Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 Hi Judy, If you are unable to tolerate the NHS levothyroxine or Tertroxin because of the fillers, you can get both of these specially compounded by dale's Pharmaceuticals. Many people suffer lactose intolerance. A lot of doctors are unable to grasp that if someone is intolerant of a substance they will react adversely to the tiniest amount, if taken day after day. Your doctor can prescribe you the hypoallergenic levothyroxine on the NHS. dale's only deal with certain pharmacy chains (and will not deal directly with the public). The main 2 pharmacists in England are Lloyds and Tesco's. I think dale's may deal with additional pharmacy chains in Scotland or Ireland if you are located there. The wording on your prescription must state - " cellulose capsules of pure levothyroxine, in inert hypoallergenic granules, as per dale's Pharmaceuticals " plus the strength you require. If you do not have this wording, the Lloyds or Tesco pharmacist will not order the special capsules for you, because the extra cost would not be reimbursed to them by the NHS. dale's can make up any strength caps, as each order is individually tailor-made for the customer. But only standard measurements are recognised by the NHS e.g. 25 mcg, 50 mcg, 100 mcg, so if your dose is say 75 mcg a day, then you need the doctor to write both strengths on the script (i.e. 28 caps of 25 mcg and 28 caps of 50 mcg) - just as would be the case with other NHS items. When you take your prescription to the chemist it may be the first time that branch has been asked for a special order of hypoallergenic levothyroxine. Don't be put off if the pharmacist says it can't be done - just insist they phone dale's and ask them. (One Tesco pharmacist insisted they didn't even deal with dale's, and only changed their mind after contact with their Head Office). The other thing to bear in mind is that dale's usually supply orders of a minimum 100 capsules at a time. They may agree to a smaller run but it would not be cost effective for the NHS, as 50 capsules would cost almost as much as 100 would. So either you need to ask your GP to prescribe you 100 caps at a time or else turn on all your charm, and persuade your chemist to agree to carry the upfront cost of ordering in 100 capsules at a time, dispensing you 28 at a time, and keeping the rest on the shelf until you bring in your next script. dale's usually take about 10 days to 2 weeks to process an order. Hope this is of help. Luv - Sheila Where do you buy the kit and the pure thyroxine powder from? Judy One can also buy a kit to buy powder without fillers to make your own, so can one obtain pure thyroxine powder to put in the capsules. > Kathleen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 Hi Sheila, Thanks for the info on how to get pure thyroxine from dales. It is definitely the Lactose my daughter is having a problem with but she is much better taking liquids (HC and Thyroxine) than tablets. I did ring dales and spoke to the pharmacist there. She told me they have to put an filler with the thyroxine because on its own the amount would be too small. All I can say is if anyone was wanting this to ring dales and check for themselves if it can be made without fillers or what fillers are used. Judy > > Hi Judy, > > If you are unable to tolerate the NHS levothyroxine or Tertroxin because of > the fillers, you can get both of these specially compounded by dale's > Pharmaceuticals. > OLD MESSAGE DELETED BY MODERATOR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 > > Many people suffer lactose intolerance. A lot of doctors are unable to > grasp that if someone is intolerant of a substance they will react adversely > to the tiniest amount, if taken day after day. Your doctor can prescribe you > the hypoallergenic levothyroxine on the NHS. > Hi Sheila, I agree and our GP seem to be unable to accept my daughter has an intolerance to something in the tablets. I have even had it said that because it is such a small amount of lactose it can't possibly be what is causing the reaction. My daughters throat tightens but because this can't be seen it can't be happening according to the GP. I am interested in what reaction other people have been having to fillers in both thyroxine or hydrocortisone. Judy Quote Link to comment Share on other sites More sharing options...
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