per day. The anxiety did not start until I got to 31mcg of T3. I

am now on low dose Armour trying to build up my Iron as well. My ferritin was

only 31, also borderline. I am finding after being on Armour 30mg is too low and

am going to up to 45 today, hope that helps. No anxiety so far...I have been

supping Iron for almost a month now.

>

> Hi C

>

> First of all, BIG HUGS. I went on a T3 only protocol at the end of November

and after three weeks I basically had a nervous breakdown with severe anxiety

and paranoia. I am still trying to recover from it, despite having withdrawn the

T3 only protocol on the 26/12. I have switched back to natural with a tiny

amount of T3 (6.25) and plan to raise my NTH as normal while building up my

iron, B vits and zinc.

>

> I was beyond DEPSERATE on T3 only and felt so alone because I wasn't under the

care of a doc while doing this, and your average GP barely understand T3, let

alone RT3!! So, I can so relate to your post.

>

> In my case, a part of me was/is heartbroken over it as my thyroid symptoms

were GONE - I was losing weight, felt warm/but not too hot, had lots of energy

and felt physically great. However, I was a complete mess mentally. From looking

at previous labs, it seems that my borderline anaemia turned into outright

anaemia on T3 only, which explains my symptoms.

>

> It COULD be hyperthyroidism if you have been on T3 for more than 12 weeks, but

if it is less than 12 weeks I would advice looking at adrenals (high or low

cortisol) and iron. Have you had any of these evaluated?

>

[Guest guest]

Thanks all

Well I must first clarify i'm not on any thyroid medication. it may sound stupid

to wonder if i'm hyper-t all of a sudden but i do wonder what the hell is going

on.

02/12/10 TSH 0.67 0.3-4.2 miu/L

02/12/10 Ferritin71 30-400 ug/L *Down from 115 last year*

02/12/10 Free T3 5.7 4.0-6.8 pmol/L

02/12/10 Free T4 14.5 12.0-22.0 pmol/L

The thing that interests me is that the NHS lab picked up on my TSH being low

but also T4 being low, and i think that's why they did the Free T3 - it wasn't

requested by the dr, i've never known an NHS lab do a free t3 test before on me.

according to Dr Rind, a tsh below 1 shows the body can't use the thyroid very

well, am i right?

I feel somewhat calmer today but still not right. my appetite is still low,

much lower than usual. I also feel sick for no reason.

when i saw that endo last month the nurse said there was blood and protein in

the urine. the dr made no mention of this in the consultation. i got some

urine testing strips and there is still blood in my urine, possibly a bit of

protein. i've been told it's normal to have some of either in the urine (is

this right) but mine always seems to have it in? is this right? checked blood

sugar, between meals it was 4.6.

A protein electrophoresis test i had last year, no well 2009, revealed

" increased A2 globulins but no discrete band "

http://www.buzzle.com/articles/hemoglobin-electrophoresis.html

this i gather can be linked to kidney problems? that test result and the blood

in urine, i wonder if that points to kidney issues?

please move this to chat if that's more appropriate.

thanks

chris

>

> Hi have a look at our web site www.tpa-uk.org.uk and in the Menu,

> click on hyPERthyroidism and then on 'Symptoms and Signs' in the drop down

> Menu. Have you had recent thyroid function testing, and if so, let us have

> the results with the reference ranges for each test.

>

[Guest guest]

Hi , your ferritin wasn't borderline, it was downright

too low. It should be at least between 70 and 90 for a women in a reference

range usually around 20 to 200. It is usual to increase Armour by 30mcgs every

three weeks - adding only another 15mgs is a very low dose indeed and you will

hardly feel much difference, unless you have a heart problem. It will take you

a long time to get back your optimal health with such a slow dosing regime.

Are you taking your iron four hours away from taking your

thyroid hormone replacement?

Luv - Sheila

Same this happened to me and it was also due to

Low Iron because I am on HC and took up to 35mg per day. The anxiety did not

start until I got to 31mcg of T3. I am now on low dose Armour trying to build

up my Iron as well. My ferritin was only 31, also borderline. I am finding

after being on Armour 30mg is too low and am going to up to 45 today, hope that

helps. No anxiety so far...I have been supping Iron for almost a month now.

[Guest guest]

Hi,

Ok, it is low . I take Armour sublingually so I am not worried about other

supplements getting in the way. I actually went up to 45mg of Armour today after

being on 30mg for 7 days. I was feeling more hypo than before I took meds..so

that was not a good sign.

However, with the low iron, I wanted to be careful.

I will stay on 45mg for 15 days now and see how that goes - taking only 15mg for

6 days was torture! Talk about air hunger...

When I test for iron, is it 3 or 5 days in advance I should stop taking the iron

supplements?

Thanks!

Jen

>

> Hi , your ferritin wasn't borderline, it was downright too low. It

> should be at least between 70 and 90 for a women in a reference range

> usually around 20 to 200. It is usual to increase Armour by 30mcgs every

> three weeks - adding only another 15mgs is a very low dose indeed and you

> will hardly feel much difference, unless you have a heart problem. It will

> take you a long time to get back your optimal health with such a slow dosing

> regime.

>

> Are you taking your iron four hours away from taking your thyroid hormone

> replacement?

>

> Luv - Sheila

>

>

>

> Same this happened to me and it was also due to Low Iron because I am on HC

> and took up to 35mg per day. The anxiety did not start until I got to 31mcg

> of T3. I am now on low dose Armour trying to build up my Iron as well. My

> ferritin was only 31, also borderline. I am finding after being on Armour

> 30mg is too low and am going to up to 45 today, hope that helps. No anxiety

> so far...I have been supping Iron for almost a month now.

>

[Guest guest]

Your thyroid results are pretty good and if you are not on any thyroid meds i

would say the problems you are now having are not to do with the thyroid.

I have never heard about having a low TSH means the body cannot use thyroid very

well. Do you have any link to that for Dr rind. I would say a TSH of 0.67 is

excellent.

If the body gets more testosterone i think it can have an effect on cortisol

levels, maybe this is why you are not doing so well. i suppose the testosterone

boards will help you out here though.

>

> Thanks all

>

> Well I must first clarify i'm not on any thyroid medication. it may sound

stupid to wonder if i'm hyper-t all of a sudden but i do wonder what the hell is

going on.

>

> 02/12/10 TSH 0.67 0.3-4.2 miu/L

> 02/12/10 Ferritin71 30-400 ug/L *Down from 115 last year*

> 02/12/10 Free T3 5.7 4.0-6.8 pmol/L

> 02/12/10 Free T4 14.5 12.0-22.0 pmol/L

>

[Ed]

[Guest guest]

Hi Sheila

Yes, I did the 24 hour saliva test over 2 years ago and have been on HC for two

years.

At last labs my ferritin was 78, BUT I was ill with a kidney infection, which

apparently means that figure was not reliable at all. Plus, my HG, haemocrit and

MCV are all in the lower end of the range. I think the T3 ate through what

little iron stores I had, and according to LEF.org, none of my iron levels were

optimal at last testing:

http://www.lef.org/protocols/appendix/blood_testing_01.ht

I am waiting on labs I had done in December, but I had taken two iron pills two

days before the test, which I hope won't affect it too much.

[Guest guest]

Hi Jonny - you make the same mistake that doctors make. Chris's

serum thyroid function test results ONLY show the level of pituitary and

thyroid gland secretions. When, as in Chris's case, they are returned within

the so called 'normal' reference interval, they tell their patients that they

do not have a thyroid problem. Blood tests do NOT detect Type 2 hypothyroidism/peripheral

resistance to thyroid hormone replacement/euthyroid hypometabolism. Type 2 hypothyroidism

is usually inherited, but environmental toxins may also cause or exacerbate the

problem. The pervasiveness of Type 2 (or Euthyroid Hypometabolism) has yet to

be recognised by mainstream medicine, but already is in epidemic proportions. Doctors

will NOT check their patients to see if s/he has peripheral resistance to

thyroid hormones at the cellular level when they complain of symptoms and who

have normal TFT's.

Luv - Sheila

Your thyroid results are pretty good and if you are not on any thyroid meds

i would say the problems you are now having are not to do with the thyroid.

I have never heard about having a low TSH means the body cannot use thyroid

very well. Do you have any link to that for Dr rind. I would say a TSH of 0.67

is excellent.

If the body gets more testosterone i think it can have an effect on cortisol

levels, maybe this is why you are not doing so well. i suppose the testosterone

boards will help you out here though.

>

> Thanks all

>

> Well I must first clarify i'm not on any thyroid medication. it may sound

stupid to wonder if i'm hyper-t all of a sudden but i do wonder what the hell

is going on.

> 02/12/10 TSH 0.67 0.3-4.2 miu/L

> 02/12/10 Ferritin71 30-400 ug/L *Down from 115 last year*

> 02/12/10 Free T3 5.7 4.0-6.8 pmol/L

> 02/12/10 Free T4 14.5 12.0-22.0 pmol/L

>

[Ed]

[Guest guest]

Of course, but chris has a problem with testosterone as well and so on balance i

think his problems are more to do with this area than the thyroid. he has tried

thyroid meds if i am correct and he doesnt like them.

So i answered his question asking whether the thyroid was the source of his

problems. it may turn out to be the thyroid, but based on his bloods i think he

needs to look at testosterone. he was bottom or below the normal range for

that.

>

> Hi Jonny - you make the same mistake that doctors make. Chris's serum

> thyroid function test results ONLY show the level of pituitary and thyroid

> gland secretions.

moderated to remove old messages

[Guest guest]

Hi

please check out:

http://www.drrind.com/therapies/thyroid-scale

" Example 3:

* Betty had mononucleosis (EBV) 10 years ago after which she developed anxiety,

insomnia, coldness and PMS due to adrenal fatigue. She recently had marital

stress.

* Thyroid lab values show are: TSH = 0.9 (below optimal), FT4 = 0.9 (below

optimal), FT3 = 260 (below optimal and lower than T4 on the relative scale)

* What does this mean: Her adrenals can not handle much thyroid energy. The

pituitary decreased its production of TSH so that the thyroid would make less

T4. The recent stress further reduced the adrenals tolerance to thyroid energy

so the body (for now) adjusted its energy downward decreasing its conversion of

T4 to T3 hence T3 is lower than T4 on this relative scale.

Below you will find further explanation and greater detail to help you

understand the logic behind these illustrations and how to interpret lab

values. "

" In cases of chronic adrenal fatigue, the body (actually the adrenals) can only

handle a low amount of metabolic energy, so the TSH will usually be below

optimal. This is an example of the body 'down-regulating' the thyroid energy.

With this low level of thyroid stimulation, we find the T4 and T3 below optimal

approximately at the same place on the scale. (e.g. TSH 0.9, FT4 0.95, FT3 282) "

>

> I have never heard about having a low TSH means the body cannot use thyroid

very well. Do you have any link to that for Dr rind. I would say a TSH of 0.67

is excellent.

>

[Guest guest]

Hi Sheila

I agree with you about the peripheral thing. Problem is i don't have recent

results since being on Testosterone (T) to see what's happening either. have

read that T can trigger someone into hyper or hypo thyroid, both of which can

cause someone to feel bad mentally.

I think in fact that i might be feeling like this because of a food intolerance.

The reason i think this is that how bad i feel has worn off a bit now, was very

bad this morning and yesterday morning.

connection between today and yesterday? this morning and yesterday morning, i

had - for breakfast - pitta bread with tuna, followed by a bendicks mint. reason

for mint was it is quite a strong taste, which stops any cravings for anything

else.

so i wonder if it's allergy to:

dark chocolate

peppermint oil (both in the mint choc)

bread

tuna

honestly how i've been feeling is not good, really not good. i feel very tired

now.

i guess i need to see how i go now obviously avoiding these foods and see if i

can get a thyroid test too maybe.

thank you Sheila

Chris

>

> Hi Jonny - you make the same mistake that doctors make. Chris's serum

> thyroid function test results ONLY show the level of pituitary and thyroid

> gland secretions. When, as in Chris's case, they are returned within the so

> called 'normal' reference interval, they tell their patients that they do

[Guest guest]

Hi Hmmm of those things listed I'd avoid them all for a couple of weeks, then do a challenge with one item at a time- leaving a few days between challenges- that's the only way to really find out. Jennny> thyroid treatment > From: chrisjtaylor46@...> Date: Mon, 3 Jan 2011 19:54:33 +0000> Subject: Re: Not feeling too good> > Hi Sheila> .> > I think in fact that i might be feeling like this because of a food intolerance. The reason i think this is that how bad i feel has worn off a bit now, was very bad this morning and yesterday morning..> > so i wonder if it's allergy to:> dark chocolate> peppermint oil (both in the mint choc)> bread> tuna> > thank you Sheila> > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

Thanks

i checked the ingredients of the mints last night - had gum arabic in. didn't

have any mints today, feel ok. i am intolerant to say the least to all these

cellulose gums eg arabic, xantham, celulose.

don't know why they have to put this rubbish in our food, esp premium products

like that.

chris

>

>

> Hi

> Hmmm of those things listed I'd avoid them all for a couple of

weeks, then do a challenge with one item at a time- leaving a few days between

challenges- that's the only way to really find out.

> Jennny

[Guest guest]

Hi

Protein and blood in urine is NOT normal,

http://www.biology-online.org/biology-forum/about9177.html.

I had protein in mine when I was hyper, I also had testosterone tested once and

it was low. (just under range) I agree with you on the FT3 test being done

because of

your T4 and TSH being low ........that's how I was diagnosed!

I had a quick google though and low adrenal function comes up, could the T

replacement be making your adrenals struggle even more?

Also saw that T replacement can trigger hyper so I'd be keeping an eye on

that!!!

I don't know about any of the other hypers here but I never lost my appetite,

total

opposite, I was eating for 20 hungry horses and weight was falling off me. No

appetite at all now and never have when hypo but as we all know, everyones

symptoms are different.

If I was you I'd be asking questions about the blood and protein though, maybe

seeing a Urologist would be a help with all your symptoms.....my bowel surgeon

helps

me more than endo ever has!!! She thinks it's satisfactory/normal for levels to

fall

despite increase in meds.....yep I'm fighting with her again lol.

My mum has kidney disease too and blood, protein and something else (creatinine

maybe?) are big flags!

Hugs Tess

>

> Thanks all

>

> Well I must first clarify i'm not on any thyroid medication. it may sound

stupid to wonder if i'm hyper-t all of a sudden but i do wonder what the hell is

going on.

>

> 02/12/10 TSH 0.67 0.3-4.2 miu/L

> 02/12/10 Ferritin71 30-400 ug/L *Down from 115 last year*

> 02/12/10 Free T3 5.7 4.0-6.8 pmol/L

> 02/12/10 Free T4 14.5 12.0-22.0 pmol/L

[Guest guest]

Hi Tess

Thanks for your reply :-)

I suppose i will go back to the dreaded gp. this might sound stupid but what

should i say? I can't say " I feel worse on T can you test my thyroid " because

he'll say " ha i told you so i'm not giving you any more T " ! i could do some

tests with genova or red apple and then if necessary go see GP. no one has

picked up on why the lab tested my T3, i can't remember the exact comment on the

result but think they assume i'm on Thyroid replacement.

i hate going to see drs, GP, etc. don't fancy seeing urologist, thought worries

me. i suppose i should go gp. my mother was told that blood in her urine was

normal by GP (or was told there was no blood when there was, i forget which),

unfortunately some years later she developed bladder cancer. if you are

familiar with the urine testing sticks, then the amount of blood in my urine is

quite small, one or two shades to the right of 'negative' i think.

a test last month said creatinine was normal (79 - 60-126 umol/L). About 2

months back i thought i'd had a urine infection as things didn't feel right, and

plus there was really rather a lot of sedimenty type stuff in the urine. i saw

the nurse who said there was no bacteria in there but there was protein and/or

sediment in it, i provided a sample that was sent to hospital but heard nothing

back from it. i wondered if it was candida, i took a diflucan (as well as some

herbal stuff, inc cranbrry and potters herbal remedy) and that seemed to sort it

all out - more sediment/protein stuff though after the diflucan then it stopped.

about 10 yrs ago i had a bad uti (only one i ever had) felt very unwell with

that. maybe that did some damage. or i wonder about a kidney stone - i did

take quite a lot of vitamin d at one point, the good endo taht i saw said that

too much vit d could give you kidney stones - it is possible i guess.

low adrenals is also possible, adrenals are ok so i'm told though (that was a

whole debacle in itself).

i suppose i'll have to see gp about it (blood) :-( not sure really whether to

just do some genova tests and see what they say. if i go to gp and say i don't

feel q right i'm sure he'll say the T is doing you no good. i am feeling

better now though, a bit anyway, thinking it was that gum arabic that might have

made me worse. if it was that, and not the T, then i'd been eating it for about

10 days so it's gonnna take a few days to get over it. 2 people i've spoken to

who are on T said they didn't feel anything for months and say they don't think

T would have made me feel like that. one of the people i spoke to had had a 2 yr

manic episode in his 20s, so i think if it was going to cause mania, it would

have in him. however no two poeple are alike of course. though i'm very

sensitive to what i'm sensitive too, if that makes sense. plus a good amount of

T should still be in my body.

In the T jab there are 4 esters of T, one quick acting with a short half life,

then two medium ones and a longer one. The half life is about 10 days or so, so

i've read. In the BNF it suggests a jab every 3 weeks, so perhaps the half life

is longer than 10 days. So where i'm going with this is it could be the gum

arabic (gums really do mess me up - used to really like honey roast peanuts but

they made me feel bad, turns out they have xantham gum in), which i ate for

about 10 days, or, it could be that the T took about 10 days to half in my

system (though even so it should still be present in reaonable amounts now) -

both are pretty much 10 days or so - basically both co exist during hte time

i've felt bad. yesterday i still felt really bad - would T (or thyroid) go from

a level yesterday that made me feel really bad, to dropping enough today so i

don't feel ill? i 'm not so sure it would/could drop in a few hours. i noted i

felt a bit better at work today, wanted to speak to people more, more

interactive, less depressed (though felt more sensitive toight- not heard off my

family, birthday tomorrow, don't really want to spend it alone - so what i'm

saying is it might be helping with emotions perhaps)

what happened with your hyperthyroid history? did this just develop over time?

i just wondered how it developed - did they take out your thyroid or are you on

block and replace?

thanks for your message

chris

>

> Hi

>

> Protein and blood in urine is NOT normal,

http://www.biology-online.org/biology-forum/about9177.html.

> I had protein in mine when I was hyper, I also had testosterone tested once

and it was low. (just under range) I agree with you on the FT3 test being done

because of

> your T4 and TSH being low ........that's how I was diagnosed!

> I had a quick google though and low adrenal function comes up, could the T

replacement be making your adrenals struggle even more?

> Also saw that T replacement can trigger hyper so I'd be keeping an eye on

that!!!

> I don't know about any of the other hypers here

[Guest guest]

Hi

Have you seen this, loss of appetite, mood changes are listed as side effects to

T replacement http://www.drugs.com/sfx/testosterone-side-effects.html

I would ask gp about the protein and blood in your urine first especially after

the fiasco you had with the adrenal testing not long ago.

You could then ask why they tested your T3, could it have done been done because

you were starting T replacement? Try and find out what the comment was from lab.

Don't know all your symptoms but when I was hyper, I was constantly hungry,

went from manic lunatic to depths of despair (no in between) shakes, palps, not

sleeping etc. You saying you're feeling better and less depressed today dosen't

sound hyper so you might be right about the gum.

I don't know enough about adrenals but read they can cause hyper like anxiety,

depression and what I've read about on here about taking T3 with low adrenals

makes me wonder if the T replacement isn't stressing yours out. When i put

protein in urine and low T or hyperthyroid, protein, low T this came up every

time.

http://www.merckmanuals.com/home/sec13/ch164/ch164b.htm

As for me, thyroids gone, am on T4 and T3 but levels falling with every test

despite increase in meds, still no TSH though. Endo say's satisfactory!

History.....I now know I've had Graves for years, it all fits now but thyroid

was never tested...I was over anxious, depressed, etc etc.

You're not having much luck, big hugs and A BIG HAPPY BIRTHDAY tomorrow :-)

Tess x

>

> Hi Tess

>

> Thanks for your reply :-)

>

> I suppose i will go back to the dreaded gp. this might sound stupid but what

should i say? I can't say " I feel worse on T can you test my thyroid " because

he'll say " ha i told you so i'm not giving you any more T " ! i could do some

tests with genova or red apple and then if necessary go see GP. no one has

picked up on why the lab tested my T3, i can't remember the exact comment on the

result but think they assume i'm on Thyroid replacement.

>

[Guest guest]

Hi Tess and

Tess, had his free T3 tested (see below)

you need your ferritin level raising as for a man, your

result is low. The reference interval for ferritin is around 30 to 300 and I have

never seen one for 30 to 400 before. For a normal level, it should be at least

around the middle of the range, so in your case, that would mean you should

have a level of around 180 to 200. The reference range for women is around 20

to 200 and they need a level of 70 to 90 to be normal. Are you doing anything

to boost your ferritin?

> 02/12/10 TSH 0.67 0.3-4.2 miu/L

> 02/12/10 Ferritin71 30-400 ug/L *Down from 115 last year*

> 02/12/10 Free T3 5.7 4.0-6.8 pmol/L

> 02/12/10 Free T4 14.5 12.0-22.0 pmol/L

Luv

- Sheila

Protein and blood in urine is NOT normal, http://www.biology-online.org/biology-forum/about9177.html.

I had protein in mine when I was hyper, I also had testosterone tested once and

it was low. (just under range) I agree with you on the FT3 test being done

because of your T4 and TSH being low

.........that's how I was diagnosed!

,_._,___

[Guest guest]

Hi Sheila

I am now taking iron bisglycinate (sp?) in capsules to see if that'll boost it.

really don't know how it's dropped 50% unless thru blood loss. I don't have

celiac disease. Dr M said my ferritin should be about 150 - Dr M's the first dr

to even mention ferritin to me.

as coincidence/luck might have it, today i got an email back from a urologist

that Dr A had recommended regarding T treatment. I contacted him about 1 or so

months ago after Dr A discharged me, but this dr never got back to me but now he

has.

anyway, he says i should almost certainly be on T replacement, and he does not

use sustenon, but nebido instead, which i think is the 3 month injection.

sustenon gives too variable levels he says. he also said that to give me T as a

boost was wrong it doesn't work like that, and it takes 12 months for the

metabolic effects to take effect! he said he'd be happy to see me on nhs or

private but said tests would be dear. he sounds ok, he is mentioned in the

press a bit and is well regarded in this field.

can gp ignore an email from eminent consultant in this field that i should be

treated and treated properly?

so things have changed again.

interesting...

thanks

chris

>

> Hi Tess and Chris

>

> Tess, had his free T3 tested (see below)

>

> you need your ferritin level raising as for a man, your result is

> low. The reference interval for ferritin is around 30 to 300 and I have

> never seen one for 30 to 400 before. For a normal level, it should be at

> least around the middle of the range, so in your case, that would mean you

> should have a level of around 180 to 200. The reference range for women is

> around 20 to 200 and they need a level of 70 to 90 to be normal. Are you

> doing anything to boost your ferritin?

>

[Guest guest]

Hi Tess

thank you i had seen similar so that's why i'm at a loss as to what's happening

really. i mean by this it could be T, it could be the gum, could be hyper or

hypo, or something else. or a combination of all these things.

no they didn't take t3 test because i was starting T therapy - i will have to

dig out the copy of the lab test, i think they are doing it because they are not

sure if i'm on thyroid or not.

i had an email back from a urologist today who said he does not use sustenon

(what i'm on) as the levels vary too much, and wear off too soon. he seems

helpful and says that he would see me and i shold probably be on T. the thing

that concerns me though is these doctors all seem to do their onw little bits,

like he'll do urology, someone else'll do endocrinology, someone else'll do

cholesterol...what if i need the urologist to keep an eye on my Thyroid or do an

mri on pituaitry would he order the tests or not? or will i then have to see 2-3

drs, one for sleep apnea, one for 'urology', one for 'thyroid' (if i have issue)

etc etc...what a performance!

i know i have been going on about the gum, i do wonder if it was high levels of

T esp given what you have posted and this new dr has written to me about. of

course they're not mutually exclusive, could be T and the gum.

am i right in thinking you think it might be something stressing my arednals out

- possibly addisons type stress - that is causing blood in urine?

the urologist would give a 3 month injection, which shouldbe a lot more stable.

problem with that of course is that if it was the T that made me feel bad, i'd

have 3 months of it, not 1-3 weeks. i need to ask the drs opinion whether the

sustenon could have had that effect - could he try me on another short acting T

jab to see if i'm ok on it. i am surprised to hear off him, this changes

everything, again.

are you getting better now with treatment or is it still a struggle to get

optimised?

thanks for bithrday wishes, it was ok on the whole!

chris

>

> Hi

>

> Have you seen this, loss of appetite, mood changes are listed as side effects

to T replacement http://www.drugs.com/sfx/testosterone-side-effects.html

> I would ask gp about the protein and blood in your urine first especially

after the fiasco you had with the adrenal testing not long ago.

> You could then ask why they tested your T3, could it have done been done

because you were starting T replacement? Try and find out what the comment was

from lab. Don't know all your symptoms but when I was hyper, I was constantly

hungry,

[Guest guest]

Hiya

Glad your birthday was ok :-) Good news on urologist too. Bit of a kamikaze

suggestion here...you could try a wee bit of gum and see what happens? At least

you

could rule it out..or know that's what it was.

I was wondering about adrenals because of that acth test you had, I read that

low T could be adrenal related, when I googled protein n blood in urine adrenals

came up again so I was wondering if T replacement had caused a surge on adrenals

making you anxious?

I don't know that urologist will keep an eye on thyroid but if he's doing your T

replacement now if you mention the protein n blood.....and the acth test! He

might look into it a lot more than crappy endo's?

It's a pain seeing all the different doctors, I see bowel surgeon, still under

thyroid surgeon for paralysed vocal chord, eye specialist next month, endobitch

(not for much longer though) my bowel surgeon is superb, he puts all the

symptoms together and chases it up, thyroid surgeon ok too. All my symptoms,

bowel problems are from low thyroid but endo said...get regular tests!

Maybe a urologist will put all your symptoms together too and give you some

clues? So yeah I definitely be asking about side effects, protein in urine etc.

Big struggle to get optimised, now on 150 T4 and 100/120 T3, last blood results

TSH o.001, T4 = 9 (9-21) T3 = 1.5

God knows where it going but levels have fell consistently since thyroid was

removed despite increasing meds...which endo thinks is satisfactory. I've wrote

a letter complaining about her again, saw bowel surgeon last week and he's

gunning for her and have thyroid surgeon appt on 10th....endo's his ex wife lol

but he's been fine up to now...Bloody nightmare!!

Love Tess x

>

> Hi Tess

>

> thank you i had seen similar so that's why i'm at a loss as to what's

happening really. i mean by this it could be T, it could be the gum, could be

hyper or hypo, or something else. or a combination of all these things.

>

,

>

[Guest guest]

Hi this sounds really promising. A GP should ignore

recommendations from an eminent consultant in this field at his peril. Should

he do so, I would want from him, in writing his reasons for ignoring such

recommendations and I would ask for each reason to be backed up by citing

references to any scientific evidence.

Luv - Sheila

can gp ignore an email from eminent consultant in this field that i should be

treated and treated properly?

so things have changed again.

chris

---

___

[Guest guest]

Hi Tess

thing is i don't know if it was the gum in the chocs or not; i also don't know

if it's a cumulative effect either, so a week later one may be ok, and the

symptoms might only reveal after say 10. i daren't risk it i felt so bad. i

have mailed the urologist to say look would you keep an eye on the other stuff

like thyroid please just in case and also mentioned the blood in the urine stuff

and the electrophoresis test and the high cholesterol and triglycerides (all can

be linked to kidney problems) and will see what he says. i do not want a repeat

of seeing the last dr I saw, he has really put me off seeing any consultant ever

again, private or not, so i am now being much more selective in who i see. i am

not paying, and nor should the nhs pay, for me or anyone else to be treated like

crap.

that sounds complicated with all your doctors! the bowel surgeon sounds good

tho.

take care

chris

>

Bit of a kamikaze suggestion here...you could try a wee bit of gum and see what

happens? At least you

> could rule it out..or know that's what it was.

> I don't know that urologist will keep an eye on thyroid but if he's doing your

T replacement now if you mention the protein n blood.....and the acth test! He

might look into it a lot more than crappy endo's?

[Guest guest]

Well today i went for my 'weight check in' with the nurse. i have to admit i've

not done very well with my diet (the 1/2 st i lost went back on, i think it was

all water as when i was feeling not right i didn't hardly eat).

The nurse checked my urine, no blood in their sample (she showed me), which is

good, but i don't know why there was some last month and in every sample i

checked.

I had written to gp too with the email from the eminent consultant that Dr A had

recommended saying that he would see me and he said almost certainly i should be

on T, and i asked for a referal to him on the nhs. the nurse said the gp wants

to talk to me about this either in person or on the phone, i expect he'll say no

and try to browbeat me. i have opted for a phone call tomorrow. my mood crashed

when i knew i had to speak to this gp tomorrow as i know what he's like.

if he does say no, then i need to ask him to put his reasons in writing, is that

right? interesting how people costing the nhs 100k+ a year in salary can then

try and be so stingy with the nhs money and refuse referrals and treatment etc

and just use cheap ineffective generics on the grounds of cost?

i am due for another injection of the T that the eminent consultant never uses

(he says it wears off too quick, and the levels vary greatly), but don't know if

i want one really, given that i don't know whether the reason i felt bad before

was due to bread/gluten/gum in chocs, or in fact the T. if this gp does say

'no' then i will have to pursue this i guess; i don't think the consultant will

want to be involved unless i'm referred to him first though i oculd maybe try

and call or email him but i very much doubt i'll get anywhere. i could change gp

i suppose. i really wish that I had never seen the last endo i saw, he has

made matters much worse for me with his ill informed and outdated views - what

happened is Dr A recommended this eminent consultant, i tried to contact the

consultant via a website and never heard back from him so that's how i ended up

seeing the awful endo last month because i was desperate. i wish i'd pursued

the communication with this other consultant rather than waste money on the

person last month.

i suppose the other alterantive is just to not have any of their T shots, and

tell them to stick it, but i'll get struck off won't i so that's not such a good

idea. why are things never simple.

chris

>

> Hi this sounds really promising. A GP should ignore recommendations

> from an eminent consultant in this field at his peril. Should he do so, I

> would want from him, in writing his reasons for ignoring such

> recommendations and I would ask for each reason to be backed up by citing

> references to any scientific evidence.

>