Re: blah blah blah. another dead end. a slightly low moment for me.

March 18, 2011

>

> Hello,

>

> This doesn't happen very often, but I am turning to the forum for a bit of

support today.

REST OF THIS MESSAGE DELETED BY MODERATOR....... PLEEEEEAAAASSSE DELETE MOST

OF THE OLD MESSAGE TO WHICH YOU ARE REPLYING.... We don't always have time to

edit the messages and sometimes we send them back - (Mod)

Hey

I just wanted to reply as can relate to how youre feeling! I have been diagnosed

with hashimotos and taking thyroxine which is doing nothing. I have been trying

for two weeks to get an appt with my gp! Was told to ring today at 8am which I

did, only to be told that he wasnt actually in today..I went back to bed and

have only now got up! I am feeling very low, and very hopeless. My relationships

have suffered, as well as my son due to all this. I recently started seeing

someone who has now had enough as I 'reacted' to something which he regarded as

ridiculous. That has set me back even further.

Anyway I just wanted to provide some support so that you know youre not alone.

hugs,

Mel.

March 18, 2011

Hi Patersonia,

Really sorry to hear you're feeling so low.

I'm not sure from your post whether you are on any thyroid meds at the moment?

I was in a very similar position to yourself a few years back.I got absolutely nowhere with the NHS and whilst that is not comforting to hear I think it is best to be realistic about what we can expect from these 'professionals'.I got the 'Fibromyalgia' diagnosis in 2005 and this was without even being sent to a Rheumatologist! I was sent to an Endocrinologist a year previous and was discharged after one visit.Yes,one visit! He did nothing and said nothing helpful at all.Spent most of the time on his mobile... I can only imagine the useless letter he sent to my GP.

I think the point many people are missing(and I know this might annoy some)is that none of these doctors are going to get us better.It is up to us.I honestly think the majority of Rheumatologists in particular have no clue in regards to the thyroid/ fibromyalgia connection.

When I was at my worst I took these steps.It didn't get me fully better but it helped tremendously.

1.) Cortef- took 10mg twice a day as advised by private doctor.

2.)Supplemented with Magnesium and Malic acid(really helped with muscle pain)

3.)Supplemented with high dose Omega 3 fish oil.

4.)Followed an anti -inflammatory diet.(No Nightshade foodstuffs)

5.)Took Epsom salt detox baths(500g of Epsom salts+500g of Bicarbonate of Soda)

6.)Took gentle walks in the local park.(Really important to keep the blood moving)

7.)Did a gentle pilates tape 2-3 times weekly.

8.)Did deep breathing exercises and tried to avoid stress(difficult I know!)

I hope some of these suggestions may help you.

Regards Peary

>> Hello,> > This doesn't happen very often, but I am turning to the forum for a bit of support today. I am feeling a bit flat today after being given a letter that was sent to my GP by a specialist I saw last month. On the upside, the specialist does not doubt that I am fatigued and have unexplained pains, but on the downside, .....

P>

[Ed]

March 18, 2011

Hi P,

I'm sorry the 'blitz' has hit you ....

Did you try asking Dr Myhill about your condition ~ she's in the UK?

has developed a test for low energy status ie low ATP and low ATP/ADP ratio.

This may be associated with low magnesium.

She has lots of free advice on her website.

http://www.drmyhill.co.uk/

best wishes

Bob

>> Hello,> > This doesn't happen very often, but I am turning to the forum for a bit of support today. I am feeling a bit flat today after being given a letter that was sent to my GP by a specialist I saw last month. On the upside, the specialist does not doubt that I am fatigued and have unexplained pains,

March 18, 2011

I think the specialist has given you an important lead. Dysbiosis means an

imbalance of too many bad bugs in the gut. We all have some, but when they

overwhelm the good ones that causes many problems. So it is really quite a

specific thing to say, not just a catch-all like IBS.

Bob suggested Dr Myhill and she does know a lot about this problem.

Alternatively, Dr Natasha -McBride is a gut specialist who treats

dysbiosis.

I realise this isn't a very Politically Correct question, but do you really have

to follow a vegetarian diet? It is distintly unhelpful when trying to get rid

of dysbiosis. Anything undigested will feed the bad bugs, and this includes

fibre. What is more, sugars and carbohydrates feed the bad bugs, and it is very

difficult to go low carb enough to starve them out on a vegetarian diet. Also,

a high protein diet is needed for repair of the gut, and that is hard to achieve

on a vegetarian diet. Some experts go so far as to say that following a

vegetarian diet for many years will wreck your guts.

I am very interested in how you use rainwater for drinking. I have been

thinking of the same thing, so please would you post more about how you do this.

Miriam

> The specialist mentioned the 'new concept' of intestinal bacterial dysbiosis

syndrome but stated that investigation of this remains experimental. He

mentioned it because I'm still having gut issues even though I am on a gluten

free, sucrose free, lactose free, vegetarian diet! When I look up 'intestinal

bacterial dysbiosis syndrome' on google scholar it has lots of references to

Irritable Bowel Syndrome which I also thought was a term used by doctors when

they weren't sure what you have.

>

> I've tried so many things to get better - completely changed the way I eat (I

have healthy wholefood meals made from scratch nearly every day), I no longer

dye my hair to eliminate the possibility of introducing toxins from that source,

I drink rainwater (instead of our city's fluoridated water from the mains), etc

March 18, 2011

Hi P.,

You have my fullest sympathy! If I were you I would write to the consultant

pointing out his error, and insist he writes another letter to your GP with the

correct information, and an apology for his mistake! Sick of the lot of them

myself!

Anyway, to the good part - decided to give Niacin 500mg bd another try after

dipping into The Optimum Nutrition Bible again. Had been feeling really bad -

zombie is truly the best word to describe it! Have had a touch of thyroiditis I

think, too - throat is sore to touch and I feel as if I've got a headache in my

throat (maybe my brain slipped!) ~ Well, the night I took the niacin I slept

like a baby, the next day I felt bright and actually had some energy! Three days

later, I've been on the go since 8.30am, and am still bright eyed and bushy

tailed! Also been trying to cut down on anti-depressants, niacin seems to have

helped greatly no withdrawal symptoms except tinnitus is worse.

I'm not saying it's definitely the niacin, and maybe this wonderful feeling

won't last :-( but Ihaven't felt as good as this in at least 3 years. I've been

taking High Five by Viridian, which has 50mg niacin as well as other B's etc,

but it's the higher dose that seems to have done something good!

I really hope this information could possibly help you and others. If you're

already on it/tried it, and I'm preaching to the converted, I do apologise.

Best wishes

A

>

> Hello,

>

> This doesn't happen very often, but I am turning to the forum for a bit of

support today. I am feeling a bit flat today after being given a letter that

was sent to my GP by a specialist I saw last month. On the upside, the

specialist does not doubt that I am fatigued and have unexplained pains, but on

the downside, I'm a bit deflated by his lack of investigation into where we

should go from here. I also have a family related thing happening at the

moment, so that might be adding to my slightly sad mood right now.

>

March 18, 2011

Hi P

So sorry you are feeling down, its horrid when you feel you have no support from

people who should support you.

Did you ever get your progesterone tested? Have you tried Serenity at all. I

realy struggle with T3 and T4 as you know I only take small amounts in split

doses.

You did not mention Adrenal support and I can't remember if you are on it or

not. I know that thyroid people do better in summer than winter and it has been

a long winter. I reccomend getting outside as soon as you see a tiny bit of sun

just to get some vitamin D through your skin but you are probably getting out

for fresh air every day already.

I take starflower oil and have for years you might like to try that it has some

good stuff in it. I took it for bad skin at first but it treats more than that,

has Gamma Linolinic acid if I remenber correctly.

If there are some issues at home it will not be helping but try to put youself

first, and be kind to youself where possible.

Lots of Luv

Stephie

PS.Try Selenium??

athat source, I drink rainwater (instead of our city's fluoridated water from

the mains), etc etc etc. I supplement with vitamin B complex, Vit D, Vit C,

Folate and Iron, and will soon recommence using a Zinc supplement. I don't know

what else I can do???

>

> Thanks for listening to my whinge.

>

> Slightly deflated and 'over it' P

>

March 19, 2011

I just wanted to say thanks to everyone for your responses. I will write back to

you all a bit later. I've had a gut issue for the last few days and it has

flared up again so am not really up to writing tonight. I just wanted you all

to know that I really thank you for writing to me and I'll write back in the

next day or two. Thanks again. P

March 20, 2011

Hi P - I can

imagine your low and sad mood having read that specialist letter, especially as

you were both setting such store by what further investigations he might

recommend to get to the cause of your problem. Can you remind me of your last

full thyroid function test results, giving me the reference ranges. I wonder

whether anybody has actually investigated the possibility of you suffering

resistance to thyroid hormone (RTH). Do you know if this has been seriously

considered http://jcem.endojournals.org/cgi/content/full/84/2/401.

Read also http://www.hotthyroidology.com/editorial_79.html

Luv - Sheila

I know that lots of awful things are happening in the world at the moment and I

shouldn't really complain about a letter, and believe me I count my blessings

for everything I have, but right now I am feeling a bit deflated by all this.

I've tried so many things to get better - completely changed the way I eat (I

have healthy wholefood meals made from scratch nearly every day), I no longer

dye my hair to eliminate the possibility of introducing toxins from that

source, I drink rainwater (instead of our city's fluoridated water from the

mains), etc etc etc. I supplement with vitamin B complex, Vit D, Vit C, Folate

and Iron, and will soon recommence using a Zinc supplement. I don't know what

else I can do???

Thanks for listening to my whinge.

Slightly deflated and 'over it' P

March 23, 2011

Hi Mel,

Thanks for your message and for your support. As far as your situation goes, I

really hope things get better for you as things don't sound particularly great

for you at the moment. I hope that you manage to get an appt with your doctor

very soon. The one thing that makes me feel better about difficult things in

life is knowing that nothing stays the same forever, so hopefully some of the

challenging things you are experiencing right now will improve. In my experience

I have discovered that the one constant in life is change.

P xo

----------------------------

> I just wanted to reply as can relate to how youre feeling! I have been

diagnosed with hashimotos and taking thyroxine which is doing nothing. I have

been trying for two weeks to get an appt with my gp! Was told to ring today at

8am which I did, only to be told that he wasnt actually in today..I went back to

bed and have only now got up! I am feeling very low, and very hopeless. My

relationships have suffered, as well as my son due to all this. I recently

started seeing someone who has now had enough as I 'reacted' to something which

he regarded as ridiculous. That has set me back even further.

>

> Anyway I just wanted to provide some support so that you know youre not alone.

>

> hugs,

>

> Mel.

>

March 23, 2011

Hi Bob,

Thanks for your message. I've had a gut problem and then felt a bit 'over it'

for the last few days, hence the delay in replying to you.

No, I haven't contacted Dr Myhill. I am in Oz, so it might be difficult.

You mentioned that she has developed a test for low energy status ie low ATP and

low ATP/ADP ratio. I know nothing about this test so I will look on her website

to find out more details. I will also look at her website because you mentioned

she has lots of info on there.

Interestingly, my magnesium levels have been fine throughout all of this stuff.

I guess it wouldn't hurt to ask for a re-test.

Thanks again Bob.

P

---------------------

I'm sorry the 'blitz' has hit you ....

Did you try asking Dr Myhill about your condition ~ she's in the UK?

> has developed a test for low energy status ie low ATP and low

> ATP/ADP ratio.

> This may be associated with low magnesium.

> She has lots of free advice on her website.

> http://www.drmyhill.co.uk/ <http://www.drmyhill.co.uk/>

best wishes

> Bob

March 23, 2011

Hi Peary,

Thanks for your reply. I've been feeling a bit out of sorts and had a gut issue,

hence my late response.

Yes, I am on thyroxine 150mcg p/day.

Your endo appt sounds terrible. Hardly seems like it was worth the effort of

going to the appt. I don't think the docs can make us better, but I believe

they can be partners in TRYING to find ways of helping us to get better. My GP

is very supportive but he has run out of ideas, hence the appt with the

rheumatologist - he was hoping to get some ideas re tests, etc. Ultimately, it

is up to us to change diets, try different things etc, but in my case nothing

has made a long and lasting change for the better. Thanks for your list of

hints and ideas. There are some good ideas in that list. I've sent them to

myself in an email (: and will try some of your suggestions. Thanks for taking

the time to let me know about them. I appreciate it.

P

----------------------------

>

I'm not sure from your post whether you are on any thyroid meds at the

moment?.... I got the 'Fibromyalgia' diagnosis in 2005 and

this was without even being sent to a Rheumatologist! I was sent to an

Endocrinologist a year previous and was discharged after one

visit.Yes,one visit! He did nothing and said nothing helpful at

all.Spent most of the time on his mobile... I can only imagine the

useless letter he sent to my GP.

I think the point many people are missing(and I know this might annoy

some)is that none of these doctors are going to get us better.It is up

to us.I honestly think the majority of Rheumatologists in particular

have no clue in regards to the thyroid/ fibromyalgia connection.

When I was at my worst I took these steps.It didn't get me fully better but it

helped tremendously..........

March 23, 2011

Hi Miriam,

Thanks for reminding me about Dr Natasha -McBride. I recall that she

does a lot of work with kids who have autism and associated gut problems. I

will look up her info on the web.

I don't think you are being politically incorrect about asking me about my

vegetarian diet. I have been vego for a while now. I live with a carnivore who

kills and butchers his own meat and I don't mind preparing meat, but I have

absolutely no inclination to ever want to eat it again. I never say never to

anything, but right now I can't see myself eating it again. I had issues with

my gut when I ate meat as well, so it is much of a muchness. If anything, I

probably feel a bit better and less 'heavy' than before. I had tests at a

hospital and found out I have sucrose & lactose malabsorption issues and I am

gluten intolerant as well, so I have a pretty strict diet. I have a lot of

protein in my diet, but I don't obtain it from meat sources.

You asked about my use of rainwater. We have a farm in the country with an

underground stone tank. I get my water from there and cart it to our house in

the city. We have fluoridated water in town, so I avoid drinking it if

possible.

P

-----------------

I think the specialist has given you an important lead. Dysbiosis means an

imbalance of too many bad bugs in the gut. We all have some, but when they

overwhelm the good ones that causes many problems. So it is really quite a

specific thing to say, not just a catch-all like IBS......Bob suggested Dr

Myhill and she does know a lot about this problem. Alternatively, Dr Natasha

-McBride is a gut specialist who treats dysbiosis........I realise this

isn't a very Politically Correct question, but do you really have to follow a

vegetarian diet? It is distintly unhelpful when trying to get rid of dysbiosis.

Anything undigested will feed the bad bugs, and this includes fibre.

.......Also, a high protein diet is needed for repair of the gut, and that is

hard to achieve on a vegetarian diet. Some experts go so far as to say that

following a vegetarian diet for many years will wreck your guts.... I am very

interested in how you use rainwater for drinking. I have been thinking of the

same thing, so please would you post more about how you do this.

March 23, 2011

Hi ,

Thanks for your support. It is so nice to get this sort of support on the

forum, so thank you.

Wow, the Niacin seems to have hit the spot. I might ask my doc about it when I

see him next and see if it could help me. Thanks for mentioning it. I know that

you said you aren't sure whether it is the Niacin that is making you feel a bit

better or not, but I still think it is worth a mention to my doc. It is great

that you had 3 days of energy. Hopefully it has continued and you still feel

good. Is this the case?

I thought about writing to the consultant, but I might just clarify the

incorrect points at the next appt (if I have one), so when he writes to my GP

again the next letter will (hopefully) be amended. I'll make a point of raising

the issues in a careful way, but I agree that the points need to be rectified,

so the record is correct. I will put it that way to the consultant.

Thanks again for writing to me.

P

---------------------------------------

> You have my fullest sympathy! If I were you I would write to the consultant

pointing out his error, and insist he writes another letter to your GP with the

correct information, and an apology for his mistake! Sick of the lot of them

myself! Anyway, to the good part - decided to give Niacin 500mg bd another try

..... the night I took the niacin I slept like a baby, the next day I felt bright

and actually had some energy! Three days later, I've been on the go since

8.30am, and am still bright eyed and bushy tailed! ....I'm not saying it's

definitely the niacin, and maybe this wonderful feeling won't last :-( but

Ihaven't felt as good as this in at least 3 years. I've been taking High Five by

Viridian, which has 50mg niacin as well as other B's etc, but it's the higher

dose that seems to have done something good!........

March 23, 2011

Hi Stephie,

Thanks for your very supportive message. At the moment, I feel like I need

support so it is nice of you to write to me. I'm a bit fed up with the human

race (0: (or should that be /o:) so it is heartening to come onto the forum and

receive lovely support. THANKS to you and everyone else on here.

Yes, my progesterone levels are fine. I haven't tried Serenity, but I've tried

a different compounded progesterone cream in the past and it played havoc with

my menstrual cycle so I gave up and stopped using it. I don't think this

treatment is for me.

I don't use Adrenal support. This has always been a bit of a grey area for me.

I don't quite understand all the adrenal stuff and have read how true adrenal

failure is a pretty rare thing, and I look for medical evidence to support the

idea of adrenal problems, but all I get online is references to 'health'

products, etc. Maybe I'm looking in the wrong places??? As a result, I've kept

a wide berth. Not because I don't believe in it, but because I like to see

research about various things.

Over here in Oz, we have just had our summer season. I take Vit D supplements

because in the past, my levels were very low, even after spending an entire

summer working outside. The only thing that keeps my levels 'normal' are

supplements.

I've never heard of starflower oil. I will add it to my list of things to look

into. It sounds like it has benefited you quite a bit. I have been meaning to

re-start a supplement that contains selenium. Thanks for reminding me about

it!!!

P

-------------

>

> Did you ever get your progesterone tested? Have you tried Serenity at all. I

realy struggle with T3 and T4 as you know I only take small amounts in split

doses....You did not mention Adrenal support and I can't remember if you are on

it or not. I know that thyroid people do better in summer than winter and it has

been a long winter. I reccomend getting outside as soon as you see a tiny bit of

sun just to get some vitamin D through your skin but you are probably getting

out for fresh air every day already....I take starflower oil and have for years

you might like to try that it has some good stuff in it. ......PS.Try Selenium??

March 23, 2011

Hi Sheila,

I know. I still feel a bit low and fed up with everything. A cave is looking

like a lovely place to live at the moment. I guess it is just a mix of things

(healthwise and personal) that are helping to make me feel a bit blah.

I was also a bit low because I thought that if anyone else read that letter,

they wouldn't know what the inaccuracies were. My sister told me something that

was helpful. She told me that my GP knows my health related issues well and he

hasn't given up on me yet, so why would he do it now? That made me feel a bit

better because she is right. Trouble is that HE was looking for guidance

himself and wasn't given any. Most of the letter simply contained info about my

symptoms and the duration of my symptoms and some of that info was incorrect, so

it wasn't too helpful really. I will skilfully bring it up when the specialist

if I have another appt and make sure the record is straight. I might even term

it in such a way that I want to make sure he has the right information in case

it makes a difference to his diagnosis or advice to my doc. That way I keep him

on side, but I try and rectify the errors in his letter.

Sheila, The previous thyroid tests were done in late October 2010. Gee, I just

realised that it has been ages since I had my tests done. I decided not to test

until now because I started using a compounded T4 that contained no lactose just

before xmas. I thought I would wait a while and see how I responded to the

compounded T4. I am going to have another lot of test done within the week and

I will post the new results as soon as they come in and would really appreciate

your comments, if that is ok with you???? In the meantime, here are the old

results....

Date: 23/12/10

TSH: 0.13 (in ref range of 0.5 - 4.0)

Free T4: 19 (in ref range of 10 - 25 pmol/L)

Free T3: 3.8 (in ref range of 3.1 - 5.4 pmol/L)

My GP said something about guessing that I don't absorb thyroxine very well 'at

a cellular level' or something like that. I might have got that wrong. He

referred to my high reverse t3 levels, but we never really went any further with

that as I think years ago he mentioned something about s Syndrome which

even he said is probably dubious, so I was a very reluctant to take it further.

When we both decided it might be dubious, we didn't discuss it further.

Very interesting links. Thanks for posting them . I will ask the doc about RTH

and see what he says. I wonder what test they use to discover the mutant

thyroid receptor (TR)ß gene??? I will look into it further and discuss it with

the doc.

Thanks again for yet another supportive and helpful response Sheila. Most of

the time I toodle along ok, but sometimes things just 'get' to me and it is so

nice to know that I have the support of this forum.

P

-----------------------------------------------

>

> Hi P - I can imagine your low and sad mood having read that specialist letter,

especially as you were both setting such store by what further investigations he

might recommend to get to the cause of your problem. Can you remind me of your

last full thyroid function test results, giving me the reference ranges. I

wonder whether anybody has actually investigated the possibility of you

suffering resistance to thyroid hormone (RTH). Do you know if this has been

seriously considered

> http://jcem.endojournals.org/cgi/content/full/84/2/401. Read also

> http://www.hotthyroidology.com/editorial_79.html

>

March 24, 2011

I know this might be stating the obvious Pat, but do you have B12 injections?

Dr. prescribes just T3 for his s (temperature) Syndrome. As I understand it people who have high RT3 find it much better on T3 alone at a higher dose than when with T4. You mentioned that your doctor thought you might have s and also that you have RT3. Have you tried T3 alone?

The above might have already been suggested but I am a bit behind so I do not know.

Lilian

March 24, 2011

Dr -McBride has also written an excellent book about avoiding heart

disease. All these nutrition questions are inter-related.

If meat felt too heavy in your stomach, have you been tested for low stomach

acid? It is commonly associated with dysbiosis.

http://www.drmyhill.co.uk/wiki/Hypochlorhydria_-_lack_of_stomach_acid_-_can_caus\

e_lots_of_problems

In my experience, if a vegetarian says their diet is low carb, it is pretty high

carb compared to a carnivore's low carb. That is the main reason I am concerned

about it. You might not be able to go low carb enough to resolve the digestive

issues. Every single gut-healing diet I have come across excludes sugars and

cuts carbs radically.

It's a blessing in disguise if you have had tests showing you should avoid

sucrose, lactose and gluten. Those things are not good for many people, but

it's hard to get motivated to cut them out.

I am envious of your stone water tank. How is it water-proofed? My

grandparents used to have one made of concrete, but I don't suppose that is such

a good storage medium.

Miriam

>

> Hi Miriam,

> Thanks for reminding me about Dr Natasha -McBride. I recall that she

does a lot of work with kids who have autism and associated gut problems. I

will look up her info on the web.

>

March 24, 2011

Hi Lilian,

Thanks for asking.

B12 injections have been discussed with my doc and my previous neurologist in

the past. My previous neurologist suggested oral supplementation with

sublingual B12, but it did absolutely nothing. My B12 levels were quite good

anyway, but I used the oral supplements to see whether they would help with some

neurological symptoms I was having, but the B12 did not help.

I think 's ideas are a bit dubious, and even my doc who is a bit

'progressive' questions his methods and ideas and that is why we discounted it.

Regardless of that and for other reasons, I have tried T3 on two separate

occasions in the past (very low dose) and had bad side effects so I don't want

to try it again.

P

-----------------

>

> I know this might be stating the obvious Pat, but do you have B12 injections?

>

> Dr. prescribes just T3 for his s (temperature) Syndrome. As I

understand it people who have high RT3 find it much better on T3 alone at a

higher dose than when with T4. You mentioned that your doctor thought you

might have s and also that you have RT3. Have you tried T3 alone?

>

> The above might have already been suggested but I am a bit behind so I do not

know.

>

March 24, 2011

Hi P - have you ever been tested to see if you have systemic

candidiasis - and could it be possible this might be an underlying cause of y

our gut problem and the reason why T3 doesn't work for you?

As far as you not understanding the adrenal problem and that

true adrenal failure is a pretty rare thing, this is not the case. What IS rare

is doctors acknowledging that such a thing as low adrenal reserve (or adrenal

fatigue) exist - when such a condition is one of the stages that leads up to

's Disease. I would advise reading http://www.tpa-uk.org.uk/thyroid_adrenal_dysfunction.pdf

plus the information in our files thyroid treatment/files/ADRENALS/

- especially

'18 overlooked symptoms'

'Adrenal Extremes'

'Adrenals, lots you need to know'

….and, at the end of the day, answer all the questions in

our 'Medical Questionnaires' FOLDER on both the adrenals and candida which will

help you find out whether either of these could be a problem for you.

Luv - Sheila

I don't use Adrenal support. This has always been a bit of a grey area for me.

I don't quite understand all the adrenal stuff and have read how true adrenal

failure is a pretty rare thing, and I look for medical evidence to support the

idea of adrenal problems, but all I get online is references to 'health'

products, etc. Maybe I'm looking in the wrong places??? As a result, I've kept

a wide berth. Not because I don't believe in it, but because I like to see

research about various things.

>

> Did you ever get your progesterone tested? Have you tried Serenity at all.

I realy struggle with T3 and T4 as you know I only take small amounts in split

doses....You did not mention Adrenal support and I can't remember if you are on

it or not. I know that thyroid people do better in summer than winter and it

has been a long winter. I reccomend getting outside as soon as you see a tiny

bit of sun just to get some vitamin D through your skin but you are probably

getting out for fresh air every day already....I take starflower oil and have

for years you might like to try that it has some good stuff in it. ......PS.Try

Selenium??

March 24, 2011

Hello Sheila and everyone,

At last I am getting the daily digest. I have changed over to BT and

have had so many problems and, no, Sheila I still have not had one email

from you! Wish I had stuck with Virgin but as I had a new PC - a

birthday gift from my husband - I decided to change server as well.

Then everything went downhill.

However, I am pleased to report that health wise I am having better days

and even managed to walk my little dog one day. I can now manage the

super market without my mobility scooter and get through the day in a

much better way although I still have some way to go.

Dr P thought that I had conversion problems and three weeks or so ago

suggested half grain of t3 and no NT. That was fine at the beginning

and as he suggested that after a week I increased it slowly I took

another quarter. But then my heart started playing up and pulse at

120. So I stopped for one day and then as I had an appointment to speak

to Dr P again yesterday I waited before I took any more. He said that

my charts look much better and that as we get older (SHHH)we are more

sensitive to medicines. I am hypersensitive anyway. So he has said to

try and tolerate half a tablet and tinker with it until I find the right

level for me. He also said he thought I was in too much of a hurry and

that I increased the NAX too quickly as I went up to five and am now

down to three. He said to increase that very gradually too.

He then asked how my young man was doing (my husband is 83) and went on

to explain what he might do to improve his quality of life.

What an absolutely lovely guy this doctor is and for all of you who have

asked what would happen when he packs up, he chuckled and said he is

never going to pack up!

So, I will continue with the medicines. Oh! the other thing I now have

is parathyroid problems and Dr P said it may need a small operation on

my throat area but it has nothing to do with the thyroid. Just another

problem to contend with!

Wishing everyone better health and happiness on this most glorious of days.

Love

Audrey

March 24, 2011

Hi Audrey

Thank goodness you have written on the forum, I have been hoping

you would do that so that I could tell you that I have responded to every

single message you have posted but you kept writing to say you weren't

receiving them. Eventually, I sent them TWICE to to ask her to send my

responses on to you also in case there was a problem my end,

but you were not even getting her messages either. I will copy what I sent and

send to your 'Audrey [audrey.revell371@...] ' and this time, if you

receive them, please let me know on the forum. I have actually sent a copy of

these before posting this message to the forum so you should by now have

received it. It is awful writing responses to people and then them telling you

they are not receiving anything from you, especially as I sent them (as did

) to your btinternet address and then to your address that you had

previously registered with on the forum. I hope this has now cleared up the

problem once and for all.

I also kept checking your registration details on the forum and

there appeared to be no reason whatsoever why you were not getting the Daily

Digest. All I could think was that when you set up your new email address, it

had not been done correctly so you could receive messages from the forum.

I am so pleased to hear that you are having better days.

When you try to increase your dose and start to get thumping

heartbeats, have you tried magnesium 500mgs to see if that helps. It usually

helps considerably.

Good luck with getting your parathyroids sorted Audrey. Have you

yet seen anybody about this problem?