Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Hi Angie, many patients suffer with pain who have the symptoms of hypothyroidism. Often this is because the thyroid hormone their body is craving is not being given. Such pains are referred to as fibromyalgia which are often relieved when adding some synthetic T3 to the thyroxine (T4), or they are started on natural thyroid extract. Thyroid extract contains T4, T3, T2, T1 and calcitonin. T4 is a prohormone that has little action. It has to convert to the active thyroid hormone T3 mainly through the liver, kidneys, brain, but through hundreds of other thyroid hormone receptors throughout the body. Unfortunately, for many of us, we are unable to convert for many and varied reasons. T4 can build up in the blood which can cause symptoms of toxicity and this, with the lack of T3 at cellular level can affect every part of your body, in many cases causing muscles to go into severe spasm. How do you know you are converting all the T4 into T3 Angie? Even if you have been lucky enough to get your free T3 tested, that ONLY shows the amount of T3 in the blood, but this doesn't show whether all the T3 is being used at cellular level. Have you asked your GP if he will give you a trial of combination therapy? You may have to travel to find an endocrinologist (check out my list I sent you) who will do this, but it would be worth the effort. If not, you may need to think about going down the self-treatment route, which many of us have been forced to do. Luv - Sheila Hi Ann, I was just reading your message, i have the same problem lots of inflammation but have been tested and i havent got rhumatoid arthritis. Can i please ask you did you have any of the pains before you started on levothyroxine? I did have but since being on levothyroxine only my pains are worse but i was only diagnosed hypothyroid after being very poorly for ages. I also have hair loss weight gain btain fog and lots of other horrible hyposymptoms despite being on 225mcg levothyroxine. I also know i convert to T3. Its obviously not going into my cells though. Im trying to find an endocrinologist in Lancs Bolton or Greater Manchester or further if need be that will prescribe natural dessicated thyroid as hopefully it may improve my situation, So glad you are better now that inspires others to think that we can be well again. Thanks Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Do you think this severe reaction to synthetic T3 was caused because of the fillers Ann? Luv - Sheila Hi Sheila, I tried adding T3 when my blood test showed that Free T3 was normal and I had a severe reaction and wouldn't want to go through that again. I can't express enough times that the ONLY thing that has made me feel 100% well again is Natural Dessicated Pigs Thyroid Gland. I do not know why this is the case but I hope that everyone that can't get on with synthetic thyroxine gives the natural path a go before going on another synthetic chemical called T3 when NDT has everything in it. Luv Ann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2011 Report Share Posted January 23, 2011 Brilliant! Just imagine what a different world we would be living in if doctors would only prescribe natural thyroid extract for ALL their patients suffering symptoms of hypothyroidism - like they used to before the middle of the 1970's. I am so pleased Ann that you are getting your life back at last. No idea what I would do without my NDT - I do know that there would be no TPA had I been left on the RCP, BTA treatment protocol. Luv - Sheila No I have checked other drugs I have been on for ages and they have the same fillers. Everything I need at present to make me feel 100% o.k. is in Erfa, I haven't felt so good for ages, I am now losing weight o.k. and doing exercise, I have my energy coming back and I really feel hopeful now about my health for the first time in about four years, the NDT seems to be the sole answer to all my problems at the moment. Ann > Do you think this severe reaction to synthetic T3 was caused because of the > fillers Ann? > Luv - Sheila Quote Link to comment Share on other sites More sharing options...
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