Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 That is crazy - Well that sort of proves why they are so reluctant to prescribe them even though many people are struggling!! What is it to the Chemist what they cost - she's getting paid by the NHS so why would she be worried. I have no doubt that our local chemist would supply them - if you like I can ask & if you fax the script to him I can post them to you. At least try another chemist - what about Boots? Can't believe it's such a battle for people to get treatment - maybe someone on this site would like to change jobs & train as an Endocrinologist & change the tide :-) Take care, Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Was thinking & think it would be a good idea to write to the Chemist & challenge her & get her to reply to you. I really don't think she can refuse to supply your medication. I used to be a nurse & I can assure you, there is dreadful waste within the health service. Packs opened to use 1 item & then the rest thrown out etc. The reason they didn't want to diagnose people in the past is because they then got All their prescriptions free once diagnosed as underactive although at the minute everyone is getting their prescriptions free anyway but I can't see that continuing. Personally I would prefer to buy the meds & have optimal health but you shouldn't have to. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Hi I've just been prescibed 10mcg daily of Liothyronine (T3) as they've identified that I have a low serum bound iodine level. I was shocked reading your message as to how much this costs and after searching online I found this: http://www.chemistdirect.co.uk/liothyronine-sodium-tablet-20mcg_4_15116.html No wonder my Endo has been reluctant to try me on this and leave me on Levothyroxine which was doing little more than suppress my TSH and giving false blood results ! Neil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 The doctor prescribes liothyronine for me (which presumably is the synthetic T3) and probably much much cheaper. I cannot imagine my surgery prescribing anything that costs that much, when one of the doctors took £30 off me for signing a form and then scribbled all over the form making it invalid (because he didn't believe in it), but would not let me have my £30 back because he said he was entitled to it because he DID sign it. He said that if he signed a form for insurance for me and they didn't accept me it was not his fault. But I was too dumfounded to say that in this case it was his fault because he would not have scribbled all over the insurance form like he had with that one. I even mentioned it to the PCT who completely ignored it. Here's me going off on a tangent. But if a doctor is prepared to blatantly rob his patient, what is he going to be like using NHS money for his patients. Didn't I hear something about the Government trying to crack down on pharmaceutical companies who charge excessively for their products. I know many years ago the Government of the day told doctors they must prescribe generic in preference to named drugs. T3 is given with Thyroxine so the cost of the thyroxine should be added to the T3 and then compared to Armour because Armour contains both. But they will presumably compare the cost of lyothyronine rather than the Goldshield. Lilian Cost of Meds to NHS HI everyone,I went to collect a prescription of T3 yesterday and the chemist called me in to discuss my meds. She says I am the only person that the shop supplies T3 to, and the chemist says I'm only the second person she's ever met on T3..... to which I replied that there must be many people who are undertreated :)Anyway, she said that because of the cost they will no longer hold them in stock for me, so it will be a real fath to get them. The cost to the NHS per 2 drums of 28 tablets (20 mcg - goldshield) is £107.00 !!!!! Whaaat??? I can buy 300 for 50 quid in mexico..So.... this has got me thinking..... Does anyone know how much armour is to the NHS? If it's cheaper than T3 then it might be a good argument for getting the doc to prescribe......How do I find this out? x------------------------------------TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Hi Neil, Yep, the link you sent is £2.15 PER TABLET... so slightly more expensive than the £107 my chemist is being charged for 56 tablets.... Why is the NHS only allowed to supply one brand? Why can't then buy in from abroad? > > Hi > > I was shocked reading your message as to how much this costs and after searching online I found this: > > http://www.chemistdirect.co.uk/liothyronine-sodium-tablet-20mcg_4_15116.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Lilian, My prescription reads Liothyronine 20 mcg... it just happens that the one I am given is the Goldshield one, I don't think there is another brand supplied in this country - not even a generic. Do your tablets come in a sealed plastic tub with 28 per tub? these are the goldshield ones. Years ago when I first got them prescribed they used to be measured out by the chemist, but they don't do this any more... Mind they used to measure out the T4, but then it changed to those silly expensive blister packs. The price of a months worth of T3 at 20 mcg per day then, is £53.50 and the price of a months worth of T4 at 50 mcg is £0.48 making a total of £53.98. If I buy a months worth of NT at 3 grains a day, it costs me £17.50 per month.. How do I find out how much the NHS pay for NT? x > > The doctor prescribes liothyronine for me (which presumably is the synthetic T3) and probably much much cheaper. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Hi Dorothy, The chemist is willing to supply them ok, but will not hold them in stock. It means every time I want any I have to go to the docs, order a prescription, go back and collect it 2 days later, take it to the chemist, wait whilst they order it in, collect it two days later.... It's a good deal easier to just order my own stocks on line and get them delivered to my house. > > Was thinking & think it would be a good idea to write to the Chemist & challenge her & get her to reply to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Lilian, I do get them free, but the NHS are being charged a stupid amount for them. This is why more of us cannot get them without a real fight. > > I cannot understand why they should be charging people that amount with an NHS prescription. If people are hypothyroid and have an NHS prescription it is free. > > They can charge what they like for a private prescription, which does not necessarily reflect that actual cost of the product. They can add as much profit as they like on a private prescription. > > Lilian > http://www.chemistdirect.co.uk/liothyronine-sodium-tablet-20mcg_4_15116.html > > No wonder my Endo has been reluctant to try me on this and leave me on Levothyroxine which was doing little more than suppress my TSH and giving false blood results ! > > Neil > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 HI ALL Its not only T3, how many have had problems obtaining gdales allergy free meds. My GP said at one time he would prescribe anything I wanted to try, but what a BIG JOKE,as last time I saw him he said that they were not availabe on NHS and if I need T3 I will probably find the same thing said. My general feeling is that the medical profession has a dislike of THYROID PATIENTS. The one thing I shall refuse to have even if again I am persued with frights of cancer is a hysterectomy. Not only is there a risk of infection and in turn damage to ones kidneys, but there are treatments available today without resorting to a hysterectomy. My former GP also said that cancer cells can come and go, so now they are trying to get rid of each little cell and the treatment involved can be worse. My Mother and Mother-in-law both went downhill after hysterectomy. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Hi , I use Boots who have an arrangement with my local Surgery. Boots request the prescription when I'm due to run out and the Surgery faxes it through to them. I get C0-Q10 on prescription which aren't kept in stock so by having this arrangement and leaving a couple of days for the order to arrive, it means I don't have to go through all that palaver. It might be worth asking your chemist if they operate something similar? Best wishes - Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Meant to say that I got mine at my local Boots. When I presented the prescription I asked them to check they could dispense it straight away, or I could check with any of the other 3 pharmacies we have in the Main Street. It's worth phoning around your local pharmacies to check availability, assuming of course you have a choice ! Neil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 >The price of a months worth of T3 at 20 mcg per day then, is £53.50 >and the price of a months worth of T4 at 50 mcg is £0.48 making a >total of £53.98. I honestly think that most local pharmacies do not supply to many patients. It takes me all week to sort out my meds. Put in the prescription, wait a couple of days, go to the pharmacy. Then they order it in as they don't stock it, then go back. Another pharmacy may have one pot of T3, but I would still have to go back later in the week for the rest. I have not had any pharmacists try and refuse the prescription, just a pallava of going back. I always think that the NHS must be supplying similar priced or more expensive tablets for other reasons. There is something very deep, where GPs, consultants, lab biochemists and pharmacists, just don't expect you to need T3. They would rather keep us on T4, blame the patient " Give it more time " etc rather than consider if it is working. I have no way of knowing about costs of Armour to the NHS because prescribing un-licensed meds isn't something that my GP would do. Fiona. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 The way it works is that pharmacies buy and pay for their medicines from their wholesaler, the one they have entered into a contract with. Different chains of pharmacies use different wholesalers. When they dispense the medicine to the patient, the NHS re-imburses the pharmacy a fixed sum from a published price list (for common drugs) plus some add-on charges to cover the pharmacist's cost of providing the service. This is why some pharmacies won't dispense a branded drug if it's not specified on the prescription because they won't get re-imbursed for the higher cost of the branded drug. They only get the fixed cost specified by the Prescription Pricing Authority. It's also why patients get a different generic each time they renew because the pharmacy will take the cheapest make that the wholesaler offers. This link takes you to the page where you can open a Word document that lists the type of charges the pharmacist gets re-imbursed for over and above the drug cost: http://www.nhsbsa.nhs.uk/PrescriptionServices/2130.aspx This link is to the current drug tariff published by the PPA: http://www.ppa.org.uk/edt/March_2011/mindex.htm You can search by drug name and find the price the pharmacist gets for the drug, to which are added the additional charges. > Do pharmacies HAVE to purchase certain drugs from particular > manufacturers or can they buy from where they want? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 When I went to Boots on one occasion, they asked me how I managed over christmas when they couldn't get any Armour from their suppliers, I told her that my sister had bought some Erfa from an internet pharmacie (Int. Pharmacy, I think) she wanted a link to it as they can buy from any reputable source. She wrote down the name and said she'd contact them!! Glynis > Is there a possibility - she asks cynically - that the NHS are buying the T3 > from the most expensive source available in an attempt to use this argument Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 .. I get C0-Q10 on prescription > > It might be worth asking your chemist if they operate something similar? > > Best wishes - Sue > Hi Sue, how did you get your co-q10 on a prescription? Love janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Hi I can see T3 costs more than the Armour I would cost £40 a week . However this is cheap at the price considering the dozen or so meds a lot of people would require if not taking it. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 Not necessarily. Most government departments seem very poor at getting good value for money when it comes to purchasing. The MOD is forever in the news for wasting money. Everyone I know who has ever worked in the NHS comments, without any prompting, about the appalling wastage. I get the feeling that when a private company sees that a contract is coming from a government body they decide to rip them off. Maybe Civil Servants are too naive or not hard headed enough to drive a good bargain? Miriam > Is there a possibility - she asks cynically - that the NHS are buying the T3 from the most expensive source available in an attempt to use this argument to stop T3 from being prescribed at all - as doctors and pharmacists are looking to save as much money as possible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 Yes, me too, because I went to see a private doctor and they wrote to my GP asking whether they would prescribe it for me. Miriam > . I get C0-Q10 on prescription > > > Hi Sue, how did you get your co-q10 on a prescription? Love janet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 Hi Janet, I was diagnosed with CFS in June 08 and in search of some answers I paid for a mitochondrial function test to be done. This showed a deficiency in C0-Q10 amongst other things. My GP took the doctor's interpretation on board and prescribed everything I needed which could be obtained on the NHS. Best Wishes, Sue > > Hi Sue, how did you get your co-q10 on a prescription? Love janet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 Does your clinic not fax the prescription direct to the chemist of your choice? - if you ask them to I'm sure they will. Also, can you not just order the tabs well before you need them so you don't run out? Take care, Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 Hi all -I don't think cost has anything to do with reluctance to perscribe T3 . It would however help if it did not cost so much. Am I correct in thinking there is only one source in the UK and no competition . It is out of patent and anyway the patent as far as I know was in the US {CYTOMEL] -so why the rediculous price and what about competition . Why also this small dose of 20 and not 25 as elsewhere. If this Government really wants to cut the cost of drugs to he NHs it really needs to question what is going on . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 Hi, Thanks for answering, I don't think I would qualify as I have been taking it for a couple of years now so won't be deficient! love janet > > > > Hi Sue, how did you get your co-q10 on a prescription? Love janet > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2011 Report Share Posted March 14, 2011 Hi , im taking T3 only and buy these from mymexicandrugstore These are 25mg in 100s i buy six for approx £80 . I have been taking these for nearly 2 years as i could no longer tollerate Thyroxine after a pesticide exposure . Having a battle with GP to prescribe , he flatly refuses and wont give a reason , I have recently seen Endo at Walton who says i must come off T3 and go back on Thyroxine ??? I have rang the hospital to tell them how ill i am after taking thyroxine for 2 weeks ( white lie ) and await a reply for advice what to do ( may take forever ) Grrrrrrrrrrrrr n thyroid treatment , " Galathea " <galathea@...> wrote: > > HI everyone, > > I went to collect a prescription of T3 yesterday and the chemist called me in to discuss my meds. She says I am the only person that the shop supplies T3 to, and the chemist says I'm only the second person she's ever met on T3..... to which I replied that there must be many people who are undertreated > Moderated to remove old message Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2011 Report Share Posted March 14, 2011 Hi , I am on 20mcg Liothyronine and 125mcg Levothyroxine. I use a chemist that have an agreement to pick up my prescription and order in what I need. I then just drop in and pick it up. They get me to tick what I want on the next repeat ready for next time. So far it has worked really well. Just out of interest, when i picked up my last prescription, there was a sticker on it saying NHS Levy £14.40. I know that the chemist also get some sort of fee for managing my prescription, so don't know what the real cost of the tablets is. Thanks a > Anyway, she said that because of the cost they will no longer hold them in stock for me, so it will be a real fath to get them. The cost to the NHS per 2 drums of 28 tablets (20 mcg - goldshield) is £107.00 !!!!! Whaaat??? I can buy 300 for 50 quid in mexico.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Hi, I get T3 with a NHS script and privately- the private script has T3 at £ 33 for 28, so your chemist is obviously getting them gold plated! -Goldshield's liothyronine sodium- this is from Boots. Cost of Meds to NHS HI everyone,I went to collect a prescription of T3 yesterday and the chemist called me in to discuss my meds. She says I am the only person that the shop supplies T3 to, and the chemist says I'm only the second person she's ever met on T3..... to which I replied that there must be many people who are undertreated :)Anyway, she said that because of the cost they will no longer hold them in stock for me, so it will be a real fath to get them. The cost to the NHS per 2 drums of 28 tablets (20 mcg - goldshield) is £107.00 !!!!! Whaaat??? I can buy 300 for 50 quid in mexico..So.... this has got me thinking..... Does anyone know how much armour is to the NHS? If it's cheaper than T3 then it might be a good argument for getting the doc to prescribe......How do I find this out? x------------------------------------TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
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