Re: Hashimotos disease or what

[Guest guest]

Hello Janet,

Also the doctor mentioned that hashimotos can be caused by bacteria infectionthat could be reversed....

That's a good `un --- should go into the `medical bloomer' section if we had one..... Like with most blunders, there is a grain of truth surrounded by a lot of tosh ;o) Good old Hashimoto would turn in his grave if he heard a colleague suggest that.

Autoimmune thyroiditis – or Hashimoto's disease - is, as the name suggests, an autoimmune disease. Once a (any) condition has turned `autoimmune', it is incurable, although that does not mean it is untreatable; it just means that you cannot cure it.... so much for getting it reversed <g>. - As for bacterial infections causing Hashimoto's.... well, there may be a grain of truth in that; many theories exist (viruses, bacteria, environmental toxins, systemic Candida, excessive stress, genetic predisposition are all blamed) although nobody really knows for sure what is causing the body's own immune system to turn against itself and attack its own tissues. Genetic predisposition is very likely, although other factors like viruses etc have a big role to play too. Autoimmune diseases (all of them) need more than just a genetic predisposition – they need a trigger... and the `trigger list' is very long.

Reading through your story, Janet, it seems to me that you are ruled by fear of what your doctors might say or do if you dared to do what you know is right for you. Please do not let them dictate to you. It is your life, your health. By the sounds of it Levothyroxine is not working for you. Doctors are not Gods and they do not have a monopoly on being right. Next time anybody wants you to do something you do not agree with, just say NO, and for a change you tell them what you are going to do. Tell them that you are not clinical depressed, you are hypothyroid and insufficiently treated – big difference. Get the thyroid treatment right and depression will be a thing of the past.

You already know what works for you – the treatment you were told to discontinue.... go back on it again, and just don't tell them. Who, but you, is going to know ? Minerals and other supplements do not show up in any of the tests the NSH routinely does.

Another Reason why i stopped was i was scared,to what was going to happen to meonce i followed dr Ps treatment that who would monitor me if i was well enoughto go onto natural thyroid treatment

I do understand that you are scared – but there is no need. What is the worst that can happen? That your GP will dismiss you from his/her services .... and perhaps that would not be such a bad thing because by the sound of things she or he doesn't know much about thyroid anyway, but this is unlikely to happen. If you went to your GP, head held up high, and told him or her – not asked , but told them – that you have for years now taken Levothyroxine and you feel ill and miserable on this medication. Nobody can accuse you of non-compliance. You have done what was expected of you for years and it has made you more ill than you were before. It is your doctor who has failed you, not the other way round. Now have had enough and you are going to buy yourself some Erfa Thyroid (or whichever you choose) and you are going to try it out. It may or may not make you better, but you are going to try it – end of! All you want from your GP is to be monitored. If the reply is `no', then you go home, order your natural thyroid anyway and you write a letter to your doctor and put all the misery they have put you through in writing and send a copy to the manager of the surgery. Be demanding, Janet, being timid has got you nowhere. They are only pushing you around because they are counting on it that you are too scared to speak up for yourself – disillusion them ;o) Chances are that your GP won't like it, might even try scare tactics again, but if you stand your ground they will agree to monitor you....

Alternatively, don't tell them what you are doing, and just switch yourself to natural thyroid anyway. We are all here to help you step by step. If it does not work for you, you can always go back onto Levo and no doctor is any the wiser.....if it makes you better, you go back in a few month and tell them what you have done.... who are they to argue with success ? ;o)

Best wishes,

[Guest guest]

Well - we do say before changing your medication consult with

your doctor - but in your case Janet, doing so has caused you more harm than

good and set your health back years. You have said it all in your second

sentence.

" A few years ago

i followed doctor Ps treatment of taking adrenal gland and thyroid supplements

vitamins and minerals as well as taking T4 and felt quite well...... until i

saw an endocrinologist at my local hospital who told me that my thyroid level

was at 1 and that my bp was normal then he asked me what i had been taking i

told him that i had been taking supplements and he told me to stop them and

like a MUG i listened to him and stopped " .

You

obviously went to see Dr Peatfield because you were not regaining your health

within the NHS and he made you well, and now you are right back where you were

before you saw him. I am sorry to sound so harsh, but if you are going to rely

on NHS doctors to treat you well and give you the thyroid hormone replacement

you need, or recognise that you have low adrenal reserve, you will be very

unlikely to ever regain your good health again - you MUST take responsibility

for your own health - otherwise suffer the consequences Janet.

Good luck with all your tests but when you get the results, do

not allow your doctor to tell you they are 'normal'. Get the results from him/her

and the reference ranges for each test and post them here and we will help with

their interpretation. You need to consider going back on to the treatment

protocol set out by Dr Peatfield also.

Doctors are there to work WITH their patients, not against them

and the patient and doctor have to discuss the different options and you have

as much right to tell the doctor what you want with your health as he has to

give his views. Once you decide what you want, tell the doctor this is what you

have decided and that you will take full responsibility and that you should

like him/her to work with you and monitor what you are doing. Many doctors are

very amenable to doing this.

As far as natural thyroid is concerned, it is a fact that many

doctors (the young one's) don't know about it, nor do they know it was the ONLY

treatment for all sufferers of the symptoms of hypothyroidism for over 50 years

before the manufacture of synthetic thyroxine. It was used safely and

successfully. It is the Royal College of Physicians (London) and the British

Thyroid Association who are terrifying doctors into submission by virtually banning

them from prescribing all T3 hormone containing products and nobody knows the

reason they are doing this, when everybody knows T3 is the active thyroid

hormone - not T4.

If none of the doctors in your surgery are willing to work with

you, then you will have to 'go it alone' but the fact that you are more likely

to regain your normal health is a massive incentive.

Look after your own thyroid and adrenal health and let the

doctors look after the rest of you. However, I would be very wary of a doctor

wanting to cure all ailments by offering you antidepressants.

You will feel better once you have your hiatus hernia and

gallbladder problems sorted, as these must be causing you a lot of stress right

now.

Luv - Sheila

This Friday iam having a Nutritonal consultation and Iratherm heat therapy

session these are 2 twice a week for 3 weeks followed by a basic sleep apnoea

study

Keep your fingers crossed for me that i now can finally get to to bottom of my

all my troubles.

Also the doctor mentioned that hashimotos can be caused by bacteria infection

that could be reversed.... has anyone had this happen to them.

Sorry it's a bit long winded.

_

[Guest guest]

OK - I have now opened a new FILE 'Medical Blunders'

so if anybody has some really idiotic or funny things medical practitioners

have said - you can add them there.

Luv

- Sheila

Hello

Janet,

Also the doctor mentioned that hashimotos can be caused

by bacteria infection

that could be reversed....

That's

a good `un --- should go into the `medical bloomer' section if we had

one..... Like with most blunders, there is a grain of truth

surrounded by a lot of tosh ;o) Good old Hashimoto would turn

in his grave if he heard a colleague suggest that.

.._,___

[Guest guest]

Vickyanne - read the article here written by Dr Peatfield.

http://www.tpa-uk.org.uk/thyroid_adrenal_dysfunction.pdf

Luv - Sheila

Sorry to jump in on this but looking at your message you

say that poorly treated hypothyrodism can result in adrenal problems. I

never knew this and thank you for stating this. So in this case if one

had adrenal problems due to poorly treated hypothyroidism would the adrenal

problem be resolved once the thyroid is treated correctly and so therefore

would be no need for hydrocortisone?

I would appreciate any feedback on the above.

Many thanks.

Vickyanne

[Guest guest]

Hi Sheila

Many thanks for the message. I have read Dr P's Article, which I had read before, and it explains it all. I must admit I was reading it purely from the adrenal point of view before and not taking into account the thyroid being an ongoing illness. It really makes sense and I am so sorry to take up any of your time when the answer is there all along.

Apologies and thank you for being so patient!

Vickyanne

From: Sheila <sheila@...>Subject: RE: Re: Hashimotos disease or whatthyroid treatment Date: Monday, 21 February, 2011, 11:05

Vickyanne - read the article here written by Dr Peatfield. http://www.tpa-uk.org.uk/thyroid_adrenal_dysfunction.pdf

Luv - Sheila

Sorry to jump in on this but looking at your message you say that poorly treated hypothyrodism can result in adrenal problems. I never knew this and thank you for stating this. So in this case if one had adrenal problems due to poorly treated hypothyroidism would the adrenal problem be resolved once the thyroid is treated correctly and so therefore would be no need for hydrocortisone?

I would appreciate any feedback on the above.

Many thanks.

Vickyanne

[Guest guest]

Dear all,Sheila

, your comment{I'm a bit lost, you say you never felt well on T4 alone,

but felt well on T4 and lots of supplements as recommended by Dr P.} I did'nt

explain myself very well sorry.

When i was first diagnosed with hashimotos i went on 50mgs of thyroxine then

100mgs but was told that this was too much for my body and was told to take

75mgs i was told 90mgs would suit me best but there isnt 90mg tablet so i've had

to stay on 75mgs but never felt really well.

i think at the time i saw dr P my thyroid was throwing out enough T3 and was

advised to take NAX,Gingseng and licorice vit c for weak adrenals and nutri

thyroid supplement which got me better until i saw the Doctor at the hospital.

Last year i decided to try Natural thyroid i went to see the doctor,where i was

living at the time and ask him if he would monitor me he said he would make some

enquires and get back to me his answer was no.

I ordered the NT anyway,and took 3 quarter grains to start withi had alot of

stress at the time i had just moved house 200 miles away from my mum,sister who

gave me alot of help with my daughter and saw my husband once a week plus

various other stuff going on it was like a nightmare i could'nt cope so i came

back,i started to bleed and i bled for 10 weeks solidly,i went to the doctors

they did my bloods

and was told my thyroid was low [ i realise now it was most probably my fault

not adjusting the NT correctly.

I was put on 100mgs of thyroxine again,and was ok until just after christmas and

that's when i could'nt sleep etc panic attacks etc........... so now i'm back on

75mgs of thyroxine ......and YES let the doctors think they know best about my

body,but now i feel a little stronger to help me get back to where i was when i

was on Dr Ps treatment either with supplements or NT if needed.

Thank you for all your comments,to which i have taken onboard and when i get my

tests results back in about a week or so i will post them on here for all of you

to see and help me get back on the road.

Janet

>

> until i saw an endocrinologist at my local hospital who told me that my

thyroid level was at 1 and that my bp was normal then he asked me what i had

been taking i told him that i had been taking supplements and he told me to stop

them and like a MUG i listened to him and stopped.

> >

>

> > Also the doctor mentioned that hashimotos can be caused by bacteria

infection that could be reversed.... has anyone had this happen to them.

>

[Guest guest]

Vickyanne,

Every time I read the Dr P book, or the one by Mark Starr, something new jumps

out at me.... It's fine about taking up time, no need to apologise, that's why

this forum is here....

If only our doctors and endos would keep reading, and re reading the books....

we'd all be better off....

xx

>  

> Apologies and thank you for being so patient!

>

[Guest guest]

Janet,

The bacterial infection thing, I just had to have a search round to see if there

was anything..... and I found this:

http://home.online.no/~asaebo/clinical.htm

which talks about YERSINIA ENTEROCOLITICA INFECTION (caps... sorry It's a cut

and paste) there was a study carried out in Norway, which was published in

1995.

Here's what it said about the thyroid link.....

Thyroid disease: At first admission, two patients presented with acute

thyroiditis, in one thyreotoxicosis prompted thyroid resection. Nine patie nts

had thyroid disease diagnosed prior to first admission. During the follow-up

period, another nine patients developed thyroid disease; two of them were

hospitalized with acute thyroiditis. In the one, with high thyroid antibodies,

microscopy of the res ected thyroid showed Hashimoto's thyroiditis (struma

lymphomatosa); the other underwent tracheostomy because of laryngeal edema. Two

of seven patients who developed chronic thyroid disease also developed chronic

liver disease. Among the 20 patients with thyroid disease were 18 females.

Two thyroid disorders have autoimmune aetiology. In Hashimoto's thyroiditis the

thyroid acini are progressively destroyed by an autoimmune process, the gland

diffusely infiltrated with lymphocytes, and the patient becomes increasingly

hypothyroid (94, 95). Graves' disease is caused by the production of thyroid

stimulating hormone (TSH) receptor autoantibodies, which stimulate the TSH

receptor to increase iodide uptake and cyclic adenosine monophosphate (cAMP)

produ ction, inducing production of excess thyroid hormones (96). A high

proportion of patients with Hashimoto's thyroiditis and Graves' disease have

antibody response to Y. enterocolitica by agglutination or ELISA technique(53,

97, 98). Significantly elevated levels of IgG and IgA antibodies to plasmid

encoded release proteins of Y. enterocolitica have been demonstrated in such

patients, and antibodies against release proteins raised in rabbits showed

specific bands on Western blots with thyro id epithelial cell homogenates (99).

Y. enterocolitica antibodies are capable of reacting with the TSH receptor

(100). Conversely, Y. enterocolitica membranes have saturable binding sites for

TSH (101), and the binding of TSH to the microorg anism is inhibited by IgG from

patients with Graves' disease (102). According to a recent report, lymphocytic

thyroiditis has been induced in rats by immunizing them with Y. enterocolitica

purified membrane protein (103). However, other studies con clude that there is

no unique pattern of serological reactivity against Yersinia membranes or the

release proteins in patients with autoimmune thyroid disease (104, 105),

suggesting that any causal relationship with Grave's disease may be related t o

T-cell immunity (105).

Unfortunately I'm tired and can't make any sense out of it...... but if anyone

else wants to have a go?

x

>

> Also the doctor mentioned that hashimotos can be caused by bacteria infection

that could be reversed.... has anyone had this happen to them.

>

[Guest guest]

Hi Janet,

Perhaps this is what your doctor was referring to..

www.thyroid-info.com/articles/yersinia.htm

Regards Peary

> > Also the doctor mentioned that hashimotos can be caused by bacteria infection that could be reversed.... has anyone had this happen to them.> Sorry it's a bit long winded.> Thanks > Janet>

[Guest guest]

Thank you .

Vickyanne

From: Galathea <galathea@...>Subject: Re: Hashimotos disease or whatthyroid treatment Date: Monday, 21 February, 2011, 22:53

Vickyanne,Every time I read the Dr P book, or the one by Mark Starr, something new jumps out at me.... It's fine about taking up time, no need to apologise, that's why this forum is here....If only our doctors and endos would keep reading, and re reading the books.... we'd all be better off.... xx> Â > Apologies and thank you for being so patient!>

[Guest guest]

Are you taking any Nutri Adrenal Extra now Janet, and if so, how

much are you taking?

Luv - Sheila

Thank you for all your comments,to which i

have taken onboard and when i get my tests results back in about a week or so i

will post them on here for all of you to see and help me get back on the road.

Janet

__

[Guest guest]

Hi Peary,

There is this as well.

The Doctor gave me this information on a professer Gaitan that has done

some studys on water wells.

PDF] Original ArticleFile Format: PDF/Adobe Acrobat - Quick View

by FL Rueda - 1999 - Cited by 3 - Related articles

Hashimoto's disease. The atypical thyroiditis in Huelva,. Spain, manifested

after a severe drought; primarily women ... We thank Professor Gaitan (

from , ... prevalence and bacterial contamination of water supplies. ...

mesadelaria.org/descargas/informes/propios/medioambiental/15.pdf

If my Hashis does turn out that it is caused by a bacterial infection i was

thinking, could i have caught it by blood transfusion in 1989 after a c section.

I have been to a few countrys mainly America, Spain France Portugal

Malta and {Turkey] the hotel that we stayed in was'nt very clean in my eyes and

there was poop in the sea, not that i swallowed any water mind

Janet

>

>

>

> Hi Janet,

>

> Perhaps this is what your doctor was referring to..

>

> www.thyroid-info.com/articles/yersinia.htm

> <http://www.thyroid-info.com/articles/yersinia.htm>

>

> Regards Peary

[Ed]

[Guest guest]

Hi Shelia,

I'm not taking anything at the moment apart from T4 75mgs and magnesium -ok, and

i'm drinking filtered tap water i thought it would be best to wait and see what

my test results say before i try anything else.

>

> Are you taking any Nutri Adrenal Extra now Janet, and if so, how much are

> you taking?

>

> Luv - Sheila

>

> Thank you for all your comments,to which i have taken onboard and when i get

> my tests results back in about a week or so i will post them on here for all

> of you to see and help me get back on the road.

> Janet

>

>

>

>

>

> __

>