Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 I just joined this group and I am very happy that others with this disease are interested in meeting on-line with one another. I was dx with CML 11/05 and have been on Gleevec ever since with awesome results. No major side effects and zero on PCR from BMB on 11/06. Hopefully my last BMB I will have to have. I am looking forward to providing encouragement to others and getting words of encouragement from you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Hey there! Sorry that you have reason for this support group, but you have found a good place to be with cml. My son, - age 23 now, has cml. Dx'd March 06 and also doing simply great! Gleevec 400mg, absolutely minimal side effects and another PCR coming up tomorrow. His (hopefully) last BMB for a while also delivered a negative and he has been CCR for a good few months already. He holds a full time job and went back to college after diagnosis, night classes, and is doing wonderfully there too. It seems as if this diagnosis has really spurred him on to really live his life - its really wonderful to see the positive changes in him since he was diagnosed. Watching how he is dealing with all this has taught me so much, humbled me and strengthened me too. I am glad to hear that you have no major side effects and zero's - lets trust that it will stay that way forever!. Here I have encouraged my kids to get WAY above zero's all those years in school - now I pray for the Big Zero to stay with forever! lol. May you keep doing well. love Annie 's mom www.livingwithcml.blogspot.com > > I just joined this group and I am very happy that others with this > disease are interested in meeting on-line with one another. I was dx > with CML 11/05 and have been on Gleevec ever since with awesome > results. No major side effects and zero on PCR from BMB on 11/06. > Hopefully my last BMB I will have to have. > I am looking forward to providing encouragement to others and getting > words of encouragement from you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 Annie, I think I sent you an e-mail to just you, instead of the group. Thank you for responding to my message. I now feel a part of the group. For me, one day, I was given very bad news, they put me in the hospital for 4 days, thought I had AML. By the grace of God, my blood no longer looked like AML and I was given the dx of CML and sent home, prayer works! I have had nothing but good news since. My sister told everyone to pray that it was CML, because she had read on the internet that there was a miracle drug for me to take. I believe this drug was sent from heaven. It is amazing how quickly you can learn about something you never had a clue about, and I am a health care provider. I am thankful to be alive today and able to share the good news to anyone who wants to hear my story. > > Hey there! > Sorry that you have reason for this support group, but you have found > a good place to be with cml. > My son, - age 23 now, has cml. Dx'd March 06 and also doing > simply great! Gleevec 400mg, absolutely minimal side effects and > another PCR coming up tomorrow. His (hopefully) last BMB for a while > also delivered a negative and he has been CCR for a good few months > already. He holds a full time job and went back to college after > diagnosis, night classes, and is doing wonderfully there too. It > seems as if this diagnosis has really spurred him on to really live > his life - its really wonderful to see the positive changes in him > since he was diagnosed. Watching how he is dealing with all this has > taught me so much, humbled me and strengthened me too. > > I am glad to hear that you have no major side effects and zero's - > lets trust that it will stay that way forever!. Here I have > encouraged my kids to get WAY above zero's all those years in school - > now I pray for the Big Zero to stay with forever! lol. > > May you keep doing well. > love > Annie > 's mom > www.livingwithcml.blogspot.com > > > > > I just joined this group and I am very happy that others with this > > disease are interested in meeting on-line with one another. I was > dx > > with CML 11/05 and have been on Gleevec ever since with awesome > > results. No major side effects and zero on PCR from BMB on 11/06. > > Hopefully my last BMB I will have to have. > > I am looking forward to providing encouragement to others and > getting > > words of encouragement from you all. > > > Quote Link to comment Share on other sites More sharing options...
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