Guest guest Posted March 25, 2011 Report Share Posted March 25, 2011 Hi All, You might remember I split my dose 50 mcg of levothyroxine and take one at am and one at pm. I recently took the two in the morning within an hour or two of each other and by tea time the swelling was horendous. My ankles were very swollen and legs. My belly was like before I stopped eating wheat. So uncomfortable I cant tell you, by next morning all was ok. Any help please? Not that I will be trying it again as it was so scary. Luv Stephie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2011 Report Share Posted March 26, 2011 Seems you could be intolerant of the lactose and maize that are fillers in the levothyroxine Stephie and your GP needs to prescribe the pure form of levothyroxine (with no fillers) that is available from dale's Pharmacy. Check out the following in our FILES section: COMPOUNDED THYROXINE AND TERTROXIN FOR PEOPLE UNABLE TO TOLERATE THE FILLERS IN LEVOTHYROXINE AND LIOTHYRONINE. If you are unable to tolerate the NHS levothyroxine or Tertroxin because of the fillers, you can get both of these specially compounded by dale's Pharmaceuticals. Many people cannot suffer lactose intolerance. Many doctors cannot grasp that if someone is intolerant of a substance they will react adversely to the tiniest amount, if taken day after day. Your doctor can prescribe you the hypoallergenic levothyroxine on the NHS. dale's only deal with certain pharmacy chains (and will not deal directly with the public). The main 2 pharmacists in England are Lloyds and Tesco's. I think dale's may deal with additional pharmacy chains in Scotland or Ireland if you are located there. The wording on your prescription must state - " cellulose capsules of pure levothyroxine, in inert hypoallergenic granules, as per dale's Pharmaceuticals " plus the strength you require. If you do not have this wording, the Lloyds or Tesco pharmacist will not order the special capsules for you, because the extra cost would not be reimbursed to them by the NHS. dale's can make up any strength caps, as each order is individually tailor-made for the customer. But only standard measurements are recognised by the NHS e.g. 25 mcg, 50 mcg, 100 mcg, so if your dose is say 75 mcg a day, then you need the doctor to write both strengths on the script (i.e. 28 caps of 25 mcg and 28 caps of 50 mcg) - just as would be the case with other NHS items. When you take your script to the chemist it may be the first time that branch has been asked for a special order of hypoallergenic levothyroxine. Don't be put off if the pharmacist says it can't be done - just insist they phone dale's and ask them. (One Tesco pharmacist insisted they didn't even deal with dale's, and only changed their mind after contact with their Head Office). The other thing to bear in mind is that dale's usually supply orders of a minimum 100 capsules at a time. They may agree to a smaller run but it would not be cost effective for the NHS, as 50 capsules would cost almost as much as 100 would. So either you need to ask your GP to prescribe you 100 caps at a time (my GP won't!) or else turn on all your charm, and persuade your chemist to agree to carry the upfront cost of ordering in 100 capsules at a time, dispensing you 28 at a time, and keeping the rest on the shelf until you bring in your next script. dale's usually take about 10 days to 2 weeks to process an order. Hope this is of help. Good luck with your GP ! Hi All, You might remember I split my dose 50 mcg of levothyroxine and take one at am and one at pm. I recently took the two in the morning within an hour or two of each other and by tea time the swelling was horendous. My ankles were very swollen and legs. My belly was like before I stopped eating wheat. So uncomfortable I cant tell you, by next morning all was ok. Any help please? Not that I will be trying it again as it was so scary. Luv Stephie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2011 Report Share Posted March 26, 2011 Thanks Sheila I have printed out the file and will make an appointment armed with the information, it would make a lot of sense to be intolerant as I have been suffering the swelling to a greater or lesser degree ever since I started taking levothyroxine when I was first diagnosed vack in 2007. Luv Stephie > Seems you could be intolerant of the lactose and maize that are fillers in > the levothyroxine Stephie and your GP needs to prescribe the pure form of > levothyroxine (with no fillers) that is available from dale's > Pharmacy. Check out the following in our FILES section: > > > > > Hope this is of help. Good luck with your GP ! > > > > > . My ankles were very swollen and > legs. My belly was like before I stopped eating wheat. > So uncomfortable I cant tell you, by next morning all was ok. Any help > please? Not that I will be trying it again as it was so scary. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2011 Report Share Posted March 26, 2011 Hi Stephie, Please let us know if you get anywhere with your GP in regards to getting purified thyroxine precribed.I am keen to try this myself too. Regards Peary >> Thanks Sheila> > I have printed out the file and will make an appointment armed with the information, it would make a lot of sense to be intolerant as I have been suffering the swelling to a greater or lesser degree ever since I started taking levothyroxine when I was first diagnosed vack in 2007.> Luv Stephie> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2011 Report Share Posted March 26, 2011 > According to the pharmacist at Lloyds, liquid thyroxine is easy to get hold of and much cheaper now that it was ten years ago, he also said that the majority of chemists will supply it, not just Boots. Glynis > Hi Stephie, > > Please let us know if you get anywhere with your GP in regards to > getting purified thyroxine precribed.I am keen to try this myself too. > > Regards Peary > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Hi Glnis, Yes I will feedback to you!! Luv Stephie > > > According to the pharmacist at Lloyds, liquid thyroxine is easy to get hold of and much cheaper now that it was ten years ago, he also said that the majority of chemists will supply it, not just Boots. > Glynis > > > > Hi Stephie, > > > > Please let us know if you get anywhere with your GP in regards to > > getting purified thyroxine precribed.I am keen to try this myself too. > > > > Regards Peary > > > Quote Link to comment Share on other sites More sharing options...
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