Low counts

[Guest guest]

for those with low counts I have updated my blog

with new counts

http://easyskip.tripod.ca

Remeber that I am in a different situation than

most others.. This blog is for information only

and need not apply to anyone but me...

SkipD

DX 29 years ago

now on Nilotinib (AMN107)

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[Guest guest]

Thank you again. Am glad i am ok. Am seeing my doctor in the morning to refill

my glivec pact. But does it signifies road way to remission? I have 2 bmt. First

showed 44% -heterogenous. I may see my second test tomorrow which i feed the

group with. Please will the skin colouration ever change. Now that am ok with

the difference, and your explanation am happy. Oh my wife understands and

encouraging. J.

On Wed, 30 Mar 2011 22:27 BST Lottie Duthu wrote:

>Dear J ,

>Everyone is different, but I can say that my WBC stays around 2.0 and that is

low. I think most of us have low hemoglobin. Mine is about 9.2, too high for a

blood transfusion, but I have had many of those. Hemocratit is also low. I

would not worry about the platelets unless they drop below 50. Mine went down

to 30. Skip can tell you his is sometimes even lower. It's amazing how the

body compensates where one thing is low, something else is high.

>

>I have high blood pressure, but very low pulse. The other day it was 84 and

the nurse wanted me to go to the hospital. I also have very high potassium

counts and the doctor said with the combination of all 3, I could drop dead at

any time.

>YOu are welcome to post your results any time or discuss anything, you will

always have someone who has had it before you, and can comment on what their

experience was. No matter where you live, or skin color or ethnic origin, it is

all CML and we suffer the same problems around the world and we try and help

each other understand what we are up against and what we can do and how to

educate ourselves, so that you can bring up these problems to your doctor. My

white blood count has gone down to 1.0 and the next week it was back up to 2.0.

It doesn't mean it will stay that way that is why we have frequent blood tests.

I hope you have a good, understanding doctor and a wife who attempts to

understand it as well. My husband does not understand or remember everything

that I tell him, but he looks at my WBC results every week and knows when I am

in trouble. He even understands my mood swings and can tell in my face whether

I am having a good or bad day.

We are here for you if you have any questions.

>Best of luck,

>Lottie Duthu

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