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Marilyn, we didn't experience a rash, but I have read quite a few

posts here where others reported similar rashes. When I chelated my

kids, I read the PDR/package insert for DMSA, and it did say that the

patient should be monitored for signs of infection/immune

supression. A rash/fever as discribed, may necessitate testing and

proceeding more cautiously, slowly, with further chelation. This is

something that needs evaluation by a doctor experienced in

chelation. I would not be alarmed but I would call the doctor and

delay any further chelation until you get a medical O.K. Best

wishes, Beverly

> Dear Group:

> Last night, my daughter broke out in a bad rash. It had been 8

days since we

> completed our 3 day trial with succimer. The rash started on her

armpits and

> very quickly spread to her ears, belly, tip of her nose, ankles,

etc. The

> rash was mainly tiny welts with some areas of grainy dots. Today

the welts

> are pink. Last night they were white. I found some claritan late

last

> night, well, early this morning, and she was able to sleep. She

was out of

> control with the itching. Also, she had been very warm this past

week. Has

> anyone else experienced this type of rash after a cycle of

chelation? It

> definitely was not anything she ate. How should a rash like this

be treated

> if it was due to the chelation? Thanks in advance.

>

> Marilyn

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A rash can be a sign of detox. The body uses the liver, intestines, and

lungs to carry toxins out of the body but when the liver, intestines, etc.

get overloaded it pushes them out the skin. You want the toxins out so

stopping the rash suppresses the detoxification process. You may want to cut

back on the dosage to a level where the body can handle it without involving

the skin. Don't want to overload the system by trying to detox too quickly.

Most of the folks we're referring to on this list have comprommised systems

and would thus tolerate less than others before the body employs the skin

for detox. If epsom salt baths work for the individual in question, that

helps with the detox process. Kaolin clay applied externally to the

affected areas away from any orifices also helps pull out the toxins and

relieve the itching.

insert for DMSA, and it did say that the

> patient should be monitored for signs of infection/immune

> supression. A rash/fever as discribed, may necessitate testing and

> proceeding more cautiously, slowly, with further chelation.

The rash started on her

> armpits and

> > very quickly spread to her ears, belly, tip of her nose, ankles,

> etc. The

> > rash was mainly tiny welts with some areas of grainy dots. Today

> the welts

> > are pink. Last night they were white. I found some claritan late

> last

> > night, well, early this morning, and she was able to sleep. She

> was out of

> > control with the itching. Also, she had been very warm this past

> week. How should a rash like this

> be treated

> > if it was due to the chelation? Thanks in advance.

> >

> > Marilyn

>

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  • 11 months later...

Dear Meg,

A friend at church recently had a child with a rash similar to what you

described. She took him to the ped. & he said ringworm. It did not go away, so

she went back & saw one of the older Dr.s in the practice. He walked right in &

asked had the child been around any cats. They had. He said he hadn't seen

that for a while but some type of reaction to cats??? Gave him Rx & it cleared

up in about a week. Just a thought....

Tammy I. mom to 3 apraxia, 5 starts school in less than a week,

16, 20 still laundry impaired but we plan to treat that with the

proper therapy soon!!

>A couple of month's ago my daughter who is not on any supplement had the same

>rash. I brought her to our ped. and he said it was ring worm and gave me a

>cream to put on it. It didn't help and 2 weeks had past. I brought her back

>and he said to go to a dermatologist. He took one look at the rash and knew

>exactly what it was. For the life of me I can't remember the name but he gave

>me a cream to put on it and it disappeared in 2 days. He said it is so

>similar looking to ring worm it is often mis- diagnosed. You might want to

>try a dermatologist to see if that's the case. Hope this helps.

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  • 6 months later...
Guest guest

they keep changing. when it started in november they were big red welts, next

time they came back more like red dots. this time they are more flesh colored

.. but always on my stomach and back. a couple years ago i had a red bumpy

itchy rash on the back of my neck. the dr is treating me with lamisil now to

see if i can get rid of all of this. kathy in il

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  • 4 years later...

Hi everyone

I woke up this morning with a couple of dots on my upper chest,in

a couple of hours i had a rash all over my face ,scalp,chest,and

back.It really scared me. I went to my onc. office i saw the nurse

there and another onc {mine wasn't there} She said she thought if it

was from the Gleevec it would have started a while ago I have been on

Gleevec for 3 months. The doc. told me to take benadryll and call them

in the morning. He also told me to skip the Gleevec today,Is that safe?

Other than a little nausea once in a while and a little swelling around

my eyes i don't have any other side affects.I'm worried that I might

have to go off the Gleevec since I've been doing so well on it.Can

someone give me some insight on rashes caused by Gleevec,[i didn,t eat

anything different than i usually do.] I am really worried.

Thanks

Esther

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It does sound like an allergic reaction of some sort...could be the

gleevec..I guess he is having you skip to see if the rash clears over

the hours..It is best to figure out what is going on. I have heard of

some with some allergic reactions go off of the gleevec for a week or

so to see if the symptoms cleared. One I know went back on but manged

the allergic reaction but the other went off of gleevec and moved on

to another treatment. The thing is - you have to be on gleevec for

life and if the side effects not reasonable or there is an allergic

reaction- you need to know. Going off it for the day or 2 even can

help the dr discover this. I hope you are feeling better!

Shalyn

> Hi everyone

> I woke up this morning with a couple of dots on my upper chest,in

> a couple of hours i had a rash all over my face ,scalp,chest,and

> back.It really scared me. I went to my onc. office i saw the nurse

> there and another onc {mine wasn't there} She said she thought if it

> was from the Gleevec it would have started a while ago I have been on

> Gleevec for 3 months. The doc. told me to take benadryll and call them

> in the morning. He also told me to skip the Gleevec today,Is that safe?

> Other than a little nausea once in a while and a little swelling around

> my eyes i don't have any other side affects.I'm worried that I might

> have to go off the Gleevec since I've been doing so well on it.Can

> someone give me some insight on rashes caused by Gleevec,[i didn,t eat

> anything different than i usually do.] I am really worried.

> Thanks

> Esther

>

>

" Catch on fire with enthusiasm and people will come for miles to watch you

burn. " - Wesley

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At 09:17 PM 2/20/07 +0000, you wrote:

>Hi thanks for the info I was scared because i thought i

>might have shingles I'm waiting for my GP doc to call.

>thanks

>Esther

Shingles is not a diffuse (all over the body) rash....it is along the nerve

pathway, like little blisters. And the pain which can be intense from it,

is also very localized.

C.

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> >

> > Hi everyone

> > I woke up this morning with a couple of dots on my upper

> chest,in

> > a couple of hours i had a rash all over my face ,scalp,chest,and

> > back.It really scared me. I went to my onc. office i saw the

nurse

> > there and another onc {mine wasn't there} She said she thought if

> it

> > was from the Gleevec it would have started a while ago I have

been

> on

> > Gleevec for 3 months. The doc. told me to take benadryll and call

> them

> > in the morning. He also told me to skip the Gleevec today,Is that

> safe?

> > Other than a little nausea once in a while and a little swelling

> around

> > my eyes i don't have any other side affects.I'm worried that I

> might

> > have to go off the Gleevec since I've been doing so well on

it.Can

> > someone give me some insight on rashes caused by Gleevec,[i

didn,t

> eat

> > anything different than i usually do.] I am really worried.

> > Thanks

> > Esther

> >

>Hi Tracey

It's so good to know that you are all out there. It helps alot to

talk to people in the same boat as you and have experienced. some of

the same things,as I told i was afraid that i might have

shingles,but after reading about it probably not.Tomorrow is another

day and i will be calling my onc.bright and early

Thanks again for being there

Esther

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> >Hi thanks for the info I was scared because i thought i

> >might have shingles I'm waiting for my GP doc to call.

> >thanks

> >Esther

>

>

> Shingles is not a diffuse (all over the body) rash....it is along the

nerve

> pathway, like little blisters. And the pain which can be intense from

it,

> is also very localized.

> C.

>

thanks that's exactly what my GP said I guess i have to wait till

tomorrow to see what my onc.says to do next.

Esther

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Yes, I got the rash as well, only after I had been on Gleevec for a few

months. It did not show up right away. My oncologist said it was not related

to

Gleevec, but clearly it was. When I took a short break a few months after,

it disappeared competely.

Sincerely,

Matt

ville, Florida

Dx January of 2005

Gleevec since March of 2005

Treated at MD

Father of 3

In a message dated 2/20/2007 2:40:08 P.M. Eastern Standard Time,

no_reply writes:

Hi everyone

I woke up this morning with a couple of dots on my upper chest,in

a couple of hours i had a rash all over my face ,scalp,chest,a co

back.It really scared me. I went to my onc. office i saw the nurse

there and another onc {mine wasn't there} She said she thought if it

was from the Gleevec it would have started a while ago I have been on

Gleevec for 3 months. The doc. told me to take benadryll and call them

in the morning. He also told me to skip the Gleevec today,Is that safe?

Other than a little nausea once in a while and a little swelling around

my eyes i don't have any other side affects.I'm worried that I might

have to go off the Gleevec since I've been doing so well on it.Can

someone give me some insight on rashes caused by Gleevec,[i didn,t eat

anything different than i usually do.] I am really worried.

Thanks

Esther

<BR><BR><BR>**************************************<BR> Check out free AOL at

http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free

safety and security tools, millions of free high-quality videos from across the

web, free AOL Mail and much more.

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>

>

>

> Yes, I got the rash as well, only after I had been on Gleevec for a

few

> months. It did not show up right away. My oncologist said it was

not related to

> Gleevec, but clearly it was. When I took a short break a few

months after,

> it disappeared competely.

>

>

>

> Sincerely,

>

> Matt

> ville, Florida

> Dx January of 2005

> Gleevec since March of 2005

> Treated at MD

> Father of 3

>

>

> In a message dated 2/20/2007 2:40:08 P.M. Eastern Standard Time,

> no_reply writes:

>

>

>

>

> Hi everyone

> I woke up this morning with a couple of dots on my upper chest,in

> a couple of hours i had a rash all over my face ,scalp,chest,a co

> back.It really scared me. I went to my onc. office i saw the nurse

> there and another onc {mine wasn't there} She said she thought if

it

> was from the Gleevec it would have started a while ago I have been

on

> Gleevec for 3 months. The doc. told me to take benadryll and call

them

> in the morning. He also told me to skip the Gleevec today,Is that

safe?

> Other than a little nausea once in a while and a little swelling

around

> my eyes i don't have any other side affects.I'm worried that I

might

> have to go off the Gleevec since I've been doing so well on it.Can

> someone give me some insight on rashes caused by Gleevec,[i didn,t

eat

> anything different than i usually do.] I am really worried.

> Thanks

> Esther

>

>

>

>

>

> <BR><BR><BR>**************************************<BR> Check out

free AOL at

> http://free.aol.com/thenewaol/index.adp. Most comprehensive set of

free

> safety and security tools, millions of free high-quality videos

from across the

> web, free AOL Mail and much more.

>

>

>

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After thinking about the rash issue I did get a rash on my chest and down my

stomach. It wasn't itchy or red...just felt like sand paper. It went away in

about a month. I didn't do anything for it. In regards to doctors saying issues

are not related to Gleevec, I don't believe that. I'm happy with my onc and know

I'm getting the right treatment. However, when I started Gleevec, I asked him if

I could tan. He said " yes " . Why didn't he tell me I wouldn't tan because of the

c-kit enzyeme being inhibited??? I also asked about any side effects. He really

didn't respond well to that question. He does come highly recommended from

Cleveland Clinic.

Thanks to 's input and super knowledge about CML and everyone else's

input I have learned alot about CML. More than I would just talking with the

onc.

Pam

snipandtip <no_reply > wrote:

>

>

>

> Yes, I got the rash as well, only after I had been on Gleevec for a

few

> months. It did not show up right away. My oncologist said it was

not related to

> Gleevec, but clearly it was. When I took a short break a few

months after,

> it disappeared competely.

>

>

>

> Sincerely,

>

> Matt

> ville, Florida

> Dx January of 2005

> Gleevec since March of 2005

> Treated at MD

> Father of 3

>

>

> In a message dated 2/20/2007 2:40:08 P.M. Eastern Standard Time,

> no_reply writes:

>

>

>

>

> Hi everyone

> I woke up this morning with a couple of dots on my upper chest,in

> a couple of hours i had a rash all over my face ,scalp,chest,a co

> back.It really scared me. I went to my onc. office i saw the nurse

> there and another onc {mine wasn't there} She said she thought if

it

> was from the Gleevec it would have started a while ago I have been

on

> Gleevec for 3 months. The doc. told me to take benadryll and call

them

> in the morning. He also told me to skip the Gleevec today,Is that

safe?

> Other than a little nausea once in a while and a little swelling

around

> my eyes i don't have any other side affects.I'm worried that I

might

> have to go off the Gleevec since I've been doing so well on it.Can

> someone give me some insight on rashes caused by Gleevec,[i didn,t

eat

> anything different than i usually do.] I am really worried.

> Thanks

> Esther

>

>

>

>

>

> <BR><BR><BR>**************************************<BR> Check out

free AOL at

> http://free.aol.com/thenewaol/index.adp. Most comprehensive set of

free

> safety and security tools, millions of free high-quality videos

from across the

> web, free AOL Mail and much more.

>

>

>

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>

>

>

> Yes, I got the rash as well, only after I had been on Gleevec for a

few

> months. It did not show up right away. My oncologist said it was

not related to

> Gleevec, but clearly it was. When I took a short break a few

months after,

> it disappeared competely.

>

>

>

> Sincerely,

>

> Matt

> ville, Florida

> Dx January of 2005

> Gleevec since March of 2005

> Treated at MD

> Father of 3

>

>

> In a message dated 2/20/2007 2:40:08 P.M. Eastern Standard Time,

> no_reply writes:

>

>

>

>

> Hi everyone

> I woke up this morning with a couple of dots on my upper chest,in

> a couple of hours i had a rash all over my face ,scalp,chest,a co

> back.It really scared me. I went to my onc. office i saw the nurse

> there and another onc {mine wasn't there} She said she thought if

it

> was from the Gleevec it would have started a while ago I have been

on

> Gleevec for 3 months. The doc. told me to take benadryll and call

them

> in the morning. He also told me to skip the Gleevec today,Is that

safe?

> Other than a little nausea once in a while and a little swelling

around

> my eyes i don't have any other side affects.I'm worried that I

might

> have to go off the Gleevec since I've been doing so well on it.Can

> someone give me some insight on rashes caused by Gleevec,[i didn,t

eat

> anything different than i usually do.] I am really worried.

> Thanks

> Esther

>

>

>

>

>

> <BR><BR><BR>**************************************<BR> Check out

free AOL at

> http://free.aol.com/thenewaol/index.adp. Most comprehensive set of

free

> safety and security tools, millions of free high-quality videos

from across the

> web, free AOL Mail and much more.

>

>

>

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  • 2 years later...
Guest guest

Mine just comes and goes. Usually in the evening. It is bright red and

splotchy. It grows up my chest to my throat in patches. It isn't bothersome,

but if we are out in the evening I catch people looking at it. It sounds

lame to say, it is a side effect of the medication I am on. :)

Tammy

_____

From: [mailto: ] On Behalf Of

Lomsdalen

Sent: Monday, March 23, 2009 3:06 PM

Subject: [ ] Rash

I know that it's a side effect of Gleevec, but a get a small red rash on my

face that comes and goes. This time around, the rash has been here, going

on 2 weeks. I never seem to have it when I go for my 6 week check ups with

my Oncologist, and I'm wondering if anyone else gets this type of rash, and

if so, is there anything you've used to help get rid of it faster?

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