Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 You were quite probably given a diagnosis of CFS because you had the signs and symptoms of hypothyroidism yet your thyroid function tests were probably within the normal reference interval in the past. Such a diagnosis is often given to such patients, but some give a diagnosis of ME or FM. In a great number of cases, all of these can be helped with the active thyroid hormone triiodothyronine (T3) either in the synthetic form with T4, T3 alone or natural thyroid extract. Your TSH now rising would prove this point. I hope you can get the help from somebody who has gone through 'Pathways to Work' Jo. Luv - Sheila Just got a Pathways to Work interview for next Monday and I was wondering if anyone had any advice/personal experience? I have long-term mental health problems, and have recently been diagnosed with CFS. I'm also being referred to an endocrinologist as my TSH is rising, and I have multiple classic hypo symptoms, and a family history of autoimmune and thyroid issues. I would love to go back to work but I know that I'm truly not fit either mentally or physically at present. The prospect of the interview fills me with dread. I'm trying to arrange an advocate to go with me, but I'm still very worried. Any useful advice would be much appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 Hi Jo There is great advice on this link. A lot of the information is free but for more detail advice you can pay to be a member. I know a lot of people have found the help there have needed for interveiws for benefits. http://www.benefitsandwork.co.uk/home Judy > > Hi, > Just got a Pathways to Work interview for next Monday and I was wondering if anyone had any advice/personal experience? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 Hi Jo Who's the interview with, is it with Remploy? or with the DWP? You really do not sound well enough to work. What benefit are you on, is it ESA? I was signed off much of 2009 with fatigue (turned out to be from sleep apnea but that's not too relevant here). I had an assessment from a 3rd party company to assess me medically - it wasn't relevant to my condition and i failed the test; the test had stupid questions in it though, like can you stand, can you sit, etc. it doesn't take into account a lot of things. but the good news is you can appeal if you don't get enough points. and a good percentage of people succeed. if i recall correctly, when i 'failed' i went to the job centre where they have a special adviser who can help you find work that you can do. they are supposed to take into account all of your health problems and find you relevant work, not just push you into anything. i don't know what benefit you're on or what stage of the process you are at, but you can appeal : 'they' bank on people not appealing and just 'giving in', and think only the genuine cases succeed. I have heard of people with psychosis and also someone eles with bladder cancer, being told they could work. but the good news is, they won on appeal. and i understand that i fyou're on ESA and win the appeal, you get a bit more money. are you on the right benefit for you? do you have any letters or anything from any of the consultants you could take with you? my work interview wasn't an interrogation and it was ok, though i was naturally apprehensive about it all. is there anyone at CAB who can help you? the CAB in my area were helpful please don't worry and let it overwhelm you, (easier said than done). please advise what benefit you are on? chris http://www.direct.gov.uk/en/DisabledPeople/FinancialSupport/esa/DG_171894 " Employment and Support Allowance involves a new medical assessment called the Work Capability Assessment. This assesses what you can do, rather than what you cannot, and identifies the health-related support you might need. Most people claiming Employment and Support Allowance will be expected to take steps to prepare for work, including attending work focused interviews with their personal adviser. Under Employment and Support Allowance, if you have an illness or disability that severely affects your ability to work, you will get increased financial support and will not be expected to prepare for a return to work. You can volunteer to do so at any point if you want to. " > > Hi, > Just got a Pathways to Work interview for next Monday and I was wondering if anyone had any advice/personal experience? I have long-term mental health problems, and have recently been diagnosed with CFS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 Hi Thanks for your reply. The Pathways to Work Interview is with the DWP. I currently receive Income Support with a payment because I'm sick/disabled, and also the two lowest rates of care/mobility DLA. Thanks to to the support of Welfare Rights, I appealed last year, after being refused DLA, and would not like to go through this process again. It was extremely stressful, despite the panel and a person from DWP voting unanimously to award the benefit in my favor for three years, (the first year was paid to me in arrears as it had taken so long for the tribunal). It really has made all the difference in the world as I have a son to look after, and he is my priority. I have been making some progress recently with my mental health, but this has knocked me for six as I really am not physically or mentally in a fit state to work, and leave my house on average once a week. I have always intended to return to work, (ironically I trained with the CAB for three years before my declining health got the better of me!) but I believe I have had undiagnosed Hypothyroidism for years which has caused my mental health to crash. My TSH of 4.29 last year is still rising, and I also have classic symptoms, plus it's a family problem too etc. I'm waiting to be referred to an endocrinologist, which I understand is not as straightforward an experience as one would hope, but there it is.I've managed to rearrange the appointment, and for a mental health advocate to accompany me, but I'm honestly worried sick and angry in equal measure that I'm having to attend. I really would love to return to work, and I've worked my backside off studying and training for years, and have a lot to offer when in good health, but at the present, I'm really not fit. I'd like to know who devises those stupid tests, as like you say, they are so irrelevant to your particular illness. Thanks for all the info and links though, they will be a great help. I'm pretty sure my GP and psychologist will confirm the state of my health. I'll just have to see how it goes. Hope you are getting well, and thanks again for your help.Best wishes,JoFrom: <chrisjtaylor46@...>To: thyroid treatment Sent: Wed, 12 January, 2011 19:38:11Subject: Re: Pathways to Work Interview Hi Jo Who's the interview with, is it with Remploy? or with the DWP? You really do not sound well enough to work. What benefit are you on, is it ESA? I was signed off much of 2009 with fatigue (turned out to be from sleep apnea but that's not too relevant here). I had an assessment from a 3rd party company to assess me medically - it wasn't relevant to my condition and i failed the test; the test had stupid questions in it though, like can you stand, can you sit, etc. it doesn't take into account a lot of things. but the good news is you can appeal if you don't get enough points. and a good percentage of people succeed. if i recall correctly, when i 'failed' i went to the job centre where they have a special adviser who can help you find work that you can do. they are supposed to take into account all of your health problems and find you relevant work, not just push you into anything. i don't know what benefit you're on or what stage of the process you are at, but you can appeal : 'they' bank on people not appealing and just 'giving in', and think only the genuine cases succeed. I have heard of people with psychosis and also someone eles with bladder cancer, being told they could work. but the good news is, they won on appeal. and i understand that i fyou're on ESA and win the appeal, you get a bit more money. are you on the right benefit for you? do you have any letters or anything from any of the consultants you could take with you? my work interview wasn't an interrogation and it was ok, though i was naturally apprehensive about it all. is there anyone at CAB who can help you? the CAB in my area were helpful please don't worry and let it overwhelm you, (easier said than done). please advise what benefit you are on? chris http://www.direct.gov.uk/en/DisabledPeople/FinancialSupport/esa/DG_171894 "Employment and Support Allowance involves a new medical assessment called the Work Capability Assessment. This assesses what you can do, rather than what you cannot, and identifies the health-related support you might need. Most people claiming Employment and Support Allowance will be expected to take steps to prepare for work, including attending work focused interviews with their personal adviser. Under Employment and Support Allowance, if you have an illness or disability that severely affects your ability to work, you will get increased financial support and will not be expected to prepare for a return to work. You can volunteer to do so at any point if you want to." > > Hi, > Just got a Pathways to Work interview for next Monday and I was wondering if anyone had any advice/personal experience? I have long-term mental health problems, and have recently been diagnosed with CFS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 Hi Judy,Thanks for the link.Best wishes, Jo From: Judy <judywilson_1@...>thyroid treatment Sent: Wed, 12 January, 2011 18:17:49Subject: Re: Pathways to Work Interview Hi Jo There is great advice on this link. A lot of the information is free but for more detail advice you can pay to be a member. I know a lot of people have found the help there have needed for interveiws for benefits. http://www.benefitsandwork.co.uk/home Judy > > Hi, > Just got a Pathways to Work interview for next Monday and I was wondering if anyone had any advice/personal experience? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 Hi Sheila,Thanks for your reply, I'm waiting to see an endo, and I've have really useful replies from tpa forum members re: pathways to work interview.thanks again,JoFrom: Sheila <sheila@...>thyroid treatment Sent: Wed, 12 January, 2011 15:31:16Subject: RE: Pathways to Work Interview You were quite probably given a diagnosis of CFS because you had the signs and symptoms of hypothyroidism yet your thyroid function tests were probably within the normal reference interval in the past. Such a diagnosis is often given to such patients, but some give a diagnosis of ME or FM. In a great number of cases, all of these can be helped with the active thyroid hormone triiodothyronine (T3) either in the synthetic form with T4, T3 alone or natural thyroid extract. Your TSH now rising would prove this point. I hope you can get the help from somebody who has gone through 'Pathways to Work' Jo. Luv - Sheila Just got a Pathways to Work interview for next Monday and I was wondering if anyone had any advice/personal experience? I have long-term mental health problems, and have recently been diagnosed with CFS. I'm also being referred to an endocrinologist as my TSH is rising, and I have multiple classic hypo symptoms, and a family history of autoimmune and thyroid issues. I would love to go back to work but I know that I'm truly not fit either mentally or physically at present. The prospect of the interview fills me with dread. I'm trying to arrange an advocate to go with me, but I'm still very worried. Any useful advice would be much appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 Hi Jo Ok thanks for the extra detail. Try no to worry too much and don't let them beat you down. very easy things for me to say but hard to apply when you have health problems. they count on you not appealing, so don't let them do this to you. >I really would love to return to work, and I've worked my > backside off studying and training for years, and have a lot to offer when in > good health, but at the present, I'm really not fit. I'd like to know who > devises those stupid tests, as like you say, they are so irrelevant to your > particular illness. the tests are a load of BS they really aren't relevant. if you feel really bad what relevance is it if u can stand up or count down from 100 in 8s? you really shouldn't have to justify that you want to work but can't. the measure of a society is arugalby how it looks after it's sick. with modern technology there should be more flexible jobs for people, what with working from home, video conferencing, etc, but this isn't pushed or supported enough. if the government truly want to help why aren't there grants for employers or tax concessions if they allow someone whos health is not good but could work from home on their terms to do so ? i hope you get on ok, let us know. and don't let them beat you, you can appeal. 'float and cope' as Weekes said. chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 Hi Thanks for your support, I'm a very determined person whether in good health or not, and I will definitely appeal if I need too. It's not fair that some of the most vulnerable people in society are being targeted and pushed around, even though I can stand up for myself I still feel very uncomfortable in this situation. I'd like to see some of these bureaucrats cope with chronic illness, maybe they'd see how hard it really is? I couldn't agree more about working from home, and it's something I've considered. As you point out, with the technology available now, it should be a definite option made available for those who want it. It would probably save a fortune too. I'll carry on 'floating and coping', and let you know how I get on.Take care,JoFrom: <chrisjtaylor46@...>thyroid treatment Sent: Thu, 13 January, 2011 14:05:37Subject: Re: Pathways to Work Interview Hi Jo Ok thanks for the extra detail. Try no to worry too much and don't let them beat you down. very easy things for me to say but hard to apply when you have health problems. they count on you not appealing, so don't let them do this to you. >I really would love to return to work, and I've worked my > backside off studying and training for years, and have a lot to offer when in > good health, but at the present, I'm really not fit. I'd like to know who > devises those stupid tests, as like you say, they are so irrelevant to your > particular illness. the tests are a load of BS they really aren't relevant. if you feel really bad what relevance is it if u can stand up or count down from 100 in 8s? you really shouldn't have to justify that you want to work but can't. the measure of a society is arugalby how it looks after it's sick. with modern technology there should be more flexible jobs for people, what with working from home, video conferencing, etc, but this isn't pushed or supported enough. if the government truly want to help why aren't there grants for employers or tax concessions if they allow someone whos health is not good but could work from home on their terms to do so ? i hope you get on ok, let us know. and don't let them beat you, you can appeal. 'float and cope' as Weekes said. chris Quote Link to comment Share on other sites More sharing options...
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