Guest guest Posted February 11, 2011 Report Share Posted February 11, 2011 I told my daughter to send that You Tube piece to the Endo and i know where i would like to shove it ! It really is time the entire bunch of them got a bloody nose The rhuematologists are as bad My daughter has in the last year had so many tests done its crazy She is on both T3 and T4 ...........on 60mcg of T3 her T3 level is right at the top of the range No matter how much T3 or T4 she takes it makes no difference She has horrendous bouts of iritis Add on severe Fibromyalgia exhaustion,brain fog ,poor sleep and what does the endo say .................i have loads of patients like you You all have a Chronic Disease Oh boy would i like to see him suffer the same Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 Dear Pat, spring will be here shortly and maybe your daughter can arrange to have regular exposure to sunshine to help her vitamin D levels. Fibromyalgia patients as a group have lower levels of vitamin D. If she can get her levels up to 70-80 ng/mL on the 25(OH)D test, this should reduce her inflammation (fibromyalgia and iritis) and help her thyroid function. If she wants to take a supplement, she should take vitamin D3 (cholecalciferol), probably no less than 5,000 units per day during the sunless UK winter. If she supplements, she should have her 25(OH)D levels checked a couple of times a year so that she can adjust her supplementation to keep the levels in range. She could also consider taking magnesium orotate 500 mg per day. Don't take my word for it, read about the marvelous effects of vitamin D3 and magnesium. Here are a couple of links to get you started. http://www.webmd.com/pain-management/news/20031210/lack-of-vitamin-d-linked-to-p\ ain http://www.mgwater.com/benes.shtml Hope she does well! Best, . > > She is on both T3 and T4 ...........on 60mcg of T3 her T3 level is right at the top of the range > No matter how much T3 or T4 she takes it makes no difference > She has horrendous bouts of iritis > Add on severe Fibromyalgia > exhaustion,brain fog ,poor sleep > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 I thought about sending the cartoon to my endo, but then I realised that the NHS filters would not let the e-mail through so there is no point really. I have the same problems, I avoid blood tests as much as possible because once the results are in the only thing my endo cares about are the numbers on the screen, he stops listening to me and even goes back on what he has said before the blood results came in!! Glynis > I told my daughter to send that You Tube piece to the Endo and i know where i would like to shove it ! > It really is time the entire bunch of them got a bloody nose > The rhuematologists are as bad > My daughter has in the last year had so many tests done its crazy >> Oh boy would i like to see him suffer the same > > Pat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 Hi there, I went to 5 different consultants in one week when I was ill with Lupus - and they all did the same tests again ......................and again and again..........it was a disgrace. What a waste of money.......apart from anything else. Pat I had the same - and even though I was on T4 etc. - I needed cortisol (or some form of adrenal support) - most if not all of my symptoms disappeared when I took cortisol and changed to Armour/Erfa - I am now in remission on the Lupus and my thyroid symptoms are under control. So hang on in there and try to get onto some form of adrenal support. This can't continue - the message must get through about these idiots. Best wishes Mandy Quote Link to comment Share on other sites More sharing options...
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