Guest guest Posted July 12, 2001 Report Share Posted July 12, 2001 Pat - The important thing to remember is that while most all autoimmune disorders have that one distinguishing factor (like a positive Rh factor for RA, or the HLA-B27 antigen for PA), a negative result does NOT rule out the disease. I have the negative Rh factor and positive HLA-B27 antigen, but my symptoms are more in line with RA than PA.. to satisfy the insurance company, I am classified as PA, and my doctor works on my treatment in both RA and PA treatment procedures. So, while you tested negative for Sjogren's, that doesn't rule it out completely.. make sure you keep an eye on it (no pun intended) and make your rheumy aware of any new symptoms. My younger sister has Reynaud's, with none of the positive blood factors associated with it, and she is only being treated for it because she kept after her doctor with the symptoms. --- Pat B <PBias@...> wrote: > Since being on the medications I have had increased > eye pressure. Bad > enough I had to start taking blood pressure med > because of the pain > and inflammation roller coastering the BP. The eye > Doctor kept doing > eye tests for over a year and now he gave me some > drops to take since > the pressures roller coaster. High running around > 31-28 when should > be well below 22. He said to put one drop in at > night for three weeks > in only the left eye and come back to see what > results there are to > compare eyes. Last night I put the drop in and this > morning I can > feel a definite difference in the eyes. Strange. > I know we are suppose to keep a watch for Irisitis > and I have already > had the lower duct plugs put in for dry eyes. Eye > doc sez Sjorgen's > Syndrome while Rheumy said he did the blood test and > it came back > negative. All I know is what I feel and the eyes are > moister since > the plugs were put in the tear ducts. > Will let you know how the eye drops work.... > > PatB > (the one in Alabama) > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 I have been on drops for about 3 years, to control the pressure in my eyes. My pressure has remained low since January when I had my first cataract surgery. I had the other cataract removed 3 weeks ago and now my opthamologist is going to try taking me off the drops and watch me carefully to see if it starts to go up again. He also said that once you start the drops you need them for life, seems maybe not !! Patsy (63) El Mirage, AZ DX 2005 Stage 1 PBC AIH/SLE/RA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Hi Connie, I am new to the group and haven't even introduced myself yet - I am Jaana, 46, from Finland, diagnosed with a very violent type of AIH 2,5 years ago. Further introduction will have to wait till tomorrow, since I am dreadfully tired right now. I just thought I'd quickly reply to your message as it caught my eye. I am pretty much in the same situation as you, my pressures are on about the same level and eventually my eyes are going to have to be operated due to the glaucoma - even if I get off cortisone one day, the changes that are already there won't go away. I just started medication for the eye pressure last week. The most common type of drop is a type of beta blocker, which usually works well but may have side effects. If you have any cardiovascular problems or asthma, ask the doctor to prescribe a different kind of drug. I don't have heart problems but I still didn't want beta blockers, so I got something that is called Xalatan, with latanoprost (prostaglandin). The most often mentioned side effect of those is the darkening and lengthening of the lashes and the darkening or changing the eye colour into brown. In Finland before the doctor can prescribe these drugs, a more comprehensive check must be carried out. The pressure is then measured 3 times within one day, which gives a much more reliable picture of the real situation. Like blood pressure, eye pressure can change significantly in the course of the day. Mine, for example, was 29 in the morning, 26 at midday and 24/25 in the evening. You might want to ask for that type of check as well before starting on the medication. The doctor should also examine the fundus of the eyes for any damage, as well as perform a test on your field of vision. That is to check for any damages that might already have taken place. Also, starting the drops does not necessarily mean you are on them for life, on the other hand, even if you were able to go down on cortisone, the pressure doesn't necessary go down as well (often does, though). My Mother used the drops (her glaucoma was due to her age) for about ten years, after which the tests showed she didn't need them anymore. It is an individual thing. However, do NOT fear the drops - they are a reasonably simple method of keeping your eyes in good shape and stopping any damage happening to them. Jaana - > > I went to the eye Dr. today and was told the pressure in my eyes are > slightly elevated. Caused from the high doses of Prednisone that I > have been on. The pressure should be nomal 21. and mine are 25 and 28. > The high pressure in your eye can lead to Glucoma. I go back to have > the pressure checked again in a month and if it is higher Doc will > give me eye drops. He said once you are on drops you are on them for > life. His hopes is that when I have my next blood test done (Thursday) > that I will be able to decrease the Prednisone. Everyone Please Pray > that I can decrease the Prednisone and that eh pressure goes down. > Does anyone else have this problem, I am only 43 Dx with AIH in 05. > > Connie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2007 Report Share Posted February 20, 2007 Hi all-- My husband has had some eye pressure lately---he says he cant really classify it as a headache, it is more localized to the eye area. And it always seems to be on his left eye--the eye that he usually does have edema in (on?). Does anyone else experience this? He thinks it may be due to the edema that is due to the Gleevec. He is seeing a opthamologist Friday to have his eye checked out, we just thought we'd ask the forum to see if anyone experiences this. Often, when he has it, Tylenol does not help the pain (though he said he cant really call it " pain " , more of an " ache " )...the only thing that seems to help is for him to lay down for about 30 minutes and close his eyes. Anyone else experience this? _________________________________________________________________ With tax season right around the corner, make sure to follow these few simple tips. http://articles.moneycentral.msn.com/Taxes/PreparationTips/PreparationTips.aspx?\ icid=HMFebtagline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2007 Report Share Posted February 20, 2007 Hi , I don't know what's causing your husband's eye pressure but it doesn't sound like it could be from the edema (to me). Most of us find that the periorbital edema (eye edema) gets worse after lying down. That's why it's always worse when we wake up in the morning and subsides after we've been upright for a while. So if your husband's problem is improving after lying down, it doesn't sound like edema would be the cause. I hope the ophthalmologist can help him. Take care, Tracey > > Hi all-- > My husband has had some eye pressure lately---he says he cant really > classify it as a headache, it is more localized to the eye area. And it > always seems to be on his left eye--the eye that he usually does have edema > in (on?). Does anyone else experience this? He thinks it may be due to the > edema that is due to the Gleevec. He is seeing a opthamologist Friday to > have his eye checked out, we just thought we'd ask the forum to see if > anyone experiences this. Often, when he has it, Tylenol does not help the > pain (though he said he cant really call it " pain " , more of an " ache " )...the > only thing that seems to help is for him to lay down for about 30 minutes > and close his eyes. > > Anyone else experience this? > > > _________________________________________________________________ > With tax season right around the corner, make sure to follow these few > simple tips. > http://articles.moneycentral.msn.com/Taxes/PreparationTips/Preparation Tips.aspx?icid=HMFebtagline > Quote Link to comment Share on other sites More sharing options...
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