Re: Allergic to synthetic thyroxine, what do you think Sheila?

[Guest guest]

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of greenbecky30

Sent: 30 December 2010 23:12

thyroid treatment

Subject: Allergic to synthetic thyroxine, what

do you think Sheila?

Hi, Can you tell me Sheila, the answer to this

question. I have now been joint pain free for quite a few months since being on

Erfa, before this time I was in extreme pain in my joints, I went to the G.P.

who did a blood test which confirmed that I had Inflammatory Arthritis, I could

hardly walk. I was sent to a Rhuematologist who did extensive blood tests

(about 15 in all) and X-rays of hands and feet, he couldn't find what was

causing the Inflammatory Arthritis, so discharged me back to the G.P. After

this I changed my from synthetic thyroxine to Natural Dessicated Thyroxine

called Erfa. I would like to say importantly that at the time of having the

blood tests that indicated I had Inflammatory Arthritis some months ago I also

had a blood test at the same time for T3 which indicated that my T3 levels were

'Normal' I have the results at home and it is absolutely 'Normal' so this

obviously indicates that the synthetic thyroxine that I was taking was

converting T4 into T3 (my T4 was also Normal at this time), so if the T4 was

Normal and the T3 was Normal then I can only assume that the synthetic

thyroxine that I was taking which was prescribed by the G.P. was giving me a

severe allergic reaction and causing excruciating joint pain and inflammation.

Since changing to Natural Dessicated Thyroid Erfa the pains have gradually gone

over the last few months and now I can honestly say that I am 100% o.k.with no

more pains at all. So please can you answer me and let me know if what I

presume is correct and that I was allergic to synthetic thyroxine? Thanks. Ann

[Guest guest]

Hello Ann - first, your story sounds very much like my own,

though I was never given a diagnosis of inflammatory arthritis. I was given a

diagnosis of a prolapsed disc as a reason for the severe pains I was suffering.

However, I am delighted that you are now 100% pain free after starting on

natural desiccated thyroid extract and long may this continue - as it has with

me. However, I doubt that your conclusion that you were allergic to synthetic

thyroxine is correct, though you might want to investigate this further if you

are allergic to lactose, maize etc through a referral by your GP to an allergy

clinic.

Have you had a recent blood test for Inflammatory Arthritis to

see what that level is now? If not, I would ask for this to be done. Also, you

say that your free T4 and free T3 blood tests done at the same time as the inflammatory

arthritis when you were taking levothyroxine-only were " normal " - but

there is no way we can know whether these were " normal " or not

without having the test results for each of these together with the reference

range. If you have these at home, can you post these results to me please and

at the same time, tell me the dose of levothyroxine you were taking at that

time.

Levothyroxine (T4) is not a thyroid hormone, it is a prohormone

that has to convert to the active thyroid hormone triiodothyronine (T3) through

the liver, kidneys, skin, brain and hundreds of other thyroid hormone receptors

throughout the body.

Natural thyroid extract contains T4, T3, T2 and T1- though

little is known about T2 and T1, both, like T3, are also 'active' thyroid

hormones. Many people (me included) believe that it is these 'little known

about' hormones and the role they play that makes such a vast difference

between those taking a combination of synthetic T4 and T3 and those taking natural

thyroid extract.

The thyroid function tests done by the NHS tell us ONLY the

amount of TSH, Free T4 and Free T3 that is in the blood; they do not tell us

what level of Free T3 is actually in the cells. Many of us, find that even

though the T4 is converting to the active T3 it is not going where it should

and this is called peripheral resistance to thyroid hormones at the cellular

level. It is not due to a lack of thyroid hormones. Blood tests are unable to detect

this type of hypothyroidism, which Dr Mark Starr calls " Type 2

Hypothyroidism " . Type 2 of hypothyroidism (or euthyroid hypometabolism) is

usually inherited. However, environmental toxins may also cause or exacerbate

the problem. The pervasiveness of Type 2 hypothyroidism has yet to be recognised

by mainstream medicine but already is in epidemic proportions.

Luv - Sheila

Hi, Can you tell me Sheila, the answer to this

question. I have now been joint pain free for quite a few months since being on

Erfa, before this time I was in extreme pain in my joints, I went to the G.P.

who did a blood test which confirmed that I had Inflammatory Arthritis, I could

hardly walk. I was sent to a Rhuematologist who did extensive blood tests

(about 15 in all) and X-rays of hands and feet, he couldn't find what was

causing the Inflammatory Arthritis, so discharged me back to the G.P. After

this I changed my from synthetic thyroxine to Natural Dessicated Thyroxine

called Erfa. I would like to say importantly that at the time of having the

blood tests that indicated I had Inflammatory Arthritis some months ago I also

had a blood test at the same time for T3 which indicated that my T3 levels were

'Normal' I have the results at home and it is absolutely 'Normal' so this

obviously indicates that the synthetic thyroxine that I was taking was

converting T4 into T3 (my T4 was also Normal at this time), so if the T4 was

Normal and the T3 was Normal then I can only assume that the synthetic thyroxine

that I was taking which was prescribed by the G.P. was giving me a severe

allergic reaction and causing excruciating joint pain and inflammation. Since

changing to Natural Dessicated Thyroid Erfa the pains have gradually gone over

the last few months and now I can honestly say that I am 100% o.k.with no more

pains at all. So please can you answer me and let me know if what I presume is

correct and that I was allergic to synthetic thyroxine? Thanks. Ann

[Guest guest]

Thanks Sheila for your interesting information. If it is alright with you I'm

going to print out the reply you sent me and give it to my G.P. along with some

other interesting information in the Files section so that I might be able to

obtain Erfa on prescription from him.

The Free T3 and Free T4 blood tests were done in July of this year when I had

the blood test for Inflammatory Arthritis which showed I did have inflammation

in my body. I was in so much pain it was unbelievable, I really thought I was

going to die and after all the other blood tests that the Rhuematologist did and

X-rays I couldn't believe it when they couldn't find out what was causing the

inflammation, you could actually see it in my body because I had a lot of fluid

retention and was very puffed up all over. The results of the blood tests in

July 2010 are:

Free T3 5.4 reference range 2.3-6.5

Free T4 was 15.8 reference range 11.5-22.7

So as you can see it was in the middle of the reference range, so looks o.k. I

really am so pleased that I am so much better now since I changed to NDT in

about August this year. I have had a bit of a bad year otherwise though because

as well as my father dieing of lung cancer in January this year my mother also

found out she had bladder cancer a few months ago and has had to have three

operations so far. I have also been busy at university so couldn't always get

time to be on this site to see what was going on, but now I am on holiday until

February. I have been doing a lot of other research on the net about DHEA,

Melatonin, Progesterone, GABA etc., as I am sure that I have another hormone

imbalance as I have experienced lately bad menopausal symptoms and have looked

into the File Section regarding progesterone cream and have ordered some of the

Serenity Cream as a start.

I don't know whether it was hereditary as you say that I didn't get on with

synthetic thyroxine as my mother and sister are both on synthetic thyroxine and

are perfectly o.k. with no pains in joints or any other bad symptoms, weird

isn't it?!!

Thanks for your help, and I hope everyone on this site has a very Happy and

Healthy New Year 2011.

Best wishes

Ann

>

> Hello Ann - first, your story sounds very much like my own, though I was

> never given a diagnosis of inflammatory arthritis. I was given a diagnosis

> of a prolapsed disc as a reason for the severe pains I was suffering.

> However, I am delighted that you are now 100% pain free after starting on

> natural desiccated thyroid extract and long may this continue - as it has

> with me. However, I doubt that your conclusion that you were allergic to

> synthetic thyroxine is correct, though you might want to investigate this

> further if you are allergic to lactose, maize etc through a referral by your

> GP to an allergy clinic.

>

- Sheila

>

>

>

[Guest guest]

PLEASE LEAVE ONLY A SMALL PORTION OF WHAT YOU ARE RESPONDING TO BEFORE CLICKING

'SEND'. MANY THANKS. LUV - SHEILA

____________________________________________________________________

Hi Sheila, I have looked at the possibility of being allergic to the fillers in

synthetic thyroxine but this can't be the case as I already take other drugs

with the same fillers that haven't ever caused me a problem for a number of

years, so I can only conclude that some people are allergic to synthetic

thyroxine and it was not a lack of T3 as my T3 level was o.k. according to blood

tests. Also I couldn't lose weight when I was on synthetic thyroxine no matter

how I tried I felt really ill and trying to lose weight a few months ago with a

well known slimming club was hopeless even though I cut down on unhealthy foods

and lost a bit of weight I still felt really ill and it also made my mobility

worse as I had no energy at all. But now I am on Erfa I can honestly say what a

wonderful life I am having, I started going to exercise classes with a more

healthy diet and walking on my treadmill at home and in one week I lost 10 and a

half pounds and was 'slimmer of the week', and I feel more healthy than ever, I

am sure I am going to lose all the weight I have put on (which is about 5 stone)

over the last four years since having hypothyroidism very soon, I have got my

energy back after 4 years and am at last totally pain free. I am so glad there

is an answer at last. Thanks Ann.

> Hello Ann - first, your story sounds very much like my own, though I was

> never given a diagnosis of inflammatory arthritis. I was given a diagnosis

> of a prolapsed disc as a reason for the severe pains I was suffering.

> However, I am delighted that you are now 100% pain free after starting on

> natural desiccated thyroid extract and long may this continue - as it has

> with me.

[Guest guest]

>

> Hi, Can you tell me Sheila, the answer to this question. I have now been

joint pain free for quite a few months since being on Erfa, before this time I

was in extreme pain in my joints, I went to the G.P. who did a blood test which

confirmed that I had Inflammatory Arthritis, I could hardly walk. I was sent to

a Rhuematologist who did extensive blood tests (about 15 in all) and X-rays of

hands and feet, he couldn't find what was causing the Inflammatory Arthritis, so

discharged me back to the G.P. After this I changed my from synthetic thyroxine

to Natural Dessicated Thyroxine called Erfa. I would like to say importantly

that at the time of having the blood tests that indicated I had Inflammatory

Arthritis some months ago I also had a blood test at the same time for T3 which

indicated that my T3 levels were 'Normal' I have the results at home and it is

absolutely 'Normal' so this obviously indicates that the synthetic thyroxine

that I was taking was converting T4 into T3 (my T4 was also Normal at this

time), so if the T4 was Normal and the T3 was Normal then I can only assume that

the synthetic thyroxine that I was taking which was prescribed by the G.P. was

giving me a severe allergic reaction and causing excruciating joint pain and

inflammation. Since changing to Natural Dessicated Thyroid Erfa the pains have

gradually gone over the last few months and now I can honestly say that I am

100% o.k.with no more pains at all. So please can you answer me and let me know

if what I presume is correct and that I was allergic to synthetic thyroxine?

Thanks. Ann

>

Hi Ann, I was just reading your message, i have the same problem lots of

inflammation but have been tested and i havent got rhumatoid arthritis. Can i

please ask you did you have any of the pains before you started on

levothyroxine? I did have but since being on levothyroxine only my pains are

worse but i was only diagnosed hypothyroid after being very poorly for ages. I

also have hair loss weight gain btain fog and lots of other horrible

hyposymptoms despite being on 225mcg levothyroxine. I also know i convert to T3.

Its obviously not going into my cells though. Im trying to find an

endocrinologist in Lancs Bolton or Greater Manchester or further if need be that

will prescribe natural dessicated thyroid as hopefully it may improve my

situation, So glad you are better now that inspires others to think that we can

be well again. Thanks Angie

[Guest guest]

ANGIE, PLEASE DELETE MOST OF THE PREVIOUS MESSAGE YOU ARE RESPONDING TO AND

LEAVE JUST A PORTION BEFORE CLICKING 'SEND'. HAVING TO SCROLL THROUGH ALL THESE

MESSAGES FOR THOSE READING DIRECT FROM THE WEB SITE OR WHO HAVE OPTED TO RECEIVE

A DAILY DIGEST IS FRUSTRATING FOR THEM AND WE RECEIVE TOO MANY COMPLAINTS. LUV -

SHEILA

_____________________________________________________________

Hi Sheila,

Thanks so much for replying,

The reason im converting to T3 is my last bloods were

FT4 20.9 range 12-22

FT3 6.2 range 3.00-6.2

TSH 0.2 range 0.4-4.0 Oct 2020

FT4 19.0 range 12-22

FT3 5.4 range 3.0-6.2

TSH 0.05 range 0.4-4.0 Dec 2010

I totally agree with you Sheila although it says in the blood test its

converting its not getting into my cells.Hence feeling so ill.

The most recent were carried out in December by a private Dr in Westhoughton

that i had found a while ago in the thyroid UK leaflet. Unfortunately i

received a letter over christmas saying that clinic had to close due to reasons

beyond his control and he had no idea when he would be able to reopen the

clinic.

The only thing i had been doing differently before Decembers blood test was

taking gentle iron so im not sure if that would be the reason that the FT3 and

FT4 was lower but the TSH went lower as well. With all the brilliant information

from this site i know that the problem is obviously that the levothyroxine is

not going into my cells.

Im on 175mcg levothyroxine and still feel awful but my GP would never give T3 he

doesnt think thyroid causes any pain just tiredness. I wish that were true. So

at the moment im waiting to go back to rhumatologist who has already said my

inflammation levels are not rhumatoid, reading anns post it occured to me im

having the same problem.

Thanks Sheila for the list im still trying to find someone who does NDT on it as

im sure it will help more than levothyroxine. Hopefully if i ask my GP for a

private referal he wont refuse me and then at some point maybe i can be put back

on the nhs.

Best Wishes. Thanks Angie

ps sorry if ive not cropped off the portion im replying to, not sure how to do

that.

>

> Hi Angie, many patients suffer with pain who have the symptoms of

> hypothyroidism. Often this is because the thyroid hormone their body is

> craving is not being given. Such pains are referred to as fibromyalgia which

> are often relieved when adding some synthetic T3 to the thyroxine (T4), or

> they are started on natural thyroid extract. Thyroid extract contains T4,

> T3, T2, T1 and calcitonin.

>

>

[Guest guest]

Hi Sheila, I tried adding T3 when my blood test showed that Free T3 was normal

and I had a severe reaction and wouldn't want to go through that again. I can't

express enough times that the ONLY thing that has made me feel 100% well again

is Natural Dessicated Pigs Thyroid Gland. I do not know why this is the case

but I hope that everyone that can't get on with synthetic thyroxine gives the

natural path a go before going on another synthetic chemical called T3 when NDT

has everything in it. Luv Ann.

[Guest guest]

No I have checked other drugs I have been on for ages and they have the same

fillers. Everything I need at present to make me feel 100% o.k. is in Erfa, I

haven't felt so good for ages, I am now losing weight o.k. and doing exercise, I

have my energy coming back and I really feel hopeful now about my health for the

first time in about four years, the NDT seems to be the sole answer to all my

problems at the moment. Ann

> Do you think this severe reaction to synthetic T3 was caused because of the

> fillers Ann?

> Luv - Sheila