Guest guest Posted March 19, 2011 Report Share Posted March 19, 2011 Hi Everyone I am so glad to have found such great empathy,experience and advice on this site. I have been on 100mcg Thyroxine for many years and even in the beginning never noticed any improvement. Now I feel so bad I can hardly drag myself around all day. Over the last month my hair has fallen out in handfuls. Over the last few years I have had MRIs, Xrays,lumbar puncture, colonospy and been to orthopaedics, neurology, nephrology,gyny,rheumatology amongst others. I have been given possibilities of fybromalgia, MS, Sjogrens syndrome and now " systemic inflammation of some sort " . My MD regularly does blood tests and tells me that the levels are normal. On my last visit with me in tears, I asked for further blood tests including one for T3. He said " we don't do that if your TSH is normal " . I asked if I could have one anyway and he said it was doubtful if the lab would do it even if he asked. Mentioned that apparently some people are unable to convert thyroxine and he looked at me as if I was mad. Test results last year TSH 1.23 and T4 19, I dont really understand if this is ok or not. Sorry to have moaned on for so long but am desperate and also very angry at NHS treatment.(I now have an appointment to see a Nutrionist in May which is my last hope of ever feeling well) Quote Link to comment Share on other sites More sharing options...
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