Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 INTERESTING THE SWEATS,ME BEING A MALE 65 NEVER HAD A PROBLEM LIKE THAT.hOW ABOUT IT MALES ANY OF YOUALL HAD SWEATS. ps I WILL BE A YEAR 23 DEC 06 FISH TEST WAS 3% FROM 0 LAST WAS IN NOV. HANG IN THERE PAUL TN. [ ] Re: drenching sweats Hi Vicki, I know exactly how annoying those drenching sweats can be. Before I was diagnosed I would have them at night. It got so bad that I actually had to sleep with a bath towel and in the mornings it would be soaked to the point where it wouldn't even dry for the next night. I still get night sweats even now, although they're not as bad as they were. It's still annoying though and scary too since it sometimes makes me question if I'm losing my response. I've often said that I'm more than ready for menopause since I've had so much practice with the sweats already It takes some time to get used to life with CML but it does get easier. I hope you get a BMB soon so you can see how you're doing. When you know that you're doing well, you'll see how fast your depression turns to elation. Take care, Tracey > > > > > > > > Hi there, > > > > > > > > Today my primary oncologist told me that my FIST test on Dec 15 > > is > > > > ZERO. I am very happy about the news. I was 96% at diagnoised > > in > > > Aug > > > > 12, 06. I started Gleevec on Sept 4, 06. So I am on Gleevec > 3.5 > > > > months (some period was 400mg and some 300mg because of low > white > > > > count). He referred me to see a leukemia specialist when the > > FISH > > > was > > > > done. The specialist doctor said I need to stay 400mg and just > > > make > > > > sure the ANC not below 500. So I see both doctors > alternatively. > > > > > > > > Is it normal to have a quick response to Gleevec? Or I am the > > > lucky > > > > one. > > > > > > > > Thanks for reading. > > > > Siu > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 My husband had sweats so bad b/f diagnosed with CML and after with Gleevec...at first he thought the kids had wet our bed (we co-sleep - family bed -haha - basically a friendly way of saying our kids boot us out of bed!) The bed was soaked night after night and even over the last few months he still has bad sweats but realizes it is pretty normal with CML and also with being on Gleevec...I just make sure he drinks tons of water to replenish fluids .. -shalyn > INTERESTING THE SWEATS,ME BEING A MALE 65 NEVER HAD A PROBLEM LIKE > THAT.hOW ABOUT IT MALES ANY OF YOUALL HAD SWEATS. > > ps I WILL BE A YEAR 23 DEC 06 FISH TEST WAS 3% FROM > 0 LAST WAS IN NOV. HANG IN THERE > PAUL TN. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 O!!! YIPPEEE!!! Number 1032 in the Zero Club Zavie Zavie (age 68) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH 2.8 log reduction Sep/05 3.0 log reduction Jan/06 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem Re: [ ] Re: drenching sweats INTERESTING THE SWEATS,ME BEING A MALE 65 NEVER HAD A PROBLEM LIKE THAT.hOW ABOUT IT MALES ANY OF YOUALL HAD SWEATS. ps I WILL BE A YEAR 23 DEC 06 FISH TEST WAS 3% FROM 0 LAST WAS IN NOV. HANG IN THERE PAUL TN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Dear friends, My name is Iris and I live in Vancouver, Canada. My twin sister Ilana lives in South Africa and was diagnosed with CML last month. Since then, I have been reading and investigating every bit of information I could find on CML and while corresponding with a CML patient in the US, I had an idea that I would like to run by the group. The activity in this support group serves to prove how important it is for CML patients and their families to interact with each other. There is so much that we keep learning from one another and besides, we draw strength and courage from hearing each others' stories. What do you think about the idea of holding an annual or bi-annual CML convention, each time in a different venue? The convention would comprise lectures by top experts in the field who would share the latest research and where it is leading, provide us with statistics and latest treatment options. In addition, supporting natural treatments could be demonstrated and pharmaceutical companies could advertise (after getting the green light from experts) some drugs that help, say, with side effects. I am thinking that we could all use our connections and come up with a way to finance such a convention-be it through sponsored airfare, minimal (if any) hotel costs or accommodation by local families, free outings (there has to be an element of fun too!) and meals etc. In return for sponsoring the event, participants could provide information to researchers, universities, pharmaceutical companies etc. The information they can gather from participants could prove invaluable to their research and subsequent new treatment. I would love to hear your thoughts. Wishing everyone a wonderful weekend and looking forward to hearing your comments and ideas, Iris Quote Link to comment Share on other sites More sharing options...
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