Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 HI DEE What T3 are you taking, and how did you start off taking it. T4 was not doing me any good having been on it for years, but when prescribed T3 on its own at 20mg (smallest dose) it caused me to have a bad upset stomach, so is it a case of perhaps crushing up a pill and take a small ammount say twice a day until you get used to it, and is your GP monitoring you with blood tests, and does he mind you self medicating. The one thing I won't be fobbed off with again is any more psychiatric drugs, as it is those that caused damage to me. Kathleen > > Wanted to share this as its amazing. > I, with wonderful support from everyone on here stopped my t4 in october last year and started self medicating with t3 only. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Hi KathleenI take levothyronine which my gp now prescribes, he didnt and was completetely against me stopping the thyroxine so i was buying cytomel from the mexican pharmacy but after much persuassion and seeing my tsh improving he now happily prescribes for me.I am taking 80mgs a day split into 2 doses and find that i feel more benefit if i tsake with food.I also started with 10mgs a day split into 2 doses for 5 days then increased by 10mgs every 5 days til i got to the 80mgs which i have been on for about 2 months, it is a slow progress but hopefully if you try this it may work for you too, i really hope it does.Love Dee xFrom: bty94627179 <kranger1@...>thyroid treatment Sent: Mon, 21 February, 2011 12:55:02Subject: Re: T3 ONLY AND LOST A STONE IN 2 WEEKS VERY HAPPY!! HI DEE What T3 are you taking, and how did you start off taking it. T4 was not doing me any good having been on it for years, but when prescribed T3 on its own at 20mg (smallest dose) it caused me to have a bad upset stomach, so is it a case of perhaps crushing up a pill and take a small ammount say twice a day until you get used to it, and is your GP monitoring you with blood tests, and does he mind you self medicating. The one thing I won't be fobbed off with again is any more psychiatric drugs, as it is those that caused damage to me. Kathleen > > Wanted to share this as its amazing. > I, with wonderful support from everyone on here stopped my t4 in october last year and started self medicating with t3 only. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 > > Wanted to share this as its amazing. > I, with wonderful support from everyone on here stopped my t4 in october last year and started self medicating with t3 only. > My tsh has gone from 38 to 9.2 at last blood test and my 8 stone of horrid thyroid weight that i have gained in as many years is at last going i have lost a stone in 2 weeks, i am eating 3 meals a day and having occassional treats just watching what i eat and cutting down on carbs. > Just wanted to share this as im so happy and hope this is the start of my weight loss i have been battling with for years x > Hi Dee, Just wanted to know what your GP or Endo has said about you self medicating , are they happy with what you are doing ? just wanted to know only I know my Endo is not really happy with me taking T3 because I wanted to lower my T4 and take more T3 but he said no to that , but since I have taken T3 I at first lost 11 lbs ,seems to have stopped now though !!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 BRILLIANT and well Done Dee. Long may this continue. Luv - Sheila Wanted to share this as its amazing. I, with wonderful support from everyone on here stopped my t4 in october last year and started self medicating with t3 only. My tsh has gone from 38 to 9.2 at last blood test and my 8 stone of horrid thyroid weight that i have gained in as many years is at last going i have lost a stone in 2 weeks, i am eating 3 meals a day and having occassional treats just watching what i eat and cutting down on carbs. Just wanted to share this as im so happy and hope this is the start of my weight loss i have been battling with for years x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 HI DEE Thanks for this advice and the fact that you mention taking it with meals, but when I was prescribed T3 I did not even know that it was T3,so took it in the same way as T4 and not with food. I have not had any thyroxine since just after Xmas and my TSH is going up. I will ask my GP on Wed if he will prescribe a small ammount as I don't like wasting drugs if they do not suit. My GP was not cross that I had stopped taking thyroxine and he was supposed to be researching what to give me, but he has had enough time for his research now, and he had also said that he would prescribe anything I wanted to try. Kathleen > > Hi Kathleen > I take levothyronine which my gp now prescribes, he didnt and was completetely > against me stopping the thyroxine so i was buying cytomel from the mexican > pharmacy but after much persuassion and seeing my tsh improving he now happily > prescribes for me. > I am taking 80mgs a day split into 2 doses and find that i feel more benefit if > i tsake with food. > I also started with 10mgs a day split into 2 doses for 5 days then increased by > 10mgs every 5 days til i got to the 80mgs which i have been on for about 2 > months, it is a slow progress but hopefully if you try this it may work for you > too, i really hope it does. > Love Dee x > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Hi JanetMy gp wouldnt prescribe me t3 saying it was dangerous!!I came off the t4 and started on t3 only which i bought myself.I told my gp what i was doing and asked him if i could prove it was working would he prescribe, reluctantly he agreed and 6 weeks later my tsh was 28 from 38 so he prescribed and it has improved ever since.My endo i suspect is going to be a tougher cookie i see him on thurs and not looking forward to it!!Are you still taking t4 also or just t3?Take careDee xFrom: janetallford <janetallford@...>thyroid treatment Sent: Mon, 21 February, 2011 16:33:07Subject: Re: T3 ONLY AND LOST A STONE IN 2 WEEKS VERY HAPPY!! > > Wanted to share this as its amazing. > Just wanted to share this as im so happy and hope this is the start of my weight loss i have been battling with for years x > Hi Dee, Just wanted to know what your GP or Endo has said about you self medicating , are they happy with what you are doing ? just wanted to know only I know my Endo is not really happy with me taking T3 because I wanted to lower my T4 and take more T3 but he said no to that , but since I have taken T3 I at first lost 11 lbs ,seems to have stopped now though !!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Ask any doctor who says such things to cite references to the medical evidence to show that it is dangerous for those suffering the symptoms of hypothyroidism to be prescribed T3. Tell such doctors it is no more dangerous than taking Aspirin when needed. Taking any drugs is dangerous if given in the wrong dosage. These doctors hide behind their own ignorance coming out with ridiculous statements and frightening their patients into submission. I am pleased you challenged your GP Dee and hopefully, he will now consider prescribing T3 for other patients who are not doing well on T4-only therapy. Go see your endo. holding your head held high Dee with a big smile on your face and tell him exactly what you have done and the effect and remind him of what you were like when you first saw him. If he has forgotten, because he sees so many patients, tell him to look in your medical notes and then to look at you now. Luv - Sheila My gp wouldnt prescribe me t3 saying it was dangerous!! I came off the t4 and started on t3 only which i bought myself. I told my gp what i was doing and asked him if i could prove it was working would he prescribe, reluctantly he agreed and 6 weeks later my tsh was 28 from 38 so he prescribed and it has improved ever since. My endo i suspect is going to be a tougher cookie i see him on thurs and not looking forward to it!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 i'm pretty sure the dose you take is probably 80mcg (one mcg = one millionth of a gram) as opposed to 80mg (one mg = 1 thousandth of a gram)? (hope you don't think i'm being picky!!!!!) excellent news about how well you are doing. did you have rt3 issues or conversion problems with the t4 only? trish > > Hi Kathleen > I take levothyronine which my gp now prescribes, he didnt and was completetely > against me stopping the thyroxine so i was buying cytomel from the mexican > pharmacy but after much persuassion and seeing my tsh improving he now happily > prescribes for me. > I am taking 80mgs a day split into 2 doses and find that i feel more benefit if Quote Link to comment Share on other sites More sharing options...
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