Guest guest Posted April 4, 2011 Report Share Posted April 4, 2011 Hi Sian, Do you have hashimotos? Have you had a test for thryoid antibodies? When the thyroid is under attack, it can, if it is still capable, make more thyroid hormones to try to ward off an attack, this makes the tsh drop..... Some people get diagnosed wrongly at this point with hyperthyroidism, when in fact the state is temporary and soon returns back to hypo. . > > Hello All, I have been feeling particularly rubbish again in the last few weeks and i am getting bloods redone later in the week, however the GP said that she would have expected my bloods to have stabilised after 4 years on levothyroxine. (they have been up and down like a yo yo since diagnosis) Anyone any ideas what this could mean / signify?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2011 Report Share Posted April 4, 2011 Dear Sian A doctor cannot tell what is going on if they are only testing your thyroid stimulating hormone (TSH) only. TSH is NOT a thyroid hormone, it is a hormone secreted by the pituitary gland when it recognises either that your thyroid gland is not producing enough thyroid hormone - or there is insufficient thyroid hormone in your blood. If your thyroid gland is not producing sufficient thyroid hormone the pituitary secretes more TSH to tell the thyroid to secrete more - hence it rises. However, if the thyroid IS producing sufficient thyroid hormones but the thyroid hormone is not being properly utilised at the cellular level (meaning the mainly inactive T4 is not converting to the active T3), your TSH will also rise. If this is the case with you, then no matter how much levothyroxine your GP gives you, it will do you no good whatsoever, because what your body will be screaming out for is the active thyroid hormone T3. Ask your GP to give you a trial of T3, either synthetic, in combination with T4, T3 alone, or natural thyroid extract. If she is reluctant to go down this road, then ask to be referred to an endocrinologist of your choice, and if you need a list of 'good' doctors recommended by our members, let me know. Luv - Sheila Hello All, Just after some more of your informed opinions! Saw a new Doctor at my practice who when presented with my symptoms sat and went through my blood tests. In the last 10 months i have had the following TSH results all from ref range: 0.25 - 4.0 June 10 0.04 (dropped meds from 125 to 100 levo) Nov 10 4.43 (increased meds from 100 to 125) Jan 11 3.87 (maintained dose of 125) Mar 11 2.58 (maintained dose of 125) I have been feeling particularly rubbish again in the last few weeks and i am getting bloods redone later in the week, however the GP said that she would have expected my bloods to have stabilised after 4 years on levothyroxine. (they have been up and down like a yo yo since diagnosis) Anyone any ideas what this could mean / signify?? She has asked me to come back and see her when the latest results are back and if the bloods aren't the same as last test (which i am praying they are not) she will refer to a specialist (yaay!!- have been after this for the past year but been refused). I didn't even have to suggest it, it was all her idea which makes me feel even better. thanks in advance Sian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 Hi , i have had two antibodies tests done in last 4 years an both been ok. Prior to being diagnosed, probably 2 years before i could not gain weight and looking back was quite manic so believe i may have been hyperthyroid then but no medical proof! > > > > Hello All, > I have been feeling particularly rubbish again in the last few weeks and i am getting bloods redone later in the week, however the GP said that she would have expected my bloods to have stabilised after 4 years on levothyroxine. (they have been up and down like a yo yo since diagnosis) Anyone any ideas what this could mean / signify?? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 You need to have thyroid antibodies tested for on a very regular basis if your results come back negative. Coming back negative doesn't mean they don't exist, just that they are not active at that particular time. Luv - Sheila Hi , i have had two antibodies tests done in last 4 years an both been ok. Prior to being diagnosed, probably 2 years before i could not gain weight and looking back was quite manic so believe i may have been hyperthyroid then but no medical proof! Quote Link to comment Share on other sites More sharing options...
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