RE: 1st App in the morning Help please

[Guest guest]

Hello

Many of our 2100 members here have been previously given a

diagnosis of either fibromyalgia FM, chronic fatigue syndrome (CFS) and some, even

ME and found that the real cause of their symptoms was a lack of the active

thyroid hormone T3. Once they were started in T3, they found their symptoms started

to disappear, many regaining normal health once more. These three diagnoses are

given by doctors who don't know what is causing their patients symptoms,

because their thyroid function tests are within the normal reference range, yet

they still complain of symptoms.

Perhaps you should simply print off the following and take it to

your endocrinologist so you could discuss the possibility of starting a trial

of Liothyronine - T3:

http://www.FibromyalgiaResearch.org/solved/

by Dr C. Lowe

Diplomate: American Academy of Pain Management

Director of Research: Fibromyalgia Research Foundation

January 25, 2007

Nowadays, when patients complain to their doctors that they suffer from chronic

widespread pain and abnormal tenderness, the diagnosis they usually get is

" fibromyalgia syndrome. " The doctors usually tell the patients,

" We don’t know what causes this condition, and treatments

don’t work well, so you’re going to have to learn to live with

it. "

Most

patients don’t just live with it. They try various treatments, none of

which—as their doctors told them—work well. Some use

antidepressants, others narcotics. But researchers tell us that patients most

often say that two treatments at least make their symptoms more tolerable;

these treatments are massage therapy and chiropractic care. Many patients

also take nutritional supplements and say these make them feel better, but

not fully well.

For

almost forty years now, most fibromyalgia researchers have repeatedly said

they don’t know the cause of fibromyalgia. They also say publicly that

they’ve never gotten a patient well, and they have nothing but drugs to

offer. (At best, the drugs slightly reduce the severity of some patients’

symptoms. More often, the drugs make patients feel worse, so they stop taking

them.)

These

researchers often make these statements in journals, at professional

conferences, and at public presentations. Each time they do, they ignore a

line of evidence that points directly—and conclusively—to the

main underlying cause of fibromyalgia. That cause is too little thyroid

hormone regulation of patients’ bodies. The deficient thyroid hormone

regulation results from two conditions. First is an undiagnosed or undertreated

deficiency of thyroid hormone. Second is the resistance of patients’

tissues to thyroid hormone. " Resistance " means that patients’

tissues need higher than " normal " amounts of thyroid hormone to

maintain normal metabolism.

Several

factors in addition to deficient thyroid hormone regulation complicate many

patients’ conditions. The four most common are nutritional

deficiencies, an unwholesome diet, poor physical fitness, and drugs that slow

metabolism. Some patients also have deficiencies or imbalances of other

hormones, such as cortisol, estrogen, and progesterone.

How

do we know now that too little thyroid hormone regulation is the major cause

of fibromyalgia? Because our two new studies provide the final pieces of the

puzzle. With these pieces in place, the proof that too little thyroid hormone

regulation is the main underlying cause of fibromyalgia becomes irrefutable,

as I show in the technical document at http://www.FibromyalgiaResearch.org/solved/

In

this short article, I don’t attempt to explain that proof. My reason is

that the explanation is extremely complicated. To enable readers to

comprehend the proof, I had to use more words and categorical displays of evidence

than space here allows. Showing that the proof is indisputable requires that

we examine it within the context of a field of logical

discourse—deductively formulated theory—familiar for the most

part only to philosophers of science, deductivist logicians, and genuine

scientists such as mathematical physicists. My editor, Jackie Yellin, and I

worked hard to make the technical document as understandable as possible.

We’ve done this so that physicians, medical researchers, and

inquisitive patients can see that the premises of my argument are true, that

the argument itself is valid, and that the overall proof is, indeed,

incontestable.

Here,

however, I simply present the line of evidence—evidence that most

fibromyalgia researchers have entirely ignored. And because they’ve

ignored the evidence, they’ve failed to understand the nature of and

the solutions to fibromyalgia. I trust that most patients and doctors who

open-mindedly look at the evidence will clearly see a tragic historical fact:

other fibromyalgia researchers, through their studies over forty years, have

unwittingly unearthed the holy grail of fibromyalgia; yet throughout those

forty years, they’ve uniformly failed to realize what they found.

They’ve failed to recognize what the evidence compels open-minded

individuals to understand - that the problem of fibromyalgia is solved.

…………………………………………………………………..

Have

a look in OUR FILES section accessible from the Home Page of this forum.

Scroll down the list to 'NHS Information for Patients' - open 'First Visit to

Endocrinologist' and you will get lots of hints and tops there with questions

you might want to ask. Be sure to take a pen and paper with you to write down

the answers - better still, take somebody with you who would do this for you.

Print

off the attached document that gives links as to the reasons why you need

your levels of ferritin, B12, vitamin D3, magnesium, folate, copper and zinc

testing that show your thyroid hormone is unable to be properly utilised at

cellular level if any of these are low in the reference range. Ask also, for

a copy of the results together with a copy of the reference range for each of

the tests done. Be sure also to ask for your blood to be tested for TSH, free

T4, Free T3 and also to see whether you have TPO and/or TgAb antibodies.

Good

Luck.

Luv

- Sheila

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of

Sent: 20 March 2011 08:53

thyroid treatment

Subject: 1st App in the morning Help please

Hi everyone

Im new to all this so please bare with me as foggy brains don't take in info

very well (i am trying) lol

Im all fired up for this but not sure what to ask for

can anyone please give me some help and advice in what to ask for i've had

fibro for years and now i want HELP,,, not being patted on the head and pushed

away with a " it's fibro , learn to live with it "

what do i ask for? more blood tests as i had them done about a years ago,

do i need to add to these like B12 etc.........

can anyone tell me what Reverse T3 and SST are ?

Are there any print off " s i can take ?

Sheila could you please let me have that list of " good " doctors thank

you

Thank you

1 of 1 File(s)

MINERALS AND VIT. TESTING.doc

[Guest guest]

Hi there

I ended up in hospital on Sunday ,  so all the tests have been done and still

feeling fatigued  joint pain and cold etc. Fibromyalgia it is then  

TSH 1.17

Free T4  16.5

Free T3   5.5

[Guest guest]

......Fibromyalgia it is then ..... Hello ,

Yeah – fibromyalgia it is- no doubt....- but what causes your fibromyalgia??? Don't throw in the towel just yet because your thyroid results look "normal" J - every sign or symptom has an underlying cause – find the cause and treat it and the symptoms will go away.

TSH 1.17Free T4 16.5Free T3 5.5You haven't given any ref ranges, but even without having them I can see that your figures look "normal" ..... but that does not necessarily mean you won't be hypothyroid. As Dr. Datis Kharrazian says in his book "Why do I still have thyroid symptoms when my lab tests are normal?" (quote) One reason hypothyroidism often goes misdiagnosed is because a person with Hashimoto's can present with normal TSH (unquote) [good book that, btw – you may want to buy it]. This person can equally present with "normal" FTs because when an autoimmune flare-up destroys thyroid tissue and hormones stored in the thyroid gland excrete into the bloodstream, producing "normal" FTs. If you want to see the full picture, your need a bit more investigation, namely to check the thyroid antibodies – TPO, TgAB & TRAB (all on NHS). In addition you would need to test for Celiac disease and Candida Albicans. The Celiac test can be done on NHS, the Candida test you may have to do privately since the NHS does not recognize systemic Candida overgrowth.

But you need even more testing.... Ferritin, Folate, Magnesium, Zinc, Copper, Vit B12 and Vit D3. – all tests that can be ordered on NHS, but it may need some persuading on your part, because some of those tests are costly, and doctors don't see the relevance because they know very little about the thyroid function. This is not something they have been taught at med school. If you were low (even low within the norm range) in any of those parameters, this could prevent the active thyroid hormone from getting into the cells, where it is needed.

Furthermore you need to check for possible adrenal fatigue. The adrenals produce cortisol and sufficient cortisol is needed to transport thyroid hormone into the cells and to keep you same J (meaning you need enough for being able to cope with stress). Please read all about adrenal fatigue in our files, do the questionnaire and if you score high, then you may need to have a private salivary adrenal profile. No point in discussing that with your doctor – adrenal fatigue does not exist as far as the NHS is concerned.

However – having done all of the above, there is more.... gluten, yeast and sugar, and in some patients lactose, are our declared enemies. Even if you do not test positive for celiac disease, you can still be intolerant to gluten. Apparently – I learned from Dr. Kharrazian's book – the gluten molecule is almost identical to the thyroid gland molecule and a confused immune system might misidentify and attack gluten in a gluten intolerant person, leading to a permanent `war' inside your body which can not only lead to bowel problems but also to muscle pain and bone pain. So avoiding gluten might help a great deal with your symptoms even if you were not hypothyroid. The same goes for avoiding sugar and yeast and many of us are also lactose intolerant in addition.... the symptoms for all – gluten, yeast, sugar or lactose – are pretty similar – muscle pains, joint and bone pain, bowel trouble, fatigue, brain fog, skin problems to name just a few.... the list is endless.

If, by any chance, your thyroid antibodies came back positive, then that alone would be diagnostic for Hashimoto's disease, regardless of the figures in your thyroid panel.... sadly most of our doctors do not agree, but this does not make it less true.

Also – measure your basal temperature for 4-5 days first thing in the mornings when you open your eyes and last thing at night before falling asleep. Women who have not reached menopause should do this from the 2nd day of their period – for menopausal women any days will do. If the temps are constantly subnormal, then that in itself would be a sign for low thyroid hormone. According to Dr. Peatfield there are only 4 conditions other than hypothyroidism that can produce constant subnormal basal temperatures – hypothermia, alcoholism, liver disease and malnutrition.

Tip: a couple of days before you have your thyroid antibody test eat a lot of gluten containing foods.... if you did have autoantibodies, that will make them come to the fore (according to Dr. Kharrazian).

Good luck