Another Newby

[Guest guest]

welcome to the group DSK

[Guest guest]

you will find lots of people here to listen. this is a great group. a good place to vent and to get advice. i hope you are feeling better soon. hope to talk to you again. evelynanotherdsk <anotherdsk@...> wrote: I'm new to this loop and am one frustrated chick.I've been diagnosed as having fibromyalgia, polymyalgia rhumatica, arthritis (osteo with inflamatory component--whatever that is) and some sort of autoimmune disorder.Now I have mouth lesions and more recently lesions on my skin. Dentist won't touch my mouth. Sent me to peridontist who has seen me for 6 months and the treatment he has prescribed is doing nothing to heal the mouth lesions. He said it may take a long time. eeeek 6 months is a long time to me. And the doc gave me

a steroid cream for the skin lesions. I'm on prednisone, tacromilis and the steroid cream. (My children (adults) remind me that I'm in pretty good shape for my age since my heart is good, liver is good, colon is good and I'm mobile. (I really am grateful for those things!)Of course, my kids don't wake up one day knowing that today they don't dare drive a car or use the microwave or kitchen range or walk very far from the front door. And, they don't look with longing at the steak knowing they better stick with a mashed potato because that's all that will make it through a painful mouth. Okay, I feel better. Just needed to vent. Thanks for listening. Now delete the post.DSK ~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at

/chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical

conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Bless your heart honey. How well do you eat? As in, do you try to find the best nutrition for your body? You might look into juicing. If you do a combination of fruits and vegetables, they would cleanse and build up your cells and maybe help your body heal itself. We have an amazing immune system even if it doesn't act right all the time. We unfortunately abuse it quite a bit without realizing that all the processed foods we eat are really what can make us sick. Just an idea. I know for myself just a plan of action helps. Christy I'm new to this loop and am one frustrated chick.I've been diagnosed as having fibromyalgia, polymyalgia rhumatica, arthritis (osteo with inflamatory component--whatever that is) and some sort of autoimmune

disorder.Now I have mouth lesions and more recently lesions on my skin. Dentist won't touch my mouth. Sent me to peridontist who has seen me for 6 months and the treatment he has prescribed is doing nothing to heal the mouth lesions. He said it may take a long time. eeeek 6 months is a long time to me. And the doc gave me a steroid cream for the skin lesions. I'm on prednisone, tacromilis and the steroid cream. (My children (adults) remind me that I'm in pretty good shape for my age since my heart is good, liver is good, colon is good and I'm mobile. (I really am grateful for those things!)Of course, my kids don't wake up one day knowing that today they don't dare drive a car or use the microwave or kitchen range or walk very far from the front door. And, they don't look with longing at the steak knowing they better stick with a mashed potato because that's all that will make it through a painful

mouth. Okay, I feel better. Just needed to vent. Thanks for listening. Now delete the post.DSK ________________________________________________________________________________________________________________________________________________Message 2 From: "acarpe6119@..." acarpe6119@...Date: Fri May 12, 2006 8:14pm(PDT) Subject: Re: What is a yearly physicalHave the HMO's stepped to a new low on physical exams to avoid expenses, the yearly one I refer toI had mine today, he listened to my heart, took b/p ,pulse rate. listened to my carotids that's all he did! Sent me for a blood test for glucose.. I am shocked.I always thought a physical was to examine all facets of our bodiesHave known my doctor for nigh on 20 years, this is the first time this has

occurredAnne________________________________________________________________________________________________________________________________________________~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no

email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~------------------------------------------------------------------------

[Guest guest]

Good Luck! Sueanotherdsk <anotherdsk@...> wrote: I'm new to this loop and am one frustrated chick.I've been diagnosed as having fibromyalgia, polymyalgia rhumatica, arthritis (osteo with inflamatory component--whatever that is) and some sort of autoimmune disorder.Now I have mouth lesions and more recently lesions on my skin. Dentist won't touch my mouth. Sent me to peridontist who has seen me for 6 months and the treatment he has prescribed is doing nothing to heal the mouth lesions. He said it may take a long time. eeeek 6 months is a long time to me. And the doc gave me a steroid cream for the skin lesions. I'm on prednisone, tacromilis and the steroid cream. (My children (adults) remind me that I'm in pretty good shape for my age since my heart is

good, liver is good, colon is good and I'm mobile. (I really am grateful for those things!)Of course, my kids don't wake up one day knowing that today they don't dare drive a car or use the microwave or kitchen range or walk very far from the front door. And, they don't look with longing at the steak knowing they better stick with a mashed potato because that's all that will make it through a painful mouth. Okay, I feel better. Just needed to vent. Thanks for listening. Now delete the post.DSK ~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a

moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ ***

~~~ *** ~~~ *** ~~~~

[Guest guest]

I forgot to mention one thing......No matter how bad off you are, there is always someone else who is worse. Sueanotherdsk <anotherdsk@...> wrote: I'm new to this loop and am one frustrated chick.I've been diagnosed as having fibromyalgia, polymyalgia rhumatica, arthritis (osteo with inflamatory component--whatever that is) and some sort of autoimmune disorder.Now I have mouth lesions and more recently lesions on my skin. Dentist won't touch my mouth. Sent me to peridontist who has seen me for 6 months and the treatment he has prescribed is doing nothing to heal the mouth lesions. He said it may take a long time. eeeek 6 months is a long time to me. And the doc gave me a steroid cream for the skin lesions. I'm on prednisone, tacromilis and the steroid cream.

(My children (adults) remind me that I'm in pretty good shape for my age since my heart is good, liver is good, colon is good and I'm mobile. (I really am grateful for those things!)Of course, my kids don't wake up one day knowing that today they don't dare drive a car or use the microwave or kitchen range or walk very far from the front door. And, they don't look with longing at the steak knowing they better stick with a mashed potato because that's all that will make it through a painful mouth. Okay, I feel better. Just needed to vent. Thanks for listening. Now delete the post.DSK ~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found

useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~

*** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

>

> Hi,

> I'm Lin from Vienna/Austria.

> After " sniffing " Jo Malone's perfumes I couldn't go back to the

common

> dep.store perfumes anymore. The next step was Aftelier Pink Lotus and

> Cocoa (sent to me by a friend from AZ/USA), and then Mandy Aftel's

> book, which was as gripping for me as a crime book.

> My husband is French and just convinced him to go to Grasse for

> holiday. Which is in July (few days only) and September (2 weeks)

first

> but I'm excited already.

> It's 30 minutes after midnight here, so good night & read you soon

> again !

> lin

>

Welcome! I am very new here myself but you will simply LOVE this group!

So very helpful, kind and encouraging!

[Guest guest]

--- mbnmr <mbnmr@...> wrote:

> Hi,

> I'm Lin from Vienna/Austria.

> After " sniffing " Jo Malone's perfumes I couldn't go

> back to the common

> dep.store perfumes anymore. The next step was

> Aftelier Pink Lotus and

> Cocoa (sent to me by a friend from AZ/USA), and then

> Mandy Aftel's

> book, which was as gripping for me as a crime book.

> My husband is French and just convinced him to go to

> Grasse for

> holiday. Which is in July (few days only) and

> September (2 weeks) first

> but I'm excited already.

> It's 30 minutes after midnight here, so good night &

> read you soon

> again !

> lin

>

Hi Lin,

Welcome! How exciting to go to Grasse! I will get

there too one of these days. I have a little sample

of Mandy Aftel's Pink Lotus and I adore it. It's one

of the few perfumes that almost always fits my mood.

It's nice to have you here. Enjoy!

________________________________________________________________________________\

____

Sucker-punch spam with award-winning protection.

Try the free Beta.

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[Guest guest]

mbnmr <mbnmr@...> wrote: Hi,

I'm Lin from Vienna/Austria.

After " sniffing " Jo Malone's perfumes I couldn't go back to the common

dep.store perfumes anymore. The next step was Aftelier Pink Lotus and

Cocoa (sent to me by a friend from AZ/USA), and then Mandy Aftel's

book, which was as gripping for me as a crime book.

My husband is French and just convinced him to go to Grasse for

holiday. Which is in July (few days only) and September (2 weeks) first

but I'm excited already.

It's 30 minutes after midnight here, so good night & read you soon

again !

lin

Hi Lin and welcome.........lucky girl...... grasse..mmmmmmmmm def a port of

call. You are an hour ahead of the UK I know because of below. :-)

Vienna how lovely..... I have a very old friend, colleague and classical

composer, jazz musician Punshon who now lives there with his concert

flautist partner Karin Leitner....

Enjoy the files and links and I am sure others will welcome you too....the

IFRA 40th amendment is taking alot of energy so please vote if you havn't done

so already...

Kind Regards

Janita

htttp://www.hayspace.co.uk

http://www.janitasattars.blogspot.com

natural perfumery community group

---------------------------------

The all-new goes wherever you go - free your email address from

your Internet provider.

[Guest guest]

(Edited to correct toppost and snipped for brevity)

>

> Hi Lin and welcome.........lucky girl...... grasse..mmmmmmmmm def

a port of call. You are an hour ahead of the UK I know because of

below. :-)

>

> Vienna how lovely..... I have a very old friend, colleague and

classical composer, jazz musician Punshon who now lives there

with his concert flautist partner Karin Leitner....

>

> Enjoy the files and links and I am sure others will welcome

you too....the IFRA 40th amendment is taking alot of energy so

please vote if you havn't done so already...

>

Hi Janita,

thank you for the warmth welcome. Where are you from the UK exactly

from ? I love the south of England (oh, Sissinghurst garden, my

love). And no Briton yet could understand my love for Isle of Wight.

And London, of course (I'm off for London in May for a week, visiting

the Chelsea flower show).

I'm still fighting with the unflexibity of this forum and am pretty

lost. So i'm not sure i'm going to find the vote..., but i try.

love,

melinda

[Guest guest]

> Hi,

> I'm Lin from Vienna/Austria.

> <snip> My husband is French and just convinced him to go to Grasse

> for holiday.

Hello Lin,

Welcome to our wonderful group. How lucky for you to go to Grasse!

When I was there, I was with someone with severe allergies, so I had to

skip all the lovely perfume culture that was beckoning to me. Like

turning a kid loose in a candy store and telling them not to smell or

taste anything. : ( I do hope to get back one day! Although it's

months away, we'll be awaiting your fragrant travelogue following your

trip!

Cheers!

Andrine

[Guest guest]

On 14/02/07, mbnmr <mbnmr@...> wrote:

> I'm still fighting with the unflexibity of this forum and am pretty

> lost. So i'm not sure i'm going to find the vote..., but i try.

>

> love,

> melinda

Hi Melinda and welcome

If you are having difficulties posting or formatting your posts please

mail me (off list) and I will do what I can to help you.

Trimming posts of excess quoting & adverts, bottom posting and

changing subject lines keep the archives tidy and easy to search. Once

you start to use the groups archives, you will thank us for keeping a

tight ship on mail formatting ;-)

The petition against the IFRA 40th amendment is here :

http://www.ipetitions.com/petition/ifra40/index.html

The P & F poll is here :

http://www.perfumerflavorist.com/

HTH

LLx

(with her moderators hat on tonight.....)

[Guest guest]

Edited to trim and correct top post...

> When I was there, I was with someone with severe allergies, so I

had to

> skip all the lovely perfume culture that was beckoning to me. Like

> turning a kid loose in a candy store and telling them not to smell

or

> taste anything. : (

<snip>

Oh dear, going to Grasse - but no " sniff " allowed. that's not fair !

it's nice to get all these welcome mails - thank you !

[Guest guest]

the IFRA 40th amendment is taking alot of energy so

please vote if you havn't done so already...

>

Hi Janita,

thank you for the warmth welcome. Where are you from the UK exactly

from ?

I'm still fighting with the unflexibity of this forum and am pretty

lost. So i'm not sure i'm going to find the vote..., but i try.

love,

melinda

Hi Melinda

I live in a place called ' The marches ' which is on the borders of England

and Wales the herefordshire/welsh border just 5 miles into Wales in a place

called Felindre.....Hay-on-Wye is 5 miles away.... Brecon 12 and Hereford 25.

If you are having trouble finding the vote here is the url you can tap into

and vote ..... thanks for taking the time there has been more updates on this

site... it is early mornig here so my brain isn't in full gear so used the

cropwatch url....

http://www.cropwatch.org/

Janita

http://www.hayspace.co.uk

http://www.janitasattars.blogspot.com

natural perfumery communtiy group

---------------------------------

What kind of emailer are you? Find out today - get a free analysis of your

email personality. Take the quiz at the Championship.

[Guest guest]

Hi

Thanks for allowing me to join. I am 58 years old and have been on thyroxine

150 alternating with 125 for some years. It has not been perfect, in fact during

this time I have been diagnosed with ADHD, a diagnosis I sought due to my

deteriorating organisational skills and memory. I have used Ritalin but am not

using it now. I have had a very stressful two or three years, breaking both legs

and being denied morphine for eight hours after an operation on one of them, due

to NHS incompetence. Family troubles and a fighting a government campaign

against home educators which threatened to remove our human rights. I home

educate my 13 year old daughter which makes my present level of functioning

extremely distressing.

I have recently been feeling even worse than before my hypothyroid diagnosis,

falling asleep for hours in the day despite 9 hours sleep. I am very low and fed

up as I have been struggling to maintain a minimum of health and energy for so

long and feel like giving up but that just isn't possible. My eyebrows are

missing their outer hair again, i have put on a stone in 5 months and I have

developed asthma which makes exercise very difficult.

I have had blood taken for a number of things by my doctor but the results are

all " normal " .

Here are some of the results.

Ft4 24 (9-25)

TSH 0.10 (0.30-6.5)

Ft3 4.6 (3.5-6.5)

Ferritin 97 (10-420)

plasma c reactive protein <5 (-10 u)

If it is any use I can post urea and electrolytes and liver function.

He is referring me to a endocrinologist, a Dr H in Leicestershire, but I have no

idea when I will get an appointment.

I would be very grateful for any help as I am virtually non functional at the

moment.

Thanks Maire

[Guest guest]

Hello Maire and welcome to our forum where I hope you will get

all the help and support you so obviously need. First, congratulations on becoming

a home educator and I hope this brings your family great success. One of our

members went down this road and self educated her son here in the UK and her

son last year was accepted at Princeton University in the US - so keep up the

good work.

Many of the 2100 odd members here have joined because they

were/are unhappy with the way they have been treated (or not) by the NHS and

many are unable to regain their normal health on levothyroxine (T4) only

medication. This is because thyroxine is a mainly inactive thyroid hormone

(pro-hormone) that has to convert through the liver, kidneys, brain and other

thyroid hormone receptors throughout the body into the ACTIVE thyroid hormone

T3. It is T3 every cell in our body and brain needs to make them function and

not T4.

The only way that many patients can get through to their doctors

is by writing a letter and either delivering it by hand or posting it to their

GP sending a copy of that letter to the Head of Practice. Make absolutely

certain that you are making it clear to your doctor that you are no longer

prepared to put up with the symptoms you are suffering and that you will now do

everything within your power to get to the bottom of what is causing these and

then get on the correct treatment that will help you get well again.

Start off by listing every single symptom and sign. Leave

nothing out, however long the list grows. You can check these against those in

our web site under 'Hypothyroidism' in the Menu www.tpa-uk.org.uk .

Next, take your basal temperature for 4/5 mornings before you

get out of bed and list these if they are below 97.8 - as a temperature lower

than that indicates that you are still suffering with low metabolism and your

medication either needs titrating or needs to be changed to something else.

Next, list the blood tests you need done and ask for the results

to be either sent to you or left in reception so that you can pick them up, and

that you also need the reference range for each test done. First, start with

the thyroid function tests. You need TSH, free T4 and free T3. Your very high

free T4 result and low free T3 suggests very strongly that your T4 is NOT

converting to the active T3 and this could be the cause of all your problems.

Next, you need your levels of certain minerals and vitamins tested

because if any of the following are low in the reference range, your thyroid

hormone cannot be fully utilised at cellular level. I have listed alongside the

tests you need references to show the doctor the connection between these

levels and hypothyroidism:

·

Low iron/ferritin: http://www.thewayup.com/newsletters/081504.htm

and http://www.ithyroid.com/iron.htm

and http://www.femail.com.au/iron-levels-tony-pearce.htm

·

Low vitamin B12: http://www.ncbi.nlm.nih.gov/pubmed/18655403

·

Low vitamin D3: http://www.eje-online.org/cgi/content/abstract/113/3/329

and http://www.goodhormonehealth.com/VitaminD.pdf

·

Low magnesium: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC292768/pdf/jcinvest00264-0105.pdf

·

Low folate: http://www.clinchem.org/cgi/content/full/47/9/1738

and http://www.liebertonline.com/doi/abs/10.1089/thy.1999.9.1163

·

Low copper/zinc:http://www.istanbul.edu.tr/ffdbiyo/current4/07%20Iham%20AM%C4%B0R.pdf

and http://articles.webraydian.com/article1648-Role_of_Zinc_and_Copper_in_Effective_Thyroid_Function.html

Next,

you could, at this stage in the letter, ask for a trial of either synthetic T3

(Liothyronine) to be added to your levothyroxine, or a trial of natural thyroid

extract which contains all the thyroid hormones (T4. T3, T2, T1 and calcitonin,

but if your GP refuses to even consider this, then ask for a referral to

an endocrinologist of your choice as most endocrinologists have their specialty

in diabetes and know little about the symptoms of hypothyroidism. I have sent

you a list of doctors who treat using combination thyroid hormone therapy, so

choose one of those and give your GP the name and hospital address where the

consultant works. You do NOT have to see the endocrinologist your GP chooses.

Ask

your GP to work with you by reading the attached document (print this off and

send to him with your letter of requests) and by going through a process of

elimination, to help you to find the cause of your continuing ill health.

Send

a copy to the Head of Practice.

I have recently been feeling even worse than before my hypothyroid diagnosis,

falling asleep for hours in the day despite 9 hours sleep. I am very low and

fed up as I have been struggling to maintain a minimum of health and energy for

so long and feel like giving up but that just isn't possible. My eyebrows are

missing their outer hair again, i have put on a stone in 5 months and I have

developed asthma which makes exercise very difficult.

I have had blood taken for a number of things by my doctor but the results are

all " normal " .

Here are some of the results.

Ft4 24 (9-25)

TSH 0.10 (0.30-6.5)

Ft3 4.6 (3.5-6.5)

Ferritin 97 (10-420)

plasma c reactive protein <5 (-10 u)

1 of 1 File(s)

Why thyroid hormone stops working (2).doc

[Guest guest]

Hello Maire - many (the majority I guess) of us are all too

familiar with the symptoms you have developed and with the very low basal

temperature this would point to low adrenal fatigue. You should do the Adrenal

Questionnaire (also you might as well do the Candida and Magnesium

questionnaire also) that you will find in the FILES section of this forum's

Home Page. Look in the Menu http://health.groups//group.thyroid treatment

.. In the Page that opens, scroll down the list of FOLDERS until you find one

entitled 'Medical Questionnaires' and let us know exactly how you score. Your

answers will give you an indication of whether you should be properly tested

through Genova Diagnostics to see exactly where your cortisol and DHEA

levels lie at four specific times during the day. Low adrenal reserve is very much

overlooked by NHS doctors who ONLY believe in treating 's Disease (too

little or no cortisol secretion) or Cushing's Syndrome (too high a level of

cortisol secretion) and they refuse to acknowledge any steps leading up to either

of these conditions - so take it on board now, that if you do show as suffering

with adrenal fatigue, this will be something you are going to have to take on

board yourself, but it is not an onerous task.

Check out Dr Rind's Metabolic Chart and Temperature Graph - this

will be of enormous help http://www.drrind.com/therapies/metabolic-temperature-graph

.. Also read what Dr Peatfield writes about low adrenal reserve/thyroid

association so you fully understand the connection http://www.tpa-uk.org.uk/thyroid_adrenal_dysfunction.pdf

Sorry, reread your message and saw you are waiting for the

results of your 24 hour saliva test for your adrenals, so disregard most of

what is written above.

Let us know the results when you get them.

I guess it is your GP that needs the lobotomy - not you. Doesn't

he know that T3 is the active thyroid hormone and not T4? Also, just because

your GP has referred you to an endocrinologist, don't believe that s/he is an

'expert' because we have found the majority know little to nothing about thyroid

disease as their speciality more often than not is in diabetes. By the time you

get your appointment, you are quite likely to know a lot more about your

thyroid condition than s/he does.

Luv - Sheila

My temperature this morning was 35.7 which is 96.26, the lowest

yet, it is usually low which is strange as I often feel very hot and have to

throw my covers off or remove some clothes.

I am going to see Dr P on Sunday as

I expect the referral to the endochronologist to take months if other referrals

are representative. It is all a lot to take in, I will make an

appointment to ask for the blood tests below when I have seen him. I will

send the list and the to my gp before I go and to the Head of Practice.

I have done a saliva test which was picked up yesterday so

probably won't have the results by Sunday unfortunately.